scholarly journals Mothers of children with autistic disorder: perceptions and trajectories

2015 ◽  
Vol 36 (1) ◽  
pp. 49-55 ◽  
Author(s):  
Michele Ebert ◽  
Elisiane Lorenzini ◽  
Eveline Franco da Silva

Childhood autism is characterized by severe and global impairment in several areas of human development and demands extensive care and dependence on the parents. The objective of this study was to understand the perceptions of mothers of children with autism regarding changes suffered by the child and their trajectories in search of an autism diagnosis. This is an exploratory descriptive study with a qualitative approach conducted with ten participant mothers. Data were collected in 2013 by means of semi-structured interviews. Thematic content analysis produced the following categories: perceptions of mothers as to changes in behaviour and/or development of their children; and trajectories of mothers in search of a diagnosis for their children. After the perception of changes in behaviour/development, mothers face an arduous trajectory of healthcare service utilization.

2019 ◽  
Vol 23 (1) ◽  
Author(s):  
Andressa Hithomi Takahara ◽  
Sueli Aparecida Frari Galera ◽  
Ana Carolina Guidorizzi Zanetti ◽  
Angélica Martins de Souza Gonçalves ◽  
Simone Terezinha Protti-Zanatta ◽  
...  

Abstract Objective: To apprehend the experience of grandmothers who take care of their grandchildren who consume psychoactive substances. Methods: A descriptive study with a qualitative approach conducted with five grandmothers of two health services in a city in the interior of São Paulo. Data have collected from July 2015 to May 2016, through semi-structured interviews and analyzed using the technique of thematic content analysis. Results: The grandmothers recognized that their grandchildren used drugs when they changed their behavior, which required them to take on the role of counselor and educator. The aging process and financial difficulty consisted in limits to care. Conclusion and implications for practice: The grandmothers suffered psychosocial, structural, and organizational impacts, requiring nurses to enhance their facilitator skills in relational processes between two distinct generations of age and values.


2011 ◽  
Vol 5 (3) ◽  
pp. 637
Author(s):  
Queliane Gomes da Silva Carvalho ◽  
Lausimary Araújo São Mateus da Silva ◽  
Larycia Vicente Rodrigues ◽  
Valderez Ribeiro de Andrade ◽  
Érica Larissa Marinho Souto

ABSTRACTObjective: to understand the perceptions and felling when you’ve a son with autism diagnosis. That’s made in a charity institution that attends individuals with autism and related problems in Aracaju-SE. Method: this is about a descriptive study from qualitative approach with data collected through half-structuralized interview of nine parents (one couple and seven mothers). This study has been approved by the Ethics Committee Profo João Cardoso Nascimento Jr. n. CAAE -0038.0.107.000-06. Results: the discovery of the child's disease leads to a deep shakes of familiar and psychological structure of those individuals, being the factors of financial order and lack of the verbal communication the most recurrent faced problems. Conclusion: how much more informed the parents concerning the pathology, minors are the doubts and you blame faced. Parents say that they participated of the plan of activities of their children, however, they don’t follow them. Parents possess realistic expectations, not being the cure, but the improvement of behaviors of their children and the development of their potentialities. Descriptors: autistic Disorder; parent-child relations; strategies of coping.RESUMOObjetivo: conhecer as percepções de pais de crianças com autismo quanto a questões familiares e sociais. Método: estudo descritivo, abordagem qualitativa, realizado em ONG que assiste indivíduos com autismo, situada em Aracaju-SE. Os pais dos portadores de autismo foram convidados a participar da pesquisa, aqueles que concordaram foram identificados por meio de nomes de pedras preciosas. Foram realizadas entrevistas semi-estruturadas com nove pais. Foram respeitados os princípios éticos da resolução 196/96, sendo aprovado pelo Comitê de Ética do Campus da Saúde Profo João Cardoso Nascimento Jr. no CAAE -0038.0.107.000-06. Resultados: observou-se que a descoberta da doença do filho leva a um profundo abalo da estrutura familiar e psicológica dos indivíduos que a compõem, sendo os fatores de ordem financeira e a falta da comunicação verbal os problemas mais frequentes. Relatam participar do plano de atividades dos seus filhos, contudo, não os executam em sua totalidade na busca de uma melhor adequação diária. Conclusão: a informação sobre a doença e o acompanhamento precose da familia favorece maior ajustamento e aceitação. Os pais possuem expectativas realistas, não sendo a cura a questão central, mas a melhora do comportamento de seus filhos e do desenvolvimento de suas potencialidades. Descritores: transtorno autístico; relações pais-filhos, estratégias de enfrentamento.RESUMENObjetivo: saber de las percepciones y los sentimientos principal cuando se enfrentan con un niño con autismo. Método: se realizó en una institución filantrópica que ayuda a las personas con autismo y los problemas conexos en Aracaju-SE. Estudio descriptivo, los datos cualitativos fueron recogidos a través de entrevista semi-estructurada con 9 padres (1 doble y 7 madres). El projecto fue aprobado por el Comité de Ética Resultados Profo João Cardoso Nascimento Jr. no CAAE -0038.0.107.000-06.: se observa que el descubrimiento de la paternidad lleva a un proceso de profunda conmoción de la estructura familiar y la atención psicológica de los individuos que la componen, los factores financieros y falta de comunicación, eran los más frecuencia. Conclusión: la mejor informados sobre la enfermedad, menor es la duda y  culpa con experiencia. Dicen los padres en las actividades de sus hijos, sin embargo, no siguen. Ellos tienen expectativas realistas, no es la cuestión fundamental de curación, pero la mejora en el comportamiento de sus hijos y el desarrollo de potencial. Descriptores: transtorno autistico; relaciones padres-hijo; estrategias de enfrontamiento.


