scholarly journals The Unmet Needs of Parents of Highly Dependent Children with Cerebral Palsy

2019 ◽  
Vol 16 (24) ◽  
pp. 5145
Author(s):  
Nor Azlin Mohd Nordin ◽  
Eyu Hui Shan ◽  
Asfarina Zanudin
Keyword(s):  
Cerebral Palsy ◽  
Unmet Needs ◽  
Dependent Children ◽  
Face To Face ◽  
The Social ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
Welfare Department ◽  
Area Of Concern

The overall care for children with cerebral palsy (CP) is challenging to the family which causes significant impacts to their livelihood. There is limited qualitative research that reports the unmet needs of parents with physically disabled children, especially highly dependent CP. The aim of this study was to explore the unmet needs of parents of highly dependent children with CP. A qualitative study using semi-structured face to face interviews was carried out among nine parents of children with CP with gross motor classification function score (GMFCS) levels III, IV, and V. The interviews were tape-recorded and transcribed verbatim. Transcribed data was analysed using thematic analysis method. Several unmet needs were highlighted by the parents; namely the needs in receiving information regarding CP conditions, getting psychological and financial support and explaining the child’s condition to strangers. In addition, parents expressed the need for better support from the social welfare department, as well as in effectively organising family functioning. The findings of this study indicate that there is a need for the healthcare professionals to develop suitable strategies to assist the parents of highly dependent children with CP in fulfilling their specific needs. The role of relevant agencies should be optimised in addressing this area of concern.

scholarly journals Inclusão de Crianças com Paralisia Cerebral nos Anos Iniciais do Ensino Fundamental / Inclusion of Children with Cerebral Palsy in the Early Years of Elementary School

2021 ◽  
Vol 15 (58) ◽  
pp. 304-312
Author(s):  
Michele Vivia Da Silva Nascimento ◽  
Verônica Teixeira
Keyword(s):  
Cerebral Palsy ◽  
Early Years ◽  
Specific Training ◽  
Daily Lives ◽  
Knowledge And Skills ◽  
Education Professionals ◽  
Construction Of Knowledge ◽  
The Social ◽  
The Family ◽  
Children With Cerebral Palsy

Resumo: Esse trabalho irá mencionar assuntos bastante relevante, e que faz parte do nosso dia a dia em quando profissional da educação, como também formadores de cidadãos, falar de inclusão não é fácil, e principalmente colocá-la em prática. Mas é de suma importância, pois a educação é um direito de todos, e dever do Estado assegurar esse direito as crianças, jovens e adolescentes. Incluir ou inserir crianças diagnosticadas com Paralisia Cerebral no ambiente educacional é uma tarefa, um pouco complicada, pois requer um olhar diferenciado. Com isso, a escola precisa da ajuda da família nesse processo, como também da contribuição da comunidade em geral, pra trazer essas crianças pra esse ambiente, e assim desperta o conhecimento e as habilidades delas em questão cognitivo, emocional e afetivo, como também, o social. A visão que esse trabalho trará em seus pontos fundamentais e essenciais, na construção do saber e do fazer, uma educação inclusiva e acessiva de todos para todos; cabe os órgãos garantir formações específicas aos profissionais de educação, como os de apoios de sala de aula, sendo que, essas formações têm que abordar temas ligados a realidade do aluno que foram diagnosticados com tal deficiência.Palavras-Chave: Inclusão, Habilidades, Família, Direitos Deficiência Paralisia Cerebral. Abstract: This work will mention very relevant issues, which are part of our daily lives as education professionals, as well as citizen educators, talking about inclusion is not easy, and especially putting it into practice. But it is of paramount importance, as education is a right for all, and the State’s duty to ensure this right for children, young people and adolescents. Including or inserting children diagnosed with Cerebral Palsy in the educational environment is a task, a little complicated, as it requires a different look. With this, the school needs the help of the family in this process, as well as the contribution of the community in general, to bring these children to this environment, and thus awaken their knowledge and skills in cognitive, emotional and affective matters, as well as, the social. The vision that this work will bring in its fundamental and essential points, in the construction of knowledge and action, na inclusive and accessible education from all to all; it is up to the bodies to guarantee specific training for education professionals, such as classroom support, and these trainings have to address issues related to the reality of the student who has been diagnosed with such a disability.Keywords: Inclusion, Skills, Family, Rights Disability Cerebral Palsy.

