scholarly journals A neuropsychological study of chromatin disorders

BJPsych Open ◽  
2021 ◽  
Vol 7 (S1) ◽  
pp. S24-S24
Author(s):  
Benjamin Geers ◽  
Siddhartha Banka ◽  
Daniel Weisburg
Keyword(s):  
Intellectual Disability ◽  
Charge Syndrome ◽  
Anxiety And Depression ◽  
Adaptive Behaviour ◽  
Family Impact ◽  
Impact Score ◽  
Neuropsychological Profile ◽  
The Family ◽  
Perceived Impact ◽  
And Gender

AimsAnalyse neuropsychological assessment data collected from a chromatin disorder clinic to determine the neuropsychological profile associated with chromatin disorders. Assess for differences in neuropsychological profile by diagnostic group and gender. Hypothesis: A systematic neuropsychological review of chromatin disorders will reveal previously unknown patterns.BackgroundChromatin disorders (CD) are a group of genetic conditions that result in developmental delay and intellectual disability. Thus far the neuropsychological profile of CDs has been poorly studied.MethodCognitive functioning, adaptive behaviour, psychosocial difficulties and perceived impact on the family were systematically assessed in a cohort of 42 patients with CDs from November 2016 to February 2019. Cognitive functioning was assessed via Full-Scale Intelligence Quotient (FSIQ), adaptive behaviour was assessed via Vineland's Adaptive Behaviour Scores (VABS), anxiety and depression was assessed via the Revised Children's Anxiety and Depression Scale (RCADS) and communication skills were assessed via the Social Responsiveness Scale-2 (SRS-2). Family Impact Scale was used to assess for the perceived impact on the family. Mean scores for each neuropsychological domain were calculated firstly sorting patients by diagnosis, and then by gender. Unpaired t-tests were run to asses for statistically significant differences in mean scores by diagnosis and gender. Spearman's correlation was used to determine and potential correlations between FSIQ, VABS, RCADS and SRS-2 scores and Family Impact Score.ResultPatients with CDs were found generally to have mild intellectual disability (mean FSIQ = 64.57) and markedly deficient adaptive behaviour functioning (mean VABS = 50.19). Patients had a mean SRS-2 score of 70, indicative of high rates of autism spectrum disorder associated symptoms. RCADS and SRS-2 scores were negatively correlated with Family Impact Score with statistical significance (–0.562 and –0.429 Correlation coefficient for RCADS and SRS-2 respectively). Females had statistically significant average higher RCADS scores than males. CHARGE Syndrome was frequently an outlier having a mean higher FSIQ score, lower adaptive functioning and lower psychosocial impairment; however, these differences were not statistically significant.ConclusionAdaptive behaviour functioning of patients with CDs is lower than expected for their FSIQ. Females with chromatin disorders have higher levels of anxiety and depression than males however the reasons for this are unknown. The psychosocial challenges and family's impact should be considered in the clinical management of CDs. Further research with a larger data set is needed to identify the neuropsychological profiles of different CDs and to confirm whether the observed differences in CHARGE Syndrome are significant.

Women-Friendly Policies being adopted by Organizations: An Innovative aspect

2016 ◽  
Vol 3 (01) ◽  
Author(s):  
Shlesha Singh ◽  
Mrinalini Pandey
Keyword(s):  
Sexual Harassment ◽  
Glass Ceiling ◽  
Gender Stereotype ◽  
The Other ◽  
Family Responsibilities ◽  
Other Hand ◽  
The Family ◽  
Workplace Barriers ◽  
Women In The Workforce ◽  
And Gender

Organizations are these days realizing the importance of women in the workforce and to tap that talent, organizations are now-a-days putting extra efforts. Workplaces were designed keeping men in mind and which has been intercepting women from continuing the competitive jobs and career along with the family responsibilities. On the other hand, there are various workplace barriers which are adding to the other problems. Women face several barriers at the workplace like sexual harassment, glass ceiling and gender stereotype.

