scholarly journals Factors Affecting the Adoption of Electronic Data Reporting and Outcomes Among Selected Central Cancer Registries of the National Program of Cancer Registries

2021 ◽  
pp. 921-932
Author(s):  
Florence K. L. Tangka ◽  
Patrick Edwards ◽  
Paran Pordell ◽  
Reda Wilson ◽  
Wendy Blumenthal ◽  
...  
Keyword(s):  
Information Technology ◽  
Data Collection ◽  
Data Quality ◽  
Technical Assistance ◽  
Cancer Registries ◽  
Economic Evaluations ◽  
National Program ◽  
Self Perception ◽  
Factors Affecting ◽  
Electronic Reporting

PURPOSE The CDC's National Program of Cancer Registries has expanded the use of electronic reporting to collect more timely information on newly diagnosed cancers. The adoption, implementation, and use of electronic reporting vary significantly among central cancer registries. We identify factors affecting the adoption of electronic reporting among these registries. METHODS Directors and data managers of nine National Program of Cancer Registries took part in separate 1-hour telephone interviews in early 2019. Directors were asked about their registry's key data quality goals; staffing, resources, and tools used to aid processes; their definition and self-perception of electronic reporting adoption; key helpers and challenges; and cost and sustainability implications for adoption of electronic reporting. Data managers were asked about specific data collection processes, software applications, electronic reporting adoption and self-perception, information technology infrastructure, and helpers and challenges to data collection and processing, data quality, and sustainability of approach. RESULTS Larger registries identified organizational capacity and technical expertise as key aides. Other help for implementing electronic reporting processes came from partnerships, funding availability, management support, legislation, and access to an interstate data exchange. Common challenges among lower adopters included lack of capacity at both registry and data source levels, insufficient staffing, and a lack of information technology or technical support. Other challenges consisted of automation and interoperability of software, volume of cases received, state political environment, and quality of data received. CONCLUSION Feedback from the formative evaluation yielded several useful solutions that can guide implementation of electronic reporting and help refine the technical assistance provided to registries. Our findings may help guide future process and economic evaluations of electronic reporting and identify best practices to strengthen registry operations.

scholarly journals Technological Innovations in Data Collection: Acceptance, Data Quality and Costs

1996 ◽  
Vol 1 (4) ◽  
pp. 23-37 ◽  
Author(s):  
Edith de Leeuw ◽  
William Nicholls
Keyword(s):  
Data Collection ◽  
Data Quality ◽  
Computer Assisted ◽  
New Techniques ◽  
Data Collection Methods ◽  
Electronic Reporting ◽  
Research Organizations ◽  
Survey Costs ◽  
Professional Research ◽  
Collection Methods

Whether computer assisted data collection methods should be used for survey data collection is no longer an issue. Most professional research organizations, commercial, government and academic, are adopting these new methods with enthusiasm. Computer assisted telephone interviewing (CATI) is most prevalent, and computer assisted personal interviewing (CAPI) is rapidly gaining in popularity. Also, new forms of electronic reporting of data using computers, telephones and voice recognition technology are emerging. This paper begins with a taxonomy of current computer assisted data collection methods. It then reviews conceptual and theoretical arguments and empirical evidence on such topics as: (1) respondents and interviewer acceptance of new techniques, (2) effect of computer assisted interviewing on data quality, (3) consequences for survey costs and (4) centralized vs. decentralized deployment of CATI.

scholarly journals Application of tablet for data collection in HIV sentinel surveillance in Vietnam

2018 ◽  
Vol 10 (1) ◽  
Author(s):  
Duong C. Thanh ◽  
Ha T. Nguyen ◽  
Giang T. Le ◽  
Duc H. Bui ◽  
Lo T. Dang ◽  
...  
Keyword(s):  
Data Collection ◽  
Data Quality ◽  
Global Fund ◽  
Technical Assistance ◽  
Data Entry ◽  
Sentinel Surveillance ◽  
National Database ◽  
Local Staff ◽  
Improve Data Quality ◽  
Behavioural Surveillance

