scholarly journals Parent Observations of the Health Status of Infants With Clefts of the Lip: Results From Qualitative Interviews

2018 ◽  
Vol 56 (5) ◽  
pp. 646-657 ◽  
Author(s):  
Janine Rosenberg ◽  
Meredith Albert ◽  
Cassandra Aspinall ◽  
Suzel Bautista ◽  
Claudia Crilly Bellucci ◽  
...  
Keyword(s):  
Cleft Lip ◽  
Infant Health ◽  
Outcome Measure ◽  
Qualitative Interviews ◽  
Well Being ◽  
Cross Sectional ◽  
Semistructured Interviews ◽  
Review Study ◽  
Parent Observations ◽  
Health And Well Being

Objective: To explore, using semistructured qualitative interviews, parent observations of their infant’s health as they relate to having a cleft lip or cleft lip and cleft palate (CL±P) and/or associated treatments. Design: Cross-sectional, qualitative study across 3 sites. Setting: Parents were recruited from 3 academic craniofacial centers. Most interviews were conducted over the telephone, audio-recorded, and transcribed. Participants: Forty-one parents (31 English-, 10 Spanish-speaking) were interviewed. Parents had a child ages 1 to 35 months diagnosed with CL±P. Main Outcome Measure(s): Twelve domains reflecting infant health and well-being, likely affected by a CL±P and/or associated treatments, were identified from clinical experience and literature review. Study investigators conducted semistructured interviews based on 12 identified domains. After transcripts of the interviews were reviewed, our multidisciplinary team selected illustrative quotes from each domain that reflected consistent observations made by parents. Results: Parents’ responses covered all 12 domains. Specifically, parents discussed the domain of feeding most frequently, followed by observations about sleep, development, comfort, breathing, and vocalization. Conclusions: We found that parents of infants with clefts provided caregiver-centered language useful in describing their daily observations. No additional domains of infant health were noted by parents. We will use these observations and language to develop and validate a parent-reported observation diary that can augment assessments of the impacts of interventions on infants who are receiving care for CL±P.

Development of an Outcome Measure of Observable Signs of Health and Well-Being in Infants With Orofacial Clefts

2020 ◽  
Vol 57 (11) ◽  
pp. 1266-1279
Author(s):  
Carrie L. Heike ◽  
Meredith Albert ◽  
Cassandra L. Aspinall ◽  
Suzel Bautista ◽  
Claudia Crilly Bellucci ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Health Care Professionals ◽  
Cleft Lip ◽  
Outcome Measure ◽  
Psychometric Testing ◽  
Well Being ◽  
Care Providers ◽  
Cross Sectional ◽  
Health And Well Being

Objective: To develop an outcomes instrument that assesses observations that can be reliably reported by caregivers and can be used to assess health of infants with a cleft lip or cleft lip and cleft palate (CL±P) and impacts of treatments. Design: Cross-sectional, mixed methods study. Setting: Caregivers and health-care providers were recruited from 3 academic craniofacial centers and national advertisements. Most interviews were conducted by telephone, and surveys were completed online. Participants: Caregivers had a child less than 3 years of age with CL±P and spoke either English or Spanish. Health-care providers were members of a cleft team. Caregivers (n = 492) and health-care professionals (n = 75) participated in at least one component of this study. Main Outcome Measure(s): Caregivers and health-care providers participated in tasks related to instrument development: concept elicitation for items within relevant health domains, prioritization of items, and item review. Results: We identified 295 observations of infant well-being across 9 health areas. Research staff and specialists evaluated items for clarity, specificity to CL±P, and responsiveness to treatment. Caregivers and health-care providers rated the resulting list of 104 observations and developed the final instrument of 65 items. Conclusions: In this phase of development of the Infant with Clefts Observation Outcomes (iCOO) instrument, items were developed to collect caregiver observations about indicators of children’s health and well-being across multiple domains allowing for psychometric testing, sensitivity to changes associated with treatment, and documentation of the effects of treatment.

scholarly journals Psychological Consequences of the Delay in the Silent Mentor Programme During the COVID-19 Pandemic: Perspectives From Family Members of Silent Mentors

2021 ◽  
pp. 003022282110009
Author(s):  
Li Ping Wong ◽  
Sik Loo Tan ◽  
Haridah Alias ◽  
Thiam Eng Sia ◽  
Aik Saw
Keyword(s):  
Mental Health ◽  
Qualitative Interviews ◽  
Psychological Impact ◽  
Family Members ◽  
Well Being ◽  
The Body ◽  
Functional Health ◽  
Psychological Consequences ◽  
Negative Effect ◽  
Health And Well Being

