scholarly journals Sons and daughters with a parent hospitalized in an Intensive Care Unit

2013 ◽  
Vol 30 (2) ◽  
pp. 199-209
Author(s):  
Fernanda de Azevedo Lima ◽  
Maria Cristina Lopes de Almeida Amazonas ◽  
Carmem Lúcia Brito Tavares Barreto ◽  
Walfrido Nunes de Menezes

The aim of this study, in the area of Hospital Psychology, was to comprehend the experience of sons and daughters whose mother or father was hospitalized in an Intensive Care Unit. Participants were 10 sons and daughters who responded to a socio-demographic questionnaire and a semi-structured interview, which were submitted to Content Analysis. The following were verified in the interviews: feelings of suffering and fear; concerns regarding the fact that the patient spends most of the time alone; lack of trust regarding the treatment offered by the healthcare team for the patient; lack of motivation to continue day by day routines; positive reappraisal such as personal, spiritual and professional growth, and satisfaction with the hospital team's care to the family. This data highlights the needs of these sons and daughters during their parent's hospitalization in an Intensive Care Unit and may support more effective care from the healthcare team for this population.

2009 ◽  
Vol 3 (3) ◽  
pp. 567
Author(s):  
Álvaro Pereira ◽  
Ana Emília Rosa Campos ◽  
Rudval Souza da Silva

ABSTRACTObjective: to understand the nurses’ feelings who care for patients that are dying at Intensive Care Unit. Method: this is about an exploratory-descriptive study from qualitative approach, which had as principal question: How do you feel taking care of patients outside chance of cure Intensive Care Unit? The sample was composed by ten nurses. It was used as a scenario, the Intensive Care Unit of a public hospital in Salvador city. Data collection occurred from August to September 2008, with recorded interviews using a semi-structured script. The content analysis proposed by Bardin was the reference used for the analysis of data, which defined the categories of analysis. Results: two categories emerged: feelings related to the patient and feelings related to with the family. Conclusion: the death is considered by nurses who deal with it in the Intensive Care Unit, as an experience of conflicting emotions, sometimes painful. Descriptors: death; emotions; nursing care; intensive care unit.RESUMOObjetivo: compreender os sentimentos dos enfermeiros ao cuidar do paciente que está morrendo na Unidade de terapia intensiva. Método: estudo exploratório-descritivo, com abordagem qualitativa, que teve como questão norteadora: Como você se sente cuidando do paciente fora de possibilidade de cura na Unidade de terapia intensiva? Participaram desse estudo, dez enfermeiras. Utilizou-se, como cenário, a Unidade de Terapia Intensiva de um hospital público da cidade de Salvador. A coleta de dados aconteceu entre os meses de agosto e setembro de 2008, a partir de entrevistas gravadas com roteiro semi-estruturado. A Análise de Conteúdo proposta por Bardin foi à referência utilizada para a análise dos dados, onde se definiram as categorias de análise. Resultados: emergiram duas categorias: sentimentos relacionados ao paciente e sentimentos relacionados à família. Conclusão: a morte é tida pelas enfermeiras que com ela lidam no espaço da Unidade de terapia intensiva, como uma vivência de sentimentos conflituosos, por vezes dolorosos. Descritores: morte; emoções; cuidados de enfermagem; unidade de terapia intensiva.RESUMEN Objetivo: comprender los sentimientos de las enfermeras para el cuidado del paciente que está muriendo en la Unidad de Tratamiento Intensivo. Método: estudio descriptivo-exploratorio con aproximación cualitativa, que tênia como pregunta orientadora: ¿Cómo se siente teniendo el cuidado de los pacientes fuera de posibilidades de cura Unidad de Tratamiento Intensivo. La muestra estuvo compuesta por diez enfermeras. Se utilizó como escenario, la Unidad de Cuidados Intensivos de un hospital público en la ciudad de Salvador. La recopilación de datos ocurrieron entre los meses de agosto y septiembre de 2008, registrada a partir de entrevistas semi-estructuradas con el guión. El análisis de contenido propuesta por Bardin fue la referencia utilizada para el análisis de los datos, que definen las categorías de análisis. Resultados: surgieron dos categorías: los sentimientos relacionados con el paciente y los sentimientos relacionados con la familia. Conclusión: la muerte es considerada por las enfermeras para hacer frente a ella dentro de la Unidad de Tratamiento Intensivo, como una experiencia de emociones en conflicto, a veces doloroso. Descriptores: muerte; emociones; cuidados de enfermería; unidad de cuidados intensivos.


