Understanding more about how young people make sense of their siblings changing gender identity: How this might affect their relationships with their gender-diverse siblings and their experiences

2019 ◽  
Vol 24 (2) ◽  
pp. 258-276 ◽  
Author(s):  
Nicola L Wheeler ◽  
Trilby Langton ◽  
Elizabeth Lidster ◽  
Rudi Dallos
Keyword(s):  
Young People ◽  
Gender Roles ◽  
Thematic Analysis ◽  
Sibling Relationships ◽  
Gender Diversity ◽  
Well Being ◽  
Structured Interviews ◽  
Gender Diverse ◽  
Specialist Services

The gender roles and identity of siblings have been found to be an important factor in the nature and quality of sibling relationships. With an increasing number of young people identifying as gender-diverse or transgender, this research aimed to develop a greater understanding of how young people make sense of their siblings’ gender diversity. Semi-structured interviews explored the experiences of eight sibling participants (aged 11–25 years) who have a sibling identifying as gender-diverse. Five overarching themes emerged from the thematic analysis of their transcribed interviews. These themes encapsulated commonalities and nuances within the sibling participants’ experiences and revealed a process of adjustment. Developing an increased understanding of transgender issues appeared to enable young people to embrace supportive roles, and as a consequence, they reported that their relationships with their gender-diverse siblings were enhanced. However, the sibling participants’ increased understanding of transgender issues also generated significant fears and concerns about their siblings’ well-being and their sibling relationships. From understanding more about these eight young people’s experiences, suggestions are given for how specialist services might best support siblings of gender-diverse young people along their processes of adjustment.

scholarly journals Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families

Autism ◽  
2021 ◽  
pp. 136236132110337
Author(s):  
Jane Goodwin ◽  
Priyanka Rob ◽  
Mark Freeston ◽  
Deborah Garland ◽  
Victoria Grahame ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Thematic Analysis ◽  
Intolerance Of Uncertainty ◽  
Well Being ◽  
Anxiety Reduction ◽  
Autistic Children ◽  
Structured Interviews ◽  
Daily Lives ◽  
The Impact

Approximately 50% of autistic children experience high anxiety. Intolerance of uncertainty (tendency to react negatively to uncertain situations) is a key mechanism in the development and maintenance of anxiety. This study aimed to provide a descriptive, thematic analysis of the impact on uncertainty on the daily lives of autistic children and their families. Semi-structured interviews were conducted with parents and caregivers of 53 autistic children (including 3 dyads) aged 6–16 years to elicit examples of uncertain situations that the children found challenging and to explore the impact of these situations on family life. Thematic analysis revealed five overarching themes: child’s reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. These findings provide a crucial understanding into the range of uncertain situations autistic children with anxiety experience. Anxiety-reduction approaches based on increasing tolerance to everyday uncertain situations could help improve well-being, quality of life and participation for autistic children and their families. Lay abstract Anxiety is common in autistic children. Research shows that this may be related to intolerance of uncertainty, which is a tendency to react negatively to uncertain situations. Understanding when, why and how autistic children respond to uncertainty is important in the development of anxiety programmes. We asked 53 (including 3 dyads) parents of autistic children about the types of uncertain situations that cause difficulties for their child and how uncertainty impacts on daily life for them and their families. We found that uncertain situations made autistic children and their families feel sad, worried, frustrated and angry through the themes: child’s reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. There are lots of situations that are anxiety provoking for autistic children because of uncertainty, such as school. Programmes to reduce anxiety and increase autistic children’s ability to cope with everyday uncertain situations could improve quality of life for autistic children and their families.

scholarly journals Quality of Life after Total Glosso-Laryngectomy

2007 ◽  
Vol 54 (1) ◽  
pp. 29-38 ◽  
Author(s):  
Leanie Engelbrecht ◽  
Anita Van der Merwe
Keyword(s):  
Quality Of Life ◽  
Decision Making ◽  
South African ◽  
Thematic Analysis ◽  
Oral Communication ◽  
Well Being ◽  
Shared Decision ◽  
Structured Interviews ◽  
Multi Disciplinary Team

The article explores the quality of life of two participants who had undergone total glosso-laryngectomy as treatment for advanced tongue base cancer. Semi-structured interviews were conducted and questions relating to the effects of treatment on physical, functional, social and psychological well-being were asked. Thematic analysis of the interviews was done to determine recurring themes in the answers of the participants. The findings showed that total glosso-laryngectomy has a significant impact on quality of life. A good quality of life can be maintained in a patient who has an extensive support structure and can achieve intelligible oral communication. Pre-operative counselling by a multi-disciplinary team is important for a person to make an informed decision regarding surgery for head and neck cancer. Shared decision-making needs to be addressed in the South African service delivery context.