ObjectiveTo describe the implementation process, successes, challenges, and lessons learned of the application of tablet for data collection and data system in HIV sentinel surveillance in VietnamIntroductionVietnam has routinely monitored HIV sero-prevalence among key populations through its HIV sentinel surveillance system (HSS). In 2010, this system was updated to include a behavioral component (HSS+) among people who inject drugs, female sex workers, and men who have sex with men. HSS+ has historically used a paper-based questionnaire for data collection(1). At the end of the survey, provincial data were manually entered into computers using EpiData Entry forms (http://www.epidata.dk/) and submitted to the Vietnam Authority of HIV/AIDS Control (VAAC). As a result, feedback to provinces on data issues was not provided until after fieldwork completion. One recent survey used tablets for data collection and found that it saved time, required fewer staff, and reduced costs compared to paper-based data collection(2). In 2017, Vietnam introduced tablet for behavioral data collection in HSS+ to improve data quality, resource saving, and to provide more timely access to data.MethodsDevelopment of data entry forms and data systemSurvey data entry forms were designed using free Epi Info™ software for mobile devices(3) and installed on tablets. A SQL database was established via SFPT data transfer to the current database in VAAC’s server. Field data were instantly synced to the national database when the internet signal was available (Picture 1). Real-time data analysis was granted to surveillance staff at all levels using authorized access to the database via Epi Info™ Cloud Data Analytics (ECDA), dashboards were used to track progress and data quality (Figure 1). HSS+ data were frequently reviewed by the National Surveillance Technical Working Group (NSTWG) and timely feedback was provided.DeploymentManuals and e-leaning materials were developed. The NSTWG conducted a pilot to test the forms and data flow from field to the national database before installed into all tablets. Four to seven tablets were distributed to each province depending on number of HSS+ sites and populations. Surveillance staff at Provincial AIDS Centers (PACs) were trained by the NSTWG on how to use the tablet to interview, check, update, save data, and sync data to cloud and to the national database, and to backup the provincial dataset. They then provided trainings to their local field staff.The NSTWG provided technical assistance and troubleshooting through field visits and online support to help local staff address issues regarding tablet use in addition to other HSS/HSS+ issues.ResultsCurrently, 18 HSS+ provinces have implemented the 2017 HSS+. Of these, nine provinces applied tablets exclusively. Two provinces used tablets, but also used paper-based questionnaires when not enough tablets were available. Seven Global Fund supported provinces used the paper-based questionnaires and entered data into tablets after interview completion due to copies of completed paper-based questionnaires are required by these provincial project management units (PMU) for fund re-imbursement.Additional updates were required after the first few days, which created issues around updating forms once revised forms were sent out by NSTWG. Another challenge was that local staff were not familiar with using tablets at the beginning. Also frequent complaints were mainly on data entry and synchronization regarding participant identity code or a record could not be synced.The NSTWG and PAC staff were able to monitor the HSS+ progress and provided feedback daily. Most commonly, feedbacks were provided on participant codings and site names. Using the tablet did not require staff, time or money for data entry and eliminated data entry errors. In general, staff prefered to use this data collection mode.ConclusionsThis mobile device application for data collection in routine HSS+ in Vietnam is feasible and accepted. However, harmonization and coordination from the central Global Fund PMU and provincial PMU will be required to successfully roll-out this system in all HSS+ provinces. This application in addition to ECDA help to improve data quality, due to timeliness of the data, is cost saving and reduces workload. Most importantly, better quality and timely data will facilitate preparation for timely local planning and response.References1. Thanh DC et al. Brief behavioural surveys in routine HIV sentinel surveillance: a new tool for monitoring the HIV epidemic in Vietnam. Western Pacific Surveillance and Response Journal. Vol 6, No. 1/20152. National Institute of Hygiene and Epidemiology. HIV/STI Integrated Biological and Behavioural Surveillance in Vietnam. Hanoi, 2014.3. https://www.cdc.gov/epiinfo/mobile.html

scholarly journals Thinking about police data: Analysts’ perceptions of data quality in Canadian policing

2021 ◽  
pp. 0032258X2110214
Author(s):  
Christopher D O’Connor ◽  
John Ng ◽  
Dallas Hill ◽  
Tyler Frederick
Keyword(s):  
Big Data ◽  
Data Collection ◽  
Data Quality ◽  
Research Culture ◽  
Police Services ◽  
Police Data ◽  
Data Collection And Analysis ◽  
Quality Issues

Policing is increasingly being shaped by data collection and analysis. However, we still know little about the quality of the data police services acquire and utilize. Drawing on a survey of analysts from across Canada, this article examines several data collection, analysis, and quality issues. We argue that as we move towards an era of big data policing it is imperative that police services pay more attention to the quality of the data they collect. We conclude by discussing the implications of ignoring data quality issues and the need to develop a more robust research culture in policing.

scholarly journals Utilizing asynchronous email interviews for health research: overview of benefits and drawbacks

