Mejora de la calidad de vida en cuidadores informales de personas dependientes mediante talleres educacionales

Introduction: The ageing of the population is associated with an increase in the number of dependent people, with an estimate of 15% living with a disability. The provision of care to family members entails an added responsibility associated with care-related problems, which can have a negative impact on caregivers. Therefore, we propose to design and evaluate a caregiving programme based on caregiver education, measuring knowledge, pain perception, emotional burden and health-related quality of life. Objective: The main objective is to improve the quality of life of informal caregivers through training interventions, in order to decrease the disability caused by caregiving tasks.Method: 99 caregivers belonging to the Aljarafe-Northern Seville Primary Care Health District participated, divided into control and intervention groups. We designed two educational workshops on care programmes for informal caregivers. They completed a knowledge questionnaire, and different validated scales related to pain, health states and quality of life.Results: Most of the caregivers presented back problems, for which they received pharmaceutical treatment. The implemented intervention was associated with a decrease in pain during basic activities of daily living, care and rest, as well as a reduction in strain index in both groups.Conclusions: Intervention programmes for informal carers of dependent patients are effective in improving the state of health and quality of life of this group, and their implementation should therefore be encouraged in primary care. Introducción: El envejecimiento de la población está asociado a un incremento de personas dependientes, estimándose que el 15% vive con alguna discapacidad. La prestación de cuidados a familiares supone una responsabilidad añadida asociada a problemas relacionados con el cuidado, que pueden repercutir negativamente en los cuidadores. Por ello, planteamos diseñar y evaluar un programa de cuidados, basado en la educación de los cuidadores, midiendo los conocimientos, la percepción del dolor, la carga emocional y la calidad de vida relacionada con la salud. Objetivo: El objetivo principal es mejorar la calidad de vida de los cuidadores informales mediante intervenciones formativas, con el fin de disminuir la incapacidad causada por las tareas del cuidado.Método: Participaron 99 cuidadores pertenecientes al Distrito Sanitario Aljarafe-Sevilla Norte de Atención Primaria, divididos en grupo control e intervención. Diseñamos dos talleres educacionales sobre programas de atención a cuidadores informales. Cumplimentaron un cuestionario de conocimientos, y diferentes escalas validadas relacionadas con el dolor, los estados de salud y la calidad de vida.Resultados: La mayor parte de los cuidadores presentaban problemas de espalda tomando medicación para ello. La intervención implementada se asoció a un descenso del dolor durante actividades básicas de la vida diaria, los cuidados y el descanso, y disminución del índice de esfuerzo en ambos grupos.Conclusiones: Los programas de intervención en cuidadores informales de pacientes dependientes resultan eficaces para mejorar el estado de salud y la calidad de vida de este colectivo por lo que se debe fomentar su realización desde la Atención Primaria.

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Implementación de un programa de formación a cuidadores de personas mayores con dependencia o discapacidad

Revista de la Facultad de Medicina ◽

10.15446/revfacmed.v63n3sup.47818 ◽

2015 ◽

Vol 63 (3Sup) ◽

pp. 75-82 ◽

Cited By ~ 2

Author(s):

Nancy Stella Landinez Parra ◽

Imma Quitzel CaicedoMolina ◽

María Fernanda Lara Díaz ◽

Leonor Luna Torres ◽

Judy Costanza Beltrán Rojas

Keyword(s):

Quality Of Life ◽

Negative Impact ◽

Informal Caregivers ◽

Life Quality ◽

The Elderly ◽

Rank Test ◽

Quality Level ◽

Calidad De Vida ◽

The Times

ResumenAntecedentes.El incremento de personas mayores de 60 años en Colombia, cuya cifra representa el 10% del total de la población (1) secundario al aumento de la esperanza de vida, trae consigo nuevos desafíos en las políticas de salud y evidencia la necesidad de establecer nuevas estrategias de capacitación, especialmente en situaciones de dependencia y/o discapacidad en las cuales el cuidado de los adultos mayores está a cargo de un familiar quien asume el rol de cuidador informal. Lo anterior impacta negativamente su calidad de vida.Objetivo.Determinar el efecto generado en un grupo de cuidadores informales de personas mayores con la implementación de un curso de capacitación en la ciudad de BogotáMateriales y métodos.El proyecto incluyó cuatro fases: a) Caracterización inicial y establecimiento de línea de base, b) implementación del curso de formación, c) medición final que incluyo evaluación de calidad de vida, dependencia y satisfacción con el programa, y d) análisis de resultados obtenidos. Los resultados se analizaron mediante estadísticos descriptivos y para valorar las diferencias entre las mediciones se utilizó la prueba no paramétrica de rangos de Wilcoxon.Resultados.Inicialmente se observó un alto índice de sobrecarga de los cuidadores; al finalizar el programa se reportaron cambios positivos en calidad de vida, dependencia y mejor utilización de los tiempos dedicados al autocuidado y al cuidado de los otros.Conclusiones.Las estrategias dirigidas a la formación de cuidadores informales permiten el empoderamiento de los cuidadores y una menor dependencia por parte de la persona cuidada, lo que redunda en la mejora de la calidad de vida de los dos.Palabras clave: Cuidadores; Persona mayor; Calidad de vida; Dependencia (DeSC).SummaryBackground. The increase in the number of people over 60 years in Colombia, which represents 10% of the total population (1) secondary to increased life expectancy brings with it new challenges in health policy and highlights the need for establishing new training strategies, especially in situations of dependency and / or disability in which the care of the elderly is run by a family who assumes the role of informal caregiver. This condition has a negative impact in their quality of life.Objectives: To determine the effect caused in a group of informal caregivers of dependent elderly and/or disabled in Bogotá.Materials and methods: The project included four phases: (a) Initial characterization and establishment of baseline; (b) implementation of the training; (c) final assessment, which included measurement of quality of life, dependence and satisfaction with the program, and (d) analysis results. The results were analyzed using descriptive statistics and to assess the differences between measurements the nonparametric Wilcoxon rank test was used.Results: Initially a high index of overload in caregivers was observed. At the end of the program, positive changes in life quality, level of dependence and a better use of the times spending in self-care activities and elderly caring routines were observed.Conclusions: The strategies focusing on educating informal caregivers allow for their empowering and to lessen the level of dependence of the elder person being cared, which in turn increases the quality of life in both parts of the caring dyad.Keywords: Caregivers; Aged; Quality of life; Dependency (MeSH).

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A Proposal of an innovative program for informal caregivers of patients with mood disorders

European Psychiatry ◽

10.1016/j.eurpsy.2017.01.943 ◽

2017 ◽

Vol 41 (S1) ◽

pp. S603-S603

Author(s):

J. Cabral ◽

C. Barreto Carvalho ◽

P. Castilho Freitas ◽

C. Pato

Keyword(s):

Quality Of Life ◽

Mood Disorders ◽

Negative Impact ◽

Controlled Trial ◽

Informal Caregivers ◽

Well Being ◽

Control Group ◽

Compassion Focused Therapy ◽

The Impact

IntroductionIntervention with informal caregivers (IC) of psychiatric patients is internationally recognized as relevant and a priority. However, the existing responses in this area are still insufficient, especially regarding caregivers of individuals with mood disorders (MD). Mindfulness and compassion focused therapy have proven to be an effective approach in stress reduction and in improving emotional and social well-being of caregivers of patients with other conditions. However, no studies testing these new approaches in IC of patients with MD have been carried out. The objective of this work is to present a research project that aims to develop, implement and empirically test the effectiveness of an innovative group program to help informal caregivers of individuals with mood disorders to cope with the negative impact of the disease and reduce caregiver burdens.MethodsThe design of this experimental study to test the program's efficacy is a non-randomised controlled trial (nrct) with 12 months follow-up, with a mixed assessment methodology (quantitative and qualitative analysis). A sample of 60 informal caregivers of individuals with chronic MD will be constituted (n = 30 Control group; n= 30 Experimental group).ResultsWe expect the program to promote significant changes in participants in terms of several emotional variables (eg: burden, stress, resilience, compassion and quality of life).ConclusionsFurther efforts to continue studying the impact of interventions in caregivers should be carried out, as a way to improve the quality of life of caregivers and their ability to provide informal care to MD patients.Disclosure of interestThe authors have not supplied their declaration of competing interest.

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Quality of life of cardiac patients eligible for implantation of cardiac pacemakers

Revista de Enfermagem UFPE on line ◽

10.5205/reuol.827-7116-1-le.0402201025 ◽

2010 ◽

Vol 4 (2) ◽

pp. 647

Author(s):

Izelina Helena de Freitas Antônio ◽

Thatiara Lima Barroso ◽

Agueda Maria Ruiz Zimmer Cavalcante ◽

Luciano Ramos de Lima

Keyword(s):

Social Sciences ◽

Quality Of Life ◽

Negative Impact ◽

Short Form ◽

Heart Diseases ◽

Cardiac Patients ◽

Calidad De Vida ◽

Sf 36 ◽

Prospective Longitudinal

ABSTRACTObjective: to determine the quality of life (QL) of cardiac patients eligible for implantation of a pacemaker (PM) in a cardiac hospital in the inland cities of Goiás States. Method: a cohort study, prospective, longitudinal quantitative approach. Purposeful sample applied to 25 patients who underwent implantation in the first half of 2009. The instrument used was the Short Form Healthy Survey (SF-36). The data were analyzed using Statistical Package for Social Sciences (SPSS) 15.0. The study was approved by the Ethics in Research of the University Center of Annapolis, protocol number 183/2008. Results: Chagas was the most frequent indication for implantation (68%), time of diagnosis of 1 to 25 years (56%), and 13 patients were undergoing treatment and 64% of patients with 1 insertion of pacemaker (PM), without changing so far. The major areas of life scores were Social Aspects (M=72,7), and the minor ones were Functional Capacity (M=31,6), demonstrating that QL is compromised because most of the areas did not exceed the average 50. There was no significance between age and QOL (p>0,05). Conclusion: we conclude that cardiac patients have significant negative impact on QL. Descriptors: quality of life; pacemaker, artificial; nursing; heart diseases; cardiac pacing, artificial; nursing assessment; chagas disease. RESUMOObjetivo: determinar a qualidade de vida (QV) dos cardiopatas elegíveis à implantação de marca-passo (MP) em um hospital no interior de Goiás. Método: estudo de coorte, prospectivo, longitudinal, quantitativo. Amostra intencional aplicada a 25 pacientes submetidos ao implante de MP no primeiro semestre de 2009. O instrumento utilizado foi o Short Form Healthy Survey (SF-36). Os dados foram analisados pelo Statistical Package for the Social Sciences (SPSS) 15.0. O estudo foi aprovado pelo Comitê de Ética em Pesquisa do Centro Universitário de Anápolis, com protocolo 183/2008. Resultados: Chagas foi a indicação mais frequente para implante (68%), com tempo de diagnóstico de 1 a 25 anos (56%), sendo que 13 pacientes realizavam tratamento e 64% dos pacientes com a 1ª inserção de MP. O domínio de maior escore para QV foi os Aspectos Sociais (M=72,7) e menor Capacidade Funcional (M=31,6), demonstrando que a QV é comprometida já que a maioria dos domínios não ultrapassou a média 50. Não houve significância entre idade e QV (p>0,05). Conclusão: os cardiopatas apresentam importante impacto negativo na QV. Descritores: qualidade de vida; marca-passo artificial ; enfermagem; cardiopatias; estimulação cardíaca artificial; avaliação em enfermagem; doença de chagas. RESUMEN Objetivo: determinar la calidad de vida (CV) de los pacientes cardiacos elegibles para la implantación de un marcapasos (PM) en un hospital cardíaco del interior de Goiás. Método: estudio de cohorte, prospectivo, longitudinal de enfoque cuantitativo. Con propósito de la muestra aplicada a 25 pacientes que se sometieron a la implantación en el primer semestre de 2009. El instrumento utilizado fue la Encuesta Healthy Short Form (SF-36). Los datos fueron analizados mediante el Statistical Package for Social Sciences (SPSS) 15,0. El estudio fue aprobado por la Ética en la Investigación del Centro Universitario de Anápolis, con el protocolo 183/2008. Resultados: Chagas fue la indicación más frecuente para implante (68%), el tiempo de diagnóstico de 1 a 25 años (56%), y 13 pacientes fueron sometidos a tratamiento y el 64% de los pacientes con la inserción de 1 MP, ningún cambio en la tiempo. La principale área de cuentas de la vida fue los aspectos sociales (M=72,7), y los menores fueron la capacidad funcional (M = 31,6). No hubo significación entre la edad y la calidad de vida (CV) (p>0,05). Conclusión: se concluye que los pacientes cardíacos tienen un impacto negativo significativo en la CV. Descriptores: calidad de vida; marcapaso artificial; enfermería; cardiopatías; estimulación cardíaca artificial; evaluación en enfermería; enfermedad de chagas.

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Comorbidity of TMD and malocclusion

Brazilian Journal of Oral Sciences ◽

10.20396/bjos.v18i0.8657272 ◽

2019 ◽

Vol 18 ◽

pp. e191679

Author(s):

Beatriz Moraes D’Avilla ◽

Michelle Cristina Berbet Pimenta ◽

Vivian Fernades Furletti ◽

Mario Vedovello Filho ◽

Giovana Cherubini Venezian ◽

...

Keyword(s):

Quality Of Life ◽

Life Stress ◽

Pain Perception ◽

Negative Impact ◽

Wald Test ◽

Cross Sectional Study ◽

Cross Sectional ◽

Significant Difference ◽

Negative Effect

Aim: to evaluate the synergic impact of muscular TMD and malocclusion on quality of life, masticatory capacity and emotional features of young adults. Methods: this cross-sectional study comprised 4 groups (n= 15): G1, individuals without TMD or malocclusion; G2, with TMD and malocclusion; G3, with TMD and without malocclusion, and G4, without TMD and with malocclusion. Muscular TMD was diagnosed by RCD/TMD. Data included quality of life (OHIP-14), masticatory capacity test (X50), emotional stress (PSS-14), depression (MDI), pain intensity and salivary cortisol. Comparative statistical analysis included One-way ANOVA and Tukey post hoc test (X50, stress and cortisol) and GENMOD followed by Wald test (OHIP-14 and pain data). Fisher's and Pearson's association analysis were carried out. Results: Comorbidity of muscular TMD and malocclusion leads to significant lower masticatory capacity (p<0.05). TMD groups independently of the occlusal condition had considerably lower OHIP-14 scores and higher stress levels (self-perceived and hormonal) (p<0.05). There was no statistically significant difference of emotional depression among groups. A significant positive correlation was observed among quality of life, stress and pain perception. Conclusion: muscular TMD in the overlap of malocclusion potentializes their negative effect on masticatory capacity. In addition, the hindering effect of the comorbidity is variable, however, TMD has a greater negative impact on quality of life and stress, whilst malocclusion on mastication.

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The Influence of Lower-Body Training, Upper-Body Training and a Combination of Both on Pain, Functionality and Quality of Life in Knee Osteoarthritis Patients

Journal of Applied Life Sciences International ◽

10.9734/jalsi/2020/v23i1130197 ◽

2020 ◽

pp. 38-51

Author(s):

K. Baum ◽

U. Hofmann ◽

F. Bock

Keyword(s):

Quality Of Life ◽

Knee Osteoarthritis ◽

Pain Perception ◽

Physical Activities ◽

Upper Body ◽

Training Intervention ◽

Training Interventions ◽

Positive Effects ◽

Underlying Mechanisms

Purpose: Regular physical activities are a keystone in the nonmedical and nonsurgical treatment of knee-osteoarthritis. However, the underlying mechanisms are still regarded as a black-box and a matter of debate. As potential candidates, two groups can be distinguished: First, joint-specific influences such as better biomechanical functioning and improvements in the quality of cartilage. Secondly, more unspecific effectors like anti-inflammatory cytokines and a central modulation of pain perception. In order to distinguish between these two groups the present study compared the training effects of knee-joint surrounding muscles (LBT), upper body muscles (UBT), and the combination of both (WBT). Methods: 372 physically inactive, adult knee-osteoarthritic patients of both sexes were enrolled in the multi-centered, controlled, and randomized training intervention. All three exercise groups fulfilled an 8-week circle-training intervention two times per week with a subjective intensity of 4 - 5 for the first five sessions (on a 0 = no effort to 10 = extreme effort scale). From the 6th to the 10th session, intensity was adjusted to 6 – 7 and thereafter to 7 – 8. The single training sessions were as follows. LBT: 4 devices, exercise net time (ENT) 20 min., UBT: 4 devices, ENT12 min., WBT 8 devices, ENT 28 min. Anthropometric data, comorbidities, regular physical activities, actual and former medical treatments, knee specific functionality, pain, stiffness, and health related physical and mental quality of life was evaluated at the beginning, after 4 weeks, and finally after 8 weeks by means of online-questionnaires. Main Results: Initially, pain and physical function correlated well with the Kellgren-Lawrence grades (p < 0,01). All three training interventions led to significantly increased functionalities (p < 0,0001) and physical qualities of life (p < 0,02). The pain-subscore of the Western Ontario and McMaster Universities Osteoarthritis Index was significantly reduced (p < 0,004). None of these improvements showed significant differences between groups, although there was a tendency of WBT to be superior to UBT and LBT. Conclusion: The positive effects of physical training regimens cannot be exclusively attributed to a knee-specific training effect since significant improvements also occurred in the UBT group.

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Pain Characteristics and Quality of Life in Older People at High Risk of Future Hospitalization

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18030958 ◽

2021 ◽

Vol 18 (3) ◽

pp. 958

Author(s):

Maria M Johansson ◽

Marco Barbero ◽

Anneli Peolsson ◽

Deborah Falla ◽

Corrado Cescon ◽

...

Keyword(s):

Quality Of Life ◽

Primary Care ◽

Older People ◽

Pain Intensity ◽

Negative Impact ◽

Multiple Linear Regression Model ◽

Three Dimensions ◽

Individual Treatment ◽

Pain Characteristics

This study deals with how pain characteristics in conjunction with other factors affect quality of life (QoL) in a vulnerable primary care population. We recruited vulnerable older people (75+, n = 825) living in south-eastern Sweden. A postal questionnaire included pain aspects, QoL (EQ-5D-3L, RAND-36 physical functioning, attitudes toward own aging, and life satisfaction), functional status, social networks, and basic demographic information. Pain extent and localization was obtained by digitalization of pain drawings reported on standard body charts. Most respondents were experiencing pain longer than 3 months (88.8%). Pain frequency varied mostly between occasionally (33.8%) and every day (34.8%). A minority reported high pain intensity (13.6%). The lower back and lower legs were the most frequently reported pain locations (>25%). Multiple linear regression model revealed three characteristics of pain (intensity, frequency, and extent) remained inversely associated with the EQ-5D-3L index score (R2 = 0.57). Individually, each of these pain characteristics showed a negative impact on the other three dimensions of QoL (R2 = 0.23–0.59). Different features of pain had impact on different dimensions of QoL in this aging population. A global pain assessment is useful to facilitate individual treatment and rehabilitation strategies in primary care.

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Actividad física y calidad de vida por parte de los pacientes de la atención primaria de la ciudad de Terrassa (Physical activity and quality of life by patients of primare care of the city of Terrassa)

Retos ◽

10.47197/retos.v44i0.90526 ◽

2022 ◽

Vol 44 ◽

pp. 659-666

Author(s):

María Paola Mastrantonio Ramos ◽

Oscar Coduras

Keyword(s):

Quality Of Life ◽

Primary Care ◽

Sports Activity ◽

Calidad De Vida ◽

Perception Of Quality ◽

Las Mujeres ◽

Intense Activity ◽

The Relationship ◽

The City

En el artículo se describen y analizan los resultados de un estudio realizado para investigar la relación entre la práctica físico-deportiva y la calidad de vida percibida (CVP). La muestra del estudio estuvo integrada por un colectivo de ciudadanos (968), pacientes de Atención Primaria, entrevistados mientras se encontraban en las salas de espera, de cuatro Centros de Atención Primaria (CAP) de la ciudad de Terrassa. Los objetivos del estudio fueron: 1) Evaluar la relación entre la percepción de calidad de vida y la actividad físico-deportiva; 2) Verificar si, en tal percepción, hay diferencias significativas entre hombres y mujeres. Las conclusiones fueron las siguientes: Existe una percepción mejor de la calidad de vida entre los usuarios que realizan actividad físico-deportiva que entre los pacientes sedentarios, sea la actividad moderada o intensa. Las mujeres que realizan actividad físico-deportiva mejoran su percepción de Calidad de Vida en mayor grado que los hombres. Las mujeres mejoran su CVP en el ámbito social y los hombres en el ámbito físico, por lo que la práctica deportiva es una fuente de la socialización de las mujeres. Abstract. The article describes and analyzes the results of a study carried out to investigate the relationship between physical-sports practice and perceived quality of life (QOL). The study sample was made up of a group of citizens (968), Primary Care patients, interviewed while they were in the waiting rooms of four Primary Care Centers (CAP) in the city of Terrassa. The objectives of the study were: 1) To evaluate the relationship between the perception of quality of life and physical-sports activity; 2) Verify if, in such perception, there are significant differences between men and women. The conclusions were as follows: There is a better perception of the quality of life among users who perform physical-sports activity than among sedentary patients, be it moderate or intense activity. Women who perform physical-sports activity improve their perception of Quality of Life to a greater degree than men. Women improve their CVP in the social sphere and men in the physical sphere, so sports practice is a source of women's socialization.

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Management pathways for erectile dysfunction in primary care

Journal of Prescribing Practice ◽

10.12968/jprp.2021.3.3.112 ◽

2021 ◽

Vol 3 (3) ◽

pp. 112-118

Author(s):

Martin Steggall ◽

Imran Mohammed ◽

Keryn Jones ◽

Anthony Shanahan ◽

Thomas Ellul ◽

...

Keyword(s):

Quality Of Life ◽

Primary Care ◽

Erectile Dysfunction ◽

Sexual Intercourse ◽

Negative Impact ◽

Treatment Options ◽

Self Confidence

Erectile dysfunction (ED) is defined as the inability of a man to get and maintain an erection that is sufficient for sexual intercourse, and is a common problem. ED commonly has a profound negative impact on quality of life in the patient and his partner, which can result in changes to sexual self-confidence. This article outlines strategies for identifying and managing ED in primary care, outlining what needs to be assessed and the various treatment options available to manage the condition.

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Percepção de idosos sobre o envelhecimento em um projeto extensionista

Revista Remecs - Revista Multidisciplinar de Estudos Científicos em Saúde ◽

10.24281/rremecs2020.5.8.29-39 ◽

2020 ◽

Vol 5 (8) ◽

pp. 29-39

Author(s):

Thiago José Nascimento de Souza ◽

José Júnior Bezerra da Silva ◽

Ana Elizabeth Santos Lins

Keyword(s):

Quality Of Life ◽

Content Analysis ◽

Young People ◽

Negative Impact ◽

The Elderly ◽

Qualitative Approach ◽

Daily Activities ◽

Calidad De Vida ◽

Gains And Losses

Este estudo teve como objetivo conhecer a percepção dos idosos participantes de uma Universidade Aberta à Terceira Idade sobre o envelhecimento. Trata-se de um estudo exploratório, de campo, com abordagem qualitativa, em que os resultados foram categorizados à luz da análise de conteúdo na modalidade temática, emergiram quatro grandes categorias. Os resultados apresentaram que a percepção do idoso sobre o envelhecimento está relacionada com um momento de ganhos e perdas. Observou-se por meio do discurso dos idosos a necessidade de estarem realizando suas atividades cotidianas de maneira independente, e que a oportunidade de escolha influencia diretamente na qualidade de vida. Os pesquisados percebem que são excluídos pelos jovens e essa atitude repercute de forma negativa em suas vidas. E ainda não se sentem contemplados com as políticas públicas.Descritores: Envelhecimento, Idoso, Enfermagem. Perception of elderly people about aging in an extensionist projectAbstract: This study aimed to know the perception of aging participants in an Open University for the Elderly about aging. It is an exploratory, field study, with a qualitative approach, in which the results were categorized in the light of content analysis in the thematic modality, four major categories emerged. The results showed that the elderly's perception of aging is related to a moment of gains and losses. It was observed through the speech of the elderly the need to be carrying out their daily activities independently, and that the opportunity to choose directly influences the quality of life. Respondents perceive that they are excluded by young people and this attitude has a negative impact on their lives. And they still do not feel contemplated with public policies.Descriptors: Aging, Elderly, Nursing. Percepción de personas mayores sobre el envejecimiento en un proyecto extensionistaResumen: Este estudio tuvo como objetivo conocer la percepción de los participantes mayores en una Universidad Abierta para Personas Mayores sobre el envejecimiento. Es un estudio exploratorio de campo, con un enfoque cualitativo, en el que los resultados se clasificaron a la luz del análisis de contenido en la modalidad temática, surgieron cuatro categorías principales. Los resultados mostraron que la percepción del envejecimiento de los ancianos está relacionada con un momento de ganancias y pérdidas. A través del discurso de los ancianos se observó la necesidad de llevar a cabo sus actividades diarias de forma independiente, y que la oportunidad de elegir influye directamente en la calidad de vida. Los encuestados perciben que los jóvenes los excluyen y esta actitud tiene un impacto negativo en sus vidas. Y todavía no se sienten contemplados con las políticas públicas.Descriptores: Envejecimiento, Ancianos, Enfermería.

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Psoriasis today: experiences of healthcare and impact on quality of life in a major UK cohort

Primary Health Care Research & Development ◽

10.1017/s1463423614000450 ◽

2014 ◽

Vol 16 (04) ◽

pp. 415-423 ◽

Cited By ~ 9

Author(s):

Avril S. Nash ◽

Helen McAteer ◽

Julia Schofield ◽

R. Penzer ◽

Annie K. Gilbert

Keyword(s):

Quality Of Life ◽

Primary Care ◽

United Kingdom ◽

Emotional Distress ◽

Psychosocial Functioning ◽

Negative Impact ◽

Well Being ◽

Treatment Regimes ◽

The United Kingdom

AimTo establish how people with psoriasis in the United Kingdom today experience living with their condition including diagnosis, treatment, healthcare provision and impact on daily life.BackgroundPsoriasis is a debilitating long-term inflammatory skin disease which can result in severe itching, discomfort and soreness, and may be associated with problems beyond the specific symptoms related to the skin. For many it is accompanied by difficult-to-manage treatment regimes, emotional distress and a negative impact on their quality of life and psychosocial functioning. To date there is little published information about the health experiences of people in the United Kingdom with psoriasis.MethodsA postal self-administered questionnaire was completed by members of the Psoriasis Association and the responses analysed (n=1564).FindingsThe findings suggest some similarities to surveys in other nations, but specifically highlighted that patients feel under-informed and are dissatisfied with current treatment regimes. Responses provided an insight into aspects of the condition that treatments should be targeting. Specific areas of negative impact on psychosocial functioning were identified, including the lack of available support for those experiencing emotional distress. The research provides important information about how the care of patients with psoriasis can be improved, especially at primary care level. This includes: improved training in psoriasis knowledge and awareness at general practitioner level and greater use of dermatology specialist nurses in primary care settings; more effective and manageable treatment regimes that target visible areas and general well-being; greater support for emotional distress and psychosocial functioning.

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