scholarly journals Compassion Fatigue: An Application of the Concept to Informal Caregivers of Family Members with Dementia

2011 ◽  
Vol 2011 ◽  
pp. 1-10 ◽  
Author(s):  
Jennifer R. Day ◽  
Ruth A. Anderson
Keyword(s):  
At Risk ◽  
Compassion Fatigue ◽  
Qualitative Interviews ◽  
Informal Caregivers ◽  
Family Members ◽  
Future Research ◽  
Nursing Interventions ◽  
Traumatic Memories ◽  
Nursing Literature ◽  
The Impact

Introduction. Compassion fatigue is a concept used with increasing frequency in the nursing literature. The objective of this paper is to identify common themes across the literature and to apply these themes, and an existing model of compassion fatigue, to informal caregivers for family members with dementia.Findings. Caregivers for family members with dementia may be at risk for developing compassion fatigue. The model of compassion fatigue provides an informative framework for understanding compassion fatigue in the informal caregiver population. Limitations of the model when applied to this population were identified as traumatic memories and the emotional relationship between parent and child, suggesting areas for future research.Conclusions. Research is needed to better understand the impact of compassion fatigue on informal caregivers through qualitative interviews, to identify informal caregivers at risk for compassion fatigue, and to provide an empirical basis for developing nursing interventions for caregivers experiencing compassion fatigue.

Understanding the Experiences of Anger in the Onset and Progression of Psoriasis: A Qualitative Study Using Social Media (Preprint)

2021 ◽  
Author(s):  
Olivia Hughes ◽  
Rachael Hunter
Keyword(s):  
Social Media ◽  
Qualitative Interviews ◽  
Psychosocial Interventions ◽  
Skin Condition ◽  
Future Research ◽  
Social Media Platforms ◽  
Chronic Skin ◽  
Skin Conditions ◽  
The Impact

BACKGROUND Psoriasis is a chronic inflammatory skin condition, which can be affected by stress. Living with psoriasis can trigger negative emotions, which may influence quality of life. OBJECTIVE This study explored the experiences of people with psoriasis with attention to the potential role of anger in the onset and progression of the chronic skin condition. METHODS Semi-structured qualitative interviews were conducted with twelve participants (n=5 females, n=7 males) recruited online from an advert on a patient charity’s social media platforms. Data were transcribed and analysed using thematic analysis. RESULTS Four key themes were identified: (1) ‘I get really angry with the whole situation:’ anger at the self and others, (2) the impact of anger on psoriasis: angry skin, (3) shared experiences of distress, and (4) moving past anger to affirmation. CONCLUSIONS Findings suggest that anger can have a perceived impact on psoriasis through contributing to sensory symptoms and unhelpful coping cycles and point to a need for enhanced treatment with more psychological support. The findings also highlight the continued stigma which exists for people living with skin conditions and how this may contribute to, and sustain, anger for those individuals. Future research could usefully focus on developing targeted psychosocial interventions to promote healthy emotional coping with psoriasis.

scholarly journals Social media: an exploration of the outcomes of social media use for homeless youth

2021 ◽  
Author(s):  
Jennifer Donath
Keyword(s):  
Social Media ◽  
Young Adults ◽  
Mobile Device ◽  
Homeless Youth ◽  
Qualitative Interviews ◽  
Daily Basis ◽  
Future Research ◽  
The Internet ◽  
The Impact ◽  
The City

The purpose of this project was to explore how young adults are experiencing relationships when using social media. Using a qualitative design young adults between the ages of 16-25 were asked questions about their experience with social media in the city of Toronto. Qualitative interviews were conducted with three homeless participants who used social media and had access to the internet and a mobile device. The researcher analyzed the data by looking for themes within the participant’s answers. Discussion focuses on the impact of social media, their experiences as a homeless youth and the interaction with social media on a daily basis. The findings also suggest future research for technology amongst homeless youth

High-Tech Workers, Management Strategy, and Globalization

2011 ◽  
pp. 42-57
Author(s):  
Jasmine Folz
Keyword(s):  
At Risk ◽  
Management Strategy ◽  
Qualitative Interviews ◽  
High Tech ◽  
Foreign Workers ◽  
Contingent Employment ◽  
Cost Cutting ◽  
Management Policies ◽  
The Impact ◽  
Policies And Practices

Based on qualitative interviews with Seattle area high-tech workers, this chapter explores their positioning within and reaction to globalization processes. Looking especially as cost-cutting labor strategies of contingent employment, importation of foreign workers, and the outsourcing of professional high-tech work, it is argued that these are essentially restrictive employment strategies that benefit employers at the expense of employees. While some of the interviewees more or less approved of these practices as logical from the corporate perspective, and were confident that their jobs were too complex to be at risk, most are questioning these processes and some were actively trying to organize in an effort to halt or at least slow down such trends. How and why high-tech workers accommodate or resist management policies and practices they disagree with is analyzed with attention to the impact of ideology.