2021 ◽  
Vol 14 (1) ◽  
Author(s):  
Michelle Amri ◽  
Christina Angelakis ◽  
Dilani Logan
Keyword(s):  
Public Health ◽  
Data Collection ◽  
Data Quality ◽  
Health Research ◽  
Geographic Location ◽  
Public Health Research ◽  
Data Accuracy ◽  
Global Public Health ◽  
Snowball Sampling ◽  
Face To Face

Abstract Objective Through collating observations from various studies and complementing these findings with one author’s study, a detailed overview of the benefits and drawbacks of asynchronous email interviewing is provided. Through this overview, it is evident there is great potential for asynchronous email interviews in the broad field of health, particularly for studies drawing on expertise from participants in academia or professional settings, those across varied geographical settings (i.e. potential for global public health research), and/or in circumstances when face-to-face interactions are not possible (e.g. COVID-19). Results Benefits of asynchronous email interviewing and additional considerations for researchers are discussed around: (i) access transcending geographic location and during restricted face-to-face communications; (ii) feasibility and cost; (iii) sampling and inclusion of diverse participants; (iv) facilitating snowball sampling and increased transparency; (v) data collection with working professionals; (vi) anonymity; (vii) verification of participants; (viii) data quality and enhanced data accuracy; and (ix) overcoming language barriers. Similarly, potential drawbacks of asynchronous email interviews are also discussed with suggested remedies, which centre around: (i) time; (ii) participant verification and confidentiality; (iii) technology and sampling concerns; (iv) data quality and availability; and (v) need for enhanced clarity and precision.

scholarly journals Conducting Population Health Research during the COVID-19 Pandemic: Impacts and Recommendations

2021 ◽  
Vol 13 (6) ◽  
pp. 3320
Author(s):  
Amy R. Villarosa ◽  
Lucie M. Ramjan ◽  
Della Maneze ◽  
Ajesh George
Keyword(s):  
Data Collection ◽  
Health Services ◽  
Data Quality ◽  
Population Health ◽  
Health Research ◽  
Alternative Methods ◽  
Residential Aged Care ◽  
Recruitment Methods ◽  
Face To Face ◽  
The Impact

The COVID-19 pandemic has resulted in many changes, including restrictions on indoor gatherings and visitation to residential aged care facilities, hospitals and certain communities. Coupled with potential restrictions imposed by health services and academic institutions, these changes may significantly impact the conduct of population health research. However, the continuance of population health research is beneficial for the provision of health services and sometimes imperative. This paper discusses the impact of COVID-19 restrictions on the conduct of population health research. This discussion unveils important ethical considerations, as well as potential impacts on recruitment methods, face-to-face data collection, data quality and validity. In addition, this paper explores potential recruitment and data collection methods that could replace face-to-face methods. The discussion is accompanied by reflections on the challenges experienced by the authors in their own research at an oral health service during the COVID-19 pandemic and alternative methods that were utilised in place of face-to-face methods. This paper concludes that, although COVID-19 presents challenges to the conduct of population health research, there is a range of alternative methods to face-to-face recruitment and data collection. These alternative methods should be considered in light of project aims to ensure data quality is not compromised.

Data collection of safety accidents in sports training of athletes with Internet of Things technology

2021 ◽  
pp. 1-7
Author(s):  
Zhiping Wang ◽  
Xinxin Zheng ◽  
Zhichen Yang
Keyword(s):  
Information Technology ◽  
Data Collection ◽  
Internet Of Things ◽  
The Internet ◽  
Sports Training ◽  
Accident Data ◽  
And Performance ◽  
Control Technologies ◽  
Internet Of Things Technology ◽  
The Internet Of Things

The Internet of Things (IoT) technology is an information technology developed in recent years with the development of electronic sensors, intelligence, network transmission and control technologies. This is the third revolution in the development of information technology. This article aims to study the algorithm of the Internet of Things technology, through the investigation of the hazards of athletes’ sports training, scientifically and rationally use the Internet of Things technology to collect data on safety accidents in athletes’ sports training, thereby reducing the risk of athletes’ sports training and making athletes better. In this article, the methods of literature research, analysis and condensing, questionnaire survey, theory and experiment combination, etc., investigate the safety accident data collection of the Internet of Things technology in athletes’ sports training, and provide certain theories and methods for future in-depth research practice basis. The experimental results in this article show that 82% of athletes who are surveyed under the Internet of Things technology will have partial injuries during training, reducing the risk of safety accidents in athletes’ sports training, and better enabling Chinese athletes to achieve a consistent level of competition and performance through a virtuous cycle of development.

