scholarly journals POS0160-HPR THE CARE PROCESS OF HIP AND KNEE OSTEOARTHRITIS: GIVING AN ACCOUNT OF PATIENTS’ EXPERIENCE

2021 ◽  
Vol 80 (Suppl 1) ◽  
pp. 292.2-293
Author(s):  
S. Battista ◽  
M. Manoni ◽  
A. Dell’isola ◽  
M. Englund ◽  
A. Palese ◽  
...  

Background:The care process is often a complex and intimate process experienced by patients. Osteoarthritis (OA) care is usually characterised by multimodal interventions that consider the broader array of symptoms and functional limitations and often require a high level of patients’ compliance. Despite efforts to improve the quality of care of patients suffering from OA, and the publication of state-of-the-art clinical practice guidelines [1], the quality of the care process, as experienced by patients, seems to be suboptimal [2]. Hence, it is essential to investigate how patients experience this process to highlight potential elements that can enhance or spoil it to optimise the care quality.Objectives:To explore the patients’ experience of the received OA care process.Methods:Qualitative study, 10 semi-structured interviews were performed. The interview guide was created by a pool of healthcare professionals (physiotherapists, psychologists, nurses) and expert patients. It investigated the emotional experience, beliefs, expectations, perceived barriers and facilitators towards conservative treatments perceived by patients suffering from OA. The interviews lasted approximately one hour, were transcribed verbatim and analysed independently by two authors, who labelled their core parts to find categories and subcategories. A theme-based analysis was performed following an ecological paradigm, naturalistic epistemology, philosophy of phenomenological research.Results:Our analysis revealed 7 main categories with several subcategories (Fig. 1). 1) Uncertainty as some patients perceived treatment choice not to be based on medical evidence “there is an almost religious way of thinking on how to deal with the pathology. It is not an exact science when you choose the physicians you choose the treatment”. 2) Relationship with the self and the others as some patients did not feel understood or even shameful and hopeless about their condition. 3) Patients’ and Health Professionals’ beliefs about the pathology management where common thoughts were the perceived (ab)use of passive therapies, the movement as something dangerous and that OA is “something that you try to resist to, but (surgery) is your destiny”. 4) facilitators and 5) barriers of the adherence to therapeutic exercise that revolve around the cost of the therapy, the time needed and the willingness to change life habits. 6) Patients’ attitudes towards pathology in which the oldest patients perceive OA as “something I have to accept since I am getting old” and the youngest as “Something I have to fight”. 7) Relationship with food in which diet is seen as something that “you force yourself to follow” which is useful only to lose weight and not to preserve a high health status and where overeating is used “to eat your feelings”.Figure 1.Categories and Subcategories stemmed from the analysis of the patients’ interviewsConclusion:Patients suffering from hip and knee OA seem to experience an uncertain care process. The lack of clear explanations and the attitude towards conservative treatment, which is considered as “a pastime while waiting for surgery,” fosters the importance of providing patients with adequate information about the treatment, to shift their beliefs and improve their awareness. This will enhance a patient-centred and shared decision-making treatments.References:[1]Fernandes L, Hagen KB, Bijlsma JWJ, et al. EULAR recommendations for the non-pharmacological core management of hip and knee osteoarthritis. Ann. Rheum. Dis. 2013;72:1125–35.[2]Basedow M, Esterman A. Assessing appropriateness of osteoarthritis care using quality indicators: a systematic review. J Eval Clin Pract 2015;21:782–9.Acknowledgements:This work is part of the project funded by EULAR Health Professionals Research Grant 2020.Disclosure of Interests:None declared

Author(s):  
Eduardo Osuna ◽  
Antonio Pérez-Carrión ◽  
María D. Pérez-Cárceles ◽  
Francisco Machado