The COVID-19 pandemic has put a hold on the Silent Mentor Programme (SMP); this pause has not only caused unprecedented challenges for the delivery of medical education but has forced changes in the programme ceremony sessions. We aimed to describe the psychological impact and experiences of family members of silent mentors during the COVID-19 pandemic using qualitative interviews. Many expressed feelings of remorse and unrest about the unprecedented delay of the SMP. The delay increased negative emotions particularly among some elderly family members; however, there was no prominent negative effect on their functional health and well-being. Several participants relayed the belief that the soul cannot rest until the body receives a proper burial while some worried about the deterioration of the physical condition of the mentors. In conclusion, findings provide insights into the importance of not overlooking the mental health implications of delaying the SMP in future outbreaks or crises.

scholarly journals Perceived Control and Aging: A Mini-Review and Directions for Future Research

Gerontology ◽  
2017 ◽  
Vol 63 (5) ◽  
pp. 435-442 ◽  
Author(s):  
Stephanie A. Robinson ◽  
Margie E. Lachman
Keyword(s):  
Sex Education ◽  
Perceived Control ◽  
Later Life ◽  
Well Being ◽  
Reciprocal Relationship ◽  
Control Beliefs ◽  
Future Research ◽  
Cross Sectional ◽  
As Stress ◽  
Health And Well Being

This brief review on perceived control and aging is organized according to 3 perspectives of research involving description, explanation, and modification. An extensive body of literature has utilized cross-sectional and correlational methods to describe the sociodemographic variations and outcomes associated with perceived control. This work has focused on differences in perceived control as a function of age, sex, education, socioeconomic status, and culture and has identified positive associations with many aging-related outcomes involving health and well-being. With growing evidence regarding the health benefits of perceived control in the context of a declining sense of control with aging, there has been an increased effort to uncover the mechanisms involved, with the hopes of developing methods to maintain and/or promote adaptive control beliefs throughout adulthood. Through longitudinal and experimental work, researchers are beginning to clarify the directionality and elucidate the mechanisms to explain the associations. Recent evidence from longitudinal studies shows that control beliefs have an impact on subsequent changes in health. Yet, the findings suggest that it is not a unidirectional relationship. A conceptual model suggesting an ongoing reciprocal relationship between perceived control and health and well-being is discussed. Research examining the mechanisms that link perceived control to aging-related outcomes can help to inform and to develop effective interventions that are tailored to the individual's specific barriers and goals. We consider new directions for research, including more attention to intraindividual variability and reactivity to daily challenges, such as stress, with the goal of advancing our understanding of how perceived control contributes to aging-related outcomes. More work is needed to develop strategies to enhance control beliefs in later life. Although it will not always be possible to modify control beliefs, researchers can take these beliefs into account when developing interventions. A personalized approach is recommended as a way to tailor interventions that are compatible with individuals' beliefs about control to facilitate adaptive behavior change. Conclusions focus on selected issues and considerations for future research.

An Examination of Intramural College Students’ Exercise Motives and How They Relate to Body Mass Index

2018 ◽  
Vol 33 (4) ◽  
Author(s):  
Elenna R. Cowen ◽  
Eric Wiedenman ◽  
Megan Adkins ◽  
Kazuma Akehi ◽  
James W. Ball ◽  
...  
Keyword(s):  
Well Being ◽  
Cross Sectional Study ◽  
Regular Exercise ◽  
Recreational Sports ◽  
Sectional Study ◽  
Cross Sectional ◽  
Physically Active ◽  
Motivational Constructs ◽  
Exercise Motives ◽  
Health And Well Being

Students that participate in recreational sports and regular exercise are more likely to continueto be physically active. Thee purpose of this cross-sectional study design was to examine differentiatingmotives among participants and how motivation constructs relate to body composition.College students(n=403) were surveyed using the EMI-2 to determine motivational constructs in relation to body com-position. Standardized coefficients indicate that Appearance (β=-0.242, p=0.001), Health Pressures (β=0.208, p=0.05), and Weight Management ( β=0.332, p=0.001) have a statistically signi cant in uenceon intramural participants’ BMIs. This study is useful for promoting, designing, and implementing futurehealth programs for young adults.Creating diversity in activities encourages additional populations toparticipate in physical activity opportunities, thus improving overall health and well-being.

scholarly journals Threats to Health and Well-Being Perceived by Older People in Poland and Portugal

2018 ◽  
Vol 31 (7-8) ◽  
pp. 409 ◽  
Author(s):  
Maria da Piedade Moreira Brandão ◽  
Laura Martins ◽  
Marlena Szewczyczak ◽  
Dorota Talarska ◽  
Ian Philp ◽  
...  
Keyword(s):  
Older People ◽  
Older Persons ◽  
Health Care Services ◽  
Bodily Pain ◽  
Memory Loss ◽  
Well Being ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Joint Project ◽  
Health And Well Being