2010 ◽  
Vol 4 (4) ◽  
pp. 1587
Author(s):  
Natália Celião Leite ◽  
Josilene De Melo Buriti Vasconcelos ◽  
Wilma Dias de Fontes

ABSTRACTObjectives: to report the experience of the nursing team and family members of ICU patients as regards communication; to learn the meaning they attribute to the communication process. Methodology: a quantitative and qualitative exploratory study carried out at the Intensive Care Unit of the school hospital. Consisting of 15 family members and 15 nursing professionals who happened to be available there during the data collection, the sample resulted from semi-structured interview guidance. The data were analyzed by means of descriptive statistics, taking into account the absolute and percentage numbers, and the technique of the Collective Subject Discourse, with presentation throughout graph, table and charts. Results: the data showed gaps in the communication, which are inherent to some professionals who neither practice nor value the communication process with the family, mainly as regards the need to prepare them for the ICU environment and the real conditions of their family members. Conclusion: the need to adopt an efficient system of communication with relatives of ICU patients is widely known. Thus, the nurse will be adopting new ways of caring, which include valuing the family members as integrating part of the nursing care, with view to humanizing the assistance. Descriptors: communication; humanization of the assistance; intensive care unit. RESUMOObjetivos: relatar a experiência da equipe de enfermagem e de familiares de pacientes internados em uma UTI, na perspectiva da comunicação; apreender o significado por eles atribuído ao processo de comunicação. Métodologia: estudo exploratório, quantiqualitativo, realizado na Unidade de Terapia Intensiva de hospital escola. A amostra foi formada por 15 familiares e 15 profissionais de enfermagem que se encontravam no local, por ocasião da coleta de dados, a qual ocorreu por meio de um roteiro de entrevista semi-estruturado. Os dados foram analisados por meio da estatística descritiva, levando-se em conta os números absolutos e percentuais, e da técnica do Discurso do Sujeito Coletivo, com apresentação em gráfico, tabela e quadros. Resultados: os dados mostram lacunas na comunicação, as quais são inerentes a alguns profissionais que não praticam e não valorizam o processo de comunicação com a família, principalmente no que diz respeito à necessidade de prepará-los para compreender o ambiente da UTI e as reais condições de seus familiares. Conclusão: é notória a necessidade de se adotar um sistema eficaz de comunicação com os familiares de pacientes internados na UTI. Assim, o enfermeiro estará adotando novas formas de cuidar, que incluem a valorização dos familiares como parte integrante do cuidado de enfermagem na perspectiva da humanização da assistência. Descritores: comunicação; humanização da assistência; unidade de terapia intensiva.RESUMENObjetivos: relatar la experiencia del equipo de enfermería y parientes de pacientes de UTI, en cuanto a la comunicación; aprender el significado que ellos atribuyen al proceso de comunicación. Metodología: estudio exploratorio, cuantitativo y cualitativo, realizado en la Unidad de Terapia Intensiva del hospital escuela. Formada por 15 parientes y 15 profesionales de enfermería que se encontraban disponibles en el sitio durante el recogimiento de los datos, la muestra resultó de la rutina de una entrevista semi-estructurada. Los datos fueron analizados a través de la estadística descriptiva, llevándose en cuenta los números absolutos y porcentajes, la técnica del Discurso del Sujeto Colectivo, con presentación en gráfico, tabla y cuadros. Resultado: los datos enseñan brechas en la comunicación, las cuales son propias de algunos profesionales que no practican y no valoran el proceso de comunicación con la familia, principalmente en cuanto a la necesidad de les preparar a entender el ambiente de la UTI y las reales condiciones de sus parientes. Conclusión: es notoria la necesidad de adoptarse un sistema de comunicación eficiente con los parientes de pacientes de UTI. Así, el enfermero estará adoptando nuevas maneras de cuidar, las cuales incluyen la valoración de los parientes como parte del cuidado de enfermero, con vista a la humanización de la asistencia. Descriptores: comunicación; humanización de la asistencia; unidad de terapia intensiva. 


2018 ◽  
Vol 22 (2) ◽  
Author(s):  
Letícia Neves ◽  
Andressa Alencar Gondim ◽  
Sara Costa Martins Rodrigues Soares ◽  
Denis Pontes Coelho ◽  
Joana Angélica Marques Pinheiro

Abstract Objective: To understand the impact of the hospitalization process on the family companion of critical patients admitted to a Semi-Intensive Care Unit (SICU). Method: Exploratory research with a qualitative approach, conducted in the months of April to July of 2016 through a semi-structured interview applied to relatives who were accompanying patients hospitalized in an SICU of a high complexity care hospital in Fortaleza. The interviews were submitted to content analysis. Results: Three themes emerged through the perception of the family members, which reveal the companion's functioning during the hospitalization period: emotional, familiar and behavioural. Conclusion: The companion experiences an intense process of suffering and emotional fragility, causing changes in the family organization. The companion, being a caregiver, is subjected to high levels of stress, having to use coping skills, with; spirituality and social media among the most evident. The companion is an integral care unit for the hospitalized patient and a key piece in the humanization process of health.


