‘I don’t feel like I’m in this on my own’: Peer support for mothers of children with intellectual disability and challenging behaviour

2019 ◽  
Vol 23 (3) ◽  
pp. 344-358 ◽  
Author(s):  
Angela Dew ◽  
Susan Collings ◽  
Leanne Dowse ◽  
Ariella Meltzer ◽  
Louisa Smith
Keyword(s):  
Intellectual Disability ◽  
Peer Support ◽  
Family Quality Of Life ◽  
Challenging Behaviour ◽  
Engagement Strategies ◽  
Individual Self ◽  
Process Elements ◽  
Parent Peer Support

This article reports on the peer support experiences of mothers with a son or daughter with intellectual disability and challenging behaviour. Engagement in parent peer support programs can improve family quality of life and may have multifaceted benefits at the interpersonal, intra-individual self-change and sociopolitical levels. Thirteen mothers were interviewed about their experiences of participating in a parent peer support program. Thematic analysis focused on the process elements of the program that contributed to its effectiveness in providing support to parents. There were three process-related themes: the role of a paid coordinator, diversity of engagement strategies and matching of peer support partners. Mothers appreciated the opportunities provided to engage in a range of strategies tailored to individual preferences, time and capacity constraints, supported by the paid coordinator. One-to-one peer support proved difficult to sustain given the challenges mothers faced in their day-to-day lives.

scholarly journals Interventions for challenging behaviour in intellectual disability

2014 ◽  
Vol 20 (3) ◽  
pp. 184-192 ◽  
Author(s):  
Afia Ali ◽  
Jessica Blickwedel ◽  
Angela Hassiotis
Keyword(s):  
Intellectual Disability ◽  
Evidence Base ◽  
Current Evidence ◽  
List Type ◽  
Challenging Behaviour ◽  
Pharmacological Treatments ◽  
Current Evidence Base ◽  
The Individual

SummaryChallenging behaviour is common in intellectual disability but it is difficult to diagnose and manage. It can adversely affect the quality of life of the individual and cause the breakdown of community placements, resulting in hospital admission. This article discusses the aetiology of challenging behaviour (including the complex relationship with mental illness), diagnostic problems, the current evidence base in relation to psychosocial and pharmacological treatments, and service delivery.LEARNING OBJECTIVES•Understand the aetiological basis of challenging behaviour.•Understand the role of functional analysis.•Appreciate the evidence base in relation to the psychological and pharmacological treatment of challenging behaviour.

scholarly journals Self-Determination in People with Intellectual Disability: The Mediating Role of Opportunities

2020 ◽  
Vol 17 (17) ◽  
pp. 6201
Author(s):  
Eva Vicente ◽  
Cristina Mumbardó-Adam ◽  
Verónica M. Guillén ◽  
Teresa Coma-Roselló ◽  
María-Ángeles Bravo-Álvarez ◽  
...  
Keyword(s):  
Intellectual Disability ◽  
Self Regulation ◽  
Self Determination ◽  
Persons With Disabilities ◽  
Mediating Role ◽  
Almost All ◽  
Disability Level ◽  
At Home

The Convention on the Rights of Persons with Disabilities have proclaimed the basic right of people to make one’s own choices, have an effective participation and inclusion. Research in the field of disability have stressed self-determination as a key construct because of its impact on their quality of life and the achievement of desired educational and adulthood related outcomes. Self-determination development must be promoted through specific strategies and especially, by providing tailored opportunities to practice those skills. Providing these opportunities across environments could be especially relevant as a facilitator of self-determination development. This manuscript aims to ascertain if opportunities at home and in the community to engage in self-determined actions are mediating the relationship between people intellectual disability level and their self-determination. Results have confirmed direct effects of intellectual disability level on self-determination scores. Indirect effects also predicted self-determination and almost all its related components (self-initiation, self-direction, self-regulation, self-realization, and empowerment) through opportunities in the community and at home. Autonomy was predicted by the intellectual disability level through an indirect effect of opportunities at home, but not in the community. These results highlight the need for further research to better operationalize and promote contextually rooted opportunities for people with intellectual disability to become more self-determined.

College Campus Sexual Assault: The Contribution of Peers’ Proabuse Informational Support and Attachments to Abusive Peers

2017 ◽  
Vol 24 (8) ◽  
pp. 922-935 ◽  
Author(s):  
Walter S. DeKeseredy ◽  
Amanda Hall-Sanchez ◽  
James Nolan
Keyword(s):  
United States ◽  
Sexual Assault ◽  
Peer Support ◽  
The United States ◽  
Female College Students ◽  
Campus Sexual Assault ◽  
Community Needs ◽  
And Control

Since the mid-1980s, researchers across the United States have uncovered high rates of sexual assault among female college students. However, to advance a better understanding of this gendered type of victimization, and to both prevent and control this problem, the research community needs to identify its major correlates. One that is consistently uncovered in North American campus survey work is negative peer support, especially that provided by male peers. Yet, some earlier studies have found that mixed-sex negative peer support, too, contributes to campus sexual assault. Using recent data from the Campus Quality of Life Survey conducted at a large residential school in the South Atlantic region of the United States, the main objectives of this article are to examine the role of mixed-sex negative peer support in campus sexual assault and to identify the groups of women most at risk of having friends who offer such support.

The role of peer support education model on the quality of life and self-care behaviors of patients with myocardial infarction

2021 ◽  
Vol 104 (1) ◽  
pp. 130-135
Author(s):  
Hossein Ebrahimi ◽  
Ali Abbasi ◽  
Hossein Bagheri ◽  
Mohammad Hasan Basirinezhad ◽  
Sara Shakeri ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Myocardial Infarction ◽  
Peer Support ◽  
Self Care ◽  
Education Model

Predictors of quality of life in people with intellectual disability in Bosnia and Herzegovina

2016 ◽  
Vol 15 (3) ◽  
Author(s):  
Haris Memisevic ◽  
Selmir Hadzic ◽  
Sadeta Zecic ◽  
Edin Mujkanovic
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Employment Status ◽  
Self Report ◽  
Support Programs ◽  
Governmental Organizations ◽  
Non Governmental Organizations ◽  
Disability Employment

AbstractQuality of life (QOL) of people with intellectual disability is increasingly becoming the target for intervention and a measure of success of different support programs. Knowing the predictors of QOL might make the support programs more effective. In the present study, QOL of 152 persons with intellectual disability was assessed through the personal outcomes scale (POS)-self report. Total score on the POS was used as a dependent variable and age, sex, level of intellectual disability, employment status and marriage status were assessed as the potential predictors of QOL. The statistically significant predictors of QOL were level of intellectual disability and employment status. These predictors explained 19% of variance in POS scores. The results of this study indicate that the strategies aimed at increasing the QOL of people with disability must focus on finding and expanding the employment opportunities for people with intellectual disability. The role of non-governmental organizations (NGOs) can be very significant in this regard. The article concludes with a discussion of how predictors of QOL outcomes reported by other investigators could be incorporated into the policies and practices of NGOs to enhance person-referenced QOL outcomes.

Confirmatory Factor Analysis of a Family Quality of Life Scale for Taiwanese Families of Children With Intellectual Disability/Developmental Delay

2017 ◽  
Vol 55 (2) ◽  
pp. 57-71 ◽  
Author(s):  
Chun-Yu Chiu ◽  
Hyojeong Seo ◽  
Ann P. Turnbull ◽  
Jean Ann Summers
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Developmental Delay ◽  
Reliability And Validity ◽  
Family Quality Of Life ◽  
Family Outcomes ◽  
Quality Of Life Scale ◽  
Confirmatory Factor ◽  
Life Scale

Abstract The Beach Center Family Quality of Life Scale is an internationally validated instrument for measuring family outcomes. To revise the scale for better alignment with the Family Quality of Life theory, the authors excluded non-outcome items in this revision. In this study, we examined reliability and validity of the revised scale (i.e., the FQoL Scale-21) and its scores for Taiwanese families of children and youth with intellectual disability and developmental delay (age 0–18). Results from 400 Taiwanese respondents suggested that the FQoL Scale-21 has the potential to be used as an indicator of positive outcomes in intervention evaluation, policy making, and service delivery.

Commentary on a “unified approach to behaviours that challenge”: against consensus – why we need a new field of challenging behaviour studies

2020 ◽  
Vol 25 (3) ◽  
pp. 169-172
Author(s):  
Stacy Clifford Simplican
Keyword(s):  
Research Policy ◽  
Challenging Behaviour ◽  
Policy And Practice ◽  
Content Type ◽  
Interdisciplinary Field ◽  
Direct Support ◽  
Positive Behaviour Support ◽  
Practical Implications

Purpose This paper challenges the value of consensus within the field of learning disability. In this commentary, the author argues that consensus threatens to silence multiple viewpoints, hides how power operates and stifles creativity. Design/methodology/approach The author focuses on two articles within this special issue to suggest that the consensus celebrated is more about a set of shared values, rather than a set of shared practices. This should make us question the depth of the field’s consensus. Findings The presumption that multiple paradigms can be “unified” actually hides how power operates to resolve disagreements among positive behaviour support, active support and human rights approaches. A similar erasure occurs in the language of “capable environments,” which the author argues obscures the role of individuals, relationships and organizational cultures in impacting quality of life. Research limitations/implications We need to create and build a new interdisciplinary field of challenging behaviour studies that is willing to embrace conflict and disagreement in research, policy and practice. Practical implications The author believes that this approach is more likely to empower people, including people with learning disabilities whose behaviour challenges, family members, and direct support workers because it is more likely to recognize their experiences and expertise. Originality/value A new multidisciplinary field of challenging behaviour studies may encourage more theoretical diversity that makes us challenge the value of consensus and embrace creativity.

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