scholarly journals Experience of Uncertainty in Patients with Thalassemia Major: A Qualitative Study

2020 ◽  
Author(s):  
Mehrnaz Ahmadi ◽  
Mahin Gheibizadeh ◽  
Maryam Rassouli ◽  
Abbas Ebadi ◽  
Marziyeh Asadizaker ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Health Care Providers ◽  
Healthcare Providers ◽  
Thalassemia Major ◽  
Stressful Situation ◽  
Care Providers ◽  
Structured Interviews ◽  
Factors Affecting ◽  
Face To Face ◽  
And Coping

Background: Uncertainty leads to a stressful situation in patients with thalassemia major that can dramatically affect their psychosocial coping ability, treatment process and disease outcomes, and reduce patients' quality of life. As one of the important factors affecting the health of thalassemia patients, understanding the concept of uncertainty is of major importance to health care providers especially nurses as the first line of exposure to these patients. The present study aimed to explore the experiences of uncertainty in patients with thalassemia major. Materials and Methods: The present qualitative study was conducted through in-depth face-to-face semi-structured interviews held with 18 patients with major thalassemia selected through purposive sampling. Interviews continued until saturation of data. All interviews were recorded, transcribed and analyzed with conventional content analysis method of Landman and Graneheim using MAXQDA10 software. Results: Two main themes, including 'living in the shadow of anxiety' and 'coping with uncertainty' emerged from patients’ experiences of illness uncertainty of thalassemia. 'Living in the shadow of anxiety' included four categories of 'fear of complications', 'contradictory views on treatment', 'unknown future' and 'stigma'. 'Coping with uncertainty' included three categories of 'spiritual coping', 'psychosocial coping' and 'knowledge acquisition'. Conclusion: According to the results of this study, uncertainty is a major psychological stress in patients with thalassemia major. Healthcare providers should therefore consider the challenges and concerns faced by patients and, through utilizing appropriate training and communicational practices, plan interventions and strategies to empower patients for coping with uncertainty.

scholarly journals Strategies to reach marginalized women for cervical cancer screening: A qualitative study of stakeholder perspectives

2018 ◽  
Vol 25 (1) ◽  
pp. 8 ◽  
Author(s):  
B. Wood ◽  
A. Lofters ◽  
M. Vahabi
Keyword(s):  
Cervical Cancer ◽  
Cancer Screening ◽  
Qualitative Study ◽  
Cervical Cancer Screening ◽  
Health Care Providers ◽  
Cervical Screening ◽  
Primary Care Providers ◽  
Care Providers ◽  
Structured Interviews ◽  
Primary Screening

Background Self-sampling for human papillomavirus (hpv) has the potential to reach marginalized populations that are underserved for cervical cancer screening. However, before implementing an alternative screening strategy such as self-sampling for under- and never-screened women, the key processes, facilitators, and barriers to reform need to be understood.Methods A descriptive qualitative study was conducted that involved semi-structured interviews with Canadian and international cancer screening health care providers and policy-makers. Respondents were purposively selected from a list of thirty stakeholders generated through an environmental scan. The interviews were transcribed verbatim and analyzed using directed content analysis.Results Nineteen stakeholders participated in the interviews. Most respondents thought that self-sampling was an appropriate cervical screening alternative for hard-to-reach populations, as it addressed barriers to cervical screening related to various social determinants of health. All respondents emphasized that transitioning to hpv primary screening would catalyze a policy shift towards self-sampling. Clinician respondents were less enthusiastic about self-sampling strategies since that discouraged women’s appointments with primary care providers, because cervical screening offered an opportunity to discuss other preventive health topics. There also was little consensus between respondents on whether the state of evidence was satisfactory to integrate a self-sampling option into policy, or whether more Canadian research was needed.Conclusion Canadian cervical cancer screening stakeholders should collaborate to identify the knowledge gaps that researchers should address and leverage the existing literature to implement tailored, patient-centred alternative cervical screening strategies. The transition to hpv primary screening would be a key first step in the broad implementation of hpv self-sampling in Canada.

scholarly journals Psychological distress among Iranian health-care providers exposed to coronavirus disease 2019 (COVID-19): a qualitative study

