scholarly journals Looking Beyond GINA: Policy Approaches to Address Genetic Discrimination

2020 ◽  
Vol 21 (1) ◽  
pp. 491-507 ◽  
Author(s):  
Yann Joly ◽  
Charles Dupras ◽  
Miriam Pinkesz ◽  
Stacey A. Tovino ◽  
Mark A. Rothstein

Concerns about genetic discrimination (GD) often surface when discussing research and innovation in genetics. Over recent decades, countries around the world have attempted to address GD using various policy measures. In this article, we survey these approaches and provide a critical commentary on their advantages and disadvantages. Our examination begins with regions featuring extensive policy-making activities (North America and Europe), followed by regions with moderate policy-making activities (Australia, Asia, and South America) and regions with minimal policy-making activities (the Middle East and Africa). Our analysis then turns to emerging issues regarding genetic testing and GD, including the expansion of multiomics sciences and direct-to-consumer genetic tests outside the health context. We additionally survey the shortcomings of current normative approaches addressing GD. Finally, we conclude by highlighting the evolving nature of GD and the need for more innovative policy-making in this area.

2021 ◽  
Author(s):  
Geoff Kaine ◽  
Suzie Greenhalgh ◽  
Vic Wright

Governments around the world are seeking to slow the spread of Covid-19 by implementing measures that encourage, or mandate, changes in people's behaviour. These changes include the wearing of face masks, social distancing, and testing and self-isolating when unwell. The success of these measures depends on the commitment of individuals to change their behaviour accordingly. Understanding and predicting the motivation of individuals to change their behaviour is therefore critical in assessing the likely effectiveness of these measures in slowing the spread of the virus. In this paper we draw on a novel framework, the I3 Compliance Response Framework, to understand and predict the motivation of residents in Auckland, New Zealand, to comply with measures to prevent the spread of Covid-19. The Framework is based on two concepts. The first uses the involvement construct to predict the motivation of individuals to comply. The second separates the influence of the policy measure from the influence of the policy outcome on the motivation of individuals to comply. The Framework differentiates between the strength of individuals' motivation and their beliefs about the advantages and disadvantages of policy outcomes and policy measures. We show this differentiation is useful in predicting an individual's possible behavioural responses to a measure and how it assists government agencies to develop strategies to enhance compliance.


2019 ◽  
Vol 17 (4) ◽  
pp. 225-239 ◽  
Author(s):  
Lulu Zuo ◽  
Ke Peng ◽  
Yihong Hu ◽  
Qinggang Xu

AIDS is a globalized infectious disease. In 2014, UNAIDS launched a global project of “90-90-90” to end the HIV epidemic by 2030. The second and third 90 require 90% of HIV-1 infected individuals receiving antiretroviral therapy (ART) and durable virological suppression. However, wide use of ART will greatly increase the emergence and spreading of HIV drug resistance and current HIV drug resistance test (DRT) assays in China are seriously lagging behind, hindering to achieve virological suppression. Therefore, recommending an appropriate HIV DRT method is critical for HIV routine surveillance and prevention in China. In this review, we summarized the current existing HIV drug resistance genotypic testing methods around the world and discussed the advantages and disadvantages of these methods.


2021 ◽  
Vol 12 (1) ◽  
pp. 26-44
Author(s):  
Emilia KORKEA-AHO ◽  
Martin SCHEININ

In the coronavirus pandemic that has swept the world, the Finnish Government, like many of its peers, has issued policy measures to combat the virus. Many of these measures have been implemented in law, including measures taken under the Emergency Powers Act, or by ministries and regional and local authorities exercising their legal powers. However, some governmental policy measures have been implemented using non-binding guidelines and recommendations. Using border travel recommendations as a case study, this article critically evaluates governmental soft law-making. The debacle over the use of soft law to fight the pandemic in Finland revealed fundamental misunderstandings about the processes and circumstances under which instruments conceived as soft law can be issued, as well as a lack of attention to their effects from a fundamental rights perspective.


npj Vaccines ◽  
2021 ◽  
Vol 6 (1) ◽  
Author(s):  
Nikolaos C. Kyriakidis ◽  
Andrés López-Cortés ◽  
Eduardo Vásconez González ◽  
Alejandra Barreto Grimaldos ◽  
Esteban Ortiz Prado

AbstractThe new SARS-CoV-2 virus is an RNA virus that belongs to the Coronaviridae family and causes COVID-19 disease. The newly sequenced virus appears to originate in China and rapidly spread throughout the world, becoming a pandemic that, until January 5th, 2021, has caused more than 1,866,000 deaths. Hence, laboratories worldwide are developing an effective vaccine against this disease, which will be essential to reduce morbidity and mortality. Currently, there more than 64 vaccine candidates, most of them aiming to induce neutralizing antibodies against the spike protein (S). These antibodies will prevent uptake through the human ACE-2 receptor, thereby limiting viral entrance. Different vaccine platforms are being used for vaccine development, each one presenting several advantages and disadvantages. Thus far, thirteen vaccine candidates are being tested in Phase 3 clinical trials; therefore, it is closer to receiving approval or authorization for large-scale immunizations.