Preparation for Caregiving: A Study of Multigeneration Families

1996 ◽  
Vol 42 (1) ◽  
pp. 43-63 ◽  
Author(s):  
S. Sörensen ◽  
S. H. Zarit
Keyword(s):  
Decision Making ◽  
Frail Elderly ◽  
Family Members ◽  
Future Research ◽  
Care Provision ◽  
Need For Care ◽  
Mothers And Daughters ◽  
Research And Practice ◽  
Future Care ◽  
The Impact

The impact of providing care to the frail elderly on individual caregivers and their families has been discussed at length, but few researchers have investigated (he events and circumstances preceding the onset of caregiving. In addition, although there is evidence that several family members are usually involved in planning and decision making about caregiving, the majority of studies in this area include only one generation. Based on a larger theoretical framework of preparation for caregiving [1, 2], the extent to which family members anticipate and plan for future caregiving is investigated. In addition, the extent to which they are satisfied with these preparations is studied. Interviews were conducted with mothers, daughters, and granddaughters in thirty-three multigeneration families. While substantial numbers of both mothers and daughters anticipated the need for care for the oldest generation, few made concrete plans about how to organize future care provision. Planners were more satisfied with the amount of discussion and planning in their family than non-planners. Implications for future research and practice applications are discussed.

The emergence of personal growth amongst healthcare professionals who care for dying children

2017 ◽  
Vol 16 (3) ◽  
pp. 298-307 ◽  
Author(s):  
Laura Beaune ◽  
Barbara Muskat ◽  
Samantha J. Anthony
Keyword(s):  
Compassion Fatigue ◽  
Personal Growth ◽  
Healthcare Professionals ◽  
Qualitative Interviews ◽  
Secondary Analysis ◽  
Well Being ◽  
Three Dimensions ◽  
Positive Effects ◽  
Dying Children ◽  
The Impact

ABSTRACTObjective:Compassion fatigue, burnout, and vicarious traumatization are prominent topics in the current literature on the impact of the rewarding but challenging work of healthcare professionals who care for patients with life-limiting illnesses. The positive effects of caregiving constitute a newly emerging outcome that has been relatively unexplored in the pediatric literature, and yet they may play an important role in contributing to the satisfaction and well-being of the healthcare professionals who care for children who have a life-limiting illness.Method:This paper reports the results of a secondary analysis of qualitative interview transcripts that explored the experiences of hospital-based pediatric healthcare providers caring for children with varied life-limiting illnesses. In-depth qualitative interviews were conducted with 25 healthcare professionals (9 social workers, 8 nurses, and 8 physicians). The majority of participants were women (80%), with an age range between 20 and 60 years, and most (84%) had the experience of caring for more than 15 dying children. Thematic analysis was conducted using interpretive description and constant comparison.Results:Every healthcare professional interviewed experienced personal growth as a result of their providing care for dying children. Three dimensions of personal growth were most consistently reported: (1) new or altered life perspectives, (2) enhanced personal resources, and (3) benevolence.Significance of results:A deeper understanding of the phenomenon of personal growth could help healthcare organizations to implement innovative approaches that would counterbalance compassion fatigue, and thereby enhance both healthcare provider well-being and child and family outcomes.

scholarly journals Impact of Telemedicine Use by Oncology Physicians on the Patient and Informal Caregiver Experience of Receiving Care: Protocol for a Scoping Review in the Context of COVID-19

10.2196/25501 ◽  
2020 ◽  
Vol 9 (12) ◽  
pp. e25501
Author(s):  
Maclean Thiessen ◽  
Andrea Michelle Soriano ◽  
Hal John Loewen ◽  
Kathleen Margaret Decker
Keyword(s):  
Health Care Providers ◽  
Scoping Review ◽  
Information Needs ◽  
Informal Caregivers ◽  
Cochrane Library ◽  
Future Research ◽  
Care Providers ◽  
Summary Table ◽  
Care Protocol ◽  
The Impact