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Azizeh Alizadeh ◽  
Hamid Reza Khankeh ◽  
Mohammad Barati ◽  
Yazdan Ahmadi ◽  
Arash Hadian ◽  
...  
Keyword(s):  
Health Care ◽  
Content Analysis ◽  
Psychological Distress ◽  
Qualitative Study ◽  
Health Care Providers ◽  
Care Providers ◽  
Structured Interviews ◽  
Personal Support ◽  
Corona Virus ◽  
Organizational Demands

Abstract Background Novel corona virus, named COVID-19, has spread rapidly to other countries like Italy, Iran and South Korea and affected all people, especially health-care providers. Therefore, due to the rapid spread of the disease in Iran, the aim of the present study was to explore psychological distress experienced by Iranian health-care providers in the first few weeks of the corona virus outbreak. Methods The present qualitative study was conducted on 18 Iranian health-care providers exposed to COVID − 19 using a content analysis method. Purposeful sampling was used to select the participants and continued until data saturation was reached. Data were collected using semi-structured interviews and then the qualitative data were analyzed through direct content analysis. Results By analyzing 236 primary codes, two main categories were extracted from the experiences of health-care providers during corona virus outbreak. The first category included Occupational demands with three sub-categories: nature of illness, Organizational demands and social demands. The second category was Supportive resources included personal support and social support. Conclusions The results of this study found that there were some barriers and challenges to medical personnel exposed to COVID-19 that caused psychological distress. Some of these problems related to the nature of illness, others related to social and organizational demands and some of supportive resources buffer the relationship between occupational demands and psychological distress.

scholarly journals Challenging drug-resistant TB treatment journey for children, adolescents and their care-givers: A qualitative study

PLoS ONE ◽  
2021 ◽  
Vol 16 (3) ◽  
pp. e0248408
Author(s):  
Mrinalini Das ◽  
Taanya Mathur ◽  
Shilpa Ravi ◽  
Augusto C. Meneguim ◽  
Aparna Iyer ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Children And Adolescents ◽  
Health Care Providers ◽  
Treatment Success ◽  
Healthcare Providers ◽  
Drug Resistant ◽  
Care Providers ◽  
Tb Treatment ◽  
Adolescent Patients ◽  
Mdr Tb

Background Childhood multidrug-resistant TB (MDR-TB) still affects around 25000 children every year across the globe. Though the treatment success rates for drug-resistant TB (DR-TB) in children are better than adults, children and adolescents face unique hurdles during DR-TB (MDR-TB, Pre-XDR TB and XDR-TB) treatment. This study aimed to understand the patients, guardians and healthcare providers’ perspectives about DR-TB treatment journey of patients and caregivers. Methods This is a qualitative study involving in depth-interviews of purposively selected adolescents (n = 6), patients guardians (for children and adolescents, n = 5) and health care providers (n = 8) of Médecins Sans Frontières (MSF) clinic, Mumbai, India. In-depth face to face interviews were conducted in English or Hindi language using interview guides during September-November 2019. The interviews were audio-recorded after consent. Thematic network analysis was used to summarize textual data. ATLAS.ti (version 7) was used for analysis. Result The age of adolescent patients ranged from 15–19 years and four were female. Five guardians (of three child and two adolescent patients) and eight healthcare providers (including clinicians- 2, DOT providers-2, counselors-2 and programme managers-2) were interviewed. The overarching theme of the analysis was: Challenging DR-TB treatment journey which consisted of four sub-themes: 1) physical-trauma, 2) emotional-trauma, 3) unavailable social-support and 4) non-adapted healthcare services. Difficulties in compounding of drugs were noted for children while adolescents shared experiences around disruption in social life due to disease and treatment. Most of the patients and caregivers experienced treatment fatigue and burnout during the DR-TB treatment. Participants during interviews gave recommendations to improve care. Discussion The TB programmes must consider the patient and family as one unit when designing the package of care for paediatric DR-TB. Child and adolescent friendly services (paediatric-formulations, age-specific counselling tools and regular interaction with patients and caregivers) will help minimizing burnout in patients and caregivers.

scholarly journals Psychological Distress among Iranian Health-Care Providers Exposed to Coronavirus Disease 2019 (COVID-19): A Qualitative Study

