Comparing impact on the family and insurance coverage in children with cerebral palsy and children with another special healthcare need

2018 ◽  
Vol 44 (3) ◽  
pp. 370-377 ◽  
Author(s):  
B. Schaible ◽  
G. Colquitt ◽  
M. C. Caciula ◽  
A. Carnes ◽  
L. Li ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Insurance Coverage ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
Healthcare Need

Children with cerebral palsy: Family and parent demographic characteristics and family strengths in Greece and Italy

2020 ◽  
pp. 135910531990027
Author(s):  
Assimina Tsibidaki
Keyword(s):  
Cerebral Palsy ◽  
Data Collection ◽  
Well Being ◽  
Demographic Characteristics ◽  
Self Report ◽  
Family Strengths ◽  
Biological Child ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
High Sense

The study focuses on families raising a child with cerebral palsy to investigate family strengths and their association with family and parent demographic characteristics in Greece and Italy. Participants were 120 parents raising a biological child with cerebral palsy. Data collection used a self-report questionnaire and the Family Strengths Inventory. According to the findings, families share a high sense of family strengths, which is mainly represented in the high sense of ‘pride’ and ‘accord’. In addition, demographic characteristics seem to be important predictors of well-being and strengthen parents and families raising a child with cerebral palsy.

Psychosocial impact of caring for children with cerebral palsy on the family in a developing country

2015 ◽  
Vol 10 (02) ◽  
pp. 117-124
Author(s):  
Fatai Adeniyi ◽  
Chioma Obidiegwu ◽  
Omoyemi Ogwumike
Keyword(s):  
Cerebral Palsy ◽  
Developing Country ◽  
Psychosocial Impact ◽  
The Family ◽  
Children With Cerebral Palsy

scholarly journals Inclusão de Crianças com Paralisia Cerebral nos Anos Iniciais do Ensino Fundamental / Inclusion of Children with Cerebral Palsy in the Early Years of Elementary School

2021 ◽  
Vol 15 (58) ◽  
pp. 304-312
Author(s):  
Michele Vivia Da Silva Nascimento ◽  
Verônica Teixeira
Keyword(s):  
Cerebral Palsy ◽  
Early Years ◽  
Specific Training ◽  
Daily Lives ◽  
Knowledge And Skills ◽  
Education Professionals ◽  
Construction Of Knowledge ◽  
The Social ◽  
The Family ◽  
Children With Cerebral Palsy

Resumo: Esse trabalho irá mencionar assuntos bastante relevante, e que faz parte do nosso dia a dia em quando profissional da educação, como também formadores de cidadãos, falar de inclusão não é fácil, e principalmente colocá-la em prática. Mas é de suma importância, pois a educação é um direito de todos, e dever do Estado assegurar esse direito as crianças, jovens e adolescentes. Incluir ou inserir crianças diagnosticadas com Paralisia Cerebral no ambiente educacional é uma tarefa, um pouco complicada, pois requer um olhar diferenciado. Com isso, a escola precisa da ajuda da família nesse processo, como também da contribuição da comunidade em geral, pra trazer essas crianças pra esse ambiente, e assim desperta o conhecimento e as habilidades delas em questão cognitivo, emocional e afetivo, como também, o social. A visão que esse trabalho trará em seus pontos fundamentais e essenciais, na construção do saber e do fazer, uma educação inclusiva e acessiva de todos para todos; cabe os órgãos garantir formações específicas aos profissionais de educação, como os de apoios de sala de aula, sendo que, essas formações têm que abordar temas ligados a realidade do aluno que foram diagnosticados com tal deficiência.Palavras-Chave: Inclusão, Habilidades, Família, Direitos Deficiência Paralisia Cerebral. Abstract: This work will mention very relevant issues, which are part of our daily lives as education professionals, as well as citizen educators, talking about inclusion is not easy, and especially putting it into practice. But it is of paramount importance, as education is a right for all, and the State’s duty to ensure this right for children, young people and adolescents. Including or inserting children diagnosed with Cerebral Palsy in the educational environment is a task, a little complicated, as it requires a different look. With this, the school needs the help of the family in this process, as well as the contribution of the community in general, to bring these children to this environment, and thus awaken their knowledge and skills in cognitive, emotional and affective matters, as well as, the social. The vision that this work will bring in its fundamental and essential points, in the construction of knowledge and action, na inclusive and accessible education from all to all; it is up to the bodies to guarantee specific training for education professionals, such as classroom support, and these trainings have to address issues related to the reality of the student who has been diagnosed with such a disability.Keywords: Inclusion, Skills, Family, Rights Disability Cerebral Palsy.

