scholarly journals Implementación de un programa de formación a cuidadores de personas mayores con dependencia o discapacidad

2015 ◽  
Vol 63 (3Sup) ◽  
pp. 75-82 ◽  
Author(s):  
Nancy Stella Landinez Parra ◽  
Imma Quitzel CaicedoMolina ◽  
María Fernanda Lara Díaz ◽  
Leonor Luna Torres ◽  
Judy Costanza Beltrán Rojas
Keyword(s):  
Quality Of Life ◽  
Negative Impact ◽  
Informal Caregivers ◽  
Life Quality ◽  
The Elderly ◽  
Rank Test ◽  
Quality Level ◽  
Calidad De Vida ◽  
The Times

<p><strong>Resumen</strong></p><p><strong>Antecedentes.</strong></p><p>El incremento de personas mayores de 60 años en Colombia, cuya cifra representa el 10% del total de la población (1) secundario al aumento de la esperanza de vida, trae consigo nuevos desafíos en las políticas de salud y evidencia la necesidad de establecer nuevas estrategias de capacitación, especialmente en situaciones de dependencia y/o discapacidad en las cuales el cuidado de los adultos mayores está a cargo de un familiar quien asume el rol de cuidador informal. Lo anterior impacta negativamente su calidad de vida.</p><p><strong>Objetivo.</strong></p><p>Determinar el efecto generado en un grupo de cuidadores informales de personas mayores con la implementación de un curso de capacitación en la ciudad de Bogotá</p><p><strong>Materiales y métodos.</strong></p><p>El proyecto incluyó cuatro fases: a) Caracterización inicial y establecimiento de línea de base, b) implementación del curso de formación, c) medición final que incluyo evaluación de calidad de vida, dependencia y satisfacción con el programa, y d) análisis de resultados obtenidos. Los resultados se analizaron mediante estadísticos descriptivos y para valorar las diferencias entre las mediciones se utilizó la prueba no paramétrica de rangos de Wilcoxon.</p><p><strong>Resultados.</strong></p><p>Inicialmente se observó un alto índice de sobrecarga de los cuidadores; al finalizar el programa se reportaron cambios positivos en calidad de vida, dependencia y mejor utilización de los tiempos dedicados al autocuidado y al cuidado de los otros.</p><p><strong>Conclusiones.</strong></p><p>Las estrategias dirigidas a la formación de cuidadores informales permiten el empoderamiento de los cuidadores y una menor dependencia por parte de la persona cuidada, lo que redunda en la mejora de la calidad de vida de los dos.</p><p><strong>Palabras clave:</strong> Cuidadores; Persona mayor; Calidad de vida; Dependencia (DeSC).</p><p><strong>Summary</strong></p><p class="Body"><strong>Background. </strong><strong></strong></p><p class="Body">The increase in the number of people over 60 years in Colombia, which represents 10% of the total population (1) secondary to increased life expectancy brings with it new challenges in health policy and highlights the need for establishing new training strategies, especially in situations of dependency and / or disability in which the care of the elderly is run by a family who assumes the role of informal caregiver. This condition has a negative impact in their quality of life.</p><p class="Body"><strong>Objectives: </strong><strong></strong></p><p class="Body">To determine the effect caused in a group of informal caregivers of dependent elderly and/or disabled in Bogotá.</p><p class="Body"><strong>Materials and methods:</strong><strong><em> </em></strong><strong><em></em></strong></p><p class="Body">The project included four phases: (a) Initial characterization and establishment of baseline; (b) implementation of the training; (c) final assessment, which included measurement of quality of life, dependence and satisfaction with the program, and (d) analysis results. The results were analyzed using descriptive statistics and to assess the differences between measurements the nonparametric Wilcoxon rank test was used.</p><p class="Body"><strong>Results</strong><strong><em>: </em></strong>Initially a high<em> </em>index<em> </em>of<em> </em>overload<em> </em>in<em> </em>caregivers<em> </em>was<em> </em>observed. At the end of the program, positive changes in life quality, level of dependence and a better use of the times spending in self-care activities and elderly caring routines were observed.</p><p class="Body"><strong>Conclusions</strong>: The strategies focusing on educating informal caregivers allow for their empowering and to lessen the level of dependence of the elder person being cared, which in turn increases the quality of life in both parts of the caring dyad.</p><p><strong>Keywords:</strong> Caregivers; Aged; Quality of life; Dependency (MeSH).</p>

scholarly journals Mejora de la calidad de vida en cuidadores informales de personas dependientes mediante talleres educacionales