2020 ◽  
Author(s):  
Azizeh Alizadeh ◽  
Hamid Reza Khankeh ◽  
Mohammad Barati ◽  
Yazdan Ahmadi ◽  
Arash Hadian ◽  
...  
Keyword(s):  
Health Care ◽  
Content Analysis ◽  
Psychological Distress ◽  
Qualitative Study ◽  
Health Care Providers ◽  
Care Providers ◽  
Structured Interviews ◽  
Corona Virus ◽  
Data Saturation ◽  
Health Demands

Abstract Background Novel corona virus pneumonia, named COVID-19, has spread rapidly to other countries like Italy, Iran and South Korea and affected all people, especially health-care providers. Therefore, due to the rapid spread of the disease in Iran, the aim of the present study was to explore psychological distress experienced by Iranian health-care providers in the first few weeks of the corona virus outbreak. Methods The present qualitative study was conducted on 18 Iranian health-care providers exposed to COVID − 19 using a content analysis method. Purposeful sampling was used to select the participants and continued until data saturation was reached. Data were collected using semi-structured interviews and then the qualitative data were analyzed through direct content analysis. Results By analyzing 236 primary codes, three main categories, including demands, job resources and individual resources were extracted from the experiences of health-care providers during corona virus outbreak. These categories each included several sub-categories, which were classified according to their significant characteristics. Conclusions .Psychological protection of health care workers is an important component in addressing the COVID-19 epidemic. Understanding the health care providers’ experiences and their mental health demands during public health emergency might help medical workers and managers to response better to a disaster.

scholarly journals Challenges of Obtaining Informed Consent in Emergency Ward: A Qualitative Study in One Iranian Hospital

2017 ◽  
Vol 11 (1) ◽  
pp. 263-276 ◽  
Author(s):  
Nayyereh Davoudi ◽  
Nahid Dehghan Nayeri ◽  
Mohammad Saeed Zokaei ◽  
Nematallah Fazeli
Keyword(s):  
Informed Consent ◽  
Qualitative Study ◽  
Health Care Providers ◽  
Participant Observation ◽  
Research Field ◽  
Public Hospitals ◽  
Consent Process ◽  
Care Providers ◽  
Structured Interviews ◽  
Emergency Ward

Background and Objective:Regarding the fact that emergency ward has unique characteristics, whose uniqueness affects informed consent processes by creating specific challenges. Hence, it seems necessary to identify the process and challenges of informed consent in the emergency ward through a qualitative study to understand actual patients’ and health care providers’ experiences, beliefs, values, and feelings about the informed consent in the emergency ward. Through such studies, new insight can be gained on the process of informed consent and its challenges with the hope that the resulting knowledge will enable the promotion of ethical, legal as well as effective health services to the patients in the emergency ward.Method:In this qualitative study, research field was one of the emergency wards of educational and public hospitals in Iran. Field work and participant observation were carried out for 515 hours from June 2014 to March 2016. Also, conversations and semi-structured interviews based on the observations were conducted. The participants of the study were nurses and physicians working in the emergency ward, as well as patients and their attendants who were involved in the process of obtaining informed consent.Results:Three main categories were extracted from the data: a sense of frustration; reverse protection; and culture of paternalism in consent process.Conclusion:Findings of this study can be utilized in correcting the structures and processes of obtaining informed consent together with promotion of patients' ethical and legal care in emergency ward. In this way, the approaches in consent process will be changed from paternalistic approach to patient-centered care which concomitantly protects patient’s autonomy.

scholarly journals Health care workers’ perceptions of episiotomy in the era of respectful maternity care: a qualitative study of an obstetric training program in Mexico

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Rodrigo Garcia-Cerde ◽  
Pilar Torres-Pereda ◽  
Marisela Olvera-Garcia ◽  
Jennifer Hulme
Keyword(s):  
Health Care ◽  
Qualitative Study ◽  
Training Program ◽  
Health Care Providers ◽  
Preventive Measure ◽  
Respectful Maternity Care ◽  
Care Providers ◽  
Structured Interviews ◽  
Post Intervention ◽  
General Physician