2021 ◽  
Author(s):  
Yaser Saeid ◽  
Seyed Tayeb Moradian ◽  
Abbas Ebadi ◽  
Mohammad Mahadi Salaree

2021 ◽  
Vol 23 (4) ◽  
pp. 339-344
Author(s):  
Bruna Zemella Collaço ◽  
Myriam Aparecida Mandetta ◽  
Maria Magda Ferreira Gomes Balieiro

Abstract Having a newborn hospitalized in the Neonatal Intensive Care Unit can be an extremely stressful and desperate situation for families who end up needing assistance and support to stay by their child's side. To evaluate the perception of family-centered care from the perspective of the healthcare team and parents of newborns hospitalized in the neonatal intensive care unit of a private health service. Descriptive survey, carried out in private a neonatal intensive care unit of a large hospital. Two instruments were applied to measure the professional of healthcare team and parent’s perceptions of family-centered care. The study involved 102 parents and 102 professionals of the healthcare team. The barriers identified for the implementation of patient and family-centered care were related to the items family inclusion and participation in the care of newborns; presence of parents during procedures; recognition by professionals of the support sources for the family, identification of resources in the unit by parents and perception of the multiprofessional care team turnover regarding the care to the newborn by the newborn’s parents. It is necessary to invest in continuing education programs to make the healthcare team aware for the Patient and Family-centered Care and written protocols to implement this model of care on practice. Keywords: Infant, Newborn. Family. Intensive Care Units, Neonatal. Nursing. Resumo Ter um recém-nascido internado na Unidade de Terapia Intensiva Neonatal pode ser uma situação extremamente estressante e desesperadora para as famílias que acabem necessitando de apoio e suporte para permanecer ao lado do filho. Avaliar a percepção do Cuidado Centrado na Família na perspectiva da equipe de saúde e dos pais de recém-nascidos hospitalizados na unidade de terapia intensiva neonatal de um serviço de saúde privado. Pesquisa do tipo survey descritivo, realizada em uma unidade de terapia intensiva neonatal de um hospital de grande porte, de direito privado. Utilizaram-se dois instrumentos de medida da percepção de profissionais da equipe de saúde e de pais sobre o cuidado centrado na família. Participaram do estudo 102 pais e 102 profissionais da equipe de saúde. As barreiras identificadas para a implementação do cuidado centrado no paciente e família foram relacionadas aos itens inclusão e participação da família nos cuidados; permanência dos pais durante os procedimentos; reconhecimento pelos profissionais das fontes de suporte da família, identificação das fontes de ajuda na unidade pelos pais e percepção da rotatividade da equipe multiprofissional no cuidado ao recém-nascido pelos pais. Há necessidade de programas de educação permanente para sensibilizar os profissionais para o Cuidado Centrado no Paciente e Família e a elaboração de protocolos para sua implementação na prática. Palavras-chave: Recém-Nascido. Família. Unidades de Terapia Intensiva Neonatal. Enfermagem.


2019 ◽  
Vol 4 (6) ◽  
pp. 1507-1515
Author(s):  
Lauren L. Madhoun ◽  
Robert Dempster

Purpose Feeding challenges are common for infants in the neonatal intensive care unit (NICU). While sufficient oral feeding is typically a goal during NICU admission, this can be a long and complicated process for both the infant and the family. Many of the stressors related to feeding persist long after hospital discharge, which results in the parents taking the primary role of navigating the infant's course to ensure continued feeding success. This is in addition to dealing with the psychological impact of having a child requiring increased medical attention and the need to continue to fulfill the demands at home. In this clinical focus article, we examine 3 main areas that impact psychosocial stress among parents with infants in the NICU and following discharge: parenting, feeding, and supports. Implications for speech-language pathologists working with these infants and their families are discussed. A case example is also included to describe the treatment course of an infant and her parents in the NICU and after graduation to demonstrate these points further. Conclusion Speech-language pathologists working with infants in the NICU and following hospital discharge must realize the family context and psychosocial considerations that impact feeding progression. Understanding these factors may improve parental engagement to more effectively tailor treatment approaches to meet the needs of the child and family.


