scholarly journals CONSTRUCTION AND VALIDATION OF AN EDUCATIONAL MANUAL FOR FAMILY CAREGIVERS OF OLDER ADULTS AFTER A STROKE

2021 ◽  
Vol 30 ◽  
Author(s):  
Ana Cláudia Fuhrmann ◽  
Carla Cristiane Becker Kottwitz Bierhals ◽  
Naiana Oliveira dos Santos ◽  
Diani de Oliveira Machado ◽  
Fernanda Peixoto Cordova ◽  
...  
Keyword(s):  
Older Adults ◽  
Focus Group ◽  
Family Caregivers ◽  
Older Adult ◽  
Family Members ◽  
Target Population ◽  
Methodological Study ◽  
Second Stage ◽  
Specialist Nurses ◽  
Face Validation

ABSTRACT Objective to construct and validate an educational manual for family caregivers of older adult dependent on care after a stroke. Method a methodological study with four stages: focus group with five family caregivers, to identify doubts and difficulties regarding home care for older adults with stroke; preparation of the manual by six researchers; content validation by 18 specialist nurses, and face validation by 12 family caregivers. For data analysis, thematic analysis was performed, the Content Validity Index (CVI) was calculated, and the consensus of the target population was verified. Results from the focus group, the experiences and challenges faced by the caregivers in caring for aged family members with a stroke were identified, which supported the elaboration of an educative manual, in the second stage. In the expert consensus, a global CVI of 0.97 was obtained and, in face validation, a consensus of 95.51% by the target population. Conclusion an educational manual for family caregivers of older adults after a stroke was built, which was validated in terms of content and appearance. In view of this, it can be used as complementary material to the guidelines of the professionals, enabling improvement of the care provided by family members to the older adult dependent on care after a stroke.

scholarly journals Hospital to Home: Supporting the Transition From Hospital to Home for Older Adults

2021 ◽  
pp. 084456212110443
Author(s):  
Brittany Barber ◽  
Lori Weeks ◽  
Lexie Steeves-Dorey ◽  
Wendy McVeigh ◽  
Susan Stevens ◽  
...  
Keyword(s):  
Older Adults ◽  
Home Care ◽  
Family Caregivers ◽  
Older Adult ◽  
Long Term Care ◽  
Home Care Services ◽  
Term Care ◽  
Care Services ◽  
Hospital To Home

Background An increasing proportion of older adults experience avoidable hospitalizations, and some are potentially entering long-term care homes earlier and often unnecessarily. Older adults often lack adequate support to transition from hospital to home, without access to appropriate health services when they are needed in the community and resources to live safely at home. Purpose This study collaborated with an existing enhanced home care program called Home Again in Nova Scotia, to identify factors that contribute to older adult patients being assessed as requiring long-term care when they could potentially return home with enhanced supports. Methods Using a case study design, this study examined in-depth experiences of multiple stakeholders, from December 2019 to February 2020, through analysis of nine interviews for three focal patient cases including older adult patients, their family or friend caregivers, and healthcare professionals. Results Findings indicate home care services for older adults are being sought too late, after hospital readmission, or a rapid decline in health status when family caregivers are already experiencing caregiver burnout. Limitations in home care services led to barriers preventing family caregivers from continuing to care for older adults at home. Conclusions This study contributes knowledge about gaps within home care and transitional care services, highlighting the importance of investing in additional home care services for rehabilitation and prevention of rapidly deteriorating health.

scholarly journals Advancing the Science of Recruitment for Family Caregivers: Focus Group and Delphi Methods (Preprint)

2019 ◽  
Author(s):  
Dana Hansen ◽  
Amy Petrinec ◽  
Mona Hebeshy ◽  
Denice Sheehan ◽  
Barbara L Drew
Keyword(s):  
Social Media ◽  
Focus Group ◽  
Family Caregivers ◽  
Delphi Method ◽  
Target Population ◽  
Expert Advice ◽  
Second Phase ◽  
Material Development ◽  
Online Social Media ◽  
Using Data