Abstract Background Episiotomy in Mexico is highly prevalent and often routine - performed in up to 95% of births to primiparous women. The WHO suggests that episiotomy be used in selective cases, with an expected prevalence of 15%. Training programs to date have been unsuccessful in changing this practice. This research aims to understand how and why this practice persists despite shifts in knowledge and attitudes facilitated by the implementation of an obstetric training program. Methods This is a descriptive and interpretative qualitative study. We conducted 53 pre and post-intervention (PRONTO© Program) semi-structured interviews with general physician, gynecologists and nurses (N = 32, 56% women). Thematic analysis was carried out using Atlas-ti© software to iteratively organize codes. Through interpretive triangulation, the team found theoretical saturation and explanatory depth on key analytical categories. Results Themes fell into five major themes surrounding their perceptions of episiotomy: as a preventive measure, as a procedure that resolves problems in the moment, as a practice that gives the clinician control, as a risky practice, and the role of social norms in practicing it. Results show contradictory discourses among professionals. Despite the growing support for the selective use of episiotomy, it remains positively perceived as an effective prophylaxis for the complications of childbirth while maintaining control in the hands of health care providers. Conclusions Perceptions of episiotomy shed light on how and why routine episiotomy persists, and provides insight into the multi-faceted approaches that will be required to affect this harmful obstetrical practice.

scholarly journals Perspective of Healthcare Providers using Reproductive Smart Mobile Application in Jakarta: A Qualitative Study

2020 ◽  
Author(s):  
Budi Wiweko ◽  
Aida Riyanti ◽  
Shanty Olivia ◽  
Muhammad Priangga ◽  
Vita Silvana ◽  
...  
Keyword(s):  
Health Care ◽  
Qualitative Study ◽  
Health Care Providers ◽  
Group Discussion ◽  
Healthcare Providers ◽  
Maternal Health Service ◽  
Care Providers ◽  
Cross Sectional ◽  
District Hospitals ◽  
Smart Mobile

Abstract Objective : Our study aimed to evaluate the perspectives of health care providers of JAKPROS ( Jakarta Reproduksi Sehat ) application that is used to improve the maternal health service. This descriptive qualitative study engaged 16 healthcare providers from two sub-district hospitals. The participants were selected using purposive sampling and cross-sectional design. Participant were asked to fill the written informed consent.Data were collected by in-depth discussion of a list of selected questions in a focus group discussion. Results: Most health care providers used paper-based systems in their hospitals.They said that it was very helpful in helping them communicate with their patients and provide information. The application has many benefits that help doctors provide the best service for patients during pregnancy.The use and adoption of app is needed to make a further improvements in the healthcare system. This study will help improve the application for more widespread use in a greater number of hospitals. JAKPROS made healthcare provider easier to communicate and track patient’s health. This app also assist patients related to the doctor’s schedule, health information, and nearest hospital.

scholarly journals Study on Technical, Behavioral and Organizational Factors Affecting the Performance of Mother and Child Tracking System in Rural Area of Varanasi District, Uttar Pradesh: A Qualitative Study

2020 ◽  
Vol 32 (2) ◽  
pp. 423-426
Author(s):  
Pooja Verma ◽  
Sangeeta Kansal ◽  
Madhutandra Sarkar ◽  
Nishu Kesh ◽  
Alok Kumar
Keyword(s):  
Qualitative Study ◽  
Health Care Providers ◽  
Tracking System ◽  
Uttar Pradesh ◽  
Poor Performance ◽  
Organizational Factors ◽  
Care Providers ◽  
Effective Measure ◽  
Factors Affecting ◽  
Mother And Child

Background: The Mother and Child Tracking System (MCTS) portal captures and tracks all pregnant women right from conception up to 42 days after delivery and all children below five years. Objectives: This study was conducted to find out the technical, behavioral and organizational factors that affect the process and performance of MCTS. Material and Methods: This was an exploratory qualitative study conducted in Varanasi district by using multistage random sampling method. Data were collected by in-depth interviews of 48 health care providers. Results: Majority of the ANMs and ASHAs were not aware of the meaning of “Tracking System” and the use of MCTS ID. Inappropriate training of ASHAs, absence of supervision and monitoring by ANMs, overburdened DEOs and ANMs, poor internet connection, slow server speed, software problem and frequent power failures were identified as major factors for poor performance of MCTS. Conclusion: The most effective measure to improve the performance of MCTS would be to properly train grass root level workers so that more efficient data can be fed into MCTS.

scholarly journals The Women’S Perceptions About Unwanted Pregnancy: A Qualitative Study in Iran

2015 ◽  
Vol 8 (5) ◽  
pp. 189 ◽  
Author(s):  
Marzieh Akbarzadeh ◽  
Zahra Yazdanpanahi ◽  
Ladan Zarshenas ◽  
Farkhondeh Sharif
Keyword(s):  
Qualitative Study ◽  
Health Care Providers ◽  
Emotional Support ◽  
Unwanted Pregnancy ◽  
Care Providers ◽  
Structured Interviews ◽  
Illegal Abortion ◽  
Purposeful Sampling ◽  
Women’S Perceptions ◽  
Unwanted Pregnancies

<p><strong>BACKGROUND:</strong> Unwanted pregnancy has affected different aspects of our life. Researchers point out if a child’s birth is unwanted, an increase in maternal issues can be observed. The aim of this study was to describe the women’s viewpoints regarding unwanted pregnancy.  <strong> </strong></p> <p><strong>METHOD: </strong>This qualitative study using content analysis was employed in Shiraz University in 2013-2014. 20 women with unwanted pregnancy were chosen using purposeful sampling. Data were gathered through semi-structured interviews and trustworthiness of them was evaluated.</p> <p><strong>RESULTS:</strong> Findings of this study, according to the participants’ experience, revealed maternal emotions like embarrassment for getting pregnant, mother’s own negative affection, concerns about missing family and other children, and terminating the pregnancy through illegal abortion, the husband’s disagreement about the termination, blaming themselves for thinking about abortion or illegal abortion, and concern about their guilt feeling. Another finding was family problems like husband’s behavior and his negative outlook towards his child and fetus. The next category belonged to anxiety about the future of their child, including economic, social and relational problems, and suppression of the children’s logical expectations. The last finding was the lack of maternal emotional support.</p> <p><strong>CONCLUSIONS: </strong>Unwanted pregnancy’s effects on the mothers and infants’ health are considerable. A closer observation by family and health care providers for unwanted pregnancies and its results is recommended; therefore, they should be taken care of as high risk pregnancies, requiring family support.</p><p> </p><p> </p>

scholarly journals Women’s perspective of facility-based childbirth services in Ghana: A qualitative study

2018 ◽  
Vol 10 (1) ◽  
Author(s):  
Gertrude S. Avortri ◽  
Lebitsi M. Modiba
Keyword(s):  
Health Care ◽  
Qualitative Study ◽  
Health Care Providers ◽  
Health Workers ◽  
Care Providers ◽  
Structured Interviews ◽  
Open Communication ◽  
Services Delivery ◽  
District Hospitals ◽  
High Workload

Background: Many policy makers at country level in both medium and low to middle-income countries still have great difficulty deciding which quality intervention would have the greatest impact on the health outcomes delivered by their health systems. Aim: To investigate women’s perceptions about the factors that hinders or facilitates the provision of quality childbirth services in Ghana’s health care services to guide improvement efforts. Setting: The study was conducted in the greater Accra region of Ghana in two primary level hospitals (district hospitals). Methods: A qualitative study design, which is exploratory, descriptive and contextual in nature, was used. Semi-structured interviews were used to examine the perspectives of 15 women on the factors that influence the quality of childbirth services and how services could be improved in Ghana. Data were analysed through data reduction, data display and generation of themes. Results: The findings in this study revealed two major themes, firstly, barriers to quality childbirth with five subthemes: high workload, shortage of health workers, non-availability of some services, as well as poor coordination, unacceptable staff behaviour and lack of cooperation from some clients, were identified by the participants as the major causes of poor quality. Secondly, ways to improve care reported, were encouraging health workers to be patient with clients, promoting open communication, friendliness and attentiveness. The need to reorganise service provision to make it more client centred, was also highlighted. Conclusion: The study findings highlight the importance of paying attention to factors such as service organisation and coordination, high workload, inadequate number of staff, as well as limitations in infrastructure and logistics for quality services delivery. Equally important are institutionalisation of systems to continuously assess and improve staff competence and attitudes and the creation of an environment that can foster good interpersonal relationship between health care providers and patients.

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