scholarly journals THE CHANGING INTERACTION PATTERNS IN FAMILY IN THE MOUNT OF KERINCI KAYU ARO AREA, KERINCI REGENCY, JAMBI PROVINCE

2021 ◽  
Vol 12 (2) ◽  
Author(s):  
Tri Nurza Rahmawati
Keyword(s):  
Sampling Technique ◽  
Interaction Patterns ◽  
Face To Face ◽  
Interactive Analysis ◽  
The People ◽  
Analysis Technique ◽  
The Social ◽  
The Family ◽  
Role Of Parents

This article explained and described the changing interaction patterns in the family in the Mount of Kerinci Kayu Aro area, Kerinci Regency, Jambi Province. The theory used in analyzing the research finding was the social changing theory by Veblen and Ogburn as technocrat in materialistic perspective. This research used descriptive qualitative approach and the informants were chosen by using purposive sampling technique. Data were collected through interview, observation, and documentation. Data were analyzed through interactive analysis technique proposed by Miles and Huberman consisting of data reduction, data display, and conclusion. Data showed that the people in the Kerinci mount area was a change of interaction from directly interaction (face to face) into gadget interaction. Therefore, it could be concluded that family function was decreased. It was caused by the using of gadget, thus the interaction of parents to their children was not run well, because communication, connection, support and role of parents were no longer maximally done. 

Children with cerebral palsy: Family and parent demographic characteristics and family strengths in Greece and Italy

2020 ◽  
pp. 135910531990027
Author(s):  
Assimina Tsibidaki
Keyword(s):  
Cerebral Palsy ◽  
Data Collection ◽  
Well Being ◽  
Demographic Characteristics ◽  
Self Report ◽  
Family Strengths ◽  
Biological Child ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
High Sense

The study focuses on families raising a child with cerebral palsy to investigate family strengths and their association with family and parent demographic characteristics in Greece and Italy. Participants were 120 parents raising a biological child with cerebral palsy. Data collection used a self-report questionnaire and the Family Strengths Inventory. According to the findings, families share a high sense of family strengths, which is mainly represented in the high sense of ‘pride’ and ‘accord’. In addition, demographic characteristics seem to be important predictors of well-being and strengthen parents and families raising a child with cerebral palsy.

The Moderation Role of Being Valued by Teachers Over the Association Between School Children Motivation and Need for Competition

SAGE Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. 215824402110441
Author(s):  
Cristina Maria Bostan ◽  
Tudor Stanciu ◽  
Răzvan-Lucian Andronic
Keyword(s):  
School Children ◽  
Social Constructivism ◽  
Social Economic ◽  
Economic Status ◽  
Well Being ◽  
Social Economic Status ◽  
Motivation For Learning ◽  
The Social ◽  
The Family

Concordant with classical theoretical guidelines (i.e., social facilitation, social constructivism theory, and the Pygmalion effect) we tested the need for competition and perception of being valued by teachers to be better motivated for learning in school. We extend knowledge by testing these associations mediated by the social economic status given by the well-being of the family (i.e., controlling for gender and socio-economic status). A total of 214 Romanian students (45.3% boys) with ages between 13 and 17 years were administered the PEER questionnaire (i.e., perception of being valued by teachers, school-children motivation, and the need for competition). Results show a positive relation between the need for competition and motivation for learning. We also found positive relations between the perception of being valued by the teacher and motivation for learning and the need for competition. We conclude that motivation is higher when the need for competition is higher and the perception of being valued by teachers is higher.

scholarly journals Experiences from families of children with cerebral paralysis in context of social vulnerability

2013 ◽  
Vol 21 (4) ◽  
pp. 956-963 ◽  
Author(s):  
Marja Rany Rigotti Baltor ◽  
Giselle Dupas
Keyword(s):  
Social Vulnerability ◽  
Support Networks ◽  
Analysis Method ◽  
Financial Difficulties ◽  
The Social ◽  
The Family ◽  
Cerebral Paralysis ◽  
Primary Carer ◽  
Data Result