2022 ◽  
Vol 21 (1) ◽  
pp. 43-73
Author(s):  
María Dolores Guijarro-Requena ◽  
María Nieves Marín-Campaña ◽  
María Isabel Pulido-Lozano ◽  
Rocío Melka Romero-Carmona ◽  
Luis Gabriel Luque-Romero
Keyword(s):  
Quality Of Life ◽  
Primary Care ◽  
Pain Perception ◽  
Negative Impact ◽  
Informal Caregivers ◽  
Health States ◽  
Training Interventions ◽  
Calidad De Vida ◽  
Back Problems

Introduction: The ageing of the population is associated with an increase in the number of dependent people, with an estimate of 15% living with a disability. The provision of care to family members entails an added responsibility associated with care-related problems, which can have a negative impact on caregivers. Therefore, we propose to design and evaluate a caregiving programme based on caregiver education, measuring knowledge, pain perception, emotional burden and health-related quality of life. Objective: The main objective is to improve the quality of life of informal caregivers through training interventions, in order to decrease the disability caused by caregiving tasks.Method: 99 caregivers belonging to the Aljarafe-Northern Seville Primary Care Health District participated, divided into control and intervention groups. We designed two educational workshops on care programmes for informal caregivers. They completed a knowledge questionnaire, and different validated scales related to pain, health states and quality of life.Results: Most of the caregivers presented back problems, for which they received pharmaceutical treatment. The implemented intervention was associated with a decrease in pain during basic activities of daily living, care and rest, as well as a reduction in strain index in both groups.Conclusions: Intervention programmes for informal carers of dependent patients are effective in improving the state of health and quality of life of this group, and their implementation should therefore be encouraged in primary care. Introducción: El envejecimiento de la población está asociado a un incremento de personas dependientes, estimándose que el 15% vive con alguna discapacidad. La prestación de cuidados a familiares supone una responsabilidad añadida asociada a problemas relacionados con el cuidado, que pueden repercutir negativamente en los cuidadores. Por ello, planteamos diseñar y evaluar un programa de cuidados, basado en la educación de los cuidadores, midiendo los conocimientos, la percepción del dolor, la carga emocional y la calidad de vida relacionada con la salud. Objetivo: El objetivo principal es mejorar la calidad de vida de los cuidadores informales mediante intervenciones formativas, con el fin de disminuir la incapacidad causada por las tareas del cuidado.Método: Participaron 99 cuidadores pertenecientes al Distrito Sanitario Aljarafe-Sevilla Norte de Atención Primaria, divididos en grupo control e intervención. Diseñamos dos talleres educacionales sobre programas de atención a cuidadores informales. Cumplimentaron un cuestionario de conocimientos, y diferentes escalas validadas relacionadas con el dolor, los estados de salud y la calidad de vida.Resultados: La mayor parte de los cuidadores presentaban problemas de espalda tomando medicación para ello. La intervención implementada se asoció a un descenso del dolor durante actividades básicas de la vida diaria, los cuidados y el descanso, y disminución del índice de esfuerzo en ambos grupos.Conclusiones: Los programas de intervención en cuidadores informales de pacientes dependientes resultan eficaces para mejorar el estado de salud y la calidad de vida de este colectivo por lo que se debe fomentar su realización desde la Atención Primaria.

scholarly journals Percepção de idosos sobre o envelhecimento em um projeto extensionista

2020 ◽  
Vol 5 (8) ◽  
pp. 29-39
Author(s):  
Thiago José Nascimento de Souza ◽  
José Júnior Bezerra da Silva ◽  
Ana Elizabeth Santos Lins
Keyword(s):  
Quality Of Life ◽  
Content Analysis ◽  
Young People ◽  
Negative Impact ◽  
The Elderly ◽  
Qualitative Approach ◽  
Daily Activities ◽  
Calidad De Vida ◽  
Gains And Losses

