Factors Associated with Well-Being of Family Caregivers of Children with Cerebral Palsy in Bangkok

2020 ◽  
Vol 103 (11) ◽  
pp. 1214-1219
Keyword(s):  
Social Support ◽  
Cerebral Palsy ◽  
Family Caregivers ◽  
Self Efficacy ◽  
Well Being ◽  
Personal Factors ◽  
Burden Of Care ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
The Mean

Objective: This correlational study was conducted to investigate the factors related to the well-being of family caregivers of children with cerebral palsy (CP). Materials and Methods: Seventy-five participants meeting the inclusion criteria were family caregivers of children with CP in Bangkok. Data were collected using structured interviews following eight questionnaires including personal factors of children with CP and their family caregivers, knowledge of CP, beliefs of rehabilitation, perceived self-efficacy in care, the burden of care, social support, and well-being of family caregivers. Data were analyzed using descriptive statistics, Pearson product moment correlation, Spearman rank order correlation, and chi-square test. Results: Findings showed that the mean age (±SD) of children with CP was of 11.0±4.2 years. The perceived self-efficacy in care and social support were significantly positively correlated with the well-being of the family caregivers (p<0.05, 0.01, 0.05, respectively) while the mean the burden of care was significantly negatively associated with the well-being of the family caregivers (p<0.01). Conclusion: The important keys of caring for children with CP should be to provide the knowledge of care and self-support, the social support, and perceived self-efficacy in care of family caregivers to enhance their confidence to solve problems and reduced care burden resulting in the well-being of the family caregivers for children with CP. Keywords: Factors, Well-being, Family caregivers, Children with cerebral palsy

Children with cerebral palsy: Family and parent demographic characteristics and family strengths in Greece and Italy

2020 ◽  
pp. 135910531990027
Author(s):  
Assimina Tsibidaki
Keyword(s):  
Cerebral Palsy ◽  
Data Collection ◽  
Well Being ◽  
Demographic Characteristics ◽  
Self Report ◽  
Family Strengths ◽  
Biological Child ◽  
The Family ◽  
Children With Cerebral Palsy ◽  
High Sense

The study focuses on families raising a child with cerebral palsy to investigate family strengths and their association with family and parent demographic characteristics in Greece and Italy. Participants were 120 parents raising a biological child with cerebral palsy. Data collection used a self-report questionnaire and the Family Strengths Inventory. According to the findings, families share a high sense of family strengths, which is mainly represented in the high sense of ‘pride’ and ‘accord’. In addition, demographic characteristics seem to be important predictors of well-being and strengthen parents and families raising a child with cerebral palsy.

Social support and well-being in dementia family caregivers: The mediating role of self-efficacy

2009 ◽  
Vol 13 (5) ◽  
pp. 761-768 ◽  
Author(s):  
Alma Au ◽  
Man-Kin Lai ◽  
Kam-Mei Lau ◽  
Pey-Chyou Pan ◽  
Linda Lam ◽  
...  
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Self Efficacy ◽  
Well Being ◽  
Mediating Role

scholarly journals Emotional well-being and social support as important factors affecting the quality of life of parents of a child with cerebral palsy

2019 ◽  
Vol 18 ◽  
pp. e019002
Author(s):  
Katarína Molnárová Letovancová ◽  
Miriam Slaná ◽  
Michaela Hromková
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Cerebral Palsy ◽  
Well Being ◽  
Average Score ◽  
Family Quality Of Life ◽  
Life Questionnaire ◽  
Quality Of Life Scale ◽  
Children With Cerebral Palsy

The birth of a child with cerebral palsy is an enormous challenge for the parents which has a direct impact on their quality of life. Therefore, we believe it is important to pay attention to this topic. To that end, we conducted research on the quality of life of parents of children with cerebral palsy in 2018. To achieve our goal, we applied quantitative research strategy and used a valid research tool, i.e. a standardized quality of life questionnaire – Family Quality of Life Scale ("FQOL"). The average score reached by respondents was 94.0918 points which indicates a higher quality of life in respondents than expected. The evaluation of the average score for each dimension of the scale showed that respondents scored the lowest in the "Emotional Well-Being" dimension (13.2551 points) and "Social Support" (15.6429 points). The research further confirmed that there were statistically significant differences in the quality of life of respondents depending on their age (t = -2.341, p = 0.021), marital status (F = 3.476, p = 0.019) and the territorial region (χ2 = 15.39, p = 0.031). A statistically significant relationship between the quality of life of respondents and the age of the child with cerebral palsy (0.288 **, p = 0.004) was confirmed. Despite a relatively high score that indicated a higher quality of life in respondents, the research identified two areas in which parents of children with cerebral palsy had a lower quality of life, namely, their emotional well-being and social support.

Perceived social support and burden of care of male and female caregivers of patient with schizophrenia

2017 ◽  
Vol 8 (1) ◽  
pp. 10
Author(s):  
Narendra Kumar Singh ◽  
Nishant Goyal
Keyword(s):  
Social Support ◽  
Perceived Social Support ◽  
Family Members ◽  
Well Being ◽  
Cross Sectional Study ◽  
Burden Of Care ◽  
Cross Sectional ◽  
Male And Female ◽  
The Social ◽  
The Difference

Background: Schizophrenia is associated with a high familial, social and economic burden. Schizophrenia is also associated with a high level of disability which may create impediments on the social and economic areas of the patients as well as on their respective family networks. Families with schizophrenia may encounter problems such as impairment of health and well being of other family members, restriction of social activities of the family members and shrinking of support from the social network. Aims: The present study examined the difference in perceived social support and burden of care between the male and female caregivers of patients with schizophrenia. Methods: This was a cross-sectional study examining the difference in perceived social support and burden of care between the male and female caregivers of patients with schizophrenia. The sample consisted of 60 (30 male and 30 female) caregivers of the patients with the diagnosis of schizophrenia as per ICD-10-DCR. Results and Conclusion: This study revealed that male caregivers perceived more social support and less burden of care as compared to female caregivers. Key words: Gender, social support, burden

scholarly journals Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol

BMC Neurology ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Catherine Arnaud ◽  
Carine Duffaut ◽  
Jérôme Fauconnier ◽  
Silke Schmidt ◽  
Kate Himmelmann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Cerebral Palsy ◽  
Young People ◽  
General Population ◽  
Transition Period ◽  
Well Being ◽  
Personal Factors ◽  
The Impact

Abstract Background Effective inclusion in society for young people with disabilities is increasingly seen as generating opportunities for self-development, and improving well-being. However, significant barriers remain in the vast majority of activities meaningful for young adults. Research argues that various personal (disabilities, health) and environmental (access to the resources needed, accessible environment, discrimination, lack of personal economic independence) factors contribute to limited participation. However, previous studies conducted in young people with cerebral palsy (CP) mainly investigated the transition period to adulthood, and did not fully consider the whole range of impairment severity profiles or environmental barriers. In this study, we will use the follow-up of the SPARCLE cohort and a comparison group from the general population (1) to investigate the impact of the environment on participation and quality of life of young adults with CP, (2) to determine predictors of a successful young adulthood in educational, professional, health and social fields, (3) to compare quality of life and frequency of participation in social, work and recreational activities with the general population, (4) to document on participation and quality of life in those with severe disabilities. Methods The SPARCLE3 study has a combined longitudinal and cross-sectional design. Young adults with CP aged 22 to 27 years in 6 European regions previously enrolled in the SPARCLE cohort or newly recruited will be invited to self-complete a comprehensive set of questionnaires exploring participation (daily life and discretionary activities), health-related quality of life, body function, personal factors (health, personal resources), and contextual factors (availability of needed environmental items, family environment, services provision) during home visits supervised by trained researchers. Proxy-reports or adapted questionnaires will be used for those with the most severe impairments. The recruitment of a large group from the general population (online survey) will enable to identify life areas where the discrepancies between young people with CP and their able-bodied peers are the most significant. Discussion This study will help identify to what extent disabilities and barriers in environment negatively affect participation and quality of life, and how previous valued experiences during childhood or adolescence might modulate these effects.

scholarly journals Rasgos de personalidad y recursos psicológicos como predictores del bienestar emocional en adolescentes con y sin formación en escuelas de tauromaquia

2018 ◽  
Vol 23 (1) ◽  
pp. 1
Author(s):  
Pilar Sanjuan ◽  
David Guillen ◽  
Ana María Pérez-García
Keyword(s):  
Social Support ◽  
Problem Solving ◽  
Personality Traits ◽  
Self Efficacy ◽  
Well Being ◽  
Openness To Experience ◽  
Control Group ◽  
Psychological Resources ◽  
Avoidance Coping ◽  
School Group

 Abstract: Personality traits and psychological resources as predictors of emotional well-being in adolescents with and without training in bullfighting schools. The main objective of this study was to analyse how being in training in bullfighting schools can affect the emotional well-being (EW), the personality and the psychological resources of adolescents. The sample consisted of 196 boys, 95 from bullfighting school group (BSG) and 101 from a control group (CG). The BSG, in relation to CG, scored significantly more on conscientiousness, agreeableness and openness to experience, as well as on self-efficacy, problem-solving (PSC) and social support coping (SSC), and EW. The EW was predicted by feeling self-efficacy and not using avoidance coping, and in the CG by being extraverted, showing conscientiousness, being low in neuroticism, feeling self-efficacy and using PSC and SSC. It discusses the psychological adaptive profile of adolescents in the BSG and the need to promote well-being in adolescence through the promotion of self-efficacy and active coping.Resumen: El objetivo principal de este estudio fue analizar cómo la formación en escuelas de tauromaquia puede afectar al bienestar emocional (BE), la personalidad y los recursos psicológicos de los adolescentes. Participaron 196 chicos, 95 del grupo de escuelas taurinas (GET) y 101 del grupo control (GC). El GET, en relación con el GC, puntuaba significativamente más en tesón, afabilidad y apertura, así como en autoeficacia, afrontamiento de solución de problemas (ASP) y basado en los demás (AD), y BE. El BE se predecía en el GET por sentirse eficaz y no usar el afrontamiento de evitación, y en el GC por ser extravertido, mostrar tesón, ser bajo en neuroticismo, sentirse eficaz y emplear el ASP y AD. Se discute sobre el perfil psicológico adaptativo que presentan los adolescentes del GET y la necesidad de promover el bienestar en la adolescencia mediante el fomento de la autoeficacia y el afrontamiento activo.

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