1966 ◽  
Vol 8 (2) ◽  
pp. 168-180 ◽  
Author(s):  
Matthew Holden

I. The Political Meaning of Ethnic ConflictIf politics “in its broadest sense” is conceived as the “distribution of advantages and disadvantages among people” (Froman, p. 3), then the ultimate penalty is subordination (total exclusion from advantages) and the ultimate reward is dominance (total monopoly of advantages). The effort to change the balance of advantages and disadvantages between groups is the nexus of political conflict. In such conflict, ethnicity is a particularly important variable, precisely because it is one criterion found throughout the world by which groups are regularly assigned superior and inferior places.


2009 ◽  
Vol 8 (3) ◽  
pp. 379-389 ◽  
Author(s):  
Gill Scott ◽  
Gerry Mooney

Drawing on current debates in social policy, this paper considers the extent to which social justice has and is informing social policy making in devolved Scotland. Relating to the work of social justice theorists Young, Fraser and Lister in particular, it critically examines some key Scottish social policy measures since 1999, considering some of the ways in which these have been constructed in terms of social justice and which make claims to the Scottish national. Through a focus on the issue of anti-poverty policies, the paper explores the ways in which the dominant policy approaches of the Scottish Government have reflected an uneven and tension-loaded balance between the enduring legacies of Scottish social democracy and the influences of neoliberal economics.


1990 ◽  

The World Tourism organization (UNWTO) has initiated study programme on tourism to the year 2000 as part of its general work programme requested by members. The general objective of the study programme is specified as being: To identify the major trends in tourism supply and demand worldwide and by region and their impact on the various sectors of tourism trades; together with implications for policy making and relevant strategies.


2021 ◽  
Vol 2 (1) ◽  
pp. 25-33
Author(s):  
Otabek Allayarov ◽  
◽  
Hasan Yarbaev

The articledescribes thatit is impossible the development of society without the development of science, in this senseour state pay attention to in the field of science in the context of science and social-political reform, spiritual renewalasin all countries of the world. Scientifically and practically defined the role of information technology in the development of science and technology, as well as the creation of effective mechanisms for stimulating research and innovation, the introduction of science and innovation achievements. Moreover, the role and significance of information technology in the development of scientific research in the field of technologywas stated


2018 ◽  
Vol 7 (4) ◽  
pp. 167
Author(s):  
Ha Thi Thuy Van ◽  
Vu Thi Kim Anh ◽  
Nguyen Dang Huy

Currently, the Ministry of Finance is implementing Decision 480/QD-TTG dated 03/18/2013 of The Prime Minister on approving the Strategy Accounting - Audit 2020, Vision 2030 and implementing the Resolution 35/NQ-CP of the Government dated 16.05.2016 related to the support and development of enterprises by 2020. Accordingly, the development and improvement the legal framework of Financial Reporting standards in Vietnam is one of the key tasks and urgent needs to be developed to meet the requirements of the economy in the period of integration. The system of International Accounting Standards, including the International Accounting Standards (IAS) and the standards of international financial reporting (IFRS) was issued, adjusted, updated and replaced by The International Accounting Standards Board. International Accounting Standards is an important condition to ensure that companies and organizations around the world can apply uniform accounting principles in the work of preparing and presenting financial statements. Currently, many countries around the world such as USA, Japan and European countries, Asia Pacific are approaching IFRS convergence trend. In the trend of globalization of accounting, Vietnam will not be outside the process of integration with the system of International Financial Reporting Standards. This article will review the process of formation and development of IFRS, the IFRS trends and the advantages and disadvantages of applying IFRS in Vietnam. 


Sensors ◽  
2018 ◽  
Vol 18 (10) ◽  
pp. 3423 ◽  
Author(s):  
Shrikant Warkad ◽  
Satish Nimse ◽  
Keum-Soo Song ◽  
Taisun Kim

According to the World Health Organization (WHO), 71 million people were living with Hepatitis C virus (HCV) infection worldwide in 2015. Each year, about 399,000 HCV-infected people succumb to cirrhosis, hepatocellular carcinoma, and liver failure. Therefore, screening of HCV infection with simple, rapid, but highly sensitive and specific methods can help to curb the global burden on HCV healthcare. Apart from the determination of viral load/viral clearance, the identification of specific HCV genotype is also critical for successful treatment of hepatitis C. This critical review focuses on the technologies used for the detection, discrimination, and genotyping of HCV in clinical samples. This article also focuses on advantages and disadvantages of the reported methods used for HCV detection, quantification, and genotyping.


Sign in / Sign up

Export Citation Format

Share Document