Protestants and American Conservatism

2019 ◽  
Author(s):  
Gillis J. Harp
Keyword(s):  
Social Order ◽  
Moral Agent ◽  
Cultural Changes ◽  
American Conservatism ◽  
The Great Depression ◽  
Federal Authority ◽  
The Family ◽  
Conservative Beliefs ◽  
And Gender ◽  
The 1960S

Protestant beliefs have made several significant contributions to conservatism, both in the more abstract realm of ideas and in the arena of political positions or practical policies. First, they have sacralized the established social order, valued and defended customary hierarchies; they have discouraged revolt or rebellion; they have prompted Protestants to view the state as an active moral agent of divine origin; and they have stressed the importance of community life and mediating institutions such as the family and the church and occasionally provided a modest check on an individualistic and competitive impulse. Second, certain shared tenets facilitated this conjunction of Protestantism and conservatism, most often when substantial change loomed. For example, common concerns of the two dovetailed when revivals challenged the religious status quo during the colonial Great Awakening, when secession and rebellion threatened federal authority during the Civil War, when a new type of conservatism emerged, and dismissed the older sort as paternalistic, when the Great Depression opened the door to a more intrusive state, when atheist communism challenged American individualism, and, finally, when the cultural changes of the 1960s undermined traditional notions of the family and gender roles. Third, certain Christian ideas and assumptions have, at their best, served to heighten or ennoble conservative discourse, sometimes raising it above merely partisan or pragmatic concerns. Protestantism added a moral and religious weight to conservative beliefs and helped soften the harshness of an acquisitive, sometimes cutthroat, economic order.

scholarly journals How Is Sleep Related to Anxiety or Depression in Older Adults With Dementia?

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 619-619
Author(s):  
Yeji Hwang ◽  
Nancy Hodgson
Keyword(s):  
Anxiety And Depression ◽  
Regression Analyses ◽  
Subjective Sleep Quality ◽  
Subjective Sleep ◽  
Significant Relationships ◽  
People With Dementia ◽  
The Family ◽  
Study Participants ◽  
Anxiety Depression ◽  
The Relationship

Abstract Anxiety and depression are one of the most distressing symptoms for the family caregivers. Little is known about the relationship between sleep impairments and anxiety/depression in this population and how objective and subjective sleep measures differ in relation to anxiety. This study was designed to examine the relationship between sleep impairments and anxiety/depression in people with dementia, using both subjective and objective sleep measures. Among the 170 study participants, 50% (n=85) reported to have anxiety/depression. In univariate logistic regression analyses on anxiety/depression, adjusting for dementia stage, people with more subjective sleep impairment had higher odds of having anxiety/depression (OR=1.111; 95% CI: 1.020-1.211, p=0.016) and people with poorer subjective sleep quality had higher odds of having anxiety/depression (OR=1.702; 95% CI: 1.046-2.769, p=0.032). Objective sleep measures from actigraphy did not show any significant relationships to anxiety/depression. The results suggest that subjective sleep measures are closely related to anxiety/depression in this population.

scholarly journals Family caregiver emotional distress in advanced cancer: the DME-C scale psychometric properties

2020 ◽  
pp. bmjspcare-2020-002608
Author(s):  
Joaquín T Limonero ◽  
Jorge Maté-Méndez ◽  
María José Gómez-Romero ◽  
Dolors Mateo-Ortega ◽  
Jesús González-Barboteo ◽  
...  
Keyword(s):  
Psychometric Properties ◽  
End Of Life ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Emotional Distress ◽  
Family Caregiver ◽  
Screening Tools ◽  
Anxiety And Depression ◽  
The Family ◽  
End Stage

