scholarly journals Examination of views and suggestions about participation of families of children with special needs in individualised education programme

2018 ◽  
Vol 13 (1) ◽  
pp. 31-40
Author(s):  
Adile Emel Sardohan Yildirim ◽  
Gönül Akçamete

Individualised education programmes (IEP) will be practiced with children with special needs (CWSN) and their families. The main factor for IEP’s success is the participation of the family and also, their children. In this study, views and suggestions about participation of families of CWSN in their IEP processes are examined. The research is based on qualitative research. Five mothers and a grandmother with CWSN were participated; data are collected via semi-structured interview technique and analysed with inductive analysis technique. This research uncovers that the participants didn’t participate in their children’s diagnosis, assessment, settlement and follow-up processes, and they were not content with the assessment results. Also, the participants who didn’t participate in the IEP weren’t even aware of the legal obligation that they had to and their children’s IEP, they weren’t in cooperation with the teacher in that process, and teachers didn’t show the progress in the children to the families even if they recorded that.   Keywords: Children with special needs (CWSN), family, individualised education programmes (IEP).  

2018 ◽  
Vol 13 (1) ◽  
pp. 31-40
Author(s):  
Adile Emel Sardohan Yildirim ◽  
Gonul Akcamete

Individualised education programmes (IEP) will be practiced with children with special needs (CWSN) and their families. The main factor for IEP’s success is the participation of the family and also, their children. In this study, views and suggestions about participation of families of CWSN in their IEP processes are examined. The research is based on qualitative research. Five mothers and a grandmother with CWSN were participated; data are collected via semi-structured interview technique and analysed with inductive analysis technique. This research uncovers that the participants didn’t participate in their children’s diagnosis, assessment, settlement and follow-up processes, and they were not content with the assessment results. Also, the participants who didn’t participate in the IEP weren’t even aware of the legal obligation that they had to and their children’s IEP, they weren’t in cooperation with the teacher in that process, and teachers didn’t show the progress in the children to the families even if they recorded that. Keywords: Children with special needs (CWSN), family, individualised education programmes (IEP).


2021 ◽  
Vol 5 (2) ◽  
pp. 383-402
Author(s):  
Mehmet Yavuz ◽  
Burak Bozak ◽  
Evgin Cay ◽  
Müzeyyen Eldeniz Çetin

This study aims to determine the problems experienced by parents of children with special needs during the COVID-19 pandemic. The phenomenological patterns technique, which is a qualitative research method, was used in the study. Ten parents with children with special needs who were affected by different types of disabilities were included in the study. The data in the research were collected using interview forms consisting of open-ended questions and a semi-structured interview technique. After the data obtained from the interviews were decoded, they were analyzed with the descriptive analysis technique. At the end of the study, the findings of the problems experienced by parents of children with special needs during the epidemic, the problems they experienced with their children, and the problems and expectations related to the education of their children were discussed in detail within the framework of the literature.


2019 ◽  
Vol 12 (1) ◽  
pp. 55
Author(s):  
Melda Rumia Rosmery Simorangkir

ABSTRACT A happiness when a woman in a family gives birth. Moreover, the baby who wasborn has been waiting long enough. However, sometimes what is expected byhumans is not always the same as what was presented by the creator. Thenwhat if it turns out that children who are present in the family are specialchildren? These children need special attention due to physical and mentaldisorders. Not a few parents must have children with special needs (ABK)confused, shocked or even blame each other. This is certainly not something thatis expected from children. ABK requires education, attention, assistance, speciallearning methods. Thus ABK parents must get special assistance so that theycan accept their child and educate the child with great attention and love. ABKparents must be assisted from early childhood, so that education and care aremore optimal. Counseling for ABK parents is done so parents do not feel alone,not ashamed, willing to accept and have a great readiness to accompany theirchildren in the future. The counselor is expected to be able to help ABK's parentsby providing counseling services specifically to guide parents. The guidance alsoserves to help parents provide alternative education and therapy that can begiven to children with special needs from an early age. Keywords: children with special needs, counselling, and guidance ABSTRAK Sebuah kebahagian ketika seorang perempuan dalam sebuah keluargamelahirkan. Apalagi buah hati yang dilahirkan telah ditunggu cukup lama.Namun, terkadang apa yang diharapkan manusia tidak selalu sama dengan apayang dihadirkan oleh pencipta. Lalu bagaimana apabila ternyata anak yang hadirdalam keluarga adalah anak yang special?. Anak tersebut memerlukan perhatiankhusus baik disebabkan kelainan fisik maupun mental. Tidak sedikit Orangtuaharus anak berkebutuhan khusus (ABK) mengalami kebingungan, kaget ataubahkan saling menyalahkan. Hal ini tentu bukan hal yang diharapkan dari anak.ABK memerlukan pendidikan, perhatian, bantuan, metode belajar khusus.Demikian orangtua ABK harus mendapatkan pendampingan khusus agarmereka bisa menerima anak mereka dan mendidik anak tersebut dengan penuhperhatian dan cinta yang besar. Orangtua ABK harus dibantu sejak anak usiadini, agar pendidikan dan pengasuhan lebih optimal. Konseling bagi orangtuaABK dilakukan agar orang tua tidak merasa sendiri, tidak malu, mau menerimadan memiliki kesiapan hati yang besar untuk mendampingi anak mereka dikemudian hari. Konselor di harapkan mampu menolong orang tua ABK denganmemberikan layanan-layan konseling khususnya membimbing orangtua.Bimbingan tersebut juga berfungsi untuk membantu orangtua memberikanalternatif pendidikan dan terapi yang dapat diberikan pada anak berkebutuhankhusus sejak usia dini. Kata kunci: anak berkebutuhan khusus konseling, dan bimbingan


2019 ◽  
Vol 13 ◽  
Author(s):  
Ana Paula Gomes de Medeiros ◽  
Mariana Albernaz Pinheiro de Carvalho ◽  
Jhéssica Rawane Araújo de Medeiros ◽  
Gisele Dias Dantas ◽  
Ana Quitéria Ismael Carvalho do Nascimento ◽  
...  

RESUMOObjetivo: investigar a característica resiliente de familiares que convivem com a realidade de um parente em sofrimento psíquico. Método: trata-se de estudo qualitativo, descritivo, em um Centro de Atenção Psicossocial Infanto-juvenil, com nove familiares cuidadores. Utilizou-se a técnica de entrevista semiestruturada para a produção de dados empíricos, e, para a análise, a técnica de Análise de Conteúdo na modalidade Análise Temática. Resultados: identificou-se que o processo de cuidar se transfigura uma missão por vezes difícil, no entanto, com o passar do tempo, os entrevistados apresentaram uma postura otimista e esperançosa na superação das adversidades e de tentar manter um vínculo familiar positivo baseado no amor, respeito, fé, solidariedade e companheirismo. Conclusão: refletiram-se, pelos familiares, mudanