Predictors of quality of life in people with intellectual disability in Bosnia and Herzegovina

2016 ◽  
Vol 15 (3) ◽  
Author(s):  
Haris Memisevic ◽  
Selmir Hadzic ◽  
Sadeta Zecic ◽  
Edin Mujkanovic
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Employment Status ◽  
Self Report ◽  
Support Programs ◽  
Governmental Organizations ◽  
Non Governmental Organizations ◽  
Disability Employment

AbstractQuality of life (QOL) of people with intellectual disability is increasingly becoming the target for intervention and a measure of success of different support programs. Knowing the predictors of QOL might make the support programs more effective. In the present study, QOL of 152 persons with intellectual disability was assessed through the personal outcomes scale (POS)-self report. Total score on the POS was used as a dependent variable and age, sex, level of intellectual disability, employment status and marriage status were assessed as the potential predictors of QOL. The statistically significant predictors of QOL were level of intellectual disability and employment status. These predictors explained 19% of variance in POS scores. The results of this study indicate that the strategies aimed at increasing the QOL of people with disability must focus on finding and expanding the employment opportunities for people with intellectual disability. The role of non-governmental organizations (NGOs) can be very significant in this regard. The article concludes with a discussion of how predictors of QOL outcomes reported by other investigators could be incorporated into the policies and practices of NGOs to enhance person-referenced QOL outcomes.

scholarly journals Measurement of overall quality of life in nursing homes through self-report: the role of cognitive impairment

2007 ◽  
Vol 16 (6) ◽  
pp. 1029-1037 ◽  
Author(s):  
Debby Lydia Gerritsen ◽  
Nardi Steverink ◽  
Marcel E. Ooms ◽  
Henrica C. W. de Vet ◽  
Miel W. Ribbe
Keyword(s):  
Quality Of Life ◽  
Cognitive Impairment ◽  
Nursing Homes ◽  
Self Report

An initial validation of a new quality of life measure for adults with intellectual disability: The Mini-MANS-LD

2018 ◽  
Vol 24 (2) ◽  
pp. 177-193
Author(s):  
Roman Raczka ◽  
Kate Theodore ◽  
Janice Williams
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Small Sample Size ◽  
Initial Study ◽  
Small Sample ◽  
Self Report ◽  
Life Measure ◽  
Acceptable Internal Consistency ◽  
Report Measure

There is an appropriate increasing focus on the need to ensure the voices of people with intellectual disability are captured as part of assessing individuals’ quality of life; however, there remains a lack of a consensus on ways to achieve this. This article describes the development of a self-report measure of quality of life for people with intellectual disability, the ‘Mini-MANS-LD’, based on the concepts of Maslow’s hierarchy of needs. Following use with 33 individuals with intellectual disability, the Mini-MANS-LD was found to have acceptable psychometric properties, including moderate congruent validity and acceptable internal consistency. Administrators’ feedback suggested good acceptability and feasibility, and the measure was relatively quick to administer, easy to use and acceptable to service users. Despite a small sample size, this initial study suggests that the Mini-MANS-LD may present a conceptually relevant, feasible and acceptable self-report measure of quality of life for people with intellectual disability.

scholarly journals A cross-sectional study on quality of life among the elderly in non-governmental organizations’ elderly homes in Kuala Lumpur

2016 ◽  
Vol 14 (1) ◽  
Author(s):  
Obinna Francis Onunkwor ◽  
Sami Abdo Radman Al-Dubai ◽  
Philip Parikial George ◽  
John Arokiasamy ◽  
Hemetram Yadav ◽  
...  
Keyword(s):  
Quality Of Life ◽  
The Elderly ◽  
Cross Sectional Study ◽  
Kuala Lumpur ◽  
Sectional Study ◽  
Cross Sectional ◽  
Governmental Organizations ◽  
Non Governmental Organizations

scholarly journals Measuring health-related quality of life of intellectually disabled children: a narrative review