OBJECTIVE: to describe and to analyze the experience from families of children with cerebral paralysis living under circumstances of social vulnerability. METHOD: six resident families in area with this characteristic were interviewed. It was opted to use the Symbolic Interactionism as theoretic reference and the Thematic Content Analysis of Bardin as analysis method for the data. RESULT: the experience of such families is represented in the subjects: Reorganizing the Life, with the categories "Discovering the way" and "Accommodating the routine", and Stopping a Constant Fight with the categories: "Primary Carer being overcharged", "Coexisting with the preconception", "Having locomotion difficulty" and "Living with financial difficulties". CONCLUSION: the social vulnerability influences how the family bears the chronic condition. Professionals and strategies of public health are a power to minimize impacts including those related to the family budget, but they have not been effective. They need to be sensitized to become supporting resources, to offer and to guide the access to the support networks and to spur the social service in action when necessary. This study adds knowledge to the already existing by pointing out peculiarities of the family experience in situations regarding two variables of difficult handling: chronicity and social vulnerability, evidencing the role of the professional in search of the solution for the confrontation of demands and sufferings together with the family.

scholarly journals SOCIAL NEUROCOGNITIVE ANALYSIS ON THE FAMILY ROLE IN FORMING A LESBIAN MINDSET

2020 ◽  
Vol 8 (1) ◽  
pp. 316-326
Author(s):  
Ambar Sulianti ◽  
Jamilah Laela Apriyani ◽  
Dadang Sahroni ◽  
Wida Adila ◽  
Yiyin Karlina ◽  
...  
Keyword(s):  
Sexual Orientation ◽  
Interpretative Phenomenological Analysis ◽  
Family Role ◽  
Research Subjects ◽  
The Social ◽  
The Family ◽  
Lesbian Community ◽  
The Subject ◽  
Close Family

Motivation/Background: The formation of a lesbian mindset does not happen immediately. This study aims to explore the process of family roles experienced by research subjects who have a lesbian sexual orientation even though it is not accordance with their religion. Method: The research method used was a qualitative research of phenomenology in two subjects who had lived lesbian sexual orientation for more than 2 years with different backgrounds. Interpretative Phenomenological Analysis was conducted to analyze the role of the family as a model, how the subject perceives the stimulus, direct or indirect environmental contributions, and how close family experiences form a lesbian mindset about the subject. Results: The results of this study indicate the subject "I" had a model of his father's behavior and reinforces the general perception of his mother that men had bad behavior. The social Environment made the subject felt ostracized and entered the domain of the lesbian community who can accept the subject with the circumstances as she was without much demand. A female friend in this environment became modes and informants experienced being lesbian. Meanwhile, "R" was growing psychologically with a style of parenting that is too spoiled by her mother and got a model and informants experienced from her older sister. Conclusions: Both subjects get different experiences in the process of forming a lesbian mindset. From a neurocognitive social perspective, the formation of a lesbian mindset is very complex. Neurocognitive response of the experience of getting too many rough touches or too long getting a hug of comfort, both can trigger perceptions that supported by the environment will form a lesbian mindset.

scholarly journals The function of the social networks of families of hospitalized children

2019 ◽  
Vol 23 (4) ◽  
Author(s):  
Rita de Cássia Melão de Morais ◽  
Tania Vignuda de Souza ◽  
Isabel Cristina dos Santos Oliveira ◽  
Juliana Rezende Montenegro Medeiros de Moraes ◽  
Elena Araújo Martinez ◽  
...  
Keyword(s):  
Social Networks ◽  
Social Network ◽  
Family Members ◽  
Main Role ◽  
Hospitalized Children ◽  
Pediatric Hospitalization ◽  
The Social ◽  
The Family ◽  
Main Components

ABSTRACT Objective: To analyze the role of the social network configured by the family/companion and their implications for their stay during the hospitalization of the child in the pediatric hospitalization unit. Method: Qualitative study with ten family members/companions of hospitalized children. Data collection was done through the technique of individual interview, which occurred in the period from February to December 2015. The analysis was thematic, in light of the theoretical reference of "Social Networks" described by Lia Sanicola. Results and discussion: The main role of the social network was emotional and material support, and the main components of this network were: companion, mother, aunt and daughter, as well as nursing team, physician and other family members/companions. Final considerations and implications for the practice: It was verified that the totality of the interviewees was female, however, the husband was the most important member of the social network for the family members involved, since they perform the material/financial and emotional function. In addition, the participants consider that they are responsible for all care to the family and, in the condition in that they are, they understand it as a favor provided by the other members of the network. Identifying the composition of the social networks of family members/companions provides a better targeting of care in order to strengthen the social support received.

scholarly journals THE ROLE OF THE FAMILY FOR GAINING SOCIAL EXPERIENCE AND ACQUIRING BEHAVIORAL MODELS AT PRE-SCHOOL AGE

