Biobanking and Privacy Law in Brazil

2015 ◽  
Vol 43 (4) ◽  
pp. 714-725
Author(s):  
Sueli Gandolfi Dallari ◽  
Felipe Angel Bocchi Castellaro ◽  
Iara Coelho Zito Guerriero

Recent scientific and technological developments have promoted the emergence of biobanks on a population scale. Although the storage of human biological material has taken place for a long time, it is only recently that biobanks have acquired a broader scientific significance, especially for genomic research. The increase in biobanks creates many ethical dilemmas, such as the protection of privacy, and creates the need for a new regulatory framework, which must enable the sustainable development of biobanks while also protecting the rights of research subjects and biobank participants.

2018 ◽  
Vol 1 ◽  
pp. 36
Author(s):  
Ahmad Sudi Pratikno ◽  
Dewi Nurmasita

Social movement is an effort to provide benefits to others. However, within the context of cultivating the character, research on social movement through socio-drama based on local wisdom is very limited. This study aims to examine the increasing character of nationalism through social movements in the form of socio-drama. Research subjects were elementary and secondary students residing in rural area. This research used qualitative and descriptive method. Data collection techniques were documentations, observations, and interviews. The results showed that the increased character of nationalism only arise when playing socio-drama only, they would return to the previous character. Cultivating the character values need a long time, so the change of character did not necessarily happen.


Author(s):  
Allan C. de Oliveira ◽  
Antonio Carlos Fernandes

The ship-rolling problem is a subject that has been studied for a long time. Since Froude's time (in the 19th century) to nowadays, this subject was revisited several times in order to adjust the theory to changes in ship hulls, dimensions, materials, appendages, etc. On the other hand, ship analysis technological resources, including both experimental techniques and computational capacity (that did not exist in Froude's time), have also amazingly improved. But despite all those technological developments, the assessment of the nonlinear roll damping of some types of hulls still is a challenging problem. The floating production storage and offloading (FPSO) hull fitted with larger bilge keels, for instance, has behaved in such a way that it is impossible to obtain results from nowadays industry standards via decaying tests. This paper discusses an alternative way to assess the nonlinear damping behavior of FPSO hulls with large bilge keels. Since it is fairly easy to perform decaying tests, the paper also proposes an alternative way to analyze the FPSO properties through this kind of testing by grouping multiple results instead of using only a single test. This artifice brought improvements, such as an increased agreement between the alternative model and the experimental data. The paper also compares the more traditional approaches with the alternative method and finally shows the latter's applicability.


Author(s):  
Dewi Endah Fajariana

The flow of globalization has no longer stopped entering Indonesian territory accompanied by increasingly sophisticated technological developments, the world is now entering the industrial revolution era 4.0. Facing these challenges, universities are required to change, including in producing quality bachelor candidates for future generations. The target of these changes is students in universities, because future job competency needs are cognitive abilities, physical abilities, content skills, process skills, social skills, system skills, complicated problem solving skills, resource management skills and technical skills. Therefore, an innovative lecture is needed so that students do not feel bored and are able to master the science and technology received at college with stable emotional intelligence. Innovative lectures are the delivery of lecture materials using learning models so that students are not bored because the majority of STKIP students, especially economic education, work. This type of research uses a qualitative descriptive approach. Research that intends to understand the phenomenon of what is experienced by research subjects students who contract subjects of microeconomic theory, the Indonesian economy and the introduction of economics A and B.


Author(s):  
Mingxing Chen ◽  
Hua Zhang ◽  
Yinghua Gong

In recent years, fast demographic transition, urbanizationand socio-economic development in China draws attention of the world. The reproduction type of Chinese population has changed from “high rate of birth, high rate of death, and low rate of natural growth” to “low rate of birth, low rate of death, and low rate of natural growth”, which promotes the population transition, bringing the problems of aging of population. In China, the scale of aged population is large, and its developing speed is fast. Along with the increasing of aged population in China, the advantage of labor quantity in China is challenged. China regards new urbanization as the important work content of state in the future for a long time, providing a large opportunity for the study in the field of urbanization. For China, new urbanization plan is just a beginning. The sustainable development of Chinese population and urbanization has important meaning in the world.


Author(s):  
Luppicini Rocci

A major struggle within our evolving knowledge society is that increasingly potent scientific and technological growth is forcing individuals to re-examine how technology is viewed. This is especially salient in the pure and applied sciences where technological developments offer ways to surpass current human capacities and affect life in ways that were not imaginable fifty years ago. New breakthroughs in medicine, information and communication technology, transportation and industry are juxtaposed with growing needs to deal with moral and ethical dilemmas associated with new technological developments. Increased reliance on new technology creates fundamental challenges revolving around security and privacy issues, access issues to education and health care, legal issues in online fraud and theft, employer and government surveillance, policies issues in creating and implementing ethical guidelines and professional codes of conduct, along with ethical dilemmas in a number of vital areas of research and development.


