A LOCAL SURVEY AMONGST 92 PATIENTS WITH MULTIPLE SCLEROSIS: WHAT CAN WE LEARN ABOUT THIS POPULATION'S DISEASE MANAGEMENT? HOW SATISFIED ARE PATIENTS WITH OUR SERVICE?

2015 ◽  
Vol 86 (11) ◽  
pp. e4.4-e4
Author(s):  
James Bashford ◽  
Eli Silber

In order to better inform local clinical practice, we collected primary data from our local MS population. We addressed important aspects concerning relapse management, bone health, mental health, sphincter dysfunction, symptom burden, recognition of comorbidities and pharmacological treatment. An emphasis was placed on discovering the extent of patient satisfaction with the local service.An 11-page patient questionnaire was distributed to consecutive consenting patients attending the MS clinic. A supplemental questionnaire was provided to those patients on regular natalizumab therapy. In total, 92 full and 22 natalizumab questionnaires were completed.Two particular areas highlighted for improvement with regards to patient management and patient education were bone and mental health:1. Only 26% of respondents confirmed having had a dual-energy X-ray absorptiometry (DEXA) scan. When asked if reduced ability in MS is an important risk factor for osteoporosis, only 44/92 patients confirmed they thought this was true.2. In the last year, 41% and 58% of respondents have suffered from depression and anxiety, respectively. Despite this, only a third of these patients received any treatment (pharmacological or non-pharmacological) for anxiety, depression or both.Encouragingly, 95% of those surveyed would recommend our MS service to a friend or family member.

2015 ◽  
Vol 22 (5) ◽  
pp. 685-693 ◽  
Author(s):  
Kyla A. McKay ◽  
Helen Tremlett ◽  
John D. Fisk ◽  
Scott B. Patten ◽  
Kirsten Fiest ◽  
...  

Background: Depression and anxiety are common among people with multiple sclerosis (MS), as are adverse health behaviours, but the associations between these factors are unclear. Objective: To evaluate the associations between cigarette smoking, alcohol use, and depression and anxiety in MS in a cross-Canada prospective study. Methods: From July 2010 to March 2011 we recruited consecutive MS patients from four MS clinics. At three visits over two years, clinical and demographic information was collected, and participants completed questionnaires regarding health behaviours and mental health. Results: Of 949 participants, 75.2% were women, with a mean age of 48.6 years; most had a relapsing−remitting course (72.4%). Alcohol dependence was associated with increased odds of anxiety (OR: 1.84; 95% CI: 1.32–2.58) and depression (OR: 1.53; 95% CI: 1.05–2.23) adjusting for age, sex, Expanded Disability Status Scale (EDSS), and smoking status. Smoking was associated with increased odds of anxiety (OR: 1.29; 95% CI: 1.02–1.63) and depression (OR: 1.37; 95% CI: 1.04–1.78) adjusting for age, sex, EDSS, and alcohol dependence. Alcohol dependence was associated with an increased incidence of depression but not anxiety. Depression was associated with an increased incidence of alcohol dependence. Conclusion: Alcohol dependence and smoking were associated with anxiety and depression. Awareness of the effects of adverse health behaviours on mental health in MS might help target counselling and support for those ‘at risk’.


2018 ◽  
Vol 30 (4) ◽  
pp. 466-473 ◽  
Author(s):  
Ana Torres-Costoso ◽  
Dimitris Vlachopoulos ◽  
Esther Ubago-Guisado ◽  
Asunción Ferri-Morales ◽  
Iván Cavero-Redondo ◽  
...  

Purpose: The present study aims to investigate the association between dual-energy X-ray absorptiometry (DXA) and quantitative ultrasound (QUS) parameters and the intermethods agreement in active males. Methods: In this cross-sectional study, bone health (by DXA and calcaneal QUS), physical activity (by accelerometers), and anthropometrics measurements were assessed in 117 active adolescents (12–14 y old). Bivariate correlation coefficients were calculated to assess the relationships between DXA standard regions of interest and QUS parameters. Intraclass correlation coefficients and Bland–Altman plots were used to assess the level of agreement between bone mineral content regions derived from DXA and stiffness index. The measurements were z score transformed for comparison. Results: Most QUS parameters were positive and significantly correlated with DXA outcomes (stiffness index: r = .43–.52; broadband ultrasound attenuation: r = .50–.58; speed of sound: r = .25–.27) with the hip showing the highest correlations. Moreover, the present study found fair to good intraclass correlation coefficients of agreement (.60–.68) between DXA and QUS to assess bone health. The Bland–Altman analysis showed a limited percentage of outliers (3.2%–8.6%). Conclusion: QUS device could represent an acceptable alternative method to assess bone health in active adolescent males.


2018 ◽  
Vol 37 (2) ◽  
pp. 687-694 ◽  
Author(s):  
Esther Neelis ◽  
Noortje Rijnen ◽  
Johanna Sluimer ◽  
Joanne Olieman ◽  
Dimitris Rizopoulos ◽  
...  