Este estudo teve como objetivo conhecer a percepção dos idosos participantes de uma Universidade Aberta à Terceira Idade sobre o envelhecimento. Trata-se de um estudo exploratório, de campo, com abordagem qualitativa, em que os resultados foram categorizados à luz da análise de conteúdo na modalidade temática, emergiram quatro grandes categorias. Os resultados apresentaram que a percepção do idoso sobre o envelhecimento está relacionada com um momento de ganhos e perdas. Observou-se por meio do discurso dos idosos a necessidade de estarem realizando suas atividades cotidianas de maneira independente, e que a oportunidade de escolha influencia diretamente na qualidade de vida. Os pesquisados percebem que são excluídos pelos jovens e essa atitude repercute de forma negativa em suas vidas. E ainda não se sentem contemplados com as políticas públicas.Descritores: Envelhecimento, Idoso, Enfermagem. Perception of elderly people about aging in an extensionist projectAbstract: This study aimed to know the perception of aging participants in an Open University for the Elderly about aging. It is an exploratory, field study, with a qualitative approach, in which the results were categorized in the light of content analysis in the thematic modality, four major categories emerged. The results showed that the elderly's perception of aging is related to a moment of gains and losses. It was observed through the speech of the elderly the need to be carrying out their daily activities independently, and that the opportunity to choose directly influences the quality of life. Respondents perceive that they are excluded by young people and this attitude has a negative impact on their lives. And they still do not feel contemplated with public policies.Descriptors: Aging, Elderly, Nursing. Percepción de personas mayores sobre el envejecimiento en un proyecto extensionistaResumen: Este estudio tuvo como objetivo conocer la percepción de los participantes mayores en una Universidad Abierta para Personas Mayores sobre el envejecimiento. Es un estudio exploratorio de campo, con un enfoque cualitativo, en el que los resultados se clasificaron a la luz del análisis de contenido en la modalidad temática, surgieron cuatro categorías principales. Los resultados mostraron que la percepción del envejecimiento de los ancianos está relacionada con un momento de ganancias y pérdidas. A través del discurso de los ancianos se observó la necesidad de llevar a cabo sus actividades diarias de forma independiente, y que la oportunidad de elegir influye directamente en la calidad de vida. Los encuestados perciben que los jóvenes los excluyen y esta actitud tiene un impacto negativo en sus vidas. Y todavía no se sienten contemplados con las políticas públicas.Descriptores: Envejecimiento, Ancianos, Enfermería.

scholarly journals APLICACIÓN DEL CUESTIONARIO DE SALUD EQ-5D-5L EN ALUMNADO MAYOR UNIVERSITARIO

2016 ◽  
Vol 1 (2) ◽  
pp. 307
Author(s):  
Vanesa Baños Martínes
Keyword(s):  
Quality Of Life ◽  
Successful Aging ◽  
Life Quality ◽  
The Elderly ◽  
Health Questionnaire ◽  
Calidad De Vida ◽  
Euroqol Group ◽  
Study Results ◽  
University Programs