The information process is considered a core element in decision-making and an obligatory matter of concern for the health professional. Rather than information per se, we should perhaps mention the need for communication between the health professional and the patient, which should be appropriate to each specific case and situation. Interaction and communication during the relationship generates a degree of trust that contributes to improving care quality and health-related results. The aim of this study is to know the perception of professionals on the quality of communication and its impact on the decision-making process of the patient and the degree of involvement of health professionals in the process of communication with the patient. A sample of 2186 health professionals (1578 nurses, 586 physicians, and 22 pharmacists) was studied. A questionnaire composed of 20 items dealing with the process of communication with the patient and obtaining informed consent was administered. Our study revealed the high consideration that professionals hold of their communication skills with patients since almost 80% of those surveyed, think they are sufficiently skilled in this area. Professionals refers that nurses are most skilled at communicating with patients. Communication in the clinical relationship must not only serve as a way for the professional to obtain information from the patient on their pathology, but also as a means to inform patients so that they understand their illness. Patients also like to feel that they are being listened to and are co-participants in the care process. Communication should be a continuous object of study for all health professionals, both in primary and specialised attention.


2020 ◽  
Vol 20 (1) ◽  
Author(s):  
N’doh Ashken Sanogo ◽  
Arone Wondwossen Fantaye ◽  
Sanni Yaya

Abstract Background Access to affordable and adequate healthcare in a health system determines the universal health coverage achievement for all residents in a country. Achieving access to healthcare requires the availability of a financing system that ensures access to and provision of adequate care, regardless of the ability to pay. In sub-Saharan Africa, accessibility, use and coverage of prenatal visits are very low and poor, which reduces the quality of care. This paper explored the impact of a social health insurance scheme on the quality of antenatal care in Gabon. Methods This qualitative study involved the analysis of data collected from semi-structured interviews and non-participant observations to assess the quality of antenatal care. The study elicited perceptions on the demand side (pregnant women) and the supply side (health professionals) in health facilities. Fifteen semi-structured interviews were conducted with pregnant women (aged between 15 and 49) and 5 with health professionals, who each had a seniority of at least 10 years, at different levels of care. Nine non-participant observations were also conducted. Coded transcripts were reviewed and analyzed using the Canadian Institute for Public Administration of Citizen-Centered Services model as an analytical guide. Results On the demand side, women were generally satisfied with the prenatal services they receive in health facilities. However, complaints were made about the rudeness of some nurses, the high price of the delivery kit (50,000 XAF), and the fact that some essential medicines for maternity are not covered. On the supply side, participants agreed that compulsory health insurance is important in providing antenatal care access to those who need it the most. However, some problems remain. The participants outlined some logistical problems and a lack of medical equipment, including the stock of drugs, disinfectants, and the absence of clean water. Conclusion Understanding the perceptions of pregnant women and health professionals regarding the quality of antenatal care can help to inform refinements to methods through which the services can be better provided. In addition, the study findings are vital to increasing the use of care, as well as combating high maternal mortality rates. Compulsory health insurance has improved the accessibility and utilization of healthcare services and has contributed to improved quality of care.


2021 ◽  
Vol 3 (1) ◽  
pp. 9-15
Author(s):  
Khaled Awawdi ◽  
Carmel Armon ◽  
Itzhak Kimiagar ◽  
Mahdi Tarabeih ◽  
Riad Abu Rakia

Background: In 2013 the Israel Ministry of Health identified the care and treatment of acute cerebral ischemic stroke as failing to achieve expected standards. The Ministry decided to raise standards by defining and instituting, nationwide, a battery of linked care quality indicators to be applied across all relevant facilities and contexts. Five indicators were selected for five key junctures in the AIS care process. Methods: This paper presents and analyses the effects of the implementation of these new care quality indicators on the post-discharge quality of life outcomes of Israeli stroke sufferers. The patient sample comprises patients from Israel’s Central region, where stroke care provision and access is relatively high, and from the peripheral North region, where provision and access are limited. Results: Those who were not treated with thrombolytic treatment and/or cerebral blood vessel catheterization, those who suffered severer strokes, women, the older age groups, non-Jews and North region residents display significantly worse physical functioning outcomes and worse quality of life outcomes on all indicators. Conclusions: Stroke care access and provision disparities translate into significantly higher rates of post-discharge disability, impaired physical and social functioning, and a lower quality of life. The effectiveness of healthcare improvement by the deployment of care indicators is closely associated with the lifestyle, socio-demographic and socioeconomic status of different population groups. The effective implementation of quality care indicators also relies heavily on closing the access and provision gaps between the populations living in central and peripheral areas. Two obvious directions for action are to expand and improve the rehabilitation care network and to combat the age discrimination in hospital stroke treatment.


