scholarly journals Receiving Spiritual Care: Experiences of Dying and Grieving Individuals

2017 ◽  
Vol 76 (4) ◽  
pp. 373-394 ◽  
Author(s):  
Anthony Bonavita ◽  
Oksana Yakushko ◽  
Melissa L. Morgan Consoli ◽  
Steve Jacobsen ◽  
Rev. Laura L. Mancuso
Keyword(s):  
End Of Life ◽  
Spiritual Care ◽  
Qualitative Methodology ◽  
Hospice Care ◽  
Death And Dying ◽  
Vital Role ◽  
Spiritual Needs ◽  
Individual Perceptions ◽  
Hospice And Palliative Care

The study examines the perceptions of interfaith spiritual care, received through a volunteer hospice organization, by 10 individuals facing death and dying. Qualitative methodology based on the Interpretive Phenomenological Analysis was used to collect and analyze the data. Four superordinate themes reflected meanings ascribed to spirituality and spiritual care in facing end of life: Vital Role of Spirituality in the End-of-Life Care, Definitions and Parameters of Spirituality and Interfaith Spiritual Care, Distinct Aspects of Interfaith Spiritual Care, and Unmet Spiritual Needs. The results expand an understanding of the role of spirituality and spiritual care as part of the hospice and palliative care through attention to individual perceptions and experiences, as well as to ways to expand attention to spirituality within the hospice care.

scholarly journals “Let my Spirit Always Sing”: a Descriptive Study of How Four Elderly Rest Home Residents View Spirituality and Spiritual Care at the End of Life

2021 ◽  
Author(s):  
◽  
Judith Anne Brown
Keyword(s):  
End Of Life ◽  
Residential Care ◽  
Spiritual Care ◽  
Research Process ◽  
Care Staff ◽  
Spiritual Needs ◽  
For Profit ◽  
Analysis Technique ◽  
Rest Home

<p>Over the last twenty years spiritual care has become recognised increasingly as an important component of holistic care, care that nurtures the spirit as well as addressing the person’s physical and psychosociocultural needs. This descriptive, qualitative study, believed to be the first of its kind conducted in a New Zealand setting, focuses on spirituality issues of a spiritually vulnerable group of people, older people in residential care. From this group of people I recruited four Rest Home residents who were prepared to talk to me about their spirituality, spiritual needs and how their spirits were nurtured, the role of care staff in providing spiritual care, and their satisfaction with the spiritual care they were being offered. They were also asked to predict their spiritual needs as they were dying, their wishes for spiritual care in the perideath period, whether they had communicated these wishes to anyone, their views on advance planning to ensure these wishes would be met, and their comfort with the research process. The research data was collected from semi-structured, audiotaped interviews that were later transcribed. The spirituality of all participants had a strongly Christian focus that was revealed in the ten themes to emerge from a modified application of Colaizzi’s analysis technique. The first themes to emerge were God as the focus of spirituality, God in control, the importance of relationship, and the purpose in life: serving God. Changes in spirituality with age, spirituality and residential care, and spiritual care: whose responsibility? were also identified as themes, as were end of life spirituality, planning for spiritual care, and the participants’ satisfaction with the research process. All were able to articulate their spirituality, were generally satisfied with the spiritual care they were receiving, and had views on the spiritual care they wished to receive in the perideath period. Moreover, the participants trusted their families and the care staff to ensure that these wishes would be honoured.Recommendations are made for improving the spiritual dimension of care, and for further research. Similar research, for example, should be carried out in different residential care settings, especially in the “for profit” sector. Research should also be undertaken to gauge the awareness care staff have of residents’ wishes for spiritual care in the perideath period.</p>

scholarly journals “Let my Spirit Always Sing”: a Descriptive Study of How Four Elderly Rest Home Residents View Spirituality and Spiritual Care at the End of Life

2021 ◽  
Author(s):  
◽  
Judith Anne Brown
Keyword(s):  
End Of Life ◽  
Residential Care ◽  
Spiritual Care ◽  
Research Process ◽  
Care Staff ◽  
Spiritual Needs ◽  
For Profit ◽  
Analysis Technique ◽  
Rest Home