Abstract.APPLICATION OF QUALITY OF LIFE-5 DIMENSIONS HEALTH QUESTIONNAIRE TO ELDERLY STUDENTS AT UNIVERSITYIt is shown in this research the analysis of the results obtained in the European Quality of Life- 5 Dimensions (EQ-5D-5L VAS) health questionnaire developed by the EuroQol Group by the students of University Programs for the Elderly at University of Burgos. The computer tool used for the analysis has been Stata, version 12.The study results show, always bearing in mind the limitations of the study by the sample size, men tend to assess their health with higher score than women. It also has been found that the score of the oldest students over their own health is worse than that of the youngest.Overall, the results support the idea that the students of University Programs for the Elderly at University of Burgos present a profile of successful aging, away from the dreaded dependence, without serious health problems and high satisfaction levels of happiness.Keywords: Active aging, University Programs for the Elderly, Health-related Quality of life, Quality of Life-5 Dimensions (EQ-5D-5L VAS) health questionnaire.Resumen.Presentamos los resultados obtenidos por el alumnado del Programa Interuniversitario de la Experiencia de las sedes de Burgos y Aranda de Duero en el Cuestionario de Salud EQ-5D-5L EVA (Escala Visual Analógica) desarrollado por el EuroQol Group y la comparación de estos resultados con los de la última Encuesta Nacional de Salud en España (ENSE) 2011/2012. La herramienta informática utilizada al efecto ha sido Stata en su versión 12.En virtud de los resultados alcanzados y siempre teniendo presente la limitación del estudio por el tamaño de la muestra, podemos afirmar que los hombres tienden a valorar mejor su estado de salud que las mujeres. También se ha podido corroborar que a mayor edad del alumnado peor es la valoración que realiza sobre su propia salud.En conjunto, los resultados obtenidos refuerzan la idea de que el alumnado del Programa Interuniversitario de la Experiencia de la UBU presenta un perfil de envejecimiento satisfactorio, alejado de la tan temida dependencia, sin problemas de salud graves, con una buena satisfacción vital y elevados niveles de felicidad.Palabras clave: Envejecimiento activo, Programas Universitarios de Mayores (PUM), calidad de vida relacionada con la salud (CVRS), Cuestionario de Salud EQ-5D-5L EVA.

scholarly journals A comparative study of the voice-related quality of life among Egyptian elderly with and without voice complaints

2020 ◽  
Vol 36 (1) ◽  
Author(s):  
Nesreen Fathi Mahmoud ◽  
Huda Zahran ◽  
Sherif Abdelmonam
Keyword(s):  
Quality Of Life ◽  
Elderly Population ◽  
Life Quality ◽  
Voice Disorders ◽  
The Elderly ◽  
Different Types ◽  
Related Quality ◽  
The Impact ◽  
The Voice

Abstract Background This study focuses on the self-perception of the voice in the elderly as assessed by the Voice-Related Quality of Life (V-RQOL) questionnaire. This work aimed to compare differences in the voice-related quality of life outcomes between (1) elderly with and without voice disorders, (2) female and male elderly with voice disorders, and (3) different types of voice disorders, and to explore the correlation between the V-RQOL and perceptual analysis done by the clinician. Forty-three dysphonic and 44 non-dysphonic elderly filled out the Voice-Related Quality of Life (V-RQOL) protocol that analyzes the impact of dysphonia on life quality. Vocal perceptual assessment of each subject with dysphonia was made by three voice therapists, followed by a flexible nasofibrolaryngoscope. Results A significant statistical difference was found between the means of total V-RQOL scores and its subdomains for each group (dysphonic and non-dysphonic). No significant differences were found between male and female elderly with dysphonia. The statistical analysis showed a significant correlation with the vocal assessment made by the clinicians and the V-RQOL self-assessment made by the subjects. Conclusions This study provides valuable information regarding the risk factors that contribute to vocal quality in the elderly population. Our results revealed that different types of voice disorders are common among the elderly population with significant negative effects on quality of life. It was observed that the poorest score on the V-RQOL was for functional voice disorders, followed by neoplastic lesions, whereas MAPLs had the best score on the V-RQOL.

Information and psychological security in the development of computer literacy in the elderly

2021 ◽  
pp. 270-278
Author(s):  
Tatyana Borisovna Berestok
Keyword(s):  
Quality Of Life ◽  
Elderly People ◽  
Computer Literacy ◽  
Negative Impact ◽  
Social Institutions ◽  
The Elderly ◽  
Information Environment ◽  
Specific Information ◽  
Negative Factors