2014 ◽  
Vol 1 (1) ◽  
pp. 069-073
Author(s):  
Suprajitno Suprajitno ◽  
Mujito Mujito ◽  
Eva Latifa Lestari Dewi S

The quality of service have to be started from the need of patient and ended on patient satisfaction. Nursing service can be evaluated by patient satisfaction with RATER dimension. Method: Research design was descriptive exploratorative. Research subject was 30 patients whose check in Poli Penyakit Dalam RSD Mardi Waluyo Blitar, and who was selected using quota sampling technique. Collecting data was structured interviews with help the check list. The interviewer only puts the sign of Ö (check) at appropriate patient answer. Instrument of data collecting was 20 questions items based on the quality of RATER dimension. Result: The nursing service quality in Poli Penyakit Dalam RSD Mardi Waluyo Blitar based on RATER dimension was in bravo position, which means what the customers got is suitable with the patient’s expectation. Discussion: To maintain and improve the quality of nursing care quality, assessment needs to be done periodically and enhanced for in-patient ward.


2020 ◽  
Vol 19 (4) ◽  
pp. 697-704
Author(s):  
Asmaa Zaidouni ◽  
Fatima Ouasmani ◽  
Amal Benbella ◽  
Fouad Ktiri ◽  
Zakaria Abidli ◽  
...  

Context: Infertility is one of the most painful experiences that can have a negative impact in many areas of an individual’s life. Providing quality care to infertile couples requires health professionals to explore their experiences and needs to plan effective supportive interventions. Objectives: To explore the experiences and needs of Moroccan infertile couples in Assisted Reproductive Technology. Material and Methods: This is a qualitative exploratory study. It involves 40 infertile couples (men and women) and 5 health professionals as key informants. Infertile couples were selected among those attending the first public center for Assisted Reproductive Technology in Morocco located in Rabat during the period 2017-2018. In-depth unstructured interviews, field notes were used with couples and semi-structured interviews with health professionals. The analysis of the interview data was based on a conventional content analysis method. Results: Five types of needs were identified among infertile Moroccan couples, namely: i. Infertility and social support; ii. Infertility and financial support; iii. Infertility and spiritual support; iv. Infertility and informational support; v. Infertility and emotional support. Conclusion: Infertile moroccan couples experienced many emotional, psychosocial and economic difficulties that can negatively affect their quality of life. Thus, to meet the needs and expectations of these couples alongside their medical treatment, it’s necessary to develop couple-centered approaches, which can improve their quality of life, treatment outcomes and mitigate negative psychosocial consequences. Bangladesh Journal of Medical Science Vol.19(4) 2020 p.697-704


2020 ◽  
pp. 1-22
Author(s):  
Jordan Boeder ◽  
Sarah Hwang ◽  
Thomas Chan

Abstract The objective of this study was to examine the activities, motivations, and barriers of activity engagement in the oldest-old residing in assisted living facilities (ALFs). Semi-structured interviews were conducted with 20 participants, aged 80–94 (standard deviation = 4.38), from two ALFs. Thematic analyses were used to identify and corroborate clusters of experiences. All residents stated that they desired enriching activities, most often in the form of productive work or community events. Although engaging in enriching activities was a universal desire, residents who experienced more functional limitations had an increased difficulty satisfying this need. Participants believed that activities offered by the ALF primarily served those who are cognitively impaired. ALF residents with severe mobility issues were not able to access more enriching activities outside the ALF compared to those with fewer physical limitations. However, the more physically impaired residents used a range of adaption methods that fit into the selection, optimisation, and compensation framework to overcome barriers to participate in meaningful activities. ALF residents who are cognitively fit but experience severe mobility limitations may be the most in need of enriching activities. To help these residents maintain a high quality of life, ALFs need to provide activities that appeal to residents of varying cognitive abilities and provide interventions to help aid their adaption to physical loss.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Brigitte Lalude Asante ◽  
Franziska Zúñiga ◽  
Lauriane Favez