2018 ◽  
Vol 28 (3) ◽  
pp. 915-919
Author(s):  
Krasimira Stefanova Petrova
Keyword(s):  
Social Environment ◽  
Modern Society ◽  
Research Problem ◽  
Social Experience ◽  
Educational Process ◽  
School Age ◽  
The Social ◽  
The Family ◽  
The Impact

Pre-school age is an intensive period in the life of a person which offers great potential for development. The dimensions of the impact of the social environment (children, parents and other adults) on the child’s personality are multifaceted. This accounts for the emphasis on social norms, goals and ideals. Education is the one factor that can best provide the socialization of adolescents.The changes in modern society have led to redefining the parenting patterns for bringing up children. The role of the family as an environment for transferring social experience has never lost its significance. Children need continuous care in order to handle societal failures; they need support for mastering the culture of behavior, as well as timely and appropriate help for ensuring conflict-free communication and for enabling them to take responsibility for their own choices and actions.Psychological studies show that various factors influence both the upbringing of children as well as the parents’ attitudes towardsthem. The relevant factors include: the childhood experiences of the parents; the unrealized needs of the parents; interpersonal relations in the family that are characterized by emotional depth and style that are considered to have established "a standard".The parameters of the actuality of the research problem are based on the interrelationship of the social and educational aspects that are related to the position of the child and his personal assertion in society:- Atpre-schoolage, thechildgraduallyfitsintothesocialsystem, whichistheresult of learningexperiences, actionsandrelationships, awarenessandrediscovery of theselfandtheworld of otherpeople.- Thechildbecomesaware of thenorms of behaviorandthemeaning of actions–their ownandother people’s - andlearns to takeresponsibilityfortheiractions.- Oneyearbeforeschool starts, the childdevelopstheability to accepttheposition of othersand to takeintoaccounttheirownandothers’perspective.- For a successfulpersonalrealization, itisimportantforchildren to havetheskills to worktogetherandcommunicatein a group. Thisisthecompetencethatdirectstheirbehaviortowardsco-ordination, co-operationandsynergy.The abovementioned specific features of the child's personality are the result of the intentional educational interactions between the kindergarten and the family and are related to the acquisition of knowledge, rules and norms, and of value-oriented patterns that define behavior. The foundations for thisare laid during the pre-school age and are considered the most stable and lasting, often referred to as the "basic personality structure". Along with them, the "behavioral potential" of the child, which is demonstrated at different ages, is shaped and developedthrough upbringing. Consequently, behavior is seen as a specific manifestation of the personality associated with its selective attitude towards the influence of various factors in the social environment. The direction of the educational activitiesinspires the motivation for personal behavior aiming at growth and self-actualization. Hence, the presence of a certain skill level which imposes a new approach to learning - replacing the mechanical reproduction with the acquisition of competences for and attitudes towards interaction in a changing environment. What is appropriate for achieving these goals is the applicationof functional models for cooperation, individualization and differentiation of the educational process. These ensure that the child is provided with conditions for activity and for mastering basic, sustainable rules for conscious participation and development that are important for the success of each of his activities. This is a type of social education that is achieved through exploring the social fabric andacquiring the skills for learning, choosing and communicating.

scholarly journals The Social Environment’s Relationship With Frailty: Evidence From Existing Studies

2017 ◽  
Vol 38 (1) ◽  
pp. 3-26 ◽  
Author(s):  
Daan Duppen ◽  
Michaël C. J. Van der Elst ◽  
Sarah Dury ◽  
Deborah Lambotte ◽  
Liesbeth De Donder ◽  
...  
Keyword(s):  
Social Support ◽  
Social Networks ◽  
Social Environment ◽  
Social Participation ◽  
Later Life ◽  
Informal Networks ◽  
Five Dimensions ◽  
The Social ◽  
The Family

Increasingly, policymakers assume that informal networks will provide care for frail older people. While the literature has mainly discussed the role of the family, broader social networks are also considered to be important. However, these social networks can diminish in later life. This systematic review investigates whether the social environment increases the risk of frailty or helps to prevent it. Findings from 15 original studies were classified using five different factors, which denoted five dimensions of the social environment: (a) social networks, (b) social support, (c) social participation, (d) subjective neighborhood experience, and (e) socioeconomic neighborhood characteristics. The discussion highlights that the social environment and frailty are indeed related, and how the neighborhood dimensions and social participation had more consistent results than social support and social networks. Conclusively, recommendations are formulated to contemplate all dimensions of the social environment for further research examining frailty and community care.

Sign in / Sign up

Export Citation Format

Share Document