Introduction: According to the OECD, Portugal and Poland rank below average in several well-being measures such as income and wealth, and health status. Investigating how people perceive the threats to health in these two countries, is an important issue to address priority needs. To meet this need, the objective of this paper was to compare the perceptions of the threats to the health and well-being among the Polish and Portuguese older persons and explore differences between the countries in respect of patterns of self-rated health.Material and Methods: A Cross-sectional study with two convenience samples from primary health care services of Poland and Portugal was conducted; 480 adults aged 65 and over (247 Portuguese) were included. The EASYCare standard assessment of 2010 was applied under a joint project of both countries. The association between ‘self-rated unhealthy’ and socio-demographic and threats to health variables was examined using logistic regression.Results: In both countries about two thirds of the older persons self-rated their health as unhealthy. Having more than enough finances was associated with a significant lower odds of being unhealthy compared with those without enough finances at the end of the month (Portugal: OR = 0.25, 95% CI 0.10 to 0.63; Poland: OR = 0.33, 95% CI 0.12 to 0.88). Visual problems, bodily pain, memory loss, feeling bored or lonely and reporting shortness of breath during normal activities was consistently associated with fair or poor self-rated health.Discussion: These findings provide important information regarding the health profile of older people which can help in the development of people-centred health systems where their lives and well-being can be improved. Conclusion: The unhealthy perception of older people was consistently associated with indicators of major health threats.

scholarly journals Use of online cultural content for mental health and well-being during COVID-19 restrictions: cross-sectional survey

2021 ◽  
pp. 1-10
Author(s):  
Rebecca J. Syed Sheriff ◽  
Helen Adams ◽  
Evgenia Riga ◽  
Andrew K. Przybylski ◽  
Laura Bonsaver ◽  
...  
Keyword(s):  
Mental Health ◽  
Well Being ◽  
Vulnerable Groups ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Online Culture ◽  
Reported Data ◽  
June July ◽  
The Uk ◽  
Health And Well Being

Aims and method To gain a deeper understanding of the use of online culture and its potential benefits to mental health and well-being, sociodemographic characteristics and self-reported data on usage, perceived mental health benefits and health status were collected in an online cross-sectional survey during COVID-19 restrictions in the UK in June–July 2020. Results In total, 1056 people completed the survey. A high proportion of participants reported finding online culture helpful for mental health; all but one of the benefits were associated with regular use and some with age. Reported benefits were wide-ranging and interconnected. Those aged under 25 years were less likely to be regular users of online culture or to have increased their use during lockdown. Clinical implications There may be benefits in targeting cultural resources for mental health to vulnerable groups such as young adults.

scholarly journals Healthy Lifestyle Practice among a Selected Rural Community of Sirajganj District

KYAMC Journal ◽  
2021 ◽  
Vol 11 (4) ◽  
pp. 193-198
Author(s):  
Sailendra Nath Biswas ◽  
Rubaiyat Farzana Hussain ◽  
Mohd Raisul Hasan ◽  
Taslima Akber Happy ◽  
Mahaidhe Hassan ◽  
...  
Keyword(s):  
Rural Community ◽  
Healthy Lifestyle ◽  
Well Being ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Face To Face ◽  
Balanced Diet ◽  
Protein Rich ◽  
Health And Well Being ◽  
Structured Questionnaire

Background: Healthy lifestyle is one which helps keeping and improving health and well-being. This means maintaining hygiene, eating balanced diet, getting regular exercise, avoiding tobacco and drugs and getting adequate rest and recreation. Objective(s): To assess healthy lifestyle practice among selected rural-community of Sirajganj district. Materials and methods: This cross-sectional study was conducted among people living in selected villages of Sirajganj. A total of 490 respondents were interviewed face-to-face using a semi-structured questionnaire. Results: Among the respondents 73.3% were female, mean age was 40.29 ± 15.84 years and 56.9% were literates. Mean monthly income was 10812.30±10039.63 taka. Majority (97.3%) said that they wash their hands 'before eating', 89.0% said 'after coming from washroom', 18.6% mentioned of 'after coming in contact with sick person', 3.9% said 'after playing and 3.1% mentioned of 'after holding coins'. About 84% used soap and water for hand washing. One third (33.9%) washed their hands for a period of more than 20 seconds. About 28% consume meat, fish, and egg daily. Majority (77.8%) consumed extra salt daily, 81.8% never took part in playing of doing exercises and 9.8% were current smokers. Conclusion: Subjects were ruralpeople and showed lack of many elements of healthy lifestyle. Proportion of tobacco-use was less. Yet a big proportion consumes extra salt, don't do any exercise, don't eat fruits and cannot eat protein rich food. KYAMC Journal Vol. 11, No.-4, January 2021, Page 193-198