This article deals with the issue of self-preservation of elderly people when learning to work on a computer from the point of view of information and psychological security. The necessity of solving new socio-psychological problems is indicated: to develop the ability to give a correct assessment of a specific information threat, to prevent the negative impact of the information environment, to resist negative factors, and to contribute to improving the quality of life. The purpose of counseling elderly people is to develop their ability to understand the problem of the negative impact of the information environment on psychological and physiological health, to be able to apply methods to ensure information and psychological security. Consulting and educational work with the elderly and employees of social institutions engaged in professional activities directly related to the above category should be aimed at preventing cases of fraudulent activities. Consulting work with them should not only meet the general principles of building psychological contact, but also cause an understanding of the importance of compliance with security in the digital sphere. Elderly people develop the ability to assess correctly a specific information threat and prevent the negative impact of the information environment by providing adequate resistance to negative factors and contributing to improving their quality of life. It is increasingly difficult for older people to navigate threats, unmotivated anxiety increases, depressiveness appears and becomes fixed, and asocial personality traits are formed. At the present time, it is necessary to consider the formation of information and computer literacy as a mechanism to counteract the negative impact of the information environment and a necessary condition for developing an effective strategy for the social adaptation of elderly people.

scholarly journals Qualidade de vida de estudantes de graduação

2019 ◽  
Vol 13 ◽  
Author(s):  
Rafael Lemes de Aquino ◽  
Douglas Ataniel Alves Xavier ◽  
Meirielen Danubia Marra ◽  
Nubia Fernandes Fernandes Teixeira ◽  
Lorena Silva Vargas ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Undergraduate Students ◽  
Life Quality ◽  
Cross Sectional Study ◽  
Academic Life ◽  
Cross Sectional ◽  
Calidad De Vida ◽  
Student’S T ◽  
The University

RESUMO Objetivos: avaliar a qualidade de vida de acadêmicos regularmente ativos em uma universidade; verificar se existe associação entre qualidade de vida e sintomas depressivos. Método: trata-se de estudo quantitativo, tipo transversal, aplicar-se-ão três questionários estruturados, autoaplicáveis para mensurar o nível da qualidade de vida e índice de depressão entre acadêmicos. Far-se-á a análise estatística descritiva, empregar-se-á o teste Liliefors e usar-se-ão o teste t de Student. Apresentar-se-ão os resultados em forma de figuras. Resultados esperados: realizar-se-á a correlação entre a qualidade de vida dos estudantes dos cursos de graduação da universidade e a incidência de fatores depressivos com o início da vida acadêmica. Descritores: Depressão; Vida Acadêmica; Qualidade de Vida; Universidade; Estudantes; Educação Superior.ABSTRACT Objectives: to evaluate the quality of life of academically active students in a university; to verify if there is an association between quality of life and depressive symptoms. Method: this is a quantitative cross-sectional study. Three structured, self-administered questionnaires will be applied to measure the level of quality of life and depression index among academics. The descriptive statistical analysis will be done, the Liliefors test will be used and the Student's t-test will be used. The results will be presented in the form of figures. Expected results: the correlation between the quality of life of undergraduate students of the university and the incidence of depressive factors with the beginning of academic life will be realized. Descriptors: Depression; Academic life; Quality of Life; Universities; Students; Education, Higher.RESUMEN Objetivos: evaluar la calidad de vida de los académicos regularmente activos en una universidad; comprobar si existe asociación entre calidad de vida y síntomas depresivos. Método: se trata de estudio cuantitativo, tipo transversal, se aplicarán tres cuestionarios estructurados, autoaplicables para medir el nivel de la calidad de vida e índice de depresión entre académicos. Se hará el análisis estadístico descriptivo, se empleará la prueba Liliefors y se utilizarán la prueba t de Student. Se presentarán los resultados en forma de figuras. Resultados esperados: se realizará la correlación entre la calidad de vida de los estudiantes de los cursos de grado de la universidad y la incidencia de factores depresivos con el inicio de la vida académica. Descriptores: Depresión; Vida académica; Calidad de Vida; Universidades; Estudiantes; Educación Superior.

scholarly journals Psychosocial Predictors of Quality of Life in Patients With Vitiligo

2021 ◽  
Vol 36 (1) ◽  
pp. 19-36
Author(s):  
Iqra Nazar ◽  
Fatima Kamran ◽  
Afsheen Masood
Keyword(s):  
Quality Of Life ◽  
Body Image ◽  
Social Functioning ◽  
Psychological Health ◽  
Negative Impact ◽  
Life Quality ◽  
Self Esteem ◽  
Psychosocial Predictors ◽  
Impact Scale