2019 ◽  
Vol 55 ◽  
pp. 29-35 ◽  
Author(s):  
Anna Sundby ◽  
Merete Watt Boolsen ◽  
Kristoffer Sølvsten Burgdorf ◽  
Henrik Ullum ◽  
Thomas Folkmann Hansen ◽  
...  

AbstractBackground:Genomic sequencing plays an increasing role in genetic research, also in psychiatry. This raises challenges concerning the validity and type of the informed consent and the return of incidental findings. However, no solution currently exists on the best way to obtain the informed consent and deliver findings to research subjects.Aims:This study aims to explore the attitudes among potential stakeholders in psychiatric genomic research toward the consenting procedure and the delivery of incidental findings.Methods:We developed a cross-sectional web-based survey among five groups of stakeholders. A total of 2637 stakeholders responded: 241 persons with a mental disorder, 671 relatives, 1623 blood donors, 74 psychiatrists, and 28 clinical geneticists.Results:The stakeholders wanted active involvement as 92.7% preferred a specific consent and 85.1% wanted to receive information through a dynamic consent procedure. The majority of stakeholders preferred to receive genomic information related to serious or life-threatening health conditions through direct contact (69.5%) with a health professional, i.e. face-to-face consultation or telephone consultation (82.4%). Persons with mental disorders and relatives did not differ in their attitudes from the other stakeholder groups.Conclusion:The findings illustrate that the stakeholders want to be more actively involved and consider consent as a reciprocal transaction between the involved subjects and the researchers in the project. The results highlight the importance of collaboration between researchers and clinical geneticists as the latter are trained, through their education and clinical experience, to return and explain genomic data to patients, relatives, and research subjects.


2011 ◽  
Vol 20 (4) ◽  
pp. 572-583 ◽  
Author(s):  
JAN REINERT KARLSEN ◽  
JAN HELGE SOLBAKK ◽  
SØREN HOLM

The ongoing legal and bioethics debates on consent requirements for collecting, storing, and utilizing human biological material for purposes of basic and applied research—that is, genomic research biobanking—have already managed to pass through three ostensibly dissimilar stages


2014 ◽  
Vol 11 ◽  
pp. 87-95 ◽  
Author(s):  
Marcella De Martino

Recent years have witnessed a profound evolution of ports, induced by a wide range of factors, such as: (a) technological developments in shipping, cargo-handling and storage equipment, and information and communication systems; (b) changing patterns of international trade; (c) a broadening complexity of global supply chains; and (d) a changing governance models of the port as a consequence of the process of privatization in Europe. The growing size and complexity of port functions have inspired an ever more interesting and useful scientific debates on the social, economic and environmental effects of these transformations, and, more specifically, on the relationship between the port and the city. The paper addresses, to this end, an emerging managerial perspective in the decision making process of Port Authority: the network. This perspective allows to understand the nature of relationship networks shaping the competitive and cooperative dynamics of the port and to identify the boundaries for an active role of the Port Authority in defining the sustainable development of port within its own territory.


2012 ◽  
Vol 610-613 ◽  
pp. 3747-3751 ◽  
Author(s):  
Mei Ping Sun ◽  
Chun Yan Shi ◽  
Hai Ying Li

In recent years, marine oil spill is frequent and seriously threats to the sustainable development of coastal areas and marine environment. Large Marine oil spill is difficult to clean up and pollution range is large, lasting for a long time, for the biological and ecological environment destruction, particularly serious. It is very important to take corresponding measures that how to quickly master the location of the oil spill when this event occurs. Satellite remote sensing has advantages of large, multi-temporal, all-weather, real-time, quick and economic and has become an important means of monitoring marine oil spill, playing an important role in the monitoring of marine oil spill treatment. This paper illustrates by Penglai 19-3 oil spill accident, using MODIS remote sensing data, the use of the Robert operator, Sobel operator, Laplacian operator and LOG operator to extract the oil spill edge, and extraction accuracy of the comparison and analysis.


2019 ◽  
Vol 12 (2) ◽  
pp. 61-78
Author(s):  
Sayed Sikandar Shah Haneef ◽  
Mohd Abbas Abdul Razak

Technological developments in the domain of fertility treatment in spite of thier utilitarian uses come with a plethora of ethico-religious challenges for people of faith particularly if they contradict some of their core religious values and beliefs about human procreation. The most disruptive among such challenges is declaring parental choice of a specific gender to their future offspring as part of their reproductive liberty (right). As to how major semitic religions, such as Christionaity and Islam respond to it, the answer is polemical. Christianity genrally objects to it mainly because it turns procreation into a manufacturing business instead of leaving the sex of a baby to God. The Islamic position, on the other hand, is less rigid as the majority of Sunni Muslim legists, without much reflections on its ethical dilemmas, approve it not only for medical reason but also family balancing while dissenting views among them consider it a direct affront on what God has declard to be His domain of perfection of human procreation. This paper, therefore, argues that defining parents` decision on sexing a “right” or “liberty” is difficult to maintain unless a far-fetched perspective of scriptural texts is adopted.


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