scholarly journals The association of care transitions measure-15 score and outcomes after discharge from the NICU

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Amy M. Yeh ◽  
Ashley Y. Song ◽  
Douglas L. Vanderbilt ◽  
Cynthia Gong ◽  
Philippe S. Friedlich ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Neonatal Intensive Care ◽  
Care Transitions ◽  
Patient Activation ◽  
Linear Regression Models ◽  
Point Change ◽  
Cross Sectional ◽  
Value Analysis ◽  
Assistance Programs

Abstract Background Our objectives were (1) to describe Care Transitions Measure (CTM) scores among caregivers of preterm infants after discharge from the neonatal intensive care unit (NICU) and (2) to describe the association of CTM scores with readmissions, enrollment in public assistance programs, and caregiver quality of life scores. Methods The study design was a cross-sectional study. We estimated adjusted associations between CTM scores (validated measure of transition) with outcomes using unconditional logistic and linear regression models and completed an E-value analysis on readmissions to quantify the minimum amount of unmeasured confounding. Results One hundred sixty-nine parents answered the questionnaire (85% response rate). The majority of our sample was Hispanic (72.5%), non-English speaking (67.1%) and reported an annual income of <$20,000 (58%). Nearly 28% of the infants discharged from the NICU were readmitted within a year from discharge. After adjusting for confounders, we identified that a positive 10-point change of CTM score was associated with an odds ratio (95% CI) of 0.74 (0.58, 0.98) for readmission (p = 0.01), 1.02 (1, 1.05) for enrollment in early intervention, 1.03 (1, 1.05) for enrollment in food assistance programs, and a unit change (95% CI) 0.41 (0.27, 0.56) in the Multicultural Quality of Life Index score (p < 0.0001). The associated E-value for readmissions was 1.6 (CI 1.1) suggesting moderate confounding. Conclusion The CTM may be a useful screening tool to predict certain outcomes for infants and their families after NICU discharge. However, further work must be done to identify unobserved confounding factors such as parenting confidence, problem-solving and patient activation.

Beyond vision loss: the independent impact of diabetic retinopathy on vision-related quality of life in a Chinese Singaporean population

2018 ◽  
Vol 103 (9) ◽  
pp. 1314-1319 ◽  
Author(s):  
Eva K Fenwick ◽  
Ryan E K Man ◽  
Alfred Tau Liang Gan ◽  
Neelam Kumari ◽  
Charlene Wong ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Diabetic Retinopathy ◽  
Vision Loss ◽  
Well Being ◽  
Linear Regression Models ◽  
Cross Sectional ◽  
Significant Difference ◽  
Related Quality ◽  
The Impact

Background/aimsTo assess the independent impact of diabetic retinopathy (DR) on three domains of vision-related quality of life (VRQoL) in a Chinese Singapore population.MethodsThe Singapore Chinese Eye Study (n=3353; 2009–2011) was a population-based, prospective, cross-sectional study conducted at the Singapore Eye Research Institute. The study population included 292 adults with diabetes, with and without DR. DR (better eye) was categorised as presence and absence of any DR; severity of DR (no vision-threatening DR (VTDR); severe non-proliferative DR (NPDR); PDR and/or clinically significant macular oedema and VTDR). Our main outcome was VRQoL which was measured using Rasch-calibrated scores from the ‘Reading’, ‘Mobility’ and ‘Emotional’ domains of the Impact of Vision Impairment questionnaire. The relationship between DR and VRQoL was assessed using multiple linear regression models.ResultsOf the 292 individuals (mean age 61.35 ± 9.66 years; 55.8% male), 201 (68.8%), 49 (16.8%), 20 (6.8%), 22 (7.5%) and 27 (9.2%) had no DR, minimal-mild NPDR, moderate-severe NPDR, PDR and VTDR, respectively. Any DR and VTDR were independently associated with 6% and 12% worse Reading scores and 7% and 18% poorer Emotional well-being, respectively, compared with those without DR. These associations persisted after separate adjustment for visual impairment and presenting visual acuity. No significant difference was found in the Mobility domain between persons with and without DR.ConclusionsWe documented that DR, particularly VTDR, was independently associated with restrictions in Reading and Emotional well-being. Understanding factors underlying the detrimental DR-VRQoL relationship may optimise rehabilitation outcomes for individuals with DR.

scholarly journals 008 Associations between comorbidities and adverse events of antiepileptic drugs and quality of life: a survey of epilepsy patients in australia

2019 ◽  
Vol 90 (e7) ◽  
pp. A3.2-A3
Author(s):  
Jeremy M Welton ◽  
Christine Walker ◽  
Kate Riney ◽  
Alvin Ng ◽  
Lisa M Todd ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Adverse Events ◽  
Antiepileptic Drugs ◽  
List Type ◽  
Linear Regression Models ◽  
Cross Sectional ◽  
Stepwise Selection ◽  
Memory Problems ◽  
The Impact

IntroductionThis study explored the impact of specific types of comorbidities and adverse events (AEs) from antiepileptic drugs (AEDs) on quality of life (QoL) among adult patients with epilepsy (PwE) in Australia.MethodsCross-sectional surveys were completed by PwE, or caregiver proxies, recruited via the online pharmacy application MedAdvisor and Australian PwE Facebook groups from May–August 2018 Data were collected on demographics, epilepsy severity and management, AEs, comorbidities, and QoL (using QOLIE-10-P total score).1 Multiple linear regression models were constructed to explore associations between AEs or comorbidities and QOLIE-10-P, with possible confounders determined using stepwise selection.Results978 responses were included (mean age 44.5 years, 64% female, 52% employed). 97% reported recent AED use, 47% on AED monotherapy, 35% exposed to ≤2 lifetime AEDs, and 55% seizure-free for >1 year. After stepwise selection, control variables included in both models were: time since diagnosis, employment status, seizure frequency, number of currently prescribed AEDs, and number of general practitioner visits per year. In the model for comorbidities, ‘psychiatric disorders’ was associated with the largest QOLIE-10-P decrease (-23.30, p<0.001). In the model for AEs, which additionally controlled for depression and anxiety disorder, ‘memory problems’ was associated with the largest decrease in QOLIE-10-P (-14.27, p<0.001).ConclusionsIn this survey of Australian PwE, of which many had relatively well-controlled epilepsy, psychiatric and memory problems were common and associated with the greatest detrimental impact on QoL. Further research is needed to understand causality, relationships between possibly interrelated or overlapping symptoms, and management strategies. UCB Pharma-sponsored.ReferenceCramer JA, Perrine K, Devinsky O, Meador K. A brief questionnaire to screen for quality of life in epilepsy: The QOLIE-10. Epilepsia 1996;37:577–582.

Impact of Profound Burn on the Quality of Life of Women Attended at the Referral Outpatient Clinic in the State of Pernambuco

2019 ◽  
Vol 41 (3) ◽  
pp. 550-559
Author(s):  
Shirley Maria Santos Mergulhão Freitas ◽  
Cláudia Fonseca Lima ◽  
Ana Karlla Albuquerque ◽  
Ricardo Altino Freitas Júnior ◽  
Gustavo Fonseca Albuquerque Souza ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Low Income ◽  
Skin Color ◽  
Neck Region ◽  
Negative Influence ◽  
Outpatient Rehabilitation ◽  
Adult Women ◽  
Linear Regression Models ◽  
Cross Sectional

Abstract Analyze the influence of deep-degree burns on the quality of life (QoL) of women at treatment in ambulatory after hospital discharge. A cross-sectional study was conducted at a reference public hospital for burns in Recife, Pernambuco, Brazil, from August 2017 to May 2018. Fifty adult women over 20 years old who suffered deep burns and were in outpatient rehabilitation treatment were included. The variables studied were biological, sociodemographic, and clinical. The dynamometry and goniometry tests and the instruments to verify the QV Burn-Specific Health Scale–Revised were included in the analysis. Multiple linear regression models were fitted to identify factors associated with the six domains of the QoL instrument. The results identified a greater negative influence of burns on the QoL of women when associated with the variables: dark-black skin color, low levels of education, low income, motion impairment in right upper limb and lesions less than 6 months in the face, head and neck region. It should be noticed that the overall QoL score presented a median of 92.0, a score considered high, revealing an important QoL impairment. Deep-degree burn victims had a great impact on physical, emotional, and psychological abilities, acting harmfully on their self-image and causing difficulties in the execution of their daily and professional life activities, which are reinforced by aspects such as social position, level of education, and extent and duration of injury, resulting in a low QoL.

scholarly journals Health-related quality of life: population epidemiology and concordance in Australian children aged 11–12 years and their parents

BMJ Open ◽  
2019 ◽  
Vol 9 (Suppl 3) ◽  
pp. 157-164 ◽  
Author(s):  
Max Catchpool ◽  
Lisa Gold ◽  
Anneke C Grobler ◽  
Susan A Clifford ◽  
Melissa Wake
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Pearson Correlation ◽  
Health Related Quality ◽  
Linear Regression Models ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related ◽  
Parent Child

ObjectivesTo describe the distribution of health-related quality of life (HRQL) in a national sample of Australian children aged 11–12 years and their parents, and examine associations within parent–child dyads.DesignThe Child Health CheckPoint, a population-based cross-sectional study nested between waves 6 and 7 of the Longitudinal Study of Australian Children (LSAC).SettingAssessment centres in seven Australian cities and eight regional towns, or home visit; February 2015 to March 2016.ParticipantsOf all participating CheckPoint families (n=1874), 1853 children (49.0% girls) and 1863 parents (87.7% mothers) with HRQL data were included (1786 pairs).Outcome measuresHRQL was self-reported using preference-based (Child Health Utility 9Dimension, CHU9D) and non-preference-based (Pediatric Quality of Life, PedsQL V.4.0) measures for children and preference-based measures for parents (CHU9D; Assessment of Quality of Life 8 Dimension, AQoL-8D). Utility scores from preference-based measures were calculated using existing Australian algorithms to present a score on a 0–1 scale, where 1 represents full health. Parent–child concordance was assessed using Pearson’s correlation coefficients and adjusted linear regression models. Survey weights and methods were applied to account for LSAC’s complex sample design, stratification and clustering within postcodes.ResultsChildren’s means and SD were 0.81 (SD 0.16) for CHU9D and 78.3 (SD 13.03) for PedsQL. In adults, mean HRQL for AQoL-8D and CHU9D were 0.78 (SD 0.16) and 0.89 (SD 0.10), respectively. Mean HRQL was similar for boys and girls, but slightly higher for fathers than mothers. The Pearson correlation coefficient for parent–child CHU9D values was 0.13 (95% CI 0.09 to 0.18). Percentiles and concordance are presented for both samples for males and females separately and together.ConclusionsWe provide Australian paediatric population values for HRQL measures, and the first national CHU9D values for mid-life adults. At age 11–12 years in this relatively healthy sample, parent–child concordance in HRQL was small.

scholarly journals Differences in quality of life between patients with severe hip and knee osteoarthritis

2018 ◽  
Vol 75 (1) ◽  
pp. 62-67
Author(s):  
Slavica Jandric
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Knee Osteoarthritis ◽  
Physical Function ◽  
Statistical Significance ◽  
Womac Score ◽  
Linear Regression Models ◽  
Cross Sectional ◽  
Knee Oa

Background/Aim. Osteoarthritis (OA) is the clinical manifestation of degenerative joint changes. The aim of this study was to investigate differences in quality of life (QoL) between patients with severe hip and knee OA. Methods. This is the cross-sectional study of 195 patients (average age 63.2 ? 11.1 yrs), with a diagnosis of OA of the hip and knee that were assigned to receive a total hip or knee replacement. The patients were divided into three groups in relation to localization of OA. The first group included patients with hip OA; the second group consisted of patients with knee OA and the third group with both hip and knee OA. Demographic and clinical data were collected for each patient. We measured health related quality of life (QoL) by Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC) questionnaires. Statistical significance of differences was at the level of p < 0.05. Results. The best QoL was in the group of knee OA (42.7 ? 11.3) and the worst in the group with both hip and knee OA patients (35.8 ? 12.7). QoL assessed by WOMAC score and the domain of physical function were significantly different among three groups of patients with OA (F = 5.377, p < 0.01 and F = 5.273, p < 0.01) respectively). Results of three multiple linear regression models where WOMAC score was dependent variable and age, body mass index (BMI), social class, pain, stiffness, physical function, hypertension, cardiomyopathy, diabetes mellitus were independent variables, have shown that QoL was statistically significantly associated with pain and physical function in the hip and knee OA groups, whereas in the group with both hip and knee OA patients, QoL was associated with BMI, pain, physical function and diabetes mellitus. Conclusion. QoL of patients with severe hip and knee osteoarthritis in relation to localization was significantly different. QoL in severe hip and knee OA patients was significantly associated with pain and physical function, but in patients with both hip and knee OA QoL was also associated with BMI and diabetes mellitus.

scholarly journals Social Capital in Old People Living with HIV Is Associated with Quality of Life: A Cross-Sectional Study in China

2020 ◽  
Vol 2020 ◽  
pp. 1-13
Author(s):  
Ping Lin ◽  
Bin Yu ◽  
Jiayu Han ◽  
Zixin Wang ◽  
Peng Jia ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Capital ◽  
Cluster Sampling ◽  
People Living With Hiv ◽  
Linear Regression Models ◽  
Old People ◽  
Cross Sectional ◽  
Targeted Interventions ◽  
Living With Hiv

Objective. Old people living with HIV (PLWH) are experiencing a lower quality of life (QoL) than their younger counterparts and have received insufficient attention in China. Given that social capital has been proven to be effective in improving QoL in other countries, we aimed to examine the association between social capital and QoL among old PLWH in China. Methods. The data presented in this study was based on the baseline sample of an ongoing observational prospective cohort study, which was carried out from November 2018 to February 2019. Participants were old PLWH aged ≥50 in Sichuan, China, and were recruited by stratified multistage cluster sampling from 30 communities/towns. A total of 529 eligible participants finished the face-to-face investigation to measure their social capital (i.e., individual and family- (IF-) based social capital and community and society- (CS-) based social capital) and QoL. The QoL’s dimensions of physical health summary (PCS) and mental health summary (MCS) were taken as dependent variables. Stepwise linear regression models were used to examine the association between social capital and QoL. Results. After considering all significant covariates, the PCS was nonsignificantly correlated with IF-based social capital ( β = − 0.08 , 95% CI [-0.28-0.11]) and CS-based social capital ( β = 0.28 , 95% CI [-0.03-0.59]), and MCS was significantly correlated with IF-based social capital ( β = 0.77 , 95% CI [0.54-0.99], p < 0.001 ) and CS-based social capital ( β = 0.40 , 95% CI [0.08-0.72], p < 0.05 ). Conclusion. Targeted interventions related to building up social capital should be applied to improve the QoL of old PLWH. Providing extra relief funds and allowances might be helpful to improve PCS; improving community networking and engagement and improving family care might be helpful to improve MCS among this vulnerable population.

scholarly journals Association of Acculturation Status with Longitudinal Changes in Health-Related Quality of Life—Results from a Cohort Study of Adults with Turkish Origin in Germany

2021 ◽  
Vol 18 (6) ◽  
pp. 2827
Author(s):  
Lilian Krist ◽  
Christina Dornquast ◽  
Thomas Reinhold ◽  
Heiko Becher ◽  
Karl-Heinz Jöckel ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Longitudinal Studies ◽  
Population Based ◽  
Health Related Quality ◽  
Linear Regression Models ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related ◽  
Interaction Term

Health-related quality of life (HRQL) among migrant populations can be associated with acculturation (i.e., the process of adopting, acquiring and adjusting to a new cultural environment). Since there is a lack of longitudinal studies, we aimed to describe HRQL changes among adults of Turkish descent living in Berlin and Essen, Germany, and their association with acculturation. Participants of a population-based study were recruited in 2012–2013 and reinvited six years later to complete a questionnaire. Acculturation was assessed at baseline using the Frankfurt acculturation scale (integration, assimilation, separation and marginalization). HRQL was assessed at baseline (SF-8) and at follow-up (SF-12) resulting in a physical (PCS) and mental (MCS) sum score. Associations with acculturation and HRQL were analyzed with linear regression models using a time-by-acculturation status interaction term. In the study 330 persons were included (65% women, mean age ± standard deviation 43.3 ± 11.8 years). Over the 6 years, MCS decreased, while PCS remained stable. While cross-sectional analyses showed associations of acculturation status with both MCS and PCS, temporal changes including the time interaction term did not reveal associations of baseline acculturation status with HRQL. When investigating HRQL in acculturation, more longitudinal studies are needed to take changes in both HRQL and acculturation status into account.

scholarly journals Prevalence of Internet Addiction and its Association with Self Perceived Life Quality in Shenzhen Adolescents

2019 ◽  
Author(s):  
Siying Wen ◽  
Xiaolan Cao ◽  
Jianchang Xu ◽  
Jianping Lu
Keyword(s):  
Quality Of Life ◽  
Internet Addiction ◽  
Social Relation ◽  
Life Quality ◽  
Depressive Mood ◽  
Cross Sectional Study ◽  
Linear Regression Models ◽  
Cross Sectional ◽  
Before And After

Abstract Background: Internet Addiction is a newly emerging issue for adolescents globally. Previous literature suggested a tangled relationship between Internet Addiction, depressive mood and lower subjective and objective ratings in Quality of Life. However, the independent relationship between Internet Addiction and Quality of Life was less discussed. Method: A cross-sectional study was conducted in Shenzhen adolescents to address the independent associations between Internet Addiction and 4 domains of Quality of Life (physical, psychological, social relation and environmental domains), in order to further guide the prevention and intervention for IA. Associations were calculated using linear regression models before and after the adjustment for the existence of depressive mood and confounding demographic factors. Result: The prevalence of Internet Addiction in Shenzhen was 23.2%. Engaging with Internet Addiction resulted in significant decrease in Quality of Life score in physical domain (B = -0.87, p<.001) and psychological domain (B = -0.40, p = 0.011) as well as insignificant decrease in social relation domain (B = -0.36, p = 0.063) and increase in environmental domain (B = 0.02, p = 0.906). Conclusion: Although Quality of Life is considered to be related to many factors, Internet Addiction on its own had a significant impact on lower subjective life satisfaction overall, especially in psychical and psychological wellbeing. Key Words:Internet Addiction, Quality of Life, Adolescents, Depressive mood, Chinese

Treatment Burden for Pediatric Eosinophilic Esophagitis: A Cross-Sectional Survey of Carers

2020 ◽  
Author(s):  
Nicole Hannan ◽  
Sara S McMillan ◽  
Evelin Tiralongo ◽  
Amie Steel
Keyword(s):  
Quality Of Life ◽  
Eosinophilic Esophagitis ◽  
Online Survey ◽  
Treatment Burden ◽  
Linear Regression Models ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Psychosocial Wellbeing ◽  
Related Quality

Abstract Objective To investigate treatment burden and impact on health-related quality of life (HRQoL) for children with eosinophilic esophagitis (EoE) and their carers. Methods An Australian cross-sectional online survey of carers of children aged 18 years and under with EoE between September 2018 to February 2019. Results Of 181 complete responses, more than half of carers experienced reduced HRQoL since their child’s diagnosis. Reported mean out-of-pocket expenditure for healthcare utilization (practitioner visits and treatment) was AUD$3064.3 annually. Backwards stepwise linear regression models showed that reduced ability to manage on income and missing more than one workday in the previous 30 days were significant predictors of lower carer HRQoL. Ability to manage on the current income described as “difficult some of the time,” “difficult all of the time,” and “impossible” were associated with lower child HRQoL. When compared with EoE diagnosis between 13 and 23 months of age, diagnosis between 2 and 4 years was a significant predictor of lowered child HRQoL. Conclusions Pediatric EoE in Australia leads to high treatment burden for carers. Changes in carer employment and income manageability can negatively impact carer psychosocial wellbeing. Carers of children with EoE need to be informed about available financial and social support to reduce treatment-related burden and improve the quality of life of both the carer and child.

Perceived Overprotection and Its Association With Quality of Life in Dementia

GeroPsych ◽  
2019 ◽  
Vol 32 (3) ◽  
pp. 125-134
Author(s):  
Mechthild Niemann-Mirmehdi ◽  
Andreas Häusler ◽  
Paul Gellert ◽  
Johanna Nordheim
Keyword(s):  
Quality Of Life ◽  
Patient Autonomy ◽  
Positive Association ◽  
Well Being ◽  
Negative Association ◽  
Significant Positive Association ◽  
Cross Sectional ◽  
People With Dementia ◽  
Mental Well Being

Abstract. To date, few studies have focused on perceived overprotection from the perspective of people with dementia (PwD). In the present examination, the association of perceived overprotection in PwD is examined as an autonomy-restricting factor and thus negative for their mental well-being. Cross-sectional data from the prospective DYADEM study of 82 patient/partner dyads (mean age = 74.26) were used to investigate the association between overprotection, perceived stress, depression, and quality of life (QoL). The analyses show that an overprotective contact style with PwD has a significant positive association with stress and depression, and has a negative association with QoL. The results emphasize the importance of avoiding an overprotective care style and supporting patient autonomy.

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