2020 ◽  
Vol 35 (5) ◽  
pp. 336-343
Author(s):  
Katherine Guttmann ◽  
John Flibotte ◽  
Sara B. DeMauro ◽  
Holli Seitz

This study aimed to evaluate how parents of former neonatal intensive care unit patients with cerebral palsy perceive prognostic discussions following neuroimaging. Parent members of a cerebral palsy support network described memories of prognostic discussions after neuroimaging in the neonatal intensive care unit. We analyzed responses using Linguistic Inquiry and Word Count, manual content analysis, and thematic analysis. In 2015, a total of 463 parents met eligibility criteria and 266 provided free-text responses. Linguistic Inquiry and Word Count analysis showed that responses following neuroimaging contained negative emotion. The most common components identified through the content analysis included outcome, uncertainty, hope/hopelessness, and weakness in communication. Thematic analysis revealed 3 themes: (1) Information, (2) Communication, and (3) Impact. Parents of children with cerebral palsy report weakness in communication relating to prognosis, which persists in parents’ memories. Prospective work to develop interventions to improve communication between parents and providers in the neonatal intensive care unit is necessary.


2016 ◽  
Vol 3 (4) ◽  
pp. 108-118 ◽  
Author(s):  
Kelly N Michelson ◽  
Joel Frader ◽  
Lauren Sorce ◽  
Marla L Clayman ◽  
Stephen D Persell ◽  
...  

Stakeholder-developed interventions are needed to support pediatric intensive care unit (PICU) communication and decision-making. Few publications delineate methods and outcomes of stakeholder engagement in research. We describe the process and impact of stakeholder engagement on developing a PICU communication and decision-making support intervention. We also describe the resultant intervention. Stakeholders included parents of PICU patients, healthcare team members (HTMs), and research experts. Through a year-long iterative process, we involved 96 stakeholders in 25 meetings and 26 focus groups or interviews. Stakeholders adapted an adult navigator model by identifying core intervention elements and then determining how to operationalize those core elements in pediatrics. The stakeholder input led to PICU-specific refinements, such as supporting transitions after PICU discharge and including ancillary tools. The resultant intervention includes navigator involvement with parents and HTMs and navigator-guided use of ancillary tools. Subsequent research will test the feasibility and efficacy of our intervention.


1994 ◽  
Vol 5 (3) ◽  
pp. 289-295 ◽  
Author(s):  
Nancy E. Page ◽  
Nancy M. Boeing

Much controversy has arisen in the last few decades regarding parental and family visitation in the intensive care setting. The greatest needs of parents while their child is in an intensive care unit include: to be near their child, to receive honest information, and to believe their child is receiving the best care possible. The barriers that exist to the implementation of open visitation mostly are staff attitudes and misconceptions of parental needs. Open visitation has been found in some studies to make the health-care providers’ job easier, decrease parental anxiety, and increase a child’s cooperativeness with procedures. To provide family-centered care in the pediatric intensive care unit, the family must be involved in their child’s care from the day of admission. As health-care providers, the goal is to empower the family to be able to advocate and care for their child throughout and beyond the life crisis of a pediatric intensive care unit admission


2014 ◽  
Vol 32 (1) ◽  
pp. 11-16 ◽  
Author(s):  
Ethel Cukierkorn Battikha ◽  
Maria Teresa de M. Carvalho ◽  
Benjamin Israel Kopelman

Objective: To analyze and to interpret the psychological repercussions generated by the presence of parents in the Neonatal Intensive Care Unit for residents in Neonatology. Methods: Study based on the psychoanalytic theory, involving a methodological interface with qualitative surveys in Health Sciences. Twenty resident physicians in Neonatology, from five public institutions of São Paulo state, responded to a single semi-structured interview. Based on several readings of the material, achieving the core of emergent meanings that would be significant to the object of the survey, six categories were elected for analysis and interpretation: parents' staying at the Neonatal Intensive Care Unit and its effects on the neonatologists' professional practice; communication of the diagnosis and what parents should know; impasses between parents and doctors when the diagnosis is being communicated; doctor's identification with parents; communication of the child's death and their participation in the interview. Results: The interpretation of the categories provided an understanding of the psychic mechanisms mobilized in doctors in their relationships with the children's parents, showing that the residents experience anguish and suffering when they provide medical care and during their training process, and also that they lack psychological support to handle these feelings. Conclusions: There is a need of intervention in neonatologists training and education, which may favor the elaboration of daily experiences in the Unit, providing a less anguishing and defensive way out for young doctors, especially in their relationship with patients and parents.


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