Achieving the Sustainable Development Goals: Evidence from the Longitudinal Parenting Across Cultures Project

2021 ◽  
pp. 89-112
Author(s):  
Jennifer E. Lansford ◽  
W. Andrew Rothenberg ◽  
Sombat Tapanya ◽  
Liliana Maria Uribe Tirado ◽  
Saengduean Yotanyamaneewong ◽  
...  
Keyword(s):  
Sustainable Development ◽  
Longitudinal Data ◽  
Sustainable Development Goals ◽  
Well Being ◽  
Future Research ◽  
Cross Sectional ◽  
The Sustainable Development ◽  
Development Goals ◽  
Future Research Directions ◽  
Health And Well Being

This chapter uses evidence from the Parenting Across Cultures (PAC) project to illustrate ways in which longitudinal data can help achieve the Sustainable Development Goals (SDGs.) The chapter begins by providing an overview of the research questions that have guided the international PAC as well as a description of the participants, procedures, and measures. Next, empirical findings from PAC are summarized to illustrate implications for six specific SDGs related to child and adolescent development in relation to education, poverty, gender, mental health, and well-being. Then the chapter describes how longitudinal data offer advantages over cross-sectional data in operationalizing SDG targets and implementing the SDGs. Finally, limitations, future research directions, and conclusions are provided.

scholarly journals Treatment Choice in Adolescents With Cleft Lip and/or Palate: The Importance of Shared Decision-Making

2019 ◽  
Vol 56 (9) ◽  
pp. 1220-1229
Author(s):  
Francesca Wogden ◽  
Alyson Norman ◽  
Louise Dibben
Keyword(s):  
Decision Making ◽  
Young People ◽  
Shared Decision Making ◽  
Cleft Lip ◽  
Well Being ◽  
Medical Decision ◽  
Shared Decision ◽  
Pediatric Dentist ◽  
Semistructured Interviews ◽  
Inductive Thematic Analysis

Objective: Limited research has studied the involvement of children in medical decision-making. The aim of the study was to understand the involvement of adolescents with cleft lip and/or palate (CL/P) in decisions about elective surgeries and treatments. Design: Parents and professionals completed mixed-methods questionnaires about the degree to which children had been involved in choices about elective treatments. Data were analyzed using content analysis. Young people aged 12 to 25 years were asked to take part in semistructured interviews. The data were analyzed using inductive thematic analysis. Setting: Questionnaire data collection took place online, and interview data were collected via messenger or telephone-based interviews. Participants: The study employed 30 participants; 11 young people (3 male, 8 female), 17 parents (13 mothers, 4 fathers), and 5 professionals (2 surgeons, 2 speech and language therapists, and 1 pediatric dentist). Results: Five main themes were identified. These reflected participants feeling that with increasing age should come increased involvement in decision-making and that it was important for adolescents to “have a voice” during decision-making. Parents, peers, and health professionals were identified as influencing decisions. Most adolescents reported overall satisfaction with their involvement in decision-making but sometimes felt “left in the dark” by professionals or under pressure from parents. A desire to improve speech and/or appearance was as an area where adolescents wanted to be more involved in decision-making. Conclusions: Shared decision-making is an important factor for psychological well-being by promoting autonomy and self-esteem among adolescents with CL/P.

Happiness at the End of Life: A Qualitative Study

2020 ◽  
pp. 104990912093985
Author(s):  
Anne O’Callaghan ◽  
Ben Bickford ◽  
Conor Rea ◽  
Antonio Fernando ◽  
Phillipa Malpas
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Hospice Care ◽  
Qualitative Interviews ◽  
Well Being ◽  
Natural World ◽  
The Internet ◽  
Present Moment ◽  
Hospice Patients ◽  
Health And Well Being

Background: Happiness is a core ingredient of health and well-being, yet relatively little is known about what happiness means for individuals near the end of life, and whether perceptions of happiness change as individuals approach the end of their lives. Aim: The aim of this study was to explore, through interviews, how individuals experiencing hospice care understood and conceptualized happiness. Design: Qualitative interviews with hospice patients were analyzed thematically. Setting/Participants: Adult patients (n = 20) in a New Zealand hospice who were receiving palliative care and who could give their informed consent were invited by hospice nurse coordinators to an interview. Results: Four themes emerged from analysis of the transcribed interviews. Participants defined happiness most frequently and in most depth in relation to connection with others. They identified being in the present moment, particularly in relation to nature, and that happiness had become less associated with money, status, or possessions. They had an attitude of determination to focus on what mattered now. Conclusion: Patients receiving palliative care were generally happy with their lives, appreciated the simpler aspects of life away from the material. There was a common exhortation to young people to avoid focusing too much on acquisition and the internet and to prioritize instead social connection and engagement with the natural world.

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