BackgroundFamily caregivers of patients with advanced illness at end of life often report high levels of emotional distress. To address this emotional distress is necessary to have adequate and reliable screening tools.AimThis study analyses the psychometric properties and clinical utility of the Family Caregiver Emotional Detection Scale for caregivers of patients with end-stage cancer (DME-C, Spanish acronym) who are receiving palliative care (PC).DesignMulticentre, cross-sectional study.Settings/participantsFamily caregivers of patients with advanced cancer at end of life receiving palliative treatment were interviewed to explore their emotional distress through the DME-C scale and other instruments measuring anxiety and depression (Hospital Anxiety and Depression Scale (HADS)), distress thermometer (DT) and overload (B), as well as a clinical psychological assessment (CPA).Results138 family caregivers, 85 (61.6%) female and 53 (38.4%) male, with an average age of 59.69±13.3 participated in the study. The reliability of the scale, as measured by Cronbach’s alpha, was 0.76, and its stability over time was 0.734. Positive, significant correlations were found between the DME-C and the scores for anxiety and depression registered on the HADS scale, as well as with the total result of this latter scale and the results for B, the DT and the CPA. A statistical analysis of the receiver-operating characteristic curves showed that the scale has a sensitivity and specificity of 75%, and that the cut-off point for the detection of emotional distress was a score ≥11. Fifty-four per cent of the caregivers displayed emotional distress according to this scale.ConclusionsThe DME-C displays good psychometric properties. It is simple, short, reliable and easy to administer. We believe that the instrument is useful for the detection of emotional distress in the family caregivers of hospitalised patients suffering from end-stage illnesses and receiving PC.

Complex transformation of divorce in Vietnam under the forces of modernization and individualism

2021 ◽  
pp. 1-21
Author(s):  
Tran Thi Minh Thi
Keyword(s):  
Statistical Data ◽  
Marriage And Family ◽  
Male And Female ◽  
Rural Districts ◽  
The North ◽  
Complex Transformation ◽  
The Family ◽  
Social And Economic Development ◽  
Annual Population ◽  
And Gender

Abstract After more than four decades since its reunification since 1975, Vietnam has achieved remarkable results in social and economic development. With the rapid speed of recent modernization, society has loosened numerous old values related to the family and promoted individual freedoms. Marriage and family affairs, including divorce, have modernized with liberal characteristics. The paper examines the trends of divorce and reasons for divorce using statistical data from the Vietnam People's Supreme Court and from the government's annual population statistics. The analysis compiled and analysed a database of every divorce case at six urban and rural districts in Can Tho province. The analysis highlights changes in the reasons for divorce in the South in comparison with previous divorce studies in the North of Vietnam, discussed in relation to modernization, individualism and gender equality. The analysis is supported by interview data with thirty male and female divorcees.

Family dynamics and gender perspective influencing copreneurship practices

2018 ◽  
Vol 26 (1) ◽  
pp. 14-33 ◽  
Author(s):  
Mário Franco ◽  
Patricia Piceti
Keyword(s):  
Gender Roles ◽  
Empirical Evidence ◽  
Family Dynamics ◽  
Family Firms ◽  
Business Management ◽  
Business Success ◽  
Business Practices ◽  
Content Type ◽  
The Family ◽  
And Gender

Purpose The purpose of this paper is to understand the family dynamics factors and gender roles influencing the functioning of copreneurial business practices, to propose a conceptual framework based on these factors/roles. Design/methodology/approach For this purpose, a qualitative approach was adopted, through the analysis of seven businesses created by copreneurial couples in an emerging economy – Brazil. Data were obtained from an open interview with each member of the selected couples who are in charge of firm management. Findings The empirical evidence obtained shows that the most important factors for successful copreneurial family businesses are professionalization, dividing the couple’s tasks and business management. Trust, communication, flexibility and common goals are other essential relational-based factors for the good functioning of this type of family business and stability in the personal relationship. Practical implications It is clear that professionalization and the separation of positions and functions are fundamental for a balance between business management and the couple’s marital life. When couples are in harmony and considering factors such as trust, communication and flexibility (relational-based factors), the firm’s life-cycle and business success become real and more effective. Originality/value From the family dynamics factors and gender roles, this study focused on one of the most important and integrated family firm relationships, copreneurial couples. As there is little research on the heterogeneity of family firms runs specifically by copreneurial couples, this study is particularly important and innovative in the context of a developing economy, such as Brazil. Based on empirical evidence, this study was proposed an integrative and holistic framework that shows the functioning of copreneurial businesses practices.

scholarly journals Treatment of what?