Abstract Background Leadership has a vital role regarding quality of care in nursing homes. However, few studies have explored upper-level managers’ views on how to assure that residents receive high quality of care. Therefore, this study’s aim was to examine how managers of top-quality nursing homes define, develop and maintain high-quality of care. Method We used interpretive description, an inductive, qualitative approach. Our research included 13 semi-structured interviews with 19 managers. We analyzed their input using reflexive thematic analysis, which is an iterative approach. Results Quality development and maintenance are cyclic processes. Managers in high-performing nursing homes lead with high commitment towards a person-centred quality of care, creating appropriate working conditions and continuously co-creating a vision and the realization of quality of care together with employees. Conclusions This study confirms that, in high-performing nursing homes, a person-centered approach—one where both residents and employees are at the center—is essential for quality development and maintenance. The most effective managers exemplify “person centeredness”: they lead by example and promote quality-focused working conditions. Such strategies motivate employees to provide person-centered care. As this means focusing on residents’ needs, it results in high care quality.


2019 ◽  
Vol 13 (4) ◽  
pp. 1071
Author(s):  
Caroline Salvador ◽  
Emilli Viana ◽  
Patricia Fernanda Dorow ◽  
Rita De Cássia Flôr ◽  
Laurete Medeiros Borges ◽  
...  

RESUMOObjetivo: identificar os cuidados de Enfermagem Oncológica em Radioterapia. Método: trata-se de um estudo qualitativo, descritivo, realizado em um centro de tratamento oncológico referência com três enfermeiras. Coletaram-se os dados mediante entrevistas semiestruturadas por meio de um roteiro e analisados a partir da técnica de Análise de Conteúdo. Resultados: extraíram-se as expressões-chave e ideias centrais, emergiram três categorias que desenharam a atuação do enfermeiro: a) Equipe multidisciplinar envolvida na radioterapia; b) O processo de trabalho das enfermeiras em radioterapia; e, c) As práticas para amenizar os efeitos colaterais da radioterapia Conclusão: ressaltam-se que os cuidados oncológicos em radioterapia consistem em ações individualizadas que, auxiliam diretamente na prevenção, minimização e/ou tratamento das reações adversas causadas pelo tratamento, articulados promovem melhor qualidade de vida do paciente oncológico. Descritores: Enfermagem Oncológica; Cuidados de Enfermagem; Radioterapia; Enfermagem Radiológica e de Imagem; Cuidados com a Pele; Qualidade de Vida. ABSTRACT Objective: to identify the care of Oncology Nursing in Radiotherapy. Method: this is a qualitative, descriptive study performed at a referral center for cancer treatment with three nurses. The data were collected through semi-structured interviews through a script and analyzed using the Content Analysis technique. Results: key expressions and central ideas were extracted, three categories emerged that designed the nurse's performance: a) Multidisciplinary team involved in radiotherapy; b) The work process of the nurses in radiotherapy; and c) Practices to mitigate the side effects of radiotherapy Conclusion: it is emphasized that oncological care in radiotherapy consists of individualized actions that directly aid in the prevention, minimization and / or treatment of the adverse reactions caused by the treatment, articulations promote better quality of life of cancer patients. Descriptors: Nursing Oncology; Nursing care; Radiotherapy; Radiological and Image Nursing; Skin care; Quality of Life.RESUMEN Objetivo: identificar los cuidados de Enfermería Oncológica en Radioterapia. Método: se trata de un estudio cualitativo, descriptivo, realizado en un centro de tratamiento oncológico referencia con tres enfermeras. Se recolectaron los datos mediante entrevistas semiestructuradas por medio de un guion y analizados a partir de la técnica de Análisis de Contenido. Resultados: se extrajeron las expresiones clave e ideas centrales, surgieron tres categorías que diseñaron la actuación del enfermero: a) Equipo multidisciplinario involucrado en la radioterapia; b) el proceso de trabajo de las enfermeras en radioterapia; y c) las prácticas para amenizar los efectos colaterales de la radioterapia Conclusión: se resalta que los cuidados oncológicos en radioterapia consisten en acciones individualizadas que, auxilian directamente en la prevención, minimización y / o tratamiento de las reacciones adversas causadas por el tratamiento, articulados promueven mejor calidad de vida del paciente oncológico. Descritores: Enfermería Oncológica; Cuidado de Enfermera; Radioterapia; Enfermería Radiológica y de Imágenes; Cuidado de la Piel; Calidad de Vida.