scholarly journals Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol

BMC Neurology ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Catherine Arnaud ◽  
Carine Duffaut ◽  
Jérôme Fauconnier ◽  
Silke Schmidt ◽  
Kate Himmelmann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Cerebral Palsy ◽  
Young People ◽  
General Population ◽  
Transition Period ◽  
Well Being ◽  
Personal Factors ◽  
The Impact

Abstract Background Effective inclusion in society for young people with disabilities is increasingly seen as generating opportunities for self-development, and improving well-being. However, significant barriers remain in the vast majority of activities meaningful for young adults. Research argues that various personal (disabilities, health) and environmental (access to the resources needed, accessible environment, discrimination, lack of personal economic independence) factors contribute to limited participation. However, previous studies conducted in young people with cerebral palsy (CP) mainly investigated the transition period to adulthood, and did not fully consider the whole range of impairment severity profiles or environmental barriers. In this study, we will use the follow-up of the SPARCLE cohort and a comparison group from the general population (1) to investigate the impact of the environment on participation and quality of life of young adults with CP, (2) to determine predictors of a successful young adulthood in educational, professional, health and social fields, (3) to compare quality of life and frequency of participation in social, work and recreational activities with the general population, (4) to document on participation and quality of life in those with severe disabilities. Methods The SPARCLE3 study has a combined longitudinal and cross-sectional design. Young adults with CP aged 22 to 27 years in 6 European regions previously enrolled in the SPARCLE cohort or newly recruited will be invited to self-complete a comprehensive set of questionnaires exploring participation (daily life and discretionary activities), health-related quality of life, body function, personal factors (health, personal resources), and contextual factors (availability of needed environmental items, family environment, services provision) during home visits supervised by trained researchers. Proxy-reports or adapted questionnaires will be used for those with the most severe impairments. The recruitment of a large group from the general population (online survey) will enable to identify life areas where the discrepancies between young people with CP and their able-bodied peers are the most significant. Discussion This study will help identify to what extent disabilities and barriers in environment negatively affect participation and quality of life, and how previous valued experiences during childhood or adolescence might modulate these effects.

scholarly journals Health-related quality of life among 13–14 year old adolescents with overweight - a mixed methods approach

2019 ◽  
Author(s):  
Turid Kristin Bigum Sundar ◽  
Kirsti Riiser ◽  
Milada Småstuen ◽  
Randi Opheim ◽  
Knut Løndal ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Well Being ◽  
Reference Population ◽  
Health Related Quality ◽  
Structured Interviews ◽  
Post Intervention ◽  
Related Quality ◽  
Health Related

Abstract BackgroundOverweight and obesity are public concerns with risk of adverse health outcomes. Health-related quality of life (HRQoL) is lower in adolescents than children in general. An increase in body mass index (BMI) is associated with a decrease in HRQoL. The purpose of this study was to measure and explore the HRQoL among adolescents with overweight or obesity who had participated in an intervention study with the aim of increasing PA, reducing BMI and promoting HRQoL.Methods Mixed methods, with a convergent design, were used to investigate how different methodological approaches could expand our understanding of the adolescents’ HRQoL. Quantitative post-intervention data on HRQoL were collected among the 84 intervention participants, aged 13–14 years, using the KIDSCREEN 52 questionnaire. The data were compared with a Norwegian reference population of 244 individuals, and analysed using a non-parametric Mann-Whitney test. Qualitative semi-structured interviews were conducted with 21 adolescents from the intervention. A directed approach to content analysis was adopted, using the ten sub-scales from KIDSCREEN 52.ResultsHRQoL in the intervention sample was significantly reduced on the sub-scale of physical well-being compared to the reference population. The reference population scored significantly lower than the intervention sample on the sub-scale of parent relation and home life. No significant differences were found on the other sub-scales. The qualitative data supported the quantitative findings on the sub-scale of physical well-being, but showed that perceptions of fitness, energy level or health could vary. Regarding parent relations, the interviewees extended this to include relationships to other family members as equally important. Most of the interviewees expressed a negative view of their bodies, but not their clothing or accessories. This may explain why no statistically significant differences were found on these aspects in the results from the KIDSCREEN questionnaire. ConclusionThe use of the KIDSCREEN 52 instrument gave important indications about the adolescents’ HRQoL. Combining methods enabled a comprehensive approach to research on HRQoL, indicating better ways of providing help. More research using the benefits of mixed methods approaches is needed to further elucidate these findings.

scholarly journals Entrepreneurship Narration in Sandiaga Uno’s Instagram (A Study on 2019 Presidential Election Campaign)Entrepreneurship Narration in Sandiaga Uno’s Instagram: A Study on 2019 Presidential Election Campaign)