<p>Over the last twenty years spiritual care has become recognised increasingly as an important component of holistic care, care that nurtures the spirit as well as addressing the person’s physical and psychosociocultural needs. This descriptive, qualitative study, believed to be the first of its kind conducted in a New Zealand setting, focuses on spirituality issues of a spiritually vulnerable group of people, older people in residential care. From this group of people I recruited four Rest Home residents who were prepared to talk to me about their spirituality, spiritual needs and how their spirits were nurtured, the role of care staff in providing spiritual care, and their satisfaction with the spiritual care they were being offered. They were also asked to predict their spiritual needs as they were dying, their wishes for spiritual care in the perideath period, whether they had communicated these wishes to anyone, their views on advance planning to ensure these wishes would be met, and their comfort with the research process. The research data was collected from semi-structured, audiotaped interviews that were later transcribed. The spirituality of all participants had a strongly Christian focus that was revealed in the ten themes to emerge from a modified application of Colaizzi’s analysis technique. The first themes to emerge were God as the focus of spirituality, God in control, the importance of relationship, and the purpose in life: serving God. Changes in spirituality with age, spirituality and residential care, and spiritual care: whose responsibility? were also identified as themes, as were end of life spirituality, planning for spiritual care, and the participants’ satisfaction with the research process. All were able to articulate their spirituality, were generally satisfied with the spiritual care they were receiving, and had views on the spiritual care they wished to receive in the perideath period. Moreover, the participants trusted their families and the care staff to ensure that these wishes would be honoured.Recommendations are made for improving the spiritual dimension of care, and for further research. Similar research, for example, should be carried out in different residential care settings, especially in the “for profit” sector. Research should also be undertaken to gauge the awareness care staff have of residents’ wishes for spiritual care in the perideath period.</p>

Hospice Use Among Patients With Cancer: Trends, Barriers, and Future Directions

2020 ◽  
Vol 16 (12) ◽  
pp. 803-809
Author(s):  
Mihir N. Patel ◽  
Jonathan M. Nicolla ◽  
Fred A.P. Friedman ◽  
Michala R. Ritz ◽  
Arif H. Kamal
Keyword(s):  
End Of Life ◽  
Advanced Cancer ◽  
End Of Life Care ◽  
Hospice Care ◽  
Rapid Development ◽  
Spiritual Needs ◽  
Life Care ◽  
General Acceptance ◽  
Patients With Cancer ◽  
Hospice Use

Patients with advanced cancer and their families frequently encounter clinical and logistical challenges related to end-of-life care. Hospice provides interdisciplinary and holistic care to meet patients’ biomedical, psychosocial, and spiritual needs in the last phases of life. Despite increasing general acceptance and use among patients with cancer, hospice remains underused. Underuse stems from ongoing misconceptions regarding hospice and its purpose, coupled with the rapid development of novel anticancer treatments, such as immunotherapies and targeted therapies, that have changed the landscape of possibilities. Furthermore, rapid evolutions in how end-of-life care is structured and reimbursed for will affect how oncology patients will intersect with hospice care. In this review, we explore the current and future challenges to greater integration of hospice care in the care of patients with advanced cancer and propose five recommendations as part of the path forward.

scholarly journals The Role of Spiritual Care with the Introduction of an End of Life Order Set

2019 ◽  
Vol 73 (1) ◽  
pp. 41-48 ◽  
Author(s):  
Kalli Stilos ◽  
Bill Ford ◽  
Tammy Lilien ◽  
Jennifer Moore
Keyword(s):  
End Of Life ◽  
Spiritual Care ◽  
Retrospective Chart Review ◽  
Physical Symptoms ◽  
Care Team ◽  
Spiritual Support ◽  
Dying Patients ◽  
Psychosocial Concerns ◽  
One Step

Delivering comprehensive end-of-life care to dying patients must involve addressing physical symptoms and psychosocial concerns. Care pathways have been introduced to support health care teams in delivering this care. This retrospective chart review explores the contributions of the Spiritual Care Team in the care of dying patients. They offer a range of interventions which include supportive care, religious and spiritual support. This study was one step towards appreciating the contributions of the Spiritual Care Team.

Spiritual beliefs, practices, and needs at the end of life: Results from a New Zealand national hospice study

2016 ◽  
Vol 15 (2) ◽  
pp. 223-230 ◽  
Author(s):  
Richard Egan ◽  
Rod MacLeod ◽  
Chrystal Jaye ◽  
Rob McGee ◽  
Joanne Baxter ◽  
...  
Keyword(s):  
New Zealand ◽  
End Of Life ◽  
Organizational Support ◽  
Spiritual Care ◽  
Development Program ◽  
Spiritual Needs ◽  
International Studies ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Peace Of Mind