2016 ◽  
Vol 15 (2) ◽  
Author(s):  
Tássia Regine de Morais Alves ◽  
Francisco Arnoldo Nunes de Miranda ◽  
Glauber Weder dos Santos Silva ◽  
Jovanka Bittencourt Leite de Carvalho ◽  
Cecília Nogueira Valença ◽  
...  

Aim:  To  understand  the  importance  and  the  difficulties  faced  by women  when  adhering  to  exclusive  breastfeeding.  Method:  This  is  an exploratory  and descriptive study, using a qualitative approach, in which semi-structured interviews were conducted with 14 women. Data treatment occurred by means of the content analysis, in the form of a thematic analysis. Results: Most women revealed knowing the importance and  benefits  of  breastfeeding  for  being  an  important  practice,  since  it  provides  good nourishment   and   aids   the   development   of   the   child.   The   aspects   that   benefit breastfeeding  women  were  made  explicit;  however,  these  were  given  less  focus  when compared to the aspects related to the baby's health. Conclusion: We should point out the  need  to  incorporate  practices  beyond  the  biological  dimension,  to  understand  the characteristics  of  each  woman  and  to  encourage  self-care  as  an  important  issue  for them.


2009 ◽  
Vol 17 (1) ◽  
pp. 52-58 ◽  
Author(s):  
Júlia Trevisan Martins ◽  
Maria Lúcia do Carmo Cruz Robazzi

The purpose of this study was to investigate the feelings of suffering that Intensive Care Unit (ICU) nurses experience, and the strategies they use to face these feelings. It is a descriptive study using a qualitative approach and based on content analysis. The study used previous studies on Work Psychodynamics as complementary groundwork. Data collection occurred by means of semi-structured interviews, which were transcribed, categorized, and subcategorized. Results showed that suffering is related to: taking care of a young patient in critical condition, taking problems home, the patient's family, the team's work, and technology at work. As for the defense strategies used, emphasis is given to the search for strength in religion, promoting inter-relationships among team members, engaging in physical activity, and withdrawing from the patient.


Author(s):  
Michele Cristina Miyauti da Silva ◽  
Luís Carlos Lopes Júnior ◽  
Lucila Castanheira Nascimento ◽  
Regina Aparecida Garcia de Lima

ABSTRACT Objective: to investigate health professionals' knowledge about the concept, assessment and intervention in fatigue in children and adolescents with cancer. Method: exploratory study with qualitative approach, with 53 health professionals (10 nurses, 33 assistant nurses, 3 physicians, 3 nutritionists, 2 psychologists and 2 physical therapists). Semi structured interviews were held, which were recorded and analyzed by means of inductive thematic content analysis. Results: the data were organized around three themes: knowledge of health professionals about fatigue; identification of fatigue and interventions to relieve fatigue. Conclusion: the results indicate the health professionals' limited knowledge about fatigue, as well as the lack of investment in their training and continuing education. Most of all, the lack of research on the theme in the Brazilian context remains a barrier to support improvements in care for this symptom in children and adolescents with cancer.


Rev Rene ◽  
2015 ◽  
Vol 16 (6) ◽  
pp. 881 ◽  
Author(s):  
Greice Machado Pieszak ◽  
Marlene Gomes Terra ◽  
Andressa Peripolli Rodrigues ◽  
Lizandra Flores Pimenta ◽  
Eliane Tatsch Neves ◽  
...  