2021 ◽  
Vol 8 (7) ◽  
pp. 3652
Author(s):  
Karthikayini Sasinthar ◽  
Abhijit V. Boratne ◽  
Arun Sugumaran ◽  
Raj Kumar Patil
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
English Literature ◽  
Self Report ◽  
Health Related Quality ◽  
Disabled Children ◽  
Intellectually Disabled ◽  
Related Quality ◽  
Health Related

To identify currently available measures of Health-related quality of life (HRQOL) for intellectually disabled children and to describe their content. A comprehensive retrieval of the English literature from 2001 to 2021 was done in the PubMed and Google Scholar. The terms ‘Intellectual disability’, ‘Differently abled’, ‘Special children’, ‘Differently challenged’, ‘Mental retardation’, ‘Health-related quality of life’, ‘Quality of life’, ‘Burden of intellectual disability’ and ‘India’ were used to identify measures of HRQOL for children’s with intellectual disability. Several tools were identified to measure HRQOL for children with intellectual disability. Many have parent proxy as well as self-report form with good validity and reliability. Though, they were often developed with minimal involvement from families, focus on functioning rather than wellbeing, and have items that sometimes may cause emotional upset. When children with different health problems are compared, the degree of their particular health condition should be measured. Furthermore, overlap of items seems not to be a problem when the HRQOL of children with intellectually disability is studied. Hence, HRQOL assessments are useful for collecting information beyond the clinical symptoms of a health problem thus improving quality of care.

scholarly journals Development And Validation Of A Diagnosis And Evaluation Instrument For Non-Governmental Organizations: Indicators To Determine Strengths, Weaknesses, And Areas Of Opportunity As A Means To Improve NGOs Performance

2011 ◽  
Vol 5 (12) ◽  
Author(s):  
Adriana Martínez Guerrero
Keyword(s):  
Quality Of Life ◽  
Developing Countries ◽  
Evaluation Instrument ◽  
Administrative Management ◽  
Governmental Organizations ◽  
Non Governmental Organizations ◽  
Increase Productivity ◽  
Effectiveness And Efficiency ◽  
Development And Validation

Currently, there are many effectiveness and efficiency theories, models and indicators in the companies worldwide. These theories, models, and indicators are more frequently applied to increase productivity and improve product and/or service quality. However, most non-governmental organizations (NGOs) in Mexico lack the necessary administrative structure to achieve a correct performance. NGOs help, to a large extent, improve the quality of life of many people in the developing countries, but the lack of tools has prevented NGOs from achieving their best performance (regarding productivity, efficiency, and transparency). The former can diminish reliability from the potential donors. A little has been done regarding NGOs administrative management in Mexico. The little existing research is mainly based on aspects such as NGOs history, experience, and current situation. Experts still expect other people, through formal studies, to complete this research to provide NGOs with the necessary tools to achieve the sector expected growth. The purpose of this research is to provide the tools that this type of organizations need to increase their performance level and improve credibility to attain their social objectives.

scholarly journals The role of pregnancy acceptability in maternal mental health and bonding during pregnancy

2021 ◽  
Author(s):  
Josephine McNamara ◽  
Alixandra Risi ◽  
Amy L. Bird ◽  
Michelle L. Townsend ◽  
Jane S. Herbert
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Maternal Mental Health ◽  
Self Report ◽  
Physical Quality ◽  
Moderation Model ◽  
Important Time ◽  
The Relationship

Abstract Background Pregnancy is an important time for women’s mental health and marks the foundations of the emerging bond between mother and baby. This study aimed to investigate the role of pregnancy acceptability and intendedness in maternal mental health and bonding during pregnancy. Methods Data were collected from a sample of 116 Australian pregnant women through a series of self-report questionnaires pertaining to mental health and antenatal bonding. Results Women with low pregnancy acceptability reported higher depression, anxiety and total distress, and lower antenatal bonding, physical and environmental quality of life. Women who reported their pregnancy was intended reported higher physical quality of life than those who reported their pregnancy was unintended. The relationship between total distress and antenatal bonding was moderated by women’s degree of pregnancy acceptability (low versus high). For women with low acceptability, higher distress was associated with lower bonding, but there was no such association for women with high pregnancy acceptability. The moderation model examining associations between distress and pregnancy acceptability explained 15% of the variance in antenatal bonding scores. Conclusion Consideration of women’s appraisal of their pregnancy acceptability may provide a valuable framework for identifying individuals who may be at risk for mental health and bonding difficulties.