AbstractObjective:International studies have shown that patients want their spiritual needs attended to at the end of life. The present authors developed a project to investigate people's understanding of spirituality and spiritual care practices in New Zealand (NZ) hospices.Method:A mixed-methods approach included 52 semistructured interviews and a survey of 642 patients, family members, and staff from 25 (78%) of NZ's hospices. We employed a generic qualitative design and analysis to capture the experiences and understandings of participants' spirituality and spiritual care, while a cross-sectional survey yielded population level information.Results:Our findings suggest that spirituality is broadly understood and considered important for all three of the populations studied. The patient and family populations had high spiritual needs that included a search for (1) meaning, (2) peace of mind, and (3) a degree of certainty in an uncertain world. The healthcare professionals in the hospices surveyed seldom explicitly met the needs of patients and families. Staff had spiritual needs, but organizational support was sometimes lacking in attending to these needs.Significance of results:As a result of our study, which was the first nationwide study in NZ to examine spirituality in hospice care, Hospice New Zealand has developed a spirituality professional development program. Given that spirituality was found to be important to the majority of our participants, it is hoped that the adoption of such an approach will impact on spiritual care for patients and families in NZ hospices.

scholarly journals ‘I can’t pray’ – The spiritual needs of Malaysian Muslim patients suffering from depression

2020 ◽  
Vol 15 (1) ◽  
Author(s):  
Ahmad Nabil MR ◽  
Saini SM ◽  
Nasrin N ◽  
Bahari R ◽  
Sharip S
Keyword(s):  
Health Care Professionals ◽  
Scientific Basis ◽  
Vital Role ◽  
Spiritual Needs ◽  
Religious Knowledge ◽  
Psychological Treatments ◽  
Treatment Of Depression ◽  
Almost All ◽  
Depth Interviews

Introduction: The mainstay of treatment of depression relies on pharmacological and psychological treatments. On top of that, evidence also recognizes the vital role of spirituality for human wellness which leads to growing interest in its utilization to treat depression. However, research on spirituality among Muslims in relation to depression is relatively scarce. The aim of this study is to explore the understanding of spirituality among Muslim patients with depression, and to explore their spiritual needs. Methods: This is a qualitative study conducted on 10 depressed Muslim patients at the UKM Medical Centre. Purposive sampling was done to ensure diversity of subjects. Individual in-depth interviews were conducted using semistructured questionnaire guidelines. The data were transcribed verbatim and analysed using a thematic approach. Result: Out of 10 patients, almost all of them expressed spiritual needs. Two major themes emerged in relation to the spiritual needs which are (i) religious needs; need for worship, religious knowledge and guidance, religious reminders, and (ii) existential needs; need for calmness, sensitivity and empathy, self-discipline, certainty, hope , physical help, ventilate and meaning of illness. These needs are essential for patients during the time of crisis. Conclusion: The majority of patients expressed spiritual needs which are required during the process of recovery and this provides an opportunity to incorporate spiritual approaches in the treatment of depression. However, more studies are needed to demonstrate its scientific basis and to design an effective psycho-spiritual treatment modality so that the ‘holistic’ or ‘biopsychosocial-spiritual’ treatment can be integrated by health care professionals to those in need.

scholarly journals Spiritual Care at The End Of Life: Western Views and Islamic Perspectives

2018 ◽  
Vol 2 (2) ◽  
pp. 65
Author(s):  
Wafa ‘a Qasem Ahmad
Keyword(s):  
Patient Care ◽  
End Of Life ◽  
Spiritual Care ◽  
End Of Life Care ◽  
Human Life ◽  
Death And Dying ◽  
The Past ◽  
Education Of Patients ◽  
Core Components ◽  
The Uk

The concept of spiritual and religious care, as core components of palliative care for patients at end of life stages, has achieved significant organized applications and advances in modes of intervention and tools. The past two decades have witnessed waves of secularization with impacts of the concepts of spirituality and chaplaincy that diverged away from religion, more so in the UK and some European countries as compared to US applications. Spirituality became more generic and broad that revealed itself in helping and education of patients and families to earth and think of meaning and purpose of life, suffering death and dying. The issues of spirituality and religiosity in the Islamic culture, teachings and attitudes towards patient care at terminal stages of life, is distinguished by clarity and harmony in view of clarity of Muslim beliefs and interpretations concerning purpose, meaning and mission of human life on this earth, end-of-life care and the afterlife. This paper will address the contemporary western diverse concepts of spirituality, its relationship with religiosity in terminal patient care, and will elaborate on the holistic Islamic views and attitudes towards this stage of human life.International Journal of Human and Health Sciences Vol. 02 No. 02 April’18. Page : 65-70

scholarly journals THE EXAMINATION OF DETERMINANTS AND BARRIERS TO END-OF-LIFE DECISION MAKING AND PLANNING

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S236-S237
Author(s):  
Brittany E Gaines ◽  
Debra J Dobbs
Keyword(s):  
Decision Making ◽  
Palliative Care ◽  
End Of Life ◽  
Rural Areas ◽  
Hospice Care ◽  
Service Providers ◽  
Advance Care ◽  
End Of Life Decision ◽  
The Impact