Social and psychological aspects of readiness of parents for the involvement of children with cerebral palsy in adaptive physical education classes

2021 ◽  
Vol 2 (2) ◽  
pp. 65-72
Author(s):  
Tatiana V. Sviridova ◽  
Anna A. Kuzivanova ◽  
Yuliia G. Semenova ◽  
Arsenii A. Modestov
Keyword(s):  
Cerebral Palsy ◽  
Positive Impact ◽  
People With Disabilities ◽  
Physical Culture ◽  
National Medical ◽  
Adaptive Physical Education ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
Medical Indications ◽  
Positive Results

Introduction. Participation in the sports movement is an effective tool for the full-fledged socialization of people with disabilities. In this regard, one of the socially significant tasks of the state is to ensure the availability of conditions for practicing various sports and adaptive physical culture (APhC) for people with disabilities. Materials and methods. To study the socio-psychological readiness of the family to include a disabled child in APhC classes, a survey was conducted on 67 parents of children with cerebral palsy (CP). CP patients were observed at the National Medical Research Center of Children’s Health of the Ministry of Health of Russia in 2019-2020. The criteria for the inclusion of participants in the group of subjects were the informed consent of the parents, the presence of medical indications, and the absence of contraindications for the child to engage in APhC training. Results. There is presented objective data indicating a positive attitude of respondents to APhC as one of the most effective tools for the development of movements in children. The factors that determine the socio-psychological readiness of parents for this type of rehabilitation are awareness of the child’s health, emotional stability and focus on achieving positive results in the child’s socialization, sufficient adherence to treatment. Socio-psychological factors reducing the likelihood of including children in APhC classes include a pessimistic assessment of the child’s health and social prospects, insufficient awareness of the positive impact of APhC classes on the physical development of a CP child, an incomplete awareness of the institutions in which this type of assistance can be obtained, the place of residence, the low physical activity of parents. Conclusion. The study of the socio-psychological profiles of parents with different motivations for the participation of a CP child in APhC classes proves the need for a differentiated approach to the management of psychological and pedagogical work with parents.

Parental Acceptance of Children with Cerebral Palsy: A Family Counseling Approach

2021 ◽  
Vol 7 ◽  
pp. 00012
Author(s):  
Nurhastuti Nurhastuti ◽  
Kasiyati Kasiyati ◽  
Zulmiyetri Zulmiyetri ◽  
Irdamurni Irdamurni ◽  
Damri Damri ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Economic Condition ◽  
Family Counseling ◽  
Parental Acceptance ◽  
Counseling Service ◽  
Family Culture ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
Counseling Approach ◽  
Descriptive Statistical Analysis

Parents may feel a sense of despair when taking care of children with cerebral palsy. Some parents may even find difficulties in accepting the fact that their children were born with the disability. For this reason, needs analysis for parents of children with cerebral palsy is important by using a family counseling service that fits the family culture and socio-economic condition. This research aims to explain the parental needs of parents of children with cerebral palsy. This research used a quantitative approach by applying descriptive statistical analysis and was conducted in Padang with 21 samples of parents of children with cerebral palsy. The data of the research were obtained from questionnaires in a family counseling service for parents of children with cerebral palsy. Results of the research suggested that parental needs of parents with cerebral palsy involve several indicators: parental acceptance; factors influencing parental acceptance; parenting problems and challenges.

scholarly journals The Unmet Needs of Parents of Highly Dependent Children with Cerebral Palsy

2019 ◽  
Vol 16 (24) ◽  
pp. 5145
Author(s):  
Nor Azlin Mohd Nordin ◽  
Eyu Hui Shan ◽  
Asfarina Zanudin
Keyword(s):  
Cerebral Palsy ◽  
Unmet Needs ◽  
Dependent Children ◽  
Face To Face ◽  
The Social ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
Welfare Department ◽  
Area Of Concern

The overall care for children with cerebral palsy (CP) is challenging to the family which causes significant impacts to their livelihood. There is limited qualitative research that reports the unmet needs of parents with physically disabled children, especially highly dependent CP. The aim of this study was to explore the unmet needs of parents of highly dependent children with CP. A qualitative study using semi-structured face to face interviews was carried out among nine parents of children with CP with gross motor classification function score (GMFCS) levels III, IV, and V. The interviews were tape-recorded and transcribed verbatim. Transcribed data was analysed using thematic analysis method. Several unmet needs were highlighted by the parents; namely the needs in receiving information regarding CP conditions, getting psychological and financial support and explaining the child’s condition to strangers. In addition, parents expressed the need for better support from the social welfare department, as well as in effectively organising family functioning. The findings of this study indicate that there is a need for the healthcare professionals to develop suitable strategies to assist the parents of highly dependent children with CP in fulfilling their specific needs. The role of relevant agencies should be optimised in addressing this area of concern.

The Quality of Life of Polish Children with Cerebral Palsy and the Impact of the Disease on the Family Functioning

2019 ◽  
Vol 47 ◽  
pp. e75-e82 ◽  
Author(s):  
Aleksandra Kołtuniuk ◽  
Anna Rozensztrauch ◽  
Paulina Budzińska ◽  
Joanna Rosińczuk
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Family Functioning ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
The Impact
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