Validity and correlates of the Brief Satisfaction With Appearance Scale for patients with limited and diffuse systemic sclerosis: Analysis from the University of California, Los Angeles Scleroderma Quality of Life Study

2019 ◽  
Vol 5 (2) ◽  
pp. 143-151
Author(s):  
Rina S Fox ◽  
Sarah D Mills ◽  
Shadi Gholizadeh ◽  
Erin L Merz ◽  
Scott C Roesch ◽  
...  
Keyword(s):  
Body Image ◽  
Systemic Sclerosis ◽  
Los Angeles ◽  
Body Image Dissatisfaction ◽  
Life Study ◽  
Younger Age ◽  
Diffuse Systemic Sclerosis ◽  
Social Discomfort ◽  
The University

Objective: The Brief Satisfaction With Appearance Scale measures two dimensions (Dissatisfaction with Appearance and Social Discomfort) of body image dissatisfaction in systemic sclerosis. This study examined the structural validity of the Brief Satisfaction With Appearance Scale across limited and diffuse systemic sclerosis subtypes, compared body image dissatisfaction by systemic sclerosis subtype, and identified the significant sociodemographic and medical correlates of body image dissatisfaction and whether they differed by subtype. Methods: Participants were 183 adults participating in the University of California, Los Angeles Scleroderma Quality of Life Study with limited cutaneous ( n = 101) or diffuse cutaneous ( n = 82) systemic sclerosis who received clinical examinations and completed questionnaires. Multiple-group confirmatory factor analysis, multivariate analysis of variance, and structural equation modeling were used. Results: The Brief Satisfaction With Appearance Scale’s two-factor structure fit well for both subtypes. Patients with diffuse systemic sclerosis reported greater body image dissatisfaction on both factors than patients with limited disease. Greater Dissatisfaction with Appearance was associated with younger age and being unmarried for limited patients, and with younger age and increased finger/hand skin involvement for diffuse patients. Greater Social Discomfort was associated with younger age and being unmarried for both subtypes. Conclusion: The Brief Satisfaction With Appearance Scale scores can be meaningfully compared across limited and diffuse systemic sclerosis. Patients with diffuse disease reported more body image dissatisfaction than those with limited disease. Findings demonstrate that both medical and sociodemographic variables are associated with body image dissatisfaction in systemic sclerosis and can be used to identify which patients may be at increased risk for body image dissatisfaction.

scholarly journals Structural Validity of the Rheumatology Attitudes Index in Systemic Sclerosis: Analysis from the UCLA Scleroderma Quality of Life Study

2017 ◽  
Vol 44 (6) ◽  
pp. 795-798
Author(s):  
Shadi Gholizadeh ◽  
Sarah D. Mills ◽  
Rina S. Fox ◽  
Erin L. Merz ◽  
Scott C. Roesch ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Factor Analysis ◽  
Systemic Sclerosis ◽  
Los Angeles ◽  
Self Report ◽  
University Of California ◽  
Structural Validity ◽  
Life Study ◽  
The University

Objective.To evaluate the structural validity of the Rheumatology Attitudes Index (RAI), a widely used measure of rheumatic disease–related helplessness in patients with systemic sclerosis (SSc).Methods.Patients with physician-confirmed SSc from the University of California, Los Angeles (UCLA) Scleroderma Quality of Life Study (n = 208) received clinical examinations and completed self-report questionnaires. The structural validity of the RAI was examined through confirmatory and exploratory factor analysis (CFA/EFA).Results.A tenable factor structure was not identified through CFA or EFA.Conclusion.The present structural analysis did not support the use of the RAI with SSc patients.

scholarly journals Evaluation of the Satisfaction with Appearance Scale and Its Short Form in Systemic Sclerosis: Analysis from the UCLA Scleroderma Quality of Life Study

2015 ◽  
Vol 42 (9) ◽  
pp. 1624-1630 ◽  
Author(s):  
Sarah D. Mills ◽  
Rina S. Fox ◽  
Erin L. Merz ◽  
Philip J. Clements ◽  
Suzanne Kafaja ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Body Image ◽  
Systemic Sclerosis ◽  
Factor Structure ◽  
Short Form ◽  
Body Image Dissatisfaction ◽  
Divergent Validity ◽  
Life Study ◽  
Convergent And Divergent Validity

Objective.Changes in appearance are common in patients with systemic sclerosis (SSc) and can significantly affect well-being. The Satisfaction with Appearance Scale (SWAP) measures body image dissatisfaction in persons with visible disfigurement; the Brief-Satisfaction with Appearance Scale (Brief-SWAP) is its short form. The present study evaluated the reliability and validity of SWAP and Brief-SWAP scores in SSc.Methods.A sample of 207 patients with SSc participating in the University of California, Los Angeles Scleroderma Quality of Life Study completed the SWAP. Brief-SWAP scores were derived from the SWAP. The structural validity of both measures was investigated using confirmatory factor analysis. Internal consistency reliability of total and subscale scores was assessed with Cronbach’s alpha coefficients. Convergent and divergent validity was evaluated using the Center for Epidemiological Studies Depression Scale, the Health Assessment Questionnaire-Disability Index, and the Medical Outcomes Study Short Form-36 questionnaire.Results.SWAP and Brief-SWAP total scores were highly correlated (r = 0.97). The 4-factor structure of the SWAP fit well descriptively; the 2-factor structure of the Brief-SWAP fit well descriptively and statistically. Internal consistencies for total and subscale scores were good, and results supported convergent and divergent validity.Conclusion.Both versions are suitable for use in patients with SSc. The Brief-SWAP is most efficient; the full SWAP yields additional subscales that may be informative in understanding body image issues in patients with SSc.

scholarly journals POS1454-HPR AESTHETIC IMPAIRMENT IN PATIENTS WITH SYSTEMIC SCLEROSIS: A CASE CONTROL STUDY USING A SEMI-QUANTITATIVE SCALE FOR BODY IMAGE ASSESSMENT

2021 ◽  
Vol 80 (Suppl 1) ◽  
pp. 1011.1-1011
Author(s):  
M. M. Farhat ◽  
P. Guerreschi ◽  
S. Morell-Dubois ◽  
V. Deken ◽  
J. Labreuche ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Body Image ◽  
Systemic Sclerosis ◽  
Psychological Impact ◽  
Body Image Dissatisfaction ◽  
Statistical Correlation ◽  
Cross Sectional Survey ◽  
Good Tool ◽  
Cross Sectional

Background:Systemic sclerosis (SSc) is a fibrotic autoimmune disease characterized by dermatological involvement. Skin involvement can alter appearance, which can have a psychological impact(1). Assessment of body image could be central in optimizing care. Yet, data are scarce(2).Objectives:The main objective of our study was to assess aesthetic impairment measured on a visual aesthetic scale (AES) (3) in patients with SSc compared to a group of healthy subjects. Secondary objectives were to assess associations between aesthetic impairment and standardized questionnaires for aesthetic impairment as well as clinical, biological, psychological/quality of life, and functional parameters of SSc.Methods:The “Sclero-esthet” study is a descriptive single-center study of two populations: patients with SSc, included in a referral center for systemic and autoimmune diseases at Lille Hospital, France, and healthy controls.Results:This study, from January 2017 to October 2017, included 88 patients (69 [78.4%] women) with a median age of 52 years (range: 43 to 59) and 88 controls (49 [55.7%] women) with a median age of 45 years (range: 32 to 55). Perception of physical changes assessed using the AES was greater in cases than in controls (3.7 ± 0.3 vs 2.8 ± 0.3, p=0.028), with statistical correlation with ASWAP. SSc patients with anxiety or depressive symptoms had significantly higher AES scores. Cases presented poorer quality of life than controls.Conclusion:The AES appears to be a good tool to evaluate aesthetic impairment. Correlations found with psychological and quality of life parameters support the need to improve patient management in this field.References:[1]Cash TF. Body image: past, present, and future. Body Image 2004;1(1):1–5.[2]Benrud-Larson LM, Heinberg LJ, Boling C, Reed J, White B, Wigley FM. Body image dissatisfaction among women with scleroderma: extent and relationship to psychosocial function. Health Psychol mars. 2003;22(2):130–9.[3]Nguyen C, Ranque B, Baubet T, Bérezné A, Mestre-Stanislas C, Rannou F, et al. Clinical, Functional and Health-Related Quality of Life Correlates of Clinically Significant Symptoms of Anxiety and Depression in Patients with Systemic Sclerosis: A Cross-Sectional Survey. PLoS ONE 2014;9(2).[4]Heinberg LJ, Kudel I, White B, Kwan A, Medley K, Wigley F. Assessing body image in patients with systemic sclerosis (scleroderma): Validation of the Adapted Satisfaction with Appearance Scale. Body Image 2007;4(1):79–86.Disclosure of Interests:None declared

scholarly journals FRI0229 THE IMPACT OF SYSTEMIC SCLEROSIS ON BODY IMAGE PATIENTS

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 698.2-698
Author(s):  
L. Brites ◽  
F. Costa ◽  
L. Saraiva ◽  
A. R. Cunha ◽  
J. A. P. Da Silva ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Body Image ◽  
Systemic Sclerosis ◽  
Social Impact ◽  
Disease Duration ◽  
Facial Appearance ◽  
Significant Difference ◽  
Social Discomfort ◽  
The Impact

Background:Satisfaction with body image has a major impact in quality of life. Systemic sclerosis (SSc) is a can result in disfiguring physical changes.Objectives:Our aim was to determine the impact of systemic sclerosis on body image using the Satisfaction with Appearance Scale (SWAP). (1)Methods:Cross-sectional study including patients satisfying the 2013 American College of Rheumatology criteria for SSc diagnosis, aged ≥ 18 years, treated in a tertiary Rheumatology Department. Demographic and clinical data were collected from Reuma.pt and clinical records. All patients provided informed consent and fulfilled SWAP questionnaire, which consists of 14 questions in 4 subscales: satisfaction with facial appearance, satisfaction with non-facial appearance, social discomfort due to appearance and perceived social impact of appearance. Patients rate each item on a numerical rating scale from 1 (strongly disagree) to 7 (strongly agree). Scores for the facial and non-facial appearance range from 0-24 and scores for the social discomfort and perceived social impact subscales range from 0-18. Total SWAP score can range from 0-84 and higher values indicate greater dissatisfaction with appearance and poorer body image. A descriptive analysis was used to summarize demographic and clinical data; categorical variables were described using frequencies; and continuous data using mean and standard deviation. Correlation between variables [Rodnan, age, disease duration, Hospital Anxiety and Depression Scale (HADS) and Short Form Health Survey (SF36)] and SWAP score was tested with Pearson or Spearman coefficient, as appropriated. Scores of SWAP and its subscales in preclinical, limited and diffuse forms of SSc were compared using ANOVA test. Analyses were performed with SPSS Statistics, V.21 andp<0.05 was considered statistically significant.Results:We enrolled 38 patients, 84.2% (n=32) female, with mean age 60.3±14.5 years and mean disease duration 13.3±6.5 years. All but one were caucasian. Fifty percent (n=19) had a limited form, 26.3% (n=10) had preclinical scleroderma and 23.7% (n=9) had a diffuse form of SSc. Regarding the autoantibody profile: 63.2% (n=24) had anti-centromere antibodies, 28.9% (n=11) had anti-Scl-70 antibodies, 5.3% (n=2) had anti-PM antibodies and 2.6% (n=1) had no positive antibodies. The median of Rodnan scores was 4 (IQR 0-9). The total mean SWAP score was 44.8±12.5 with worse results at “Satisfaction with facial appearance” subscale (mean score 14.4±6.1). There is no statistically significant difference in the SWAP score (or its subscales) between the three diagnosis subtypes. No statistically significant correlation was found between the total and subscale SWAP scores and any of the continuous variables considered and no statistically significant difference was found between the different forms of SSc.Conclusion:We found no significant differences between preclinical, limited or diffused SS. SWAP scores were not significantly correlated with the total Rodnan score, age or disease duration. Contrary to our expectations SWAP did not show any relationship with depression, anxiety (HADS) or quality of Life (SF-36) However, our sample is too small to support definite conclusions. Further studies assessing body image in SSc and its impact in quality of life are warranted to support the holistic care of these patients.References:[1]doi:10.3899/jrheum.141482.;[2]10.1037/0278-6133.22.2.130;[3]10.3899/jrheum.141482.Disclosure of Interests:Luisa Brites: None declared, Flavio Costa: None declared, LILIANA SARAIVA: None declared, Ana Rita Cunha: None declared, José Antonio P. da Silva Grant/research support from: Pfizer, Abbvie, Consultant of: Pfizer, AbbVie, Roche, Lilly, Novartis, Tânia Santiago: None declared, Maria Joao Salvador: None declared

scholarly journals Work productivity in scleroderma: Analysis from the University of California, Los Angeles scleroderma quality of life study

2012 ◽  
Vol 64 (2) ◽  
pp. 176-183 ◽  
Author(s):  
Manjit K. Singh ◽  
Philip J. Clements ◽  
Daniel E. Furst ◽  
Paul Maranian ◽  
Dinesh Khanna
Keyword(s):  
Quality Of Life ◽  
Los Angeles ◽  
Work Productivity ◽  
University Of California ◽  
Life Study ◽  
The University

scholarly journals Body Image, Life Satisfaction and Associated Factors Among Swedish Women with Breast Cancer After Mastectomy

2021 ◽  
Author(s):  
Nitikorn Phoosuwan ◽  
Pranee C. Lundberg
Keyword(s):  
Breast Cancer ◽  
Body Image ◽  
Life Satisfaction ◽  
Associated Factors ◽  
Treatment Options ◽  
Body Image Dissatisfaction ◽  
Physical Symptoms ◽  
Demographic Characteristics ◽  
Sources Of Information

Abstract Background Women having undergone mastectomy due to breast cancer have experiences which are very much individual and contextual. In order to facilitate efforts to understand the women and improve their quality of life, the aim of this study was to investigate body image, life satisfaction and associated factors among Swedish women with breast cancer after mastectomy.Methods After mastectomy, four hundred and eighty-one Swedish women with breast cancer were enrolled in a descriptive cross-sectional study. Each participant completed a questionnaire comprising socio-demographic characteristics, sources of information, body image and life satisfaction. Multiple linear regression analyses were used to estimate relationships between socio-demographic characteristics, information support, sources of information, treatment variables, and outcome variables such as body image and life satisfaction.Results Body image was associated with all dimensions of life satisfaction. Lower age, underlying disease, chemotherapy and breast reconstruction increased body image dissatisfaction, while treatment options were factors associated with life satisfaction. Sources of information was a factor that increased life satisfaction in the dimensions of physical symptoms, sickness impact and quality of close friend relationship.Conclusion The findings highlight that some socio-demographic characteristics, treatment options and sources of information were associated with body image dissatisfaction and life dissatisfaction among the women with breast cancer after mastectomy. This can increase healthcare professionals’ understanding of women with breast cancer after treatment. They should provide effective information, focus attention on the women’s needs, and prepare intervention programs that make the women cope with their life situations during follow-up care.

scholarly journals Perception of Aesthetic Impairment in Patients With Systemic Sclerosis: A Case Control Study Using a Semi-Quantitative Scale for Body Image Assessment.

2021 ◽  
Author(s):  
Méryem-Maud Farhat ◽  
Pierre Guerreschi ◽  
Sandrine Morell-Dubois ◽  
Valérie Deken ◽  
Julien Labreuche ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Body Image ◽  
Systemic Sclerosis ◽  
Statistical Correlation ◽  
Ease Of Use ◽  
Disease Assessment ◽  
Image Assessment ◽  
Two Populations ◽  
Control Study

Abstract Background: Systemic sclerosis (SSc) is a fibrotic disease. Assessment of body image could be central in optimizing care. Yet, data are scarce. The main objective was to assess perception of aesthetic impairment using a visual aesthetic scale (AES) in patients with SSc compared to healthy subjects. Secondary objectives were to assess associations between perception of aesthetic impairment and standardized questionnaires for aesthetic impairment as well as clinical, psychological/quality of life, and functional parameters of SSc. Methods: This study evaluated and compared perception of aesthetic impairment in two populations: patients with SSc, in a referral center at Lille Hospital, France, and healthy controls. Results: This study included 88 patients (69 [78.4%] women) with a median age of 52 years and 88 controls (49 [55.7%] women) with a median age of 45 years. Perception of aesthetic impairment assessed using the AES was poorer in patients than in controls (3.7 ± 0.3 vs 2.8 ± 0.3, p=0.028), with statistical correlation with ASWAP. Patients with anxiety or depressive symptoms had significantly higher AES scores. Conclusion: The AES appears to be an ease of use tool to evaluate body image. Correlations found with psychological and quality of life parameters reflect the importance of these parameters for body image evaluation and its complex assessment.Trials registration: NCT03271320

scholarly journals Body image dissatisfaction in patients with inflammatory bowel disease: a systematic review

2019 ◽  
Vol 6 (1) ◽  
pp. e000255 ◽  
Author(s):  
Sophie Elizabeth Beese ◽  
Isobel Marion Harris ◽  
Janine Dretzke ◽  
David Moore
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Inflammatory Bowel Disease ◽  
Body Image ◽  
Narrative Analysis ◽  
Bowel Disease ◽  
Female Gender ◽  
Body Image Dissatisfaction ◽  
Inflammatory Bowel

Background and aimsLittle is known about the relationship between inflammatory bowel disease (IBD) and body image. The aim of this systematic review was to summarise the evidence on body image dissatisfaction in patients with IBD across four areas: (1) body image tools, (2) prevalence, (3) factors associated with body image dissatisfaction in IBD and (4) association between IBD and quality of life.MethodsTwo reviewers screened, selected, quality assessed and extracted data from studies in duplicate. EMBASE, MEDLINE, PsycINFO and Cochrane CENTRAL were searched to April 2018. Study design–specific critical appraisal tools were used to assess risk of bias. Narrative analysis was undertaken due to heterogeneity.ResultsFifty-seven studies using a body image tool were included; 31 for prevalence and 16 and 8 for associated factors and association with quality of life, respectively. Studies reported mainly mean or median scores. Evidence suggested female gender, age, fatigue, disease activity and steroid use were associated with increased body image dissatisfaction, which was also associated with decreased quality of life.ConclusionThis is the first systematic review on body image in patients with IBD. The evidence suggests that body image dissatisfaction can negatively impact patients, and certain factors are associated with increased body image dissatisfaction. Greater body image dissatisfaction was also associated with poorer quality of life. However, the methodological and reporting quality of studies was in some cases poor with considerable heterogeneity. Future IBD research should incorporate measurement of body image dissatisfaction using validated tools.

scholarly journals The Relative Impact of Urinary and Sexual Function vs Bother on Health Utility for Men With Prostate Cancer

2020 ◽  
Vol 4 (5) ◽  
Author(s):  
Chang Wook Jeong ◽  
Annika Herlemann ◽  
Janet E Cowan ◽  
Jeanette M Broering ◽  
Renske M T ten Ham ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Prostate Cancer ◽  
Los Angeles ◽  
Health Utility ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Cancer Of The Prostate ◽  
The University

Abstract Function and bother are related but distinct aspects of health-related quality of life. The objective of this study was to compare quantitatively the relative impacts of function and bother in urinary, sexual, and bowel outcomes on health utility as a reflection of health-related quality of life in men with prostate cancer. Our analysis included participants in the Cancer of the Prostate Strategic Urologic Research Endeavor utility supplementary study, with a final cohort of 1617 men. Linear regression on the patients’ function and bother summary scores (0-100) from the University of California, Los Angeles Prostate Cancer Index was performed to predict bias-corrected health utilities. Urinary and sexual bother were associated with each health utility, and their coefficients were 3.7 and 20.8 times greater, respectively, than those of the corresponding function. To our knowledge, our study provides the first quantitative and direct comparison of the impacts of function vs bother on health utility.

scholarly journals Interdisciplinary lifestyle therapy improves binge eating symptoms and body image dissatisfaction in Brazilian obese adults

2012 ◽  
Vol 34 (4) ◽  
pp. 223-233 ◽  
Author(s):  
Joana Pereira de Carvalho-Ferreira ◽  
Marcos Alberto Taddeo Cipullo ◽  
Danielle Arisa Caranti ◽  
Deborah Cristina Landi Masquio ◽  
Stephan Garcia Andrade-Silva ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Weight Loss ◽  
Body Image ◽  
Binge Eating ◽  
Body Dissatisfaction ◽  
Body Image Dissatisfaction ◽  
Anxiety Symptoms ◽  
Obese Adults ◽  
Positive Correlation

INTRODUCTION: Obesity is related to numerous negative consequences for physical and mental health. It is often associated with the presence of binge eating disorder, body image dissatisfaction, and general psychopathology. OBJECTIVE: To assess the effects of an interdisciplinary lifestyle therapy on binge eating symptoms, depression, anxiety, body dissatisfaction, and quality of life in obese adults. METHODS: A total of 49 obese adults (body mass index = 37.35±5.82 kg/m²; age = 44.14±10.00 years) participated in a weight-loss program for 6 months. Symptoms suggestive of binge eating, body dissatisfaction, depression, anxiety, and quality of life were measured using self-reported questionnaires. Food intake was assessed using a 3-day dietary record. Data were analyzed using analysis of variance (ANOVA). RESULTS: ANOVA results showed a reduction in binge eating symptoms and in body dissatisfaction results. Depression and anxiety symptoms also decreased, and an increase was observed in quality of life scores. After therapy, a significant improvement was observed in dietary patterns, as well as significant weight loss. A positive correlation was found between variation of anxiety symptoms and lipid intake. Binge eating symptoms were associated with anxiety symptoms and body image dissatisfaction, and body image dissatisfaction correlated positively with anxiety symptoms in males only. In females, a positive correlation was observed between depression and binge eating symptoms. CONCLUSION: The interdisciplinary therapy was effective in promoting positive physical and psychological changes and in improving the quality of life of obese adults.

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