Background During the COVID-19 pandemic, the use of telemedicine by oncology physicians in Manitoba, Canada, has increased to limit the risk of exposure to the virus for both patients and health care providers. It is not clear how telemedicine impacts the information needs of patients or the experience of receiving cancer care. Objective The objective of this study is to describe how the use of telemedicine impacts the information needs and experience of patients with cancer and their informal caregivers (ie, family and friends) and identify directions for future research. Methods This review will include all studies addressing telemedicine in the cancer context including those using quantitative, qualitative, and mixed methods approaches. This scoping review will be conducted using the methodology described by the Joanna Briggs Institute. In collaboration with a librarian scientist specializing in health sciences, a comprehensive search will be undertaken to identify and retrieve relevant reports published in English from 1990 to the present. Databases searched will include MEDLINE, CINAHL, EMBASE, Scopus, Cochrane Library, and PsycINFO. Data will be extracted by two independent reviewers, synthesized, and reported in a summary table and in a narrative format describing what has been reported regarding the impact of telemedicine by physicians in oncology on the experience of patients and their informal caregivers and their receipt of information. Results The results from this scoping review are expected to be available by late spring 2021. Conclusions The results from this scoping review will be useful for informing practice as well as directing future research, both in the context of COVID-19 and beyond. International Registered Report Identifier (IRRID) PRR1-10.2196/25501

scholarly journals Impact of Telemedicine Use by Oncology Physicians on the Patient and Informal Caregiver Experience of Receiving Care: Protocol for a Scoping Review in the Context of COVID-19 (Preprint)

2020 ◽  
Author(s):  
Maclean Thiessen ◽  
Andrea Michelle Soriano ◽  
Hal John Loewen ◽  
Kathleen Margaret Decker
Keyword(s):  
Health Care Providers ◽  
Scoping Review ◽  
Information Needs ◽  
Informal Caregivers ◽  
Cochrane Library ◽  
Future Research ◽  
Care Providers ◽  
Summary Table ◽  
Care Protocol ◽  
The Impact

BACKGROUND During the COVID-19 pandemic, the use of telemedicine by oncology physicians in Manitoba, Canada, has increased to limit the risk of exposure to the virus for both patients and health care providers. It is not clear how telemedicine impacts the information needs of patients or the experience of receiving cancer care. OBJECTIVE The objective of this study is to describe how the use of telemedicine impacts the information needs and experience of patients with cancer and their informal caregivers (ie, family and friends) and identify directions for future research. METHODS This review will include all studies addressing telemedicine in the cancer context including those using quantitative, qualitative, and mixed methods approaches. This scoping review will be conducted using the methodology described by the Joanna Briggs Institute. In collaboration with a librarian scientist specializing in health sciences, a comprehensive search will be undertaken to identify and retrieve relevant reports published in English from 1990 to the present. Databases searched will include MEDLINE, CINAHL, EMBASE, Scopus, Cochrane Library, and PsycINFO. Data will be extracted by two independent reviewers, synthesized, and reported in a summary table and in a narrative format describing what has been reported regarding the impact of telemedicine by physicians in oncology on the experience of patients and their informal caregivers and their receipt of information. RESULTS The results from this scoping review are expected to be available by late spring 2021. CONCLUSIONS The results from this scoping review will be useful for informing practice as well as directing future research, both in the context of COVID-19 and beyond. INTERNATIONAL REGISTERED REPORT PRR1-10.2196/25501

The Impact of Fellow Consumers’ Presence, Appeal Type, and Action Observability on Consumers’ Donation Behaviors

2017 ◽  
Vol 58 (2) ◽  
pp. 203-213 ◽  
Author(s):  
Laurie Wu ◽  
Yixing (Lisa) Gao ◽  
Anna S. Mattila
Keyword(s):  
Family Members ◽  
Favorable Attitude ◽  
Future Research ◽  
Mediation Analyses ◽  
Two Factors ◽  
Managerial Implications ◽  
Psychological Mechanism ◽  
Donation Intention ◽  
The Impact

Many hospitality consumption experiences are shared with fellow consumers such as acquaintances, friends, or family members. Yet research examining the impact of fellow consumers’ presence on consumers’ donation behaviors is scant. To bridge that gap, the current research examines how the presence of fellow consumers influences consumers’ donation behaviors in a restaurant setting. Results from our experiment reveal that the impact of fellow consumers’ presence depends on two factors: observability of the donation and donation appeal type. Specifically, we found that when the act of donating is unobservable by others and the donation appeal highlights self-benefits, the presence of fellow consumers drives individuals to exhibit more favorable attitude and higher levels of donation intention. Conversely, when the act of donation is observable by others and the donation appeal portrays other benefits, the presence of fellow consumers makes individuals to exhibit less favorable attitude and lower levels of donation intention. Furthermore, our mediation analyses show that anticipated emotional benefits is the underlying psychological mechanism explaining the effects. We discuss the theoretical contributions and managerial implications of our findings as well as limitations and opportunities for future research.

