scholarly journals Decision-making factors in prenatal testing: A systematic review

2021 ◽  
Vol 8 (1) ◽  
pp. 205510292098745
Author(s):  
Valentina Di Mattei ◽  
Federica Ferrari ◽  
Gaia Perego ◽  
Valentina Tobia ◽  
Fabio Mauro ◽  
...  
Keyword(s):  
Decision Making ◽  
Diagnostic Tests ◽  
Trisomy 21 ◽  
Prenatal Screening ◽  
Prenatal Testing ◽  
Decision Making Process ◽  
Individual Level ◽  
Decision Making Factors ◽  
Technical Features ◽  
Different Levels

This review examines the factors that affect the decision-making process of parental couples evaluating prenatal screening and diagnostic tests. A systematic search was performed using PubMed and PsycInfo databases. The 46 included studies had to: investigate the decision-making process about prenatal testing; focus on tests detecting trisomy 21, 18, 13, and abnormalities of sex chromosomes; be published in English peer-reviewed journals. The decision-making process seems composed of different levels: an individual level with demographic, clinical, and psychological aspects; a contextual level related to the technical features of the test and the information received; a relational level involving family and society.

Prenatal Genetic Diagnosis for Pediatricians

PEDIATRICS ◽  
1994 ◽  
Vol 93 (6) ◽  
pp. 1010-1015
Author(s):  
Keyword(s):  
Decision Making ◽  
Genetic Counseling ◽  
Prenatal Diagnosis ◽  
Diagnostic Tests ◽  
Genetic Disorder ◽  
Genetic Diagnosis ◽  
Decision Making Process ◽  
Know How ◽  
Prenatal Genetic Diagnosis ◽  
The Family

Pediatricians may be called upon to counsel a family in which prenatal diagnosis is being considered or in which there is a fetus with a genetic disorder. In some settings, the pediatrician may be the primary resource for counseling the family. More frequently, counseling may already have been provided by a clinical geneticist and/or obstetrician. However, because of a previous relationship with the family, the pediatrician may be called upon to review this information and to assist the family in the decision-making process. The pediatrician should be familiar with the principles of prenatal genetic diagnosis and know how to apply them to specific problems in genetic counseling, diagnosis, and management in clinical practice. At the same time, pediatricians should be familiar with resources available in their region for obtaining information about whether and how a specific disorder can be diagnosed and when and where to refer patients for prenatal genetic diagnosis. The technology of prenatal diagnosis is changing rapidly, and genetic consultants can assist pediatricians in the appropriate utilization and interpretation of the diagnostic tests that are available.

Ripensare gli indicatori per le politiche per l’innovazione attraverso il Design-thinking

2021 ◽  
pp. 149-161
Author(s):  
Mauro Lombardi
Keyword(s):  
Decision Making ◽  
Design Thinking ◽  
Implementation Process ◽  
Decision Making Process ◽  
Global Order ◽  
Multi Level ◽  
Multi Stakeholder ◽  
Different Levels ◽  
Systemic View

The final chapter contains the proposal to rethink the policies for innovation based on the approach defined Design thinking. Particularly important is the introduction of concepts such as global order parameters, referring to a systemic view of the techno-economic dynamics, and of a complementary methodology, called Agile. Based on the proposed framework, the decision-making space of different actors (private, public) in pursuing objectives at different levels is then analyzed. In this way a multi-level and multi-stakeholder decision making process can be enriched through a multiplicity of indicators in order to timely verify the efficiency of implementation process.

Concerns of Pregnant Women in “Prenatal Screening/Diagnosis” Practice and Termination of Pregnancy

2020 ◽  
Vol 224 (03) ◽  
pp. 136-142
Author(s):  
Berna Tari Kasnakoglu ◽  
Mehmet Cakar ◽  
Zeynep Guldem Okem ◽  
Atakan Tanacan ◽  
Erdem Fadiloglu ◽  
...  
Keyword(s):  
Decision Making ◽  
Pregnant Women ◽  
Prenatal Screening ◽  
Service Providers ◽  
Diagnostic Testing ◽  
Religious Faith ◽  
Termination Of Pregnancy ◽  
University Hospital ◽  
Prenatal Diagnostic ◽  
Decision Making Factors

Abstract Objective To investigate the reasons for decision-making and concerns of patients in the field of prenatal screening, invasive prenatal diagnostic testing (IPDT), and termination of pregnancy (TOP). Study Design This questionnaire-based study consisted of 107 pregnant women who were referred for prenatal screening to the Hacettepe University Hospital. The questionnaire given to patients was prepared from scratch since there is no standard set of questions measuring patients’ feelings and concerns regarding prenatal screening/diagnosis, IPDT, and TOP. Results Our questionnaire results showed that it is possible to classify decision-making factors into 6 groups: psychological, social, fear, religious/faith, support, and trust. The majority of patients were undecided (48.6%) about IPDT if prenatal screening test results were risky. Only 23.4% of patients were willing to accept IPDT. On the other hand, 55.1% of patients were not willing to undergo TOP if the fetal karyotyping results were abnormal. Religious factors seem to be important in refusing IPDT and TOP. Conclusion Physicians should re-evaluate their practice in the field of prenatal screening and diagnosis in light of the high refusal rates of IPDT and TOP. Understanding factors influencing womenʼs decision-making processes provides insight for service providers to help women at high risk of having foetal anomalies to make better-informed choices.

Why public funding for non-invasive prenatal testing (NIPT) might still be wrong: a response to Bunnik and colleagues

2019 ◽  
Vol 46 (11) ◽  
pp. 781-782
Author(s):  
Dagmar Schmitz
Keyword(s):  
Decision Making ◽  
Prenatal Screening ◽  
Public Funding ◽  
Prenatal Testing ◽  
Informed Decision ◽  
Informed Decision Making ◽  
Financial Barriers ◽  
Non Invasive

Bunnik and colleagues argued that financial barriers do not promote informed decision-making prior to prenatal screening and raise justice concerns. If public funding is provided, however, it would seem to be important to clarify its intentions and avoid any unwarranted appearance of a medical utility of the testing.

Retirement housing for sale and differences in the decision to purchase that are determined by gender or marital status

2006 ◽  
Vol 24 (1) ◽  
pp. 7-19 ◽  
Author(s):  
Martin Livette
Keyword(s):  
Decision Making ◽  
Married Couples ◽  
Sheltered Housing ◽  
Decision Making Process ◽  
Structured Interviews ◽  
Content Type ◽  
For Profit ◽  
Not For Profit ◽  
Decision Making Factors ◽  
Retirement Housing

PurposeVarious studies have shown that nearly three‐quarters of older people living within retirement housing are female single persons, leading some researchers to argue that sheltered housing is essentially a gender or health‐related issue, which can be explained demographically. Possible differences in the buyer behaviour of men and women or single people and married couples are ignored. If differences exist, the approaches adopted by not‐for‐profit agencies to improve the decision‐making process may need to differentiate between the sexes and marital states. The purpose of this paper, therefore, is to comment on the differences in the process and contrast some of the results of the research.Design/methodology/approachA sample of about 200 respondents was selected from all purchasers of retirement housing in the West Midlands region of England. Semi‐structured interviews were undertaken with 20 respondents.FindingsThe findings demonstrate that differences exist of less than one‐fifth of the decision‐making factors explored in the study.Originality/valueDifferences can limit the number of suitable options for the purchaser. Therefore, not‐ for‐profit agencies, when providing information and offering advice about housing alternatives, need to appreciate differences between the sexes and marital states in terms of the provision of stairs, the garden, loneliness and problems or difficulties associated with bereavement; the number of builders contacted and schemes known; and the awareness and consideration stages of the decision‐making process relating to a number of housing alternatives.

scholarly journals The Influence of Experiential Knowledge and Societal Perceptions on Decision-Making Regarding Non-Invasive Prenatal Testing (NIPT)

2020 ◽  
Author(s):  
Sophie Montgomery ◽  
Zaneta M. Thayer
Keyword(s):  
Decision Making ◽  
Qualitative Analysis ◽  
Genetic Information ◽  
Prenatal Testing ◽  
Phenomenological Approach ◽  
Experiential Knowledge ◽  
Emotional Impact ◽  
Decision Making Process ◽  
Structured Interviews ◽  
Non Invasive

Abstract Non-invasive prenatal testing (NIPT) allows women to access genetic information about their fetuses without the physical risk inherent to prior testing methods. The advent of NIPT technology has yielded concerns among bioethicists regarding the quality and process of informed consent, as the routinization of this technology could degrade the intentionality of women choosing whether to undergo testing. Prior studies evaluating the NIPT decision-making process have focused on the clinical encounter as the primary environment for acquisition of biomedical information and decision formation. While important, this conceptualization fails to consider how additional sources of knowledge, including both embodied and empathetic experiential knowledge, shape perceptions of risk and the societal use of NIPT. In order to address this issue, qualitative, semi-structured interviews with 25 women who had been offered NIPT were performed. Women were categorized by NIPT use/non-use, as well as whether their described decision-making process was routinized. Qualitative analysis of the data using a phenomenological approach was used to explore themes in the data, develop a framework of NIPT decision-making, and compare the perceptions of women with differential decision-making processes and outcomes. A framework for decision-making regarding NIPT was developed based on three emergent factors: perceptions of the societal use of NIPT, expected emotional impact of genetic information, and perceived utility of genetic information. Qualitative analysis revealed that perceptions of widespread use of NIPT, pervasive societal narratives of NIPT use as progressive and “forward-thinking,” and a perception of information as anxiety-relieving contributed to routinized uptake of NIPT. In contrast, women who displayed a lack of routinization expressed fewer stereotypes regarding the audience for NIPT and relied on communication with their social networks in-person and online to consider how they might use the information provided by NIPT. The findings of this study reveal the societal narratives and perceptions that shape differential decision-making regarding NIPT. Understanding and addressing these perceptions that influence NIPT decision-making, especially routinized uptake of NIPT, is important as the use and scope of this technology increases.

How to use: creatine kinase

2019 ◽  
Vol 105 (3) ◽  
pp. 157-163 ◽  
Author(s):  
Tanmoy Chakrabarty ◽  
Sandya Tirupathi ◽  
Andrew Thompson
Keyword(s):  
Decision Making ◽  
Creatine Kinase ◽  
Diagnostic Tests ◽  
Myocardial Injury ◽  
Decision Making Process ◽  
Muscular Weakness ◽  
Diagnosis And Management ◽  
Essential Tool ◽  
Clinical Scenarios

Creatine kinase (CK) remains an essential tool for assessment of muscular weakness and pain in children despite the advent of advanced diagnostic tests in this field. It is also useful in diagnosing and monitoring various other conditions. This article will explore the physiology of CK and clinical situations where the estimation of CK can help the clinicians’ decision-making process with the diagnosis and management of these conditions. Some clinical scenarios are used to highlight how the tests can be used in different clinical situations. The role of CK as a biomarker of myocardial injury has been purposefully omitted in this article.

A Study of Intelligent Decision Supporting System Based on Multi-Agent Exercise Prescription of Psychological Disorder

2014 ◽  
Vol 926-930 ◽  
pp. 1140-1143
Author(s):  
Hui Gao ◽  
Hong Jiang Wu ◽  
Hai Yan Zhao
Keyword(s):  
Decision Making ◽  
Exercise Prescription ◽  
Psychological Disorder ◽  
Decision Making Process ◽  
Supporting System ◽  
Intelligent Decision ◽  
Decision Supporting ◽  
Decision Supporting System ◽  
Multi Agent ◽  
Technical Features

This paper combines the technical features of multi-agent to form the intelligent decision supporting system for exercise prescription of psychological disorder based on multi-agent. And studies for the system decision-making process and system implementation are also presented. Meanwhile, it shows the insufficiency of the intelligent decision supporting system to lay a foundation for the realization of computerization in exercise prescription of psychological disorder.

Is the Tourism Destination a Core Attribute in the Choice of Cruise Consumers?

2019 ◽  
pp. 58-80
Author(s):  
Donata Vianelli ◽  
Manuela Valta
Keyword(s):  
Decision Making ◽  
Consumer Behavior ◽  
Survey Data ◽  
European Market ◽  
Decision Making Process ◽  
Tourism Destination ◽  
Primary Survey ◽  
Cruise Tourism ◽  
Different Levels

In the last 10 years, cruise tourism has been frequently analyzed in the academic literature on leisure tourism. However, analysis of consumer behavior and the consumer-buying process is still limited, especially if the European market is taken into consideration. To address this gap in the literature, the authors analyzed how different attributes are evaluated by consumers in their decision-making process. In particular, the authors identified the role of the tourism destination among the different attributes that influence cruisers' choices. Using primary survey data from a sample of 4,002 German, Spanish, Italian, and French consumers, the analysis identifies the existence of consumer segments that give different levels of importance to the numerous attributes, including the tourism destination.

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