scholarly journals Impaired Functioning and Quality of Life in Severe Migraine: The Role of Catastrophizing and Associated Symptoms

Cephalalgia ◽  
2007 ◽  
Vol 27 (10) ◽  
pp. 1156-1165 ◽  
Author(s):  
KA Holroyd ◽  
JB Drew ◽  
CK Cottrell ◽  
KM Romanek ◽  
V Heh
Keyword(s):  
Quality Of Life ◽  
Self Report ◽  
Psychological Variables ◽  
Associated Symptoms ◽  
Anxiety Depression ◽  
The Impact ◽  
Severe Migraine ◽  
Headache Patients

Migraine characteristics are associated with impaired functioning and quality of life (Fn/QoL), but the impact of other factors on Fn/QoL in headache patients is largely unexplored. We examined catastrophizing, comorbid anxiety/depression and migraine characteristics as related to Fn/QoL, and explored the consistency of these relationships across five Fn/QoL measures. We evaluated 232 frequent migraine sufferers for comorbid psychiatric diagnosis, and they completed anxiety, depression and catastrophizing measures, recorded migraine characteristics in a diary and completed five Fn/QoL measures (four self-report questionnaires, one diary disability measure). Backward regression revealed catastrophizing and severity of associated symptoms (photophobia, phonophobia, nausea) independently predicted Fn/QoL across all five measures (β weights 0.16–0.50, all P < 0.01). This is the first demonstration that a psychological response to migraines (catastrophizing) is associated with impaired Fn/QoL independent of migraine characteristics and other demographic and psychological variables. Severity of associated symptoms also emerged as an important contributor to Fn/QoL.

scholarly journals Ethics or Quality of Life?

2021 ◽  
pp. 263-269
Author(s):  
Hubert Österle
Keyword(s):  
Quality Of Life ◽  
Well Being ◽  
Ethical Guidelines ◽  
Governmental Organizations ◽  
Digital Services ◽  
Non Governmental Organizations ◽  
Digital Twins ◽  
Starting Point ◽  
The World

AbstractGovernmental and non-governmental organizations around the world are trying to shape socio-technical development, especially the use of information technology, for the benefit of people. They are developing ethical guidelines for the creation and evaluation of digital services. The discipline of Life Engineering must combine the knowledge of several disciplines, such as psychology, machine learning, economics, and ethics, so that technology serves people, i.e., contributes to well-being. Therefore, a solid understanding of quality of life should be the starting point, explaining the patterns of human behavior and their impact on well-being. Digital services of all kinds provide increasingly detailed digital twins and give us the opportunity to operationalize ethical principles.

Employability skills and quality of life among employees with mild and moderate intellectual disability who attend occupation centres in catalonia (Spain)

2021 ◽  
Vol 52 (1) ◽  
pp. 45-57
Author(s):  
Henar González Fernández ◽  
Cristina Laborda Molla ◽  
Mercè Jariot García
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Random Sample ◽  
Crucial Role ◽  
Personal Development ◽  
Employability Skills ◽  
Moderate Intellectual Disability ◽  
The Relationship

Background: The study explores the relationship between quality of life (QoL) and employability skills in a non-random sample of 100 employees of occupational centres (OCs) in Barcelona (Spain). The influence of gender, age and level of intellectual disability (ID) is also explored. Method: A quantitative approach was adopted to collect and examine data, gathered through two different instruments: the GENCAT SCALE (Verdugo et al., 2008) (and the Employability Skills Scale (Jariot, Laborda and González, 2020). Results: A correlation between QoL and employability skills has been found. A relationship between age and employability skills was also found, in which younger individuals reported better in employability skills. Age was also found to have an effect on some QoL domains. The ID level turned out to be a significant factor in the development of employability skills, as well as in some QoL domains. The crucial role of job placement in personal development is underlined, as well as the need for more inclusive procedures in occupancy services.

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