Abstract 133: "I’m Not the Same Person....": Understanding Cardiac Arrest Survivorship and Long -Term Outcomes From the perspective of Survivors and Families

Circulation ◽  
2018 ◽  
Vol 138 (Suppl_2) ◽  
Author(s):  
Katie N Dainty ◽  
Bianca Seaton ◽  
Richard Verbeek
Keyword(s):  
Cardiac Arrest ◽  
Outcome Measures ◽  
Qualitative Interviews ◽  
Family Members ◽  
Sudden Cardiac Arrest ◽  
Memory Loss ◽  
Research And Practice ◽  
Qualitative Work ◽  
The Impact

Background: Of those victims that are discharged alive following sudden cardiac arrest (SCA), the five-year survival rate is upwards of 75%. However, the survivor experience of “living” and their quality of life after such a life-changing event can be quite variable. Unfortunately traditional outcome measures in the SCA literature make gross, snapshot assumptions about what constitutes a “good” outcome and rarely account for life after hospital discharge. The objective of this study was to understand the survivor and family/caregiver experience of life after SCA and what outcomes are important to them as “life goes on”. Methods: In-depth qualitative interviews were conducted with survivors and their families/caregivers at various stages of survival. Survivors and family members were interviewed together and separately. The interviews focused on concepts such as what their recovery journey was like, what long-term issues were most important to them and how we might implement measures of such concepts into more research and practice. Interviews were audio-taped, transcribed verbatim and analyzed by the authors using constant comparative thematic analysis techniques. Results: During in-depth interviews with more than 30 survivors and caregivers we heard that despite being a relatively high functioning group, their lives have been deeply affected by their cardiac arrest experience. They spoke about the importance of both psychologic and physical recovery and the influence of latent depression, anxiety, memory-loss, fatigue, infertility, changes in body image and relationships with loved ones. For some there have also been unique challenges with having an implanted cardiac defibrillator (ICD). Spouses/family members spoke about the caregiver burden, anxiety around their loved ones health and the impact of not having any sense of what to expect after discharge. Conclusions: The psycho-social type outcomes identified as very influential by survivors and families are almost entirely unmeasured in the resuscitation literature. This robust qualitative work gives us important insight that we hope to use to design more survivor-centred outcome measures for prospective use in research and practice. (*Abstract will be co-presented with an SCA survivor)

Vaccine promotion: impact of risk level on attitudes

2018 ◽  
Vol 12 (2) ◽  
pp. 181-197
Author(s):  
Jennifer L. Lemanski ◽  
Jorge Villegas
Keyword(s):  
At Risk ◽  
Source Credibility ◽  
Personal Relevance ◽  
Risk Level ◽  
Future Research ◽  
Content Type ◽  
Creative Strategy ◽  
Direct To Consumer ◽  
Advertising Appeal ◽  
The Impact

Purpose The purpose of this paper is to examine the impact of personal relevance, source credibility and advertising appeal type on the emotional and cognitive processing of a direct to consumer pharmaceutical ad for a meningitis vaccine. Design/methodology/approach A 2 × 2 experiment was used, and path analysis was undertaken to test the hypotheses. Findings Resultant models indicated that unvaccinated (more at risk) and vaccinated (less at risk) participants are persuaded through different pathways. More specifically, vaccinated participants rely more on message credibility than creative strategy to form their cognitive evaluation of the message, whereas non-vaccinated subjects’ cognitive evaluations of the message depend on creative strategy (advertising appeal type) more than message credibility. Differences between individuals who were certain of the vaccine status and those who were not certain of their vaccine status were also apparent. Implications and areas for future research are also presented. Practical implications When using direct to consumer pharmaceutical ad for a vaccine, advertisers should take into account the perceived risk level of and relevance to audience members. Originality/value Personal relevance and risk are issues which impact the effectiveness of different types of advertising appeals, but less prior research has focused on this aspect of the target audience for direct to pharmaceutical vaccine advertisements.

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