Abstract As individuals are living longer, in many cases with chronic diseases, there is an increased focus on end-of-life (EOL) planning and decision making. This includes a broad spectrum of choices including advance care planning (ACP) and turning to palliative care or hospice care. Although there has been an increase in palliative and hospice care enrollment and ACP engagement over the past decade, participation remains low for certain subgroups of the population. The purpose of this symposium is to offer insight into reasons for these varying rates of engagement by exploring determinants and barriers to EOL decision making and planning and by examining caregiver knowledge of EOL decision making and planning from the service provider perspective. The first three studies examine various types of influences in EOL decision making and planning. Inoue and colleagues explore factors associated with the length of hospice stay, and Gaines and colleagues examine the impact of environmental characteristics in ACP. Ornstein and colleagues use Denmark registry data to assess the role of kinlessness at the time of death in EOL decision making and healthcare utilization. The final presentation by Noh and colleagues examines how service providers in rural areas perceive community residents’ knowledge of ACP and palliative care. The discussion following these presentations will compare findings across different forms of EOL decision making and planning, consider the impact of the varying methodological approaches used, and highlight implications of these works for potential interventions and policies related to EOL decision making and planning.

Spirituality and end-of-life experiences: Meeting the spiritual needs of the dying

2021 ◽  
pp. 413-434
Author(s):  
Peter Fenwick ◽  
Bruno Paz Mosqueiro
Keyword(s):  
End Of Life ◽  
Spiritual Care ◽  
Life Experience ◽  
Scientific Evidence ◽  
Spiritual Needs ◽  
Spiritual Experiences ◽  
Life Care ◽  
Practical Guidance ◽  
To Receive

Most patients in palliative care report that it is very important to receive health care that is respectful, compassionate, and culturally sensitive to their spiritual needs. Providing spiritual care to people approaching the end of life and understanding that their mental and spiritual experiences constitutes a key aspect to providing a more effective treatment and quality of life at this moment. End-of-life experience (ELE) provide comfort, and represents a source of spirituality and meaning to the dying. Spiritual experiences also give hope, meaning, and strength to family members and healthcare professionals dealing with terminal conditions and suffering. This chapter reviews the scientific evidence about ELEs and discusses the potential clinical implications of these experiences to healthcare practice. Different patients’ vignettes are presented to illustrate and provide practical guidance to understanding and addressing ELE and spiritual care in end-of-life care settings.

scholarly journals Situation, possibilities and difficulties of the hospice and palliative care in Hungary

2014 ◽  
Vol 155 (38) ◽  
pp. 1504-1509 ◽  
Author(s):  
Katalin Hegedűs ◽  
Miklós Lukács ◽  
Judit Schaffer ◽  
Ágnes Csikós
Keyword(s):  
Palliative Care ◽  
Hospice Care ◽  
Service Providers ◽  
Death And Dying ◽  
National Data ◽  
Terminally Ill Cancer Patients ◽  
Lack Of Information ◽  
Institutional Supply ◽  
Hospice And Palliative Care ◽  
Hospice Palliative Care

Hospice-palliative care has existed in Hungary for more than 20 years but physicians know very little about it. The objective of the study is to give detailed practical information about the possibilities and the reasonability of hospice care and the process of how to have access to it. The authors review and analyze the database of the national Hospice-Palliative Association database to provide most recent national data on hospice-palliative care. In addition, legal, financial and educational issues are also discussed. At present there are 90 active hospice providers in Hungary, which provide service for more than 8000 terminally ill cancer patients. According to WHO recommendations there would be a need for much more service providers, institutional supply and more beds. There are also problems concerning the attitude and, therefore, patients are admitted into hospice care too late. Hospice care is often confused with chronic or nursing care due to lack of information. The situation may be improved with proper forms of education such as palliative licence and compulsory, 40-hour palliative training for residents. The authors conclude that a broad dissemination of data may help to overcome misbeliefs concerning hospice and raise awareness concerning death and dying. Orv. Hetil., 2014, 155(38), 1504–1509.

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