2005 ◽  
Vol 22 (1_suppl) ◽  
pp. 45-61 ◽  
Author(s):  
Johan Edman
Keyword(s):  
Family Policy ◽  
Social Issues ◽  
Institutional Care ◽  
Alcohol Abusers ◽  
Protest Movements ◽  
Care Services ◽  
The Family ◽  
History Of ◽  
Problem Formulations ◽  
And Gender

■ Aims The aim of this article is to investigate the problem formulations – the preconceptions about causes and effects and the possible solutions to the problems of alcohol abuse – that characterized the compulsory institutional care of alcohol abusers in Sweden in the 20th century. The article focuses on problem formulations that actually were practised in the institutions. ■ Methods & Data The main source material is to be found in the archives of four institutionalized care establishments and consists of official reports, correspondence, supply estimates, circulars for consideration and – above all – patient records. From this material you can learn about the institutions' struggle for autonomy, expansion and legitimacy, and also about the clients' characteristics and how the clients were viewed. The study of the archives allows you to form a picture of the problem formulations that affected the activities in the institutions directly, a picture that goes beyond the more abstract expectations preferred by official reports and legislation. ■ Results Within the compulsory institutional care actually carried out, the problem formulations that were stipulated in the gender-neutral legislation and vague regulations became gender-specific and precise. The treatment of alcohol abusers was a class and gender related project, aiming not only at encouraging male diligence and the fulfilling of a man's maintenance obligation but also at female virtuousness and concern for the family. ■ Conclusions The history of alcohol abusers' treatment shows that alcohol itself has been a secondary factor in problem definitions which have let themselves be attached – via perceived links with either cause or effect – to more overarching social issues in Sweden. The concerns of emergent family policy in the 1940s, the developmental optimism and scientistic passions of the 1950s, and the systemically critical protest movements of the 1970s are all clearly reflected in trends within social care services for alcohol abusers – albeit much more often at the level of discourse than of praxis.

Women in Iranian Kurdistan: Patriarchy and the Quest for Empowerment

2021 ◽  
pp. 089124322110292
Author(s):  
Sahar Shakiba ◽  
Omid Ghaderzadeh ◽  
Valentine M. Moghadam
Keyword(s):  
Collective Action ◽  
Educational Attainment ◽  
Legal Status ◽  
Male Control ◽  
Gender Regime ◽  
Kurdish Women ◽  
The Family ◽  
Private And Public ◽  
And Gender ◽  
The City

Informed by sociological standpoint, intersectional, and gender regime theories, we examine perceptions of a diverse sample of Iranian Kurdish women in the city of Sanandaj about their legal status and social positions. We find perceptions of injustice, oppression, male control, and lack of opportunity associated with both the family and broader society. Kurdish women are socially located in structures and institutions of both private and public patriarchy. At the same time, their growing educational attainment and knowledge of possibilities for change enable them not only to articulate grievances but also to aspire to, and sometimes engage in, collective action for women’s rights. By focusing on an under-studied region, this article contributes to the wider literature on Kurdish women, underscores the continued salience of intersectional and standpoint approaches, and expands gender regime theorizing beyond Western cases.

Evaluering av familievernets differensieringsverktøy_preprint v1

2021 ◽  
Author(s):  
Solveig Dittman ◽  
Tonje Holt ◽  
Linda Larsen
Keyword(s):  
Electronic Version ◽  
Relationship Conflict ◽  
Anxiety And Depression ◽  
Counselling Service ◽  
Electronic Questionnaire ◽  
Family Counselling ◽  
The Family ◽  
Violent Conflicts ◽  
The Relationship ◽  
Electronic Administration

In 2016, the Norwegian family counselling service implemented differentiated mediation to give cumstomized help. The differentiation tool (i.e., questionnaire) has never been evaluated.In a sample of 761 parents, we compared parent responses given over the phone to the service and anonymously to an electronic version of the questionnaire. One third of the parents underreported their challenges to the family counselling service, and only 15% of parents who in the electronic questionnaire reported substanse abuse or violence in the relationship, revealed this to the service. Underreporters had higher relationship conflict and more symptoms of anxiety and depression. Parents who underreported about problems with substanse abuse and violence had more physically violent conflicts. In conclusion, there is a need to improve the validity of the differentiation tool. We suggest that parents need more information and a safer environment when completing the questionnaire. The electronic administration may serve this purpose.

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