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Putri Handayani Lubis ◽  
Maria Puspitasari
Keyword(s):  
Quality Of Life ◽  
Qualitative Research ◽  
Social Media ◽  
Risk Management ◽  
Young People ◽  
Thematic Analysis ◽  
Presidential Election ◽  
Election Campaign ◽  
Presidential Election Campaign

Entrepreneurship often becomes an alternative profession, while in fact, being an entrepreneur is a strategic choice which is ideally based on strong determination and belief that it is able to change the quality of life. Sandiaga Uno used entrepreneurship narration during the 2019 presidential election campaign in his social media in order to influence the youth. The present study aimed to explore Sandiaga Uno’s entrepreneurship narration on Instagram and to identify the narration in influencing young people during the 2019 presidential election campaign. This study was categorized as qualitative research with thematic analysis. The result of the study found that Uno’s campaign narration focused more on hopes. His narration of entrepreneurship focused on motivating the Millenials without explaining further about the risk of being an entrepreneur and how to fund and maintain a business. Uno utilizes his background as an entrepreneur by motivating his campaign. Uno also invited celebrities and several Actors who have businesses to motivate young people to become entrepreneurs. Risk management needed in an entrepreneur because many entrepreneurs are not prepared to deal with risk so the business that was built cannot last. Likewise, there are still many entrepreneurs who cannot make the most of existing technology to develop its business because of its capacity.

The growing environment on Chinese adolescents' non-suicidal self-injury: a parents-reported qualitative study

2020 ◽  
Author(s):  
Xi Fu ◽  
Jiaxin Yang ◽  
Xiaoli Liao ◽  
Jingjing Lin ◽  
Yao Peng ◽  
...  
Keyword(s):  
Parenting Style ◽  
Thematic Analysis ◽  
Well Being ◽  
Chinese Adolescents ◽  
Behavioral Factors ◽  
Structured Interviews ◽  
Negative Interaction ◽  
Family Function ◽  
Self Injury ◽  
Growing Environment

Abstract Background: Non-suicidal self-injury (NSSI) is prevalent in adolescents and brings a series of serious consequences to their well-being. Previous studies indicated that the growing environment has a significant impact on adolescents with NSSI, which is little known about the Chinese adolescents. The study aims to investigate the growing environment of Chinese adolescents with NSSI and explore the target of intervention in the growing environment of adolescents with NSSI. Methods: The participants are parents of adolescents with NSSI who responded to a study advert, which was distributed in the psychological ward in China. Semi-structured interviews were conducted and their responses were analyzed by the thematic analysis. Results: 20 participants (16 were mothers, and 4 were fathers) completed the interview. Four themes were identified: Parenting style, Family function, Peer interaction, and Psycho-behavioral factors as well as 14 subthemes. Conclusion: Parents-report demonstrated a series of problems, consisting of Inappropriate parenting style, invalid family function, negative interaction of peer and problematic behavioral factors, etc. This highlight increasing awareness was needed to seek some intervention in the aspects of a growing environment for them.

Introduction: the landscapes of poverty and education across the UK

2020 ◽  
pp. 1-10
Author(s):  
Ian Thompson ◽  
Gabrielle Ivinson
Keyword(s):  
Young People ◽  
Educational Inequality ◽  
Well Being ◽  
Children And Young People ◽  
The United Kingdom ◽  
Context Specific ◽  
Social And Cultural Factors ◽  
The Uk ◽  
Different Parts

Poverty blights the lives of children and young people. Research has consistently shown that the most economically disadvantaged pupils across the United Kingdom (UK) have the poorest educational outcomes and that poverty has a pernicious effect on children’s well-being. However, far less is known about the ways that poverty is differentially experienced for children and young people in schools within the four jurisdictions of the UK. Are there historical, social and cultural factors that make poverty a postcode lottery in terms of quality of schooling in the different parts of the UK? Are successful local interventions context specific as the research evidence seems to suggest or can we learn from particular regions or cities? This introduction points out that anxieties about growing educational inequality in the UK have to be contextualised historically, geographically and in terms of the distinct political and socio-economic landscapes in England, Scotland, Wales and Northern Ireland.

scholarly journals Community Theater as social support for youth: agents in the promotion of health

2015 ◽  
Vol 20 (5) ◽  
pp. 1353-1362 ◽  
Author(s):  
Denise Diba ◽  
Ana Flavia d'Oliveira
Keyword(s):  
Young People ◽  
Ethnographic Study ◽  
Structured Interviews ◽  
Community Theater ◽  
Health Community ◽  
Liberation Pedagogy ◽  
Actual Operation ◽  
One Year ◽  
Relationship Of