2021 ◽  
Vol 12 ◽  
Author(s):  
Christina Andersson ◽  
Cecilia U. D. Stenfors ◽  
Peter Lilliengren ◽  
Stefan Einhorn ◽  
Walter Osika

ObjectiveBenevolence is an emerging concept in motivation theory and research as well as in on pro-social behavior, which has stimulated increasing interest in studying factors that impair or facilitate benevolence and effects thereof. This exploratory study examines the associations between benevolence, stress, mental health, self-compassion, and satisfaction with life in two workplace samples.MethodsIn the first study n = 522 (38% = female, median age = 42) participants answered questionnaires regarding self-reported stress symptoms (i.e., emotional exhaustion), depressive symptoms and benevolence. In the second study n = 49 (female = 96%) participants answered questionnaires regarding perceived stress, self-compassion, anxiety, depression symptoms, and benevolence.ResultsIn study 1, measures of emotional exhaustion (r = −0.295) and depression (r = −0.190) were significantly negatively correlated with benevolence. In study 2, benevolence was significantly negatively correlated with stress (r = −0.392) and depression (r = −0.310), whereas self-compassion (0.401) was significantly positively correlated with benevolence. While correlations were in expected directions, benevolence was not significantly associated with Satisfaction with Life (r = 0.148) or anxiety (r = −0.199) in study 2.ConclusionSelf-assessed benevolence is associated with levels of perceived stress, exhaustion, depression, and self-compassion. Future studies are warranted on how benevolence is related to stress and mental ill health such as depression and anxiety, and if benevolence can be trained in order to decrease stress and mental ill health such as depression and anxiety in workplace settings.


Cureus ◽  
2019 ◽  
Author(s):  
Farah Anwar ◽  
Hiba Iftekhar ◽  
Tasneem Taher ◽  
Syeda K Kazmi ◽  
Fatima Z Rehman ◽  
...  

2020 ◽  
Vol 50 (12) ◽  
pp. 1781-1787
Author(s):  
David J. Fennimore ◽  
Maria Digby ◽  
Margaret Paggiosi ◽  
Paul Arundel ◽  
Nick J. Bishop ◽  
...  

Abstract Bone health in children with osteogenesis imperfecta is monitored using radiographs and dual-energy X-ray absorptiometry, which have limitations. High-resolution peripheral quantitative CT can non-invasively derive bone microarchitectural data. Children with severe osteogenesis imperfecta have fragile deformed bones, and positioning for this scan can be difficult. We assessed the feasibility of high-resolution peripheral quantitative CT in nine children aged 9–15 years with osteogenesis imperfecta and compared results with dual-energy X-ray absorptiometry and with healthy controls. All nine recruited children were successfully scanned and showed no preference for either modality. It therefore appears feasible to perform high-resolution peripheral quantitative CT in children with osteogenesis imperfecta aged 9 years and older. Future studies should focus on understanding the clinical implications of the technology in this patient cohort.


2021 ◽  
Author(s):  
Nick Boettcher

BACKGROUND The study of depression and anxiety using publicly available social media data is a research activity that has grown considerably over the last decade. The discussion platform Reddit has become a popular social media data source in this nascent area of study, in part because of the unique ways in which the platform is facilitative of research. To date, no work has been done to synthesize existing studies of depression and anxiety using Reddit. OBJECTIVE The objective of this review is to understand the scope and nature of research using Reddit as a primary data source for studying depression and anxiety. METHODS A scoping review was conducted using the Arksey and O’Malley framework. Academic databases searched include MEDLINE/PubMed, EMBASE, CINAHL, PsycINFO, PsycARTICLES, Scopus, ScienceDirect, IEEE Xplore, and ACM database. Inclusion criteria were developed using the Participants/Concept/Context framework outlined by the Joanna Briggs Institute Scoping Review Methodology Group. Eligible studies featured a methodological focus on analyzing depression and/or anxiety using naturalistic written expressions from Reddit users as the primary data source. RESULTS 54 Studies were included for review. Tables and corresponding analysis delineate key methodological features including a comparatively larger focus on depression versus anxiety, an even split of original and premade datasets, a favored analytic focus on classifying the mental health states of Reddit users, and practical implications often recommending new methods of professionally-driven mental health monitoring and outreach for Reddit users. CONCLUSIONS Studies of depression and anxiety using Reddit data are currently driven by a prevailing methodology which favors a technical, solution-based orientation. Researchers interested in advancing this research area will benefit from further consideration of conceptual issues surrounding interpretation of Reddit data with the medical model of mental health. Further efforts are also needed to locate accountability and autonomy within practice implications suggesting new forms of engagement with Reddit users.


2015 ◽  
Vol 84 (10) ◽  
pp. 1999-2003 ◽  
Author(s):  
Charlotte M. Nusman ◽  
Janneke Anink ◽  
Marieke H. Otten ◽  
Marion A.J. van Rossum ◽  
Rick R. van Rijn ◽  
...  

2018 ◽  
Vol 49 (3) ◽  
pp. 372-378 ◽  
Author(s):  
Khalaf Alshamrani ◽  
Fabrizio Messina ◽  
Nick Bishop ◽  
Amaka C. Offiah

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