The present study was designed to examine psychosocial predictors of quality of life (QoL) such as body image, self-esteem, impact of Vitiligo (psychologically and socially), and perceived stigmatization in patients with Vitiligo. The sample (N =120) comprised of individuals with Vitiligo recruited from dermatology units of different hospitals in Lahore. Body Image State Scale (Cash, Fleming, Alindogan, Steadman, & Whitehead 2002), Rosenberg Self-Esteem Scale (Rosenberg, 1965), Vitiligo Impact Scale (Rammam, Khaitan, Mehta, Sreenivas, & Gupta, 2014), Perceived Stigmatization Questionnaire (Lawrence, Fauerbach, Heinberg, & Thomas, 2006) and Dermatology Life Quality Index (Finlay & Khan, 1994) were used as assessment measures. Results revealed that most of the individuals with Vitiligo reported poorer perception of QoL; while, men with Vitiligo expressed better perceived QoL as compared to women. Individuals with both types of Vitiligo (lesions on exposed/unexposed regions) expressed poor body image, negative impact of Vitiligo on their psycho-social functioning, and higher levels of perceived stigmatization. Individuals with exposed Vitiligo affected regions exhibited lower self-esteem. In addition, body image, impact of Vitiligo (psychologically and socially), and perceived stigmatization (absence of friendly behavior) significantly predicted QoL. It was concluded that Vitiligo had a greater impact on individual’s psychological health and social functioning rather than physiological complications.

scholarly journals Gambaran Kualitas Hidup Lansia Yang Tinggal Di Panti Sosial : Literature Review

2021 ◽  
Vol 1 ◽  
pp. 1605-1614
Author(s):  
K Krisdiyanti ◽  
Dyah Putri Aryati
Keyword(s):  
Quality Of Life ◽  
Nursing Home ◽  
Literature Review ◽  
Elderly People ◽  
Life Quality ◽  
The Elderly ◽  
Care Homes ◽  
Pubmed Database ◽  
Elderly Living

AbstractThe increasing number of the elderly population is a phenomenom that occurs today. The high level of dependence of the elderly causes the elderly to have the potential to be placed in care homes. The elderly are individuals who hane a high risk of isease and stressors. This, of course, requires efforts to ensure the life of the elderly, not only seen from fulfillment of the needs of the elderly but also the life quality of the eldely. The study aims to describe the quality of life of the elderly who live in care homes. The study used a literature review method by searching for articles in the Pubmed database, and google sholar. The search was conducted by combining keywords: “Elderly, “Elderly people”, “Quality of life”, “WHOQOL-BREF”, and “Nursing home” with the year 2011-2021. Participants in this study were 395 respondents of elderly living in care homes. The results of the literature review of 6 articles showed that there are 73 respondents (18,5%) with low category of life quality, 195 respondents (49,9%) with medium category of life quality, and 127 repondents (32,1%) high category of the life quality. From this study, it can be concluded that the quality of life of the elderly living in care homes is mostly (49,9%) in moderate category. The role of nurses is needed to improve the quality of life of the elderly who live in care homes.Keywords: care homes; elderly; quality of life; WHOQOL-BREF AbstrakTerjadinya peningkatan jumlah populasi lanjut usia merupakan fenomena yang terjadi saat ini. Tingkat ketergantungan lansia yang tinggi mengakibatkan lansia berpontesi untuk ditempatkan di panti sosial. Lansia merupakan individu yang memiliki resiko tinggi dan rentan terhadap penyakit serta stresor. Hal ini tentunya dibutuhkan upaya untuk menjamin hidup lansia, tidak hanya dilihat dari pemenuhan kebutuhan lansia namun juga dilihat dari kualitas hidup lansia. Penelitian ini bertujuan untuk mengetahui gambaran kualitas hidup lansia yang tinggal di panti sosial. Penelitian ini menggunakan metode literature review, untuk pencarian artikel dengan mengakses database Pubmed, dan googlescholar. Pencarian dilakukan dengan mengkombinasi kata kunci: “elderly”, “elderly people”, “Quality of life”, “WHOQOL-BREF”, “Nursing home” dengan batasan tahun 2011-2021. Partisipan pada studi ini adalah lansia yang tinggal di panti sosial dengan total 395 lansia. Hasil penelitian literature review dari 6 artikel menunjukan kualitas hidup lansia dengan kategori rendah 73 responden (18,5%), sedang 195 responden (49,9%) dan tinggi 127 responden (32,1%). Dari penelitian ini diketahui bahwa kualitas hidup lansia yang tinggal di panti sosial sebagian besar (49,9%) dalam kategori sedang. Perlu adanya peran perawat untuk meningkatkan kualitas hidup lansia yang tinggal di panti sosial.Kata kunci : kualitas hidup; lansia; panti sosial; WHOQOL-BREF