2021 ◽  
Vol 20 (2) ◽  
pp. 426-452
Author(s):  
María del Mar Alfaya-Góngora ◽  
María Angustias Sánchez-Ojeda ◽  
Miguel Ángel Gallardo-Vigil ◽  
Silvia Navarro-Prado

Objetivo: Conocer las características del proceso de final de vida en un Hospital Comarcal, según los actores implicados, estableciendo los elementos de convergencia/divergencia en el proceso asistencial, toma de decisiones, información y conocimientos. Método: Estudio observacional, transversal, descriptivo, convergente y analítico de métodos mixtos y triangulación de datos. Se realizó sobre una muestra de 63 sujetos, de los que 25 fueron profesionales, 19 familiares cuidadores y 19 historias clínicas de pacientes fallecidos a lo largo de un año.Resultados: La triangulación de datos muestra discrepancias entre familiares y profesionales de salud en cuanto a la calidad de la asistencia y la información facilitada. Destaca la falta de registro en las historias clínicas revisadas sobre aspectos del proceso asistencial relacionados con la toma de decisiones o la sedación terminal.Conclusión: Este estudio proporciona una visión integrada sobre la atención sanitaria en el proceso de final de vida prestada en un Hospital Comarcal. Muestra áreas prioritarias de intervención, para mejorar la calidad de vida en este proceso, como son la implicación del paciente en la toma de decisiones, la cumplimentación adecuada en las historias clínicas y la formación de los profesionales. Objective: To know the characteristics of the end-of-life process in a Regional Hospital, according to the actors involved, establishing convergence/divergence elements in care process, decision-making, information and knowledge.Method: Observational, cross-sectional, descriptive, convergent of mixed methods and data triangulation study. Carried out on a sample of 63 subjects, of which 25 were health professionals, 19 family caregivers and 19 medical records of patients who died in the course of a year.Results: Data triangulation shows discrepancies between family members and health professionals regarding care quality and the information provided. The lack of documentation in medical records of care aspects related to decision-making or terminal sedation stands out.Conclusion: This study provides an integrated view of end-of-life care provided in a Regional Hospital, identifying priority areas of intervention in order to improve quality of life in this process, such as patient involvement in decision-making, appropriate completion of medical records and health professional training.


2021 ◽  
Author(s):  
Lisa Friedlander ◽  
Caroline Nguyen ◽  
Elisabeth Celestin ◽  
Delphine Chambolle ◽  
Agnès Linglart ◽  
...  

Abstract Background. X-linked hypophosphatemia (XLH) is a rare, hereditary, progressive, and lifelong phosphate wasting disorder characterized by pathological elevations in fibroblast growth factor (FGF) 23 serum concentration and activity. In the oral cavity, spontaneous abscesses can occur often without any clinical signs of alteration of the causal tooth. The objective of our study was to evaluate the readability of the oral care pathway and the oral quality of life of patients followed in an expert oral medicine department located within a Parisian hospital and working in close collaboration with an endocrinology department expert in this pathology. Methods. This study employed a qualitative descriptive design including semi-structured interviews using guiding themes. Results. Twenty-one patients were included in the study, with an average age of 28 years. The topics discussed exceeded the initial objectives as the patients largely addressed the alteration of their oral and general quality of life, a very chaotic oral health care pathway with oral health professionals not aware of their pathology, consequences on their social, professional, and school integration and access to care complicated by financial factors. Patients reported the importance of having a multidisciplinary team around them, including medical and dental professionals.Conclusions. The variety of manifestations in patients with XLH necessitates a high coordination of multidisciplinary patient care to optimize quality of life and reduce disease burden. Education of oral health professionals on this disease is essential to enable patients to receive the best possible care as early as possible.


Sign in / Sign up

Export Citation Format

Share Document