Objective: To understand the perception of nursing about the pain of childbirth. Methods: This qualitative descriptive study used semi-structured interviews with the nursing staff of a teaching hospital of Rio Grande do Sul Data were analyzed according to thematic content analysis. Results: it was found that professionals recognize the importance of offering comfort methods to ease the pain of childbirth. However, some of them perceived the pain as suffering and not as a physiological process. Pain accentuated in women who felt unsafe, scared and without the presence of a companion. Conclusion: the humanization of obstetric care is still a challenge for professionals, institutions, and society. The incorporation of good practices and that nursing assume its role as a facilitator of the delivery process is suggested.


2016 ◽  
Vol 25 (1) ◽  
Author(s):  
Jéssica Batistela Vicente ◽  
Sonia Silva Marcon ◽  
Ieda Harumi Higarashi

Descriptive study with a qualitative approach, involving 14 families of children with mental disorders assisted at the Psychosocial Child Care Center of Maringá, Paraná, Brazil. The objective was to understand the experiences, feelings and reactions of families of child with mental disorder. Data were collected from January till April 2013 through open interviews and then analyzed using thematic Content Analysis. Two categories emerged "Living with mental disorder in childhood: a daily battle" and "Feeling and reacting: experiencing the mental disorder in childhood". It is concluded that the family needs to understand the disease to accept it and thus learn how to live with it, and it is up to the nurse to provide support in order to face the difficulties.


Rev Rene ◽  
2015 ◽  
Vol 16 (5) ◽  
pp. 631
Author(s):  
Ana Elisa Fernandes Lima ◽  
Leila Justino da Silva ◽  
Marianne De Lira Maia ◽  
Adriana Lenho de Figueiredo Pereira ◽  
Marcele Zveiter ◽  
...  

Objective: to describe the actions recommended by the Carioca Stork Program for assistance to pregnant women and identifywhether the implementation of this program had repercussions on the assistance from the perspective of the nursingteam. Methods: descriptive study with a qualitative approach, conducted in a public maternity hospital. Semi-structuredinterviews were conducted with four obstetric nurses and seven nursing auxiliaries who work at the obstetric center of thismaternity hospital. We used the technique of thematic content analysis. Results: the study categories were: Qualification ofthe hospital obstetric care, care and professional repercussions from the Carioca Stork Program. Conclusion: the nursingstaff considered that the implementation of the program brought improvements in childbirth care, favored women’s rightsand the performance of obstetric nursing in the municipal health network. 


Author(s):  
Ana Letícia Da Costa Cardoso ◽  
Jefferson Abraão Caetano Lira ◽  
José Francisco Ribeiro ◽  
Julyanne Dos Santos Nolêto ◽  
Rutielle Ferreira Silva ◽  
...  

Objective: to analyze nursing technicians’ knowledge about accident with needle sharp material. Method: descriptive study of qualitative approach, performed at a large-sized hospital in the state of Piauí, with 12 nursing technicians. Data were obtained through semi-structured interviews and analyzed through content analysis technique. Results: the majority showed satisfactory knowledge about accident with needle sharp material. Improper disposal of needles and blades was pointed out as the main cause of this accident. There was divergence in relation to contamination or not of the material to be considered needle sharp accident. A large part reported that this type of accident is quite distressing, disturbing and traumatic, in addition to having doubts about the notification and treatment of this accident. Conclusion: although the majority presented satisfactory knowledge about accidents with needle sharp material, there is a need for greater concern with Biosafety, continuing education and prevention of accidents to workers.


2014 ◽  
Vol 23 (1) ◽  
pp. 47-55 ◽  
Author(s):  
Roberta Teixeira Prado ◽  
Sonia Maria Dias ◽  
Edna Aparecida Barbosa de Castro

The study describes the skills and abilities required for working in Eye Banks, from the perspective of nurses, and offers subsidies for professional nursing practice in these services. This was an exploratory, descriptive study with a qualitative approach. Data were collected through semi-structured interviews with seven nurses working in this service and analyzed with the support of content analysis. By analyzing the testimonies of the subjects in this study, the managerial dimension was perceived as relevant for the subjects, through their statements. Skills required to work in Eye Banks, from the perspective of nurses, included: skills related to education, communication, leadership to maintain team unity; ability to deal with the corpse; and, dexterity in the technical procedures involved. It became clear that nurses needed to devote greater attention to the dimensions of teaching and research. This is a new scenario for nursing practice and it is required that nurses acquire new professional skills.


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