There has been much discussion on promotion of the health of young people in vulnerable situations; but little work has been done analyzing its actual operation - and this is especially true in relation to programs and projects that are outside the health services. This article aims to analyze the relationship of an experience in Community Theater with the promotion of health. It is a qualitative, ethnographic study made at the Pombas Urbanas Institute, in the Cidade Tiradentes district of the municipality of São Paulo, and is coordinated by a theater group with a history that is relevant to the objective of the study. Participatory observation was carried out for one year, with semi-structured interviews with young people, and with actors of the Pombas Urbanas group, and analysis of documents. The theoretical framework that was used is made up of concepts from the fields of collective health, Community Theater, and liberation pedagogy. The results are presented in two interlinked sub-categories which have arisen from the empiric material and from the references adopted: (i) 'True friends', and (ii) 'Dialog'. The analysis clearly shows the importance of this type of theatrical joint experience for the promotion of health by transforming the quality of relationships between people. Concepts of health, culture and education were used in analysis of the results.

‘Physical appearance and well-being in adults with incurable cancer: a thematic analysis’

2020 ◽  
pp. bmjspcare-2020-002632
Author(s):  
Philippa Tollow ◽  
Jane Ogden ◽  
Candida S McCabe ◽  
Diana Harcourt
Keyword(s):  
Thematic Analysis ◽  
Psychosocial Support ◽  
Positive Impact ◽  
Well Being ◽  
Emotional Impact ◽  
Structured Interviews ◽  
Incurable Cancer ◽  
The Impact ◽  
Appearance Changes

ObjectivesExisting research has established the importance of appearance concerns for individuals with cancer and identified appearance as an important factor in dying with dignity. No research, however, has explored in depth the role of appearance in the experiences of individuals who have incurable cancer. This research aims to explore patients’ experiences and perspectives in relation to the role of appearance issues in adults with incurable cancer.MethodsSemi-structured interviews were conducted with 24 adults with incurable cancer (20 women, 4 men; mean age 54.5, SD 11.32).ResultsThematic analysis generated three themes: ‘Identity: Embodying Cancer’, ‘Communication: Wearing your illness’ and ‘Support: Holistic Care’. Appearance was felt to be an important element of identity, which was often dominated by cancer, leading to feelings of separation from the participant’s previous self. Appearance changes also influenced the way in which individuals communicated with their external world, forcing discussion of their diagnosis, and increasing focus on their cancer, with participants having to manage the emotional impact of this on loved ones, as well as the impact on their legacy. Finally, participants highlighted the positive impact of appearance-related support in their well-being and identified peer connections and refocusing on the self as key elements of such support.ConclusionsAppearance changes play an important role in the experiences of individuals with incurable cancer with regards to both identity and communication and challenged participants’ ability to maintain normalcy. Further psychosocial support relating to appearance concerns was considered necessary to promote dignity and provide truly holistic patient care.

scholarly journals Green Infrastructures in the Peri-Urban Landscape: Exploring Local Perception of Well-Being through ‘Go-Alongs’ and ‘Semi-Structured Interviews’

2020 ◽  
Vol 12 (17) ◽  
pp. 6836
Author(s):  
Rocío Santo-Tomás Muro ◽  
Carlota Sáenz de Tejada Granados ◽  
Eva J. Rodríguez Romero
Keyword(s):  
Urban Areas ◽  
Urban Landscape ◽  
Well Being ◽  
Full Potential ◽  
Structured Interviews ◽  
Local Perception ◽  
Relevant Role ◽  
Environmental Inequalities

Providing conditions for health and well-being, especially for those most exposed to social and environmental inequalities, is a precondition for sustainable development. Green infrastructures in peri-urban areas have the potential to improve the quality of life of locals by fostering healthy practices, providing views, or bringing nature closer to the city. This work explores the local perception of well-being within urban green infrastructures (UGI) in the peri-urban fringe of Madrid (Spain) through a combination of qualitative methods: “go-alongs” and “semi-structured static interviews”. The grounded-theory based codification of the data using NVivo software and their subsequent analysis results in the identification of social, natural, and perceptual elements that prove to play a relevant role in locals’ perception of well-being. Among these, connectivity with other green spaces, panoramic views and place-based memories are aspects that seem to make UGI serve the community at its full potential, including perceived physical and psychological well-being. We identify in each case study both positive characteristics of UGI and dysfunctional aspects and areas of opportunity. Lastly, a methodological, geographical, and theoretical discussion is made on the relevance of the case studies and pertinence of the two interview methods as valuable tools for analysis and intervention in the peri-urban landscape.

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