A Proposal of an innovative program for informal caregivers of patients with mood disorders

2017 ◽  
Vol 41 (S1) ◽  
pp. S603-S603
Author(s):  
J. Cabral ◽  
C. Barreto Carvalho ◽  
P. Castilho Freitas ◽  
C. Pato
Keyword(s):  
Quality Of Life ◽  
Mood Disorders ◽  
Negative Impact ◽  
Controlled Trial ◽  
Informal Caregivers ◽  
Well Being ◽  
Control Group ◽  
Compassion Focused Therapy ◽  
The Impact

IntroductionIntervention with informal caregivers (IC) of psychiatric patients is internationally recognized as relevant and a priority. However, the existing responses in this area are still insufficient, especially regarding caregivers of individuals with mood disorders (MD). Mindfulness and compassion focused therapy have proven to be an effective approach in stress reduction and in improving emotional and social well-being of caregivers of patients with other conditions. However, no studies testing these new approaches in IC of patients with MD have been carried out. The objective of this work is to present a research project that aims to develop, implement and empirically test the effectiveness of an innovative group program to help informal caregivers of individuals with mood disorders to cope with the negative impact of the disease and reduce caregiver burdens.MethodsThe design of this experimental study to test the program's efficacy is a non-randomised controlled trial (nrct) with 12 months follow-up, with a mixed assessment methodology (quantitative and qualitative analysis). A sample of 60 informal caregivers of individuals with chronic MD will be constituted (n = 30 Control group; n= 30 Experimental group).ResultsWe expect the program to promote significant changes in participants in terms of several emotional variables (eg: burden, stress, resilience, compassion and quality of life).ConclusionsFurther efforts to continue studying the impact of interventions in caregivers should be carried out, as a way to improve the quality of life of caregivers and their ability to provide informal care to MD patients.Disclosure of interestThe authors have not supplied their declaration of competing interest.

Autonomy, identity and health: defining quality of life in older age

2021 ◽  
pp. medethics-2020-107185
Author(s):  
Sara Kate Heide
Keyword(s):  
Quality Of Life ◽  
Healthcare Providers ◽  
Life Quality ◽  
The Elderly ◽  
Best Interests ◽  
Healthcare Team ◽  
Personal Experiences ◽  
Definition Of ◽  
Made In

Defining quality of life is a difficult task as it is a subjective and personal experience. However, for the elderly, this definition is necessary for making complicated healthcare-related decisions. Commonly these decisions compare independence against safety or longevity against comfort. These choices are often not made in isolation, but with the help of a healthcare team. When the patient’s concept of quality of life is miscommunicated, there is a risk of harm to the patient whose best interests are not well understood. In order to bridge this gap in understanding and unite seniors with their caretakers as a cohesive team, we need to establish a definition of quality of life. In this paper, my personal experiences with the elderly will be analysed along with five essays on the topic of ageing. These sources provide clear evidence that quality of life for seniors is majorly determined by the ability to preserve one’s lifelong identity. When making difficult decisions in geriatric healthcare, this greater understanding of the determinants of life quality will allow treatments to best serve the elderly. Defining quality of life allows healthcare providers to shift the focus from minimising disability toward maximising ability. I believe this shift would provide seniors with better health outcomes and properly enhance the quality of their years.

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