scholarly journals Electronic data collection for multi-country, hospital-based, clinical observation of maternal and newborn care: EN-BIRTH study experiences

2021 ◽  
Vol 21 (S1) ◽  
Author(s):  
Harriet Ruysen ◽  
◽  
Ahmed Ehsanur Rahman ◽  
Vladimir Sergeevich Gordeev ◽  
Tanvir Hossain ◽  
...  
Keyword(s):  
Quality Assurance ◽  
Data Collection ◽  
Data Quality ◽  
Clinical Observation ◽  
Data Extraction ◽  
Observation Data ◽  
Electronic Data ◽  
Concurrent Events ◽  
Maternal And Newborn ◽  
Selection Of

Abstract Background Observation of care at birth is challenging with multiple, rapid and potentially concurrent events occurring for mother, newborn and placenta. Design of electronic data (E-data) collection needs to account for these challenges. The Every Newborn Birth Indicators Research Tracking in Hospitals (EN-BIRTH) was an observational study to assess measurement of indicators for priority maternal and newborn interventions and took place in five hospitals in Bangladesh, Nepal and Tanzania (July 2017–July 2018). E-data tools were required to capture individually-linked, timed observation of care, data extraction from hospital register-records or case-notes, and exit-survey data from women. Methods To evaluate this process for EN-BIRTH, we employed a framework organised around five steps for E-data design, data collection and implementation. Using this framework, a mixed methods evaluation synthesised evidence from study documentation, standard operating procedures, stakeholder meetings and design workshops. We undertook focus group discussions with EN-BIRTH researchers to explore experiences from the three different country teams (November–December 2019). Results were organised according to the five a priori steps. Results In accordance with the five-step framework, we found: 1) Selection of data collection approach and software: user-centred design principles were applied to meet the challenges for observation of rapid, concurrent events around the time of birth with time-stamping. 2) Design of data collection tools and programming: required extensive pilot testing of tools to be user-focused and to include in-built error messages and data quality alerts. 3) Recruitment and training of data collectors: standardised with an interactive training package including pre/post-course assessment. 4) Data collection, quality assurance, and management: real-time quality assessments with a tracking dashboard and double observation/data extraction for a 5% case subset, were incorporated as part of quality assurance. Internet-based synchronisation during data collection posed intermittent challenges. 5) Data management, cleaning and analysis: E-data collection was perceived to improve data quality and reduce time cleaning. Conclusions The E-Data system, custom-built for EN-BIRTH, was valued by the site teams, particularly for time-stamped clinical observation of complex multiple simultaneous events at birth, without which the study objectives could not have been met. However before selection of a custom-built E-data tool, the development time, higher training and IT support needs, and connectivity challenges need to be considered against the proposed study or programme’s purpose, and currently available E-data tool options.

scholarly journals Impact of the COVID-19 Pandemic on Self-Perception of Aging Among Older Adults

2021 ◽  
Vol 7 ◽  
pp. 233372142199932
Author(s):  
Alexander Seifert
Keyword(s):  
Older Adults ◽  
Multivariate Analysis ◽  
Data Collection ◽  
Descriptive Analysis ◽  
Community Dwelling ◽  
Living Alone ◽  
Self Perception ◽  
Before And After ◽  
Subjective Views ◽  
Community Dwelling Older Adults

The COVID-19 pandemic has created a pattern of physical distancing worldwide, particularly for adults aged 65+. Such distancing can evoke subjective feelings of negative self-perception of aging (SPA) among older adults, but how this pandemic has influenced such SPA is not yet known. This study, therefore, explored SPA at different time phases of the COVID-19 pandemic to explain the pandemic’s impact on SPA among older adults. The analysis employed a sample of 1,990 community-dwelling older adults aged 65 to 95 (mean age = 72.74 years; 43% female) in Switzerland. Data collection from different older adults within one study occurred both before and after Switzerland’s first confirmed COVID-19 case. The descriptive analysis revealed that negative SPA increased, and positive SPA decreased, after the Swiss government recommended physical distancing. After the Federal Council decided to ease these measures, negative SPA slightly decreased and positive SPA increased. According to the multivariate analysis, individuals interviewed after the lockdown were more likely to report greater levels of negative SPA and lower levels of positive SPA. Age, income, and living alone also correlated with SPA. The results suggest that the pandemic has affected older adults’ subjective views of their own aging, and these findings help illustrate the pandemic’s outcomes.

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