Employing Indigenous Methodologies to Understand Women’s Perceptions of HIV, Health, and Well-being in Quebec, Canada

2020 ◽  
Vol 13 (2) ◽  
pp. 160-181
Author(s):  
Nadia O’Brien ◽  
Carrie Martin ◽  
Doris Peltier ◽  
Angela Kaida ◽  
Marissa Becker ◽  
...  
Keyword(s):  
Participatory Research ◽  
Well Being ◽  
Research Process ◽  
Indigenous Women ◽  
Research Approach ◽  
Care Needs ◽  
Indigenous Methodology ◽  
Women’S Perceptions ◽  
Conducting Research ◽  
Health And Well Being

Guided by an Indigenous Methodology and a participatory research approach, we explored the experiences and priorities of Indigenous women living in Quebec regarding HIV prevention and care, overall health, and well-being. We drew from our research process to identify recommendations for conducting research with Indigenous women. These lessons include: (1) incorporating culturally adapted methods (e.g., sharing circles, arts, ceremony) facilitated participants’ safety and comfort; (2) conducting numerous workshops was valuable in building trust; and (3) validating findings with participants was essential to ensuring that the knowledge, experiences, and priorities of Indigenous women were respected. Our research findings regarding the care needs and priorities of women emphasize the importance of peer-led groups, culturally rooted healing strategies, accessible harm reduction, and social supports. Participatory research, led by members of the communities concerned, imbues the research with local knowledge and wisdom, which ensures the relevance of the research, the appropriateness of its conduct, and enables its overall success.

scholarly journals Assistive tools for disability arts: collaborative experiences in working with disabled artists and stakeholders

2016 ◽  
Vol 10 (2) ◽  
pp. 121-129 ◽  
Author(s):  
Chris Creed
Keyword(s):  
Special Needs ◽  
Research Impact ◽  
Research Process ◽  
Research Approach ◽  
Visual Artists ◽  
Content Type ◽  
British Council ◽  
Artistic Work ◽  
Conducting Research ◽  
The Impact

Purpose – The purpose of this paper is to provide a review of the experiences in working collaboratively with physically impaired visual artists and other stakeholders (e.g. disability arts organisations, charities, personal assistants, special needs colleges, assistive technologists, etc.) to explore the potential of digital assistive tools to support and transform practice. Design/methodology/approach – The authors strategically identified key organisations as project partners including Disability Arts Shropshire, Arts Council England, the British Council, SCOPE, and National Star College (a large special needs college). This multi-disciplinary team worked together to develop relationships with disabled artists and to collaboratively influence the research focus around investigating the current practice of physically impaired artists and the impact of digital technologies on artistic work. Findings – The collaborations with disabled artists and stakeholders throughout the research process have enriched the project, broadened and deepened research impact, and enabled a firsthand understanding of the issues around using assistive technology for artistic work. Artists and stakeholders have become pro-active collaborators and advocates for the project as opposed to being used only for evaluation purposes. A flexible research approach was crucial in helping to facilitate research studies and enhance impact of the work. Originality/value – This paper is the first to discuss experiences in working with physically impaired visual artists – including the benefits of a collaborative approach and the considerations that must be made when conducting research in this area. The observations are also relevant to researchers working with disabled participants in other fields.

Sharing Research, Building Possibility: Reflecting on Research with Men Who Have Sex with Men in Kenya

2020 ◽  
Vol 79 (2) ◽  
pp. 83-94
Author(s):  
Jennifer L. Syvertsen
Keyword(s):  
Sex Work ◽  
Well Being ◽  
Research Process ◽  
Full Potential ◽  
Critical Space ◽  
Ethical Practice ◽  
Research Dissemination ◽  
Sex With Men ◽  
Applied Health Research ◽  
Health And Well Being

Sharing our research with participants and communities is a standard and critically important ethical practice in anthropology, but do we use such opportunities to their full potential? In this article, I reflect on the possibilities generated by a community dissemination event to share my research with men who have sex with men and engage in sex work in Kisumu, Kenya. Drawing on Arjun Apaddurai’s concept of an “ethics of possibility” that pushes beyond ordinary ethical practice, I reflect upon engagement with participants in the research process and advocate for greater emphasis on research dissemination events as a strategy to make research more meaningful to communities. Although my project was initially framed around HIV, what emerged were men’s desire for spirituality, belonging, and new possibilities of inclusive citizenship that better attend to men’s health and well-being. Research dissemination creates a critical space to generate ethnographic insight and guide theoretically rich applied health research.