BACKGROUND Successful recruitment of participants is imperative to a rigorous study, and recruitment challenges are not new to researchers. Many researchers have used social media successfully to recruit study participants. However, challenges remain for effective online social media recruitment for some populations. OBJECTIVE Using a multistep approach that included a focus group and Delphi method, researchers performed this study to gain expert advice regarding material development for social media recruitment and to test the recruitment material with the target population. METHODS In the first phase, we conducted a focus group with 5 social media experts to identify critical elements for effective social media recruitment material. Utilizing the Delphi method with 5 family caregivers, we conducted the second phase to reach consensus regarding effective recruitment videos. RESULTS Phase I utilized a focus group that resulted in identification of three barriers related to social media recruitment, including lack of staff and resources, issues with restrictive algorithms, and not standing out in the crowd. Phase II used the Delphi method. At the completion of Delphi Round 1, 5 Delphi participants received a summary of the analysis for feedback and agreement with our summary. Using data and recommendations from Round 1, researchers created two new recruitment videos with additions to improve trustworthiness and transparency, such as the university’s logo. In Round 2 of the Delphi method, consensus regarding the quality and trustworthiness of the recruitment videos reached 100%. CONCLUSIONS One of the primary challenges for family caregiver research is recruitment. Despite the broad adoption of social media marketing approaches, the effectiveness of online recruitment strategies needs further investigation.

scholarly journals CALL A TEENAGER . . . THAT’S WHAT I DO!: GRANDCHILDREN HELP OLDER ADULTS USE NEW TECHNOLOGIES

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S331-S331
Author(s):  
Jennifer D Portz ◽  
Christine Fruhauf ◽  
Sheana Bull ◽  
Rebecca S Boxer ◽  
David Bekelman ◽  
...  
Keyword(s):  
Older Adults ◽  
Focus Group ◽  
Family Support ◽  
Technology Use ◽  
New Technologies ◽  
Family Members ◽  
Well Being ◽  
Multiple Chronic Conditions ◽  
Health Technologies ◽  
Open Coding

Abstract As older adults increasingly show interest in technology for their well-being, families will play an important role in promoting the adoption and use of beneficial health technologies. The purpose of this study was to conduct a sub-analysis of data collected from a large-scale qualitative project regarding older adults’ experiences using health information technology. Specifically, the sub-analysis explored older adults’ experiences with technology support from family members to inform strategies for promoting older adult engagement with new health technologies. While the primary analysis of the original study was theoretically driven, this paper reports results from the inductive, open-coding analysis. Twenty-four older patients (≥65 years) with multiple chronic conditions (Charlson Comorbidity Index > 2) participated in a focus group conducted at patients’ primary clinic. While conducting the primary theoretically-driven analysis, coders also utilized an open-coding approach to ensure important ideas not reflected in the theoretical code-book were captured. Open-coding resulted in a primary theme, “family support”, that was furthered categorized by who and how the tech-support was provided. Participants were not specifically asked about family support, yet family assistance and encouragement for technology emerged from every focus group. Participants repeatedly mentioned that they called their grandchildren and adult children for help with technology. Participants also reported that family members experienced difficulty when teaching technology use. Family members struggled to explain simple technology tasks and were frustrated by the slow teaching process. Family support, specifically via grandchildren, may have a key role in the successful adoption and use of emerging health technologies.

Older Adult Factors Associated With Identified Need for Family Caregiver Assistance During Home Health Care

2019 ◽  
Vol 32 (2) ◽  
pp. 67-75 ◽  
Author(s):  
Julia Burgdorf ◽  
Alicia Arbaje ◽  
Jennifer L. Wolff
Keyword(s):  
Older Adults ◽  
Health Care ◽  
Activities Of Daily Living ◽  
Family Caregivers ◽  
Older Adult ◽  
Home Health Care ◽  
Family Caregiver ◽  
Daily Living ◽  
Home Health ◽  
Clinical Severity

Family caregivers make important contributions to home health care for older adults, but knowledge of the specific roles they assume is lacking. We analyzed data from 1,758 community-dwelling Medicare beneficiaries aged 65+ receiving Medicare-funded home health care between 2011 and 2016, using linked National Health and Aging Trends Study and Outcomes and Assessment Information Set data. Most (86.7%) beneficiaries receiving home health care had an identified need for family caregiver assistance, and nearly 6 in 10 (57.9%) had identified need for caregiver assistance with five or more tasks. After examining significant associations between older adult characteristics and identified needs for caregiver assistance with specific tasks, we identified three profiles of older adults who demonstrate similar patterns of identified need for family caregiver assistance during home health. These profiles include: (1) older adults with greater functional impairment who more often had identified need for assistance with Instrumental Activities of Daily Living, advocacy, or Activities of Daily Living; (2) older adults with cognitive impairment who more often had identified need for assistance with medication administration or supervision; and (3) older adults with greater clinical severity who more often had identified need for assistance with medical procedures and equipment. Findings support calls to develop training interventions and strengthen the partnership between home health providers and family caregivers. These three profiles present a potential framework for the development of family caregiver training programs.

scholarly journals The Effects of Suffering in Chronically Ill Older Adults on the Health and Well-Being of Family Members Involved in Their Care

GeroPsych ◽  
2010 ◽  
Vol 23 (4) ◽  
pp. 207-213 ◽  
Author(s):  
Joan K. Monin ◽  
Richard Schulz
Keyword(s):  
Older Adults ◽  
Attachment Theory ◽  
Family Caregivers ◽  
Process Model ◽  
Family Members ◽  
Chronically Ill ◽  
Well Being ◽  
Emotional Reactions ◽  
Impaired Health ◽  
Health And Well Being

A large literature shows that caregivers of chronically ill older adults have a higher risk for impaired health and decreased longevity. In this paper we review research that addresses pathways through which family members experience negative health consequences from exposure to a partner’s suffering. We first provide a conceptualization of suffering and describe how it can be measured, then review empirical evidence that exposure to suffering uniquely influences caregivers’ health, and discuss individual differences in caregivers’ emotional reactions to partners’ suffering using three emotion theories (Gross’ process model of emotion regulation, attachment theory, and a functionalist perspective on emotion). Finally, we discuss implications of the effects of suffering for the health and well-being of family caregivers.

scholarly journals Analysis of the Demand for Older Adult Care Services and Related Influencing Factors among Older Adults Living Alone in China

2020 ◽  
Author(s):  
Yanbing Zeng ◽  
Chenxi Lin ◽  
Ya Fang
Keyword(s):  
Older Adults ◽  
Influencing Factors ◽  
Older Adult ◽  
Living Arrangements ◽  
Family Members ◽  
Living Alone ◽  
Health Concern ◽  
Adult Care ◽  
Income Source ◽  
Care Services

Abstract Background: The number of older adults living alone in China is rising sharply and their care needs have become an increasing public health concern. This study aimed to explore the anticipated living arrangements and demand for home and community-based care services (HCBS) of older adults living alone and examine the related influencing factors.Methods: The data of 2217 participants living alone were extracted from the 2018 Chinese Longitudinal Health Longevity Survey (CLHLS). A chi-square test was used to examine the differences in older adult care services between respondents with different characteristics. Using the Andersen model as the analysis framework, multinomial and binary logistic regressions were used to analyze the influencing factors of anticipated living arrangements and HCBS, respectively. Results: 75.4% of the respondents hoped to maintain living alone when considering the future. Those who were older, had more children, income source was family members, always felt lonely and isolated and had limitation in activities of daily living (ADL) were inclined to choose the arrangement of “co-residence with children”. Childless and loneliness had significant impact on older adults’ willingness to live in institution. There were significant differences between urban and rural areas for provision of HCBS and the demand exceeds supply in all service types. Those who were younger, lived in urban areas, farmers, income source was family members, had poor economic status, had access to social services, with higher sense of loneliness and chronic diseases tend to show anticipated demands for various HCBS.Conclusions: The demand for older adult care services were affected by predisposing, enabling and need variables. There is a need for an overall improvement of the community care system to create a supportive environment for older adults living alone.

scholarly journals A Systematic Review of In-Home Smart Technology Adoption to Improve Older Adult Health and Family Caregiving

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 409-409
Author(s):  
Geunhye Park ◽  
Erin Robinson
Keyword(s):  
Systematic Review ◽  
Older Adults ◽  
Technology Adoption ◽  
Family Caregivers ◽  
Older Adult ◽  
Caregiver Burden ◽  
Easy Access ◽  
Adult Health ◽  
Facilitators And Barriers ◽  
Smart Technologies

Abstract In-home and internet-based smart technologies to improve older adult health has been rapidly developing. Technologies such as in-home sensors and smart homes enable older adults to live independently and age in place. These technologies also assist informal caregivers in their roles, thus reducing caregiver burden. However, technology adoption among older adults and family caregivers has been relatively low and reasons for technology acceptance are complex. Therefore, the purpose of this study was to conduct a systematic review of the literature, examining acceptance and adoption of in-home, internet-based smart technologies that are designed to improve health outcomes of older adults and can assist family caregivers in providing supports. This study utilized the Rew method (2011) and included peer-reviewed research articles published between 1991 and 2019 and available in: ISI Web of Science; PubMed; Scopus; CINAHL; and PsycInfo. A total of 1,227 relevant articles were identified with the search strings used and a final sample of 48 articles were included after the title, abstract, and full article review processes. Findings highlight several facilitators and barriers to technology adoption. Some facilitators to adoption include: technology familiarity, safety/security, personally tailored, non-obtrusive design, easy access, and reduction of caregiver burden. A few barriers include: cost, difficulty to use, time, stigma, privacy, data accuracy, and confidence. Additional findings will also be presented. A more thorough understanding of these facilitators and barriers to acceptance/adoption is crucial for the successful dissemination of in-home, internet-based smart technologies. Increased adoption can improve older adult health and reduce caregiver burden.

External ambient cues to mediate the involvement of family caregivers in the management of older adults’ medications: a qualitative study (Preprint)

2019 ◽  
Author(s):  
Marcela D. Rodríguez ◽  
Juan-Pablo Garcia-Vazquez ◽  
Angel G. Andrade
Keyword(s):  
Older Adults ◽  
Medication Adherence ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Prospective Memory ◽  
Family Members ◽  
Lessons Learned ◽  
Qualitative Assessment ◽  
Medication Regimen ◽  
External Cues

BACKGROUND The most common reasons for the lack of adherence among older adults is the forgetfulness due to the multiple cognitive processes associated with prospective memory involved in remembering to follow a medication regimen. Problems with prospective memory increase the demands for care. Therefore, family members play an essential role in supporting patients in activities that involve: helping with medication adherence, transmitting knowledge about medications, and helping to refill their prescriptions. To address some of these medication problems, we designed a Medication Ambient Display (MAD) to support education, motivation, and measurement of medication-taking behaviors in older adults. The functionality of MAD consists of providing external cues to convey information through abstract and stylized representations of older adults’ medication adherence. Specifically, MAD is placed as a portrait in the elderly’s home. It shows a virtual birdcage to raise elders’ consciousness about their responsibility for caring for their health, in a similar way that they gladly take care of their pets OBJECTIVE This study aimed to assess the effect of MAD’s external cues on the involvement of family members in the management of medications for the elderly. METHODS We conducted a qualitative study consisting of semi-structured interviews with older adults and their relatives identified as informal caregivers. The study lasted ten (10) weeks. We visited participants weekly to collect data about: older adults’ medication problems, help received, and their perception about older adults’ medication adherence. The first five (5) weeks of the study was used to establish baseline data to understand the involvement of relatives on medication management activities. Afterward, we introduced MAD to be used for the successive five (5) weeks. RESULTS We found that new patterns of interaction among older adults and their relatives arose while using MAD. Participants perceived that MAD reinforced the care functions of family caregivers. For instance, it made them aware of older adults' medication adherence and encouraged youngest family members to help older adults. CONCLUSIONS We identified that the external cues provided through ambient displays did not overwhelm family members, but motivated their social connectedness with older adults. We conclude this paper with a set of lessons learned from this qualitative assessment, which may help designers to develop assistive technology for older adults.

scholarly journals Discrepancy in the perception of symptoms of cognitive decline between older adults and their family members: results of the Toyama dementia survey

BMC Neurology ◽  
2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Nobue Nakahori ◽  
Michikazu Sekine ◽  
Masaaki Yamada ◽  
Takashi Tatsuse ◽  
Hideki Kido ◽  
...  
Keyword(s):  
Older Adults ◽  
Cognitive Function ◽  
Cognitive Decline ◽  
Older Adult ◽  
Family Members ◽  
Kappa Statistic ◽  
The Family ◽  
Perception Gap ◽  
The Mean ◽  
Loss Of Appetite

Abstract Background Early consultation is important to delay the onset of dementia. The present study aimed to explore the reasons for delaying a consultation of dementia while focusing on the differences in the perception of cognitive decline between older adults and their family members. Methods A group of 663 older adults aged ≥65 years and living with family members in Toyama Prefecture was surveyed. The questionnaires included items that measured changes in cognitive function noticed by older adults and their family members, and the Revised Hasegawa Dementia Scale (HDS-R). The degrees of consistency on the perception of mental changes that accompanied cognitive decline were measured using the Kappa statistic. Results Both older adults and their family members were well aware of “forgetfulness” as a symptom of cognitive decline. Only the perception of “loss of appetite” at the late stage of cognitive decline was consistent between older adults and their family (κ = 0.707). When older adults often noticed their own forgetfulness, their mean HDS-R score was 22.7, whereas that of the family members was 14.7. The combinations of perception of forgetfulness by older adults and their family members, and the mean HDS-R scores were unaware/unaware (mean HDS-R score = 27.0), aware/unaware (mean HDS-R score = 24.9), aware/aware (mean HDS-R score = 15.5), and unaware/aware (mean HDS-R score = 13.0). Conclusions There were discrepancies in the perception of cognitive decline between older adults and their family members. Cognitive decline had progressed by the time that family members had noticed the symptom of forgetfulness in their older adult relatives. The perception gap regarding cognitive decline deters consultation of dementia.

scholarly journals Development and Validation of an Implicit Relational Assessment Procedure (IRAP) to Measure Implicit Dysfunctional Beliefs about Caregiving in Dementia Family Caregivers

2020 ◽  
Author(s):  
Isabel Cabrera ◽  
María Márquez-González ◽  
Naoko Kishita ◽  
Carlos Vara-García ◽  
Andrés Losada
Keyword(s):  
Older Adults ◽  
Family Caregivers ◽  
Older Adult ◽  
Self Report ◽  
Implicit Relational Assessment Procedure ◽  
Assessment Procedure ◽  
Dysfunctional Beliefs ◽  
Middle Aged ◽  
Adult Caregivers ◽  
Older Adult Caregivers

AbstractCaregivers of people with dementia who endorse dysfunctional beliefs about caregiving are at high risk of experiencing higher levels of distress. These dysfunctional beliefs are presented in the form of rules, verbal statements that specify what responsibilities one should expect in order to be a “good caregiver,” and are characterized as rigid, unrealistic, or highly demanding. Previous studies relied exclusively on self-report measures when assessing such dysfunctional beliefs about caregiving. The objectives of this study were: 1) to develop and validate an Implicit Relational Assessment Procedure (IRAP) to measure implicit dysfunctional beliefs about caregiving (CARE-IRAP), and 2) considering the relatively high age of the sample, to analyze the adaptation of the IRAP for older adults, comparing the IRAP performance between older adult caregivers and middle-aged caregivers. Participants were 123 dementia family caregivers with a mean age of 62.24 ± 12.89. Adaptations were made to the IRAP by adjusting the accuracy and response time criteria. The sample was split into middle-aged caregivers (below 60 years) and older adult caregivers (60 or older). The CARE-IRAP scores presented significant positive correlations with explicit measures of dysfunctional beliefs about caregiving and experiential avoidance in caregiving. A similar pattern of results was observed across the two age groups. The results revealed that caregivers endorse implicit dysfunctional beliefs about caregiving and offer preliminary support for the use of the IRAP as a valid measure of implicit caregiving beliefs. This exploratory study is the first to adapt the IRAP criteria to older adults, and future studies should further explore criteria suitable for this population.

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