‘Normal’ and ‘failing’ mothers: Women’s constructions of maternal subjectivity while living with multiple sclerosis

2017 ◽  
Vol 23 (5) ◽  
pp. 516-532 ◽  
Author(s):  
Chloe Parton ◽  
Terri Katz ◽  
Jane M Ussher
Keyword(s):  
Multiple Sclerosis ◽  
Cultural Context ◽  
Sense Of Self ◽  
Well Being ◽  
Structured Interviews ◽  
Cultural Discourses ◽  
Biographical Disruption ◽  
Maternal Subjectivity ◽  
Subject Positions ◽  
The Impact

Multiple sclerosis causes physical and cognitive impairment that can impact women’s experiences of motherhood. This study examined how women construct their maternal subjectivities, or sense of self as a mother, drawing on a framework of biographical disruption. A total of 20 mothers with a multiple sclerosis diagnosis took part in semi-structured interviews. Transcripts were analysed using thematic decomposition to identify subject positions that women adopted in relation to cultural discourses of gender, motherhood and illness. Three main subject positions were identified: ‘The Failing Mother’, ‘Fear of Judgement and Burdening Others’ and ‘The Normal Mother’. Women’s sense of self as the ‘Failing Mother’ was attributed to the impact of multiple sclerosis, contributing to biographical disruption and reinforced through ‘Fear of Judgement and Burdening Others’ within social interactions. In accounts of the ‘Normal Mother’, maternal subjectivity was renegotiated by adopting strategies to manage the limitations of multiple sclerosis on mothering practice. This allowed women to self-position as ‘good’ mothers. Health professionals can assist women by acknowledging the embodied impact of multiple sclerosis on maternal subjectivities, coping strategies that women employ to address potential biographical disruption, and the cultural context of mothering, which contributes to women’s experience of subjectivity and well-being when living with multiple sclerosis.

scholarly journals A secondary qualitative analysis exploring the emotional and physical challenges of living with type 2 diabetes

2021 ◽  
Author(s):  
Michelle Hadjiconstantinou ◽  
Helen Eborall ◽  
Jacqui Troughton ◽  
Noelle Robertson ◽  
Kamlesh Khunti ◽  
...  
Keyword(s):  
Type 2 Diabetes ◽  
Qualitative Analysis ◽  
Diabetes Management ◽  
Well Being ◽  
Daily Routine ◽  
Structured Interviews ◽  
Biographical Disruption ◽  
Emotional Challenges ◽  
The Impact

Background: Many feel that their new identity as ‘someone living with diabetes’ does not fit with their biography. Some individuals may be able to re-assess life goals, adapt their identity and adjust to living with type 2 diabetes mellitus (T2DM). For others, the biographical disruption experienced with their condition may negatively affect their emotional well-being and identity. Aim: To conceptualise and explore the emotional challenges experienced living with T2DM, using biographical disruption as analytical references. Design and setting: Secondary qualitative analysis of data collected from 31 semi-structured interviews. Method: Semi-structured interviews were conducted with people with T2DM in England. Data analysis was informed by constant comparative techniques. Results: People with T2DM undergo a cognitive process when their biography suddenly becomes interrupted. Suboptimal T2DM can bring a feeling of loss of control over one’s future, and loss of independence. What used to be perceived as ‘normal’ is now perceived as something that requires regular management, negatively impacting their daily routine and ability to carry out activities that once used to be effortless. Conclusions: Living with T2DM that is socially stigmatised can lead to poor well-being and may disturb one’s life biography. Strategies must take place to bring awareness to healthcare professionals of the impact and disruption that T2DM can have on an individual’s biography, identity and diabetes management.

scholarly journals “You run out of hope:” An Exploration of Low-Income Parents’ Experiences with Food Insecurity using Photovoice

2021 ◽  
pp. 1-21
Author(s):  
Payge Lindow ◽  
Irene H. Yen ◽  
Mingyu Xiao ◽  
Cindy W. Leung
Keyword(s):  
Food Insecurity ◽  
San Francisco ◽  
Low Income ◽  
Eating Behaviors ◽  
Comparative Method ◽  
Well Being ◽  
Structured Interviews ◽  
Unhealthy Eating ◽  
Low Income Families ◽  
The Impact

ABSTRACT Objective: Using an adaption of the Photovoice method, this study explored how food insecurity affected parents’ ability to provide food for their family, their strategies for managing household food insecurity, and the impact of food insecurity on their well-being. Design: Parents submitted photos around their families’ experiences with food insecurity. Afterwards, they completed in-depth, semi-structured interviews about their photos. The interviews were transcribed and analyzed for thematic content using the constant comparative method. Setting: San Francisco Bay Area, California, USA. Subjects: 17 parents (14 mothers and 3 fathers) were recruited from a broader qualitative study on understanding the experiences of food insecurity in low-income families. Results: Four themes were identified from the parents’ photos and interviews. First, parents described multiple aspects of their food environment that promoted unhealthy eating behaviors. Second, parents shared strategies they employed to acquire food with limited resources. Third, parents expressed feelings of shame, guilt, and distress resulting from their experience of food insecurity. And finally, parents described treating their children to special foods to cultivate a sense of normalcy. Conclusions: Parents highlighted the external contributors and internal struggles of their experiences of food insecurity. Additional research to understand the experiences of the food-insecure families may help to improve nutrition interventions targeting this structurally vulnerable population.

scholarly journals Views of the Future of Partners of People with Multiple Sclerosis Who Attended a Lifestyle Modification Workshop: A Qualitative Analysis of Perspectives and Experiences

2020 ◽  
Vol 18 (1) ◽  
pp. 85
Author(s):  
Sandra L. Neate ◽  
Keryn L. Taylor ◽  
Nupur Nag ◽  
George A. Jelinek ◽  
Steve Simpson-Yap ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Health Outcomes ◽  
Lifestyle Modification ◽  
Structured Interviews ◽  
Interpretive Phenomenology ◽  
Related Risk ◽  
The Future ◽  
Partner Perceptions ◽  
And Control ◽  
The Impact

People with multiple sclerosis (PwMS) often experience uncertainty and fear about their futures. Partners of PwMS may share their concerns and experience fears about their own futures, limitations on their lives, ability to work, and becoming a carer. For PwMS, modification of lifestyle-related risk factors has been associated with improved health outcomes. For PwMS who attended residential lifestyle modification workshops (RLMW), sustained improved health outcomes have been demonstrated. Whether improved outcomes for PwMS who engage with lifestyle modification translate to improved partner perceptions of the future, is yet to be explored. We explored the perspectives of partners of PwMS who had attended a RLMW and the impact that the person with MS’s illness and their engagement with lifestyle modification had on their partners’ views of the future. Analysis of 21 semi-structured interviews used a methodology informed by Heidegger’s Interpretive Phenomenology. Three themes emerged: ‘uncertainty’, ‘planning for the future’ and ‘control, empowerment and confidence’. Subthemes included MS and lifestyle modification being a catalyst for positive change; developing a sense of control and empowerment; and hope, optimism and positivity. Lifestyle modification may provide benefits, not only to PwMS, but also to their partners, and should be considered part of mainstream management of MS.

The Impact on Well-Being of Experiences at Cultural Events

2021 ◽  
Author(s):  
Valentina Gorchakova ◽  
Kenneth F. Hyde
Keyword(s):  
Social Interactions ◽  
Well Being ◽  
Emotional Engagement ◽  
Structured Interviews ◽  
Art Galleries ◽  
Special Events ◽  
Research Findings ◽  
Favourable Environment ◽  
The Impact

Major international cultural exhibitions, often referred to as touring ‘blockbuster’ exhibitions (TBEs), are arguably among the most stimulating and engaging event experiences. The role of orchestrating an experience that is meaningful and memorable has captured the attention of scholars in the events literature over recent decades. The aims of this paper are to re-conceptualise major international cultural exhibitions as special events, present a framework of the experiences these exhibitions generate for visitors, and explore the roles such experiences play in visitor well-being. The study draws on the findings of qualitative research conducted in Australia and New Zealand. Semi-structured interviews were conducted with representatives of art galleries and museums in Melbourne, Canberra, Auckland, and Wellington involved in hosting ‘blockbuster’ exhibitions, as well as representatives of regional cultural, tourism, and events organisations. This paper presents a ‘3Es’ experience realms framework, which comprises the key experiences that a major cultural and arts event generates for visitors: entertainment, enrichment, and emotional engagement. The first realm of the 3Es framework, entertainment, has encountered scepticism in the museum field; however, research findings here corroborate the arguments of those scholars who hold that entertainment may help to engage visitors and facilitate education. Enrichment comprises the creation of a favourable environment for new knowledge to be processed, and the enhancement of knowledge. The third realm is an emotionally engaging experience that results from social interactions, activities, and contemplation of and learning about unique exhibits. The framework demonstrates an interplay of these three major experiential dimensions and visitors’ hedonic and eudaemonic well-being. Exhibition and event organisers can utilise this framework to plan the delivery of memorable experiences for visitors and explore the ways in which their event can be made enjoyable, enriching, and emotionally engaging.

scholarly journals Women’s lives in times of Zika: mosquito-controlled lives?

2018 ◽  
Vol 34 (5) ◽  
Author(s):  
Ana Rosa Linde ◽  
Carlos Eduardo Siqueira
Keyword(s):  
Coping Strategies ◽  
Sampling Technique ◽  
Well Being ◽  
Snowball Sampling ◽  
Structured Interviews ◽  
International Agencies ◽  
The Us ◽  
Women's Lives ◽  
Heavy Burden ◽  
The Impact

Zika virus infection during pregnancy is a cause of congenital brain abnormalities. Its consequences to pregnancies has made governments, national and international agencies issue advices and recommendations to women. There is a clear need to investigate how the Zika outbreak affects the decisions that women take concerning their lives and the life of their families, as well as how women are psychologically and emotionally dealing with the outbreak. We conducted a qualitative study to address the impact of the Zika epidemic on the family life of women living in Brazil, Puerto Rico, and the US, who were affected by it to shed light on the social repercussions of Zika. Women were recruited through the snowball sampling technique and data was collected through semi-structured interviews. We describe the effects in mental health and the coping strategies that women use to deal with the Zika epidemic. Zika is taking a heavy toll on women’s emotional well-being. They are coping with feelings of fear, helplessness, and uncertainty by taking drastic precautions to avoid infection that affect all areas of their lives. Coping strategies pose obstacles in professional life, lead to social isolation, including from family and partner, and threaten the emotional and physical well-being of women. Our findings suggest that the impacts of the Zika epidemic on women may be universal and global. Zika infection is a silent and heavy burden on women’s shoulders.

scholarly journals Health-Related Quality of Life of Patients with Multiple Sclerosis in Oman – A CrossSectional Study

2021 ◽  
Author(s):  
Jansirani Natarajan ◽  
Mickael Antoine Joseph ◽  
Abdullah Al Asmi ◽  
Gerald Amandu Matua ◽  
Jaber Al Khabouri ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Disease Process ◽  
Well Being ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact ◽  
Disease Specific

Objectives: Multiple sclerosis is a disabling neurological disorder with significant negative effects on patients’ quality of life. Despite the increased prevalence of multiple sclerosis in Arabian Gulf countries in recent years, no study has assessed the impact of multiple sclerosis on the healthrelated quality of life of Omani patients. Therefore, the objectives of the current study was to assess the impact of multiple sclerosis on the health-related quality of life of Omani patients using the validated disease-specific self-administered MusiQoL instrument. Methods: A cross-sectional descriptive study was carried out between April and December 2019 on 177 Omani patients with multiple sclerosis attending two major hospitals in Oman. Patients’ health-related quality of life was assessed using the validated disease-specific self-administered MusiQoL instrument. Results: Majority (51.4%) of the patients had poor HRQOL and 48.6% had moderate HRQOL. We found that being older than 30 years, a female, married, separated, widowed, or divorced, and having visual and sleep problems had poorer health-related quality of life. Among the different health-related quality of life components, relationship with the healthcare system and relationship with family and friends were the most affected because of the disease process. Our results also showed that psychological well-being and coping domains of MusiQoL questionnaires are significantly reduced in females as compared to males. Conclusion: Understanding the health-related quality of life of Omanis with multiple sclerosis provides valuable knowledge that could help optimize the management of this disease.

scholarly journals ‘It’s a real fine balancing act’: directly employed care workers’ experiences of engaging with health services

2021 ◽  
Author(s):  
Jane Wilcock ◽  
Jill Manthorpe ◽  
Jo Moriarty ◽  
Steve Iliffe
Keyword(s):  
Health Services ◽  
Healthcare Professionals ◽  
Healthcare Providers ◽  
Well Being ◽  
Care Work ◽  
Structured Interviews ◽  
Care Workers ◽  
The Impact ◽  
Health And Well Being

Little is known of the experiences of directly employed care workers communicating with healthcare providers about the situations of their employers. We report findings from 30 in-depth semi-structured interviews with directly employed care workers in England undertaken in 2018–19. Findings relate to role content, communication with healthcare professionals and their own well-being. Directly employed care workers need to be flexible about the tasks they perform and the changing needs of those whom they support. Having to take on health liaison roles can be problematic, and the impact of care work on directly employed workers’ own health and well-being needs further investigation.

scholarly journals The Impact of the Sars Cov-2 Pandemic on the Mental Health and Well-Being of Seniors in Social Care Facilities

2021 ◽  
Vol 12 (3) ◽  
pp. 104-110
Author(s):  
Z. Budayova ◽  
L. Ludvigh Cintulova
Keyword(s):  
Mental Health ◽  
Social Services ◽  
Research Study ◽  
Social Care ◽  
Well Being ◽  
Structured Interviews ◽  
Care Facilities ◽  
Open Coding ◽  
The Impact ◽  
Health And Well Being

The research study analyses the effects of the Covid-19 pandemic and identifies changes in the life satisfaction of seniors in social services facilities. The research sample consisted of 79 seniors in social services facilities, the sample consisted of ten participants, data collection took place in the period from November 2020 to April 2021, where the method of qualitative research was used in empirical research, through semi-structured interviews to determine the impact of Covid-19 on We collected the data collected by open coding and pointed to those dimensions of the lives of seniors that were most marked by pandemic measures against the spread of Covid-19.

scholarly journals "Sowing and Growing" Life Skills Through Garden-Based Learning to Reengage Disengaged Youth

2016 ◽  
Vol 10 (1) ◽  
pp. 361-385 ◽  
Author(s):  
Son Truong ◽  
Tonia Gray ◽  
Kumara Ward
Keyword(s):  
Educational Outcomes ◽  
Life Skills ◽  
Well Being ◽  
Self Esteem ◽  
Botanic Gardens ◽  
Structured Interviews ◽  
Collaborative Practices ◽  
Royal Botanic Gardens ◽  
Youth Community ◽  
The Impact

There is an emerging body of literature that explores the impact of garden-based learning on health, well-being, social cohesion, and educational outcomes. In this paper, we examine a pilot study conducted in partnership with the Royal Botanic Gardens’ Youth Community Greening to implement a gardening program with disengaged youth. Data was collected through eldwork and semi-structured interviews, revealing ve interconnected themes: enhancing well-being and health literacy; building life skills; engaging students; connecting with adults; and increasing self- esteem. We conclude by showcasing some of the collaborative practices between educational contexts and communities to reveal how these partnerships can be mutually enhancing.

“We Begin 300 Metres Behind the Starting Line”

2021 ◽  
Vol 11 (2) ◽  
Author(s):  
Sara Hosseini-Nezhad ◽  
Saba Safdar ◽  
Lan Anh Nguyen Luu
Keyword(s):  
International Students ◽  
Well Being ◽  
Psychosocial Adaptation ◽  
Structured Interviews ◽  
One Year ◽  
Iranian Students ◽  
Almost All ◽  
The Impact ◽  
Longitudinal Qualitative Research ◽  
Over Time

This longitudinal qualitative research aimed to investigate the psychosocial adaptation trajectory of Iranian international students in Hungary and the challenges they encountered. Semi-structured interviews were conducted at seven-month to one-year intervals with 20 Iranian students; inductive content analysis was utilized to analyze the interview transcripts. Three topics were identified: (1) visa and banking challenges, (2) the impact of the currency crisis in Iran on mental health, and (3) positive and negative changes in psychological well-being over time. The results revealed that almost all students’ well-being improved over time, despite facing challenges related to visas, banking, and Iran’s recent economic crisis (specifically, the drastic plunge of the Iranian currency).

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