Tradition and Culture: An Important Determinant of Inuit Women’s Health

2013 ◽  
Vol 4 (1) ◽  
pp. 25 ◽  
Author(s):  
Gwen K. Healey
Keyword(s):  
Teenage Pregnancy ◽  
Social Inclusion ◽  
Well Being ◽  
Health Issues ◽  
Face To Face ◽  
Arctic Regions ◽  
Illness Prevention ◽  
Women’S Perceptions ◽  
Health And Well Being

This exploratory qualitative study used a case study method to explore Inuit women’s perspectives on their health and well-being. Data were gathered using face-to-face interviews from a purposive sample of women in one Nunavut community who self-identified as Inuit. Data analysis and interpretation were guided by an established approach in qualitative research called “immersion/crystallization.” Various strategies, including methods of verification and validition, were employed to ensure the scientific rigour and reliability of the study’s findings. The mechanisms through which culture and tradition affected women’s perceptions of health and well-being were clearly illustrated and clearly significant to the interview subjects. Women used examples of teenage pregnancy and parenting issues to illustrate traditional practices in Nunavut communities and their significance in an increasingly non-traditional society. Women stressed the importance of speaking Inuktitut and teaching it to their children. Many associated their ability to speak Inuktitut with their ties to Inuit traditions. Women described the grief experienced from loss of culture leading to problems related to identity, social inclusion and wellness. Culture and traditional knowledge were identified as key determinants of health for Canadian Inuit women. This study provides important information to inform and guide health promotion and illness prevention planning. The study will also help decision-makers and health professionals address some of the health issues affecting Inuit women by providing them with some insight into Inuit women’s local and contemporary circumstances. The results of this work can support local efforts to identify priorities for policy and program development relevant to Inuit women’s specific needs. Finally, the relevance of insight gained through the health perspectives of Inuit women in Nunavut deserves further investigation in relation to other Arctic regions, both in Canada and in the larger circumpolar community.

scholarly journals Whakaohonga nā Kahungatanga: Awakening from Addiction

2021 ◽  
Author(s):  
◽  
Hemaima Mariana Hughes
Keyword(s):  
Narrative Inquiry ◽  
Methodological Approach ◽  
Well Being ◽  
Research Process ◽  
Core Beliefs ◽  
Success Rates ◽  
Successful Recovery ◽  
The Two Cultures ◽  
Kaupapa Māori ◽  
Health And Well Being

<p>Alcohol and other drug (AOD) use, abuse and addiction are destructive to Māori and are an urgent problem; wairuatanga, cultural identity and tino rangatiratanga (self determination) are key to successful recovery ffom AODs for Maori. Kaupapa Māori AOD services have better success rates because they provide what is essential for Māori such as tikanga, core beliefs, values and practices of Maori re health, illness, wairua, tapu, noa and life. There are strategies for addressing the problem of AOD addiction for Māori such as positive stories of recovery. This thesis explores the shared experiential journeys of four Pūkōrero (participants) who successfully completed detoxification and recovery programmes from AOD addiction. Three questions were used to guide the research process to enable the Pūkōrero to identify positive aspects of their individual detoxification and recovery programmes, surface any barriers and issues they experienced, and clarify the support they received throughout the process. Kaupapa Maori and Narrative Inquiry was adapted to undertake this study to capture the essence of Maori thinking and reality regarding AOD. Through the use of thematic analysis the data findings of the study reflect the views from each Pūkōrero of Wairua, Whakapapa and Whānau as key to their successful recovery. This supports the notion that a pathway of detoxification, recovery and hope exists to enable Maori and others to take the journey to reclaim their own health and well-being, and the health and well-being of Whānau, Hapū, Iwi, and Māori community. In honour of these Pūkōrero, Kāumatua, Tipuna, Whānau, Hapū, Iwi, Māori katoa, and to celebrate Kaupapa Maori and Narrative Inquiry [as the preferred methodological approach], the use of our tino ataahua reo integrated with English throughout the thesis demonstrates the interwoven connections between the two cultures enshrined in Te Tiriti o Waitangi that comprise the nation of Aotearoa me Te Waipounamu of New Zealand.</p>

Overcoming Barriers: Practical Strategies to Assess Latinos Living in Low-Income Communities

2019 ◽  
Vol 21 (3) ◽  
pp. 355-362 ◽  
Author(s):  
Alejandra Calva ◽  
Rebecca A. Matthew ◽  
Pamela Orpinas
Keyword(s):  
Data Collection ◽  
Participatory Research ◽  
Low Income ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Community Members ◽  
Community Based ◽  
Leverage Points ◽  
Communities Of Interest ◽  
Health And Well Being

The value of community assessments depends on the researchers’ ability to reach a diverse and representative sample of participants. This process is particularly challenging when assessing the health and well-being of vulnerable populations that are reticent to participate in research because of demographic and sociopolitical factors. One such group is Latinxs (the gender-neutral version of Latinos or Latinas) of mixed immigration status who live in low-income, socially and geographically isolated enclaves in the Southeast. Framed by community-based participatory research and social marketing theories, this study describes practical strategies for health researchers, practitioners, and advocates seeking to engage and build trusting relationship within U.S. Latinx communities. First, identify and leverage points of entry to different segments of the communities of interest by engaging meaningful gatekeepers from different sections of the population and searching for places where potential participants gather. Second, reduce the burden of assessments by using incentives and creating intentional reciprocity. Third, establish critical, long-lasting trust with community members, leaders, and allies by adapting data collection procedures, ensuring confidentiality, engaging bilingual facilitators, and most important, being present with and for the community. Finally, presenting the findings back to the community can increase the ownership of the process.

Lessons from a community-based participatory research study with transgender and gender nonconforming youth and their families

2018 ◽  
Vol 17 (2) ◽  
pp. 186-207 ◽  
Author(s):  
Sabra L Katz-Wise ◽  
Annie Pullen Sansfaçon ◽  
Laura M Bogart ◽  
Milagros C Rosal ◽  
Diane Ehrensaft ◽  
...  
Keyword(s):  
Participatory Research ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Research Process ◽  
Lessons Learned ◽  
Community Partner ◽  
Community Members ◽  
Community Based ◽  
Gender Nonconforming ◽  
And Gender

Community-based participatory research (CBPR) involves community members collaborating with academic investigators in each step of the research process. CBPR may be especially useful for research involving marginalized populations with unique perspectives and needs. In this paper, we discuss successes and challenges of using a CBPR approach for the Trans Teen and Family Narratives Project, a longitudinal mixed-methods study to examine how the family environment affects the health and well-being of transgender and gender nonconforming youth. We describe considerations for using a CBPR approach with this population, including defining the community of transgender and gender nonconforming youth and families, engaging the community in the research process, managing conflicting agendas for community partner meetings, addressing insider/outsider status of the researchers, resolving researcher/community tensions regarding data collection tools, integrating academic and community members into a cohesive research team, developing safety plans to address participant suicidality disclosures, and differentiating the role of academics as researchers vs. advocates. We conclude by sharing lessons learned, which can inform future research to address the needs of transgender and gender nonconforming youth and families.

scholarly journals Promoting the health and well being of older carers: A proactive strategy

2003 ◽  
Vol 26 (2) ◽  
pp. 78 ◽  
Author(s):  
Bev O'Connell ◽  
Susan Bailey ◽  
Arlene Walker
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Well Being ◽  
Care Recipient ◽  
Health Care Needs ◽  
Physical And Mental Health ◽  
Care Needs ◽  
Health Related ◽  
Mental And Physical Health ◽  
Health And Well Being

Research has indicated that carers are concerned about their ageing status, their deteriorating health and their abilityto continue to care for their dependants. Given that the health care system will become increasingly reliant on carersthe health care needs of carers should be a concern for all health care professionals. This paper describes the first stageof a project designed to enhance older carers health promotion knowledge and skills and improve their healthpromoting behaviors. This stage investigated the mental and physical health status of older carers. It also soughtinformation on older carers' levels of participation in health related and social activities and identification of barriersto participation in these types of activities. The results highlighted that carers responding to the survey experiencedcompromised physical and mental health. Many carers reported being unable to participate in social and health-typeactivities as they were unable to leave the care recipient. Of note, is that carers identified their own mental fragilityand felt they needed further emotional support.

Future urban design strategies for health and wellbeing

2016 ◽  
Vol 14 (1) ◽  
pp. 104-114 ◽  
Author(s):  
Ivy Shiue
Keyword(s):  
Urban Design ◽  
Research Method ◽  
Action Plan ◽  
Well Being ◽  
Systematic Research ◽  
Research Approach ◽  
Design Phase ◽  
Content Type ◽  
Design Projects ◽  
Health And Well Being

Purpose – Contemporary urban design has tried to account for the satisfaction of the human experience and climate change which might encompass several disciplines. However, from a methodological perspective, a systematic research approach is still lacking. Therefore, this paper aims to propose a universal research method embedded into early urban design phase with an example. Design/methodology/approach – A case study was used under the concept of DIDID Action Plan, which was proposed to integrate systematic research into urban design projects in the early phase with a focus on health and well-being. Moreover, design mapping skills tackling health risks at the population level were discussed. Findings – This proposal of DIDID Action Plan has provided inclusive steps for future urban design projects with a systematic approach, in particular for health and well-being aspect. DIDID denotes five planning stages, namely, dream, initiation, design, implementation and delivering. With the advancement of urbanisation and technology, more emphasis would be placed on health and well-being to delay chronic diseases by targeting risk contributors and to increase citizens’ quality of life and human life experience, although stopping the breakout of unexpected communicable diseases and disasters would also need to be considered from time to time as well. Practical implications – Systematic research to be integrated into early urban design phase could potentially avoid issues such as re-design and save manpower time and costs. Originality/value – This proposal is the first to provide a universal research method for early urban design phase with a focus on health and well-being.

scholarly journals Female Genital Mutilation/Cutting: The Secret World of Women as Seen by Men

2013 ◽  
Vol 2013 ◽  
pp. 1-11 ◽  
Author(s):  
Adriana Kaplan ◽  
Babucarr Cham ◽  
Lamin A. Njie ◽  
Ana Seixas ◽  
Sandra Blanco ◽  
...  
Keyword(s):  
Female Genital Mutilation ◽  
Negative Impact ◽  
Well Being ◽  
Field Work ◽  
Final Decision ◽  
Genital Mutilation ◽  
Women’S Perceptions ◽  
Men’S Knowledge ◽  
Health And Well Being ◽  
Female Genital

Efforts aimed at the abandonment of Female Genital Mutilation/Cutting (FGM/C) in the communities where it is deeply rooted have extensively considered and addressed women’s perceptions on the issue, leaving those of men barely acknowledged. Although the practice is generally confined to the secret world of women, it does not mean that men cannot be influential. Indeed, men can play an important role in prevention. In order to address this gap, and having as background an extensive ethnographic field work, a transversal descriptive study was designed to explore Gambian men’s knowledge and attitudes towards FGM/C, as well as related practices in their family/household. Results show ethnic identity, more than religion, as the decisive shaping factor on how men conceive and value FGM/C. The greater support towards the practice is found among traditionally practicing groups. A substantial proportion of men intend to have it performed on their daughters, although reporting a low involvement in the decision making process, with very few taking alone the final decision. Only a minority is aware of FGM/C health consequences, but those who understand its negative impact on the health and well-being of girls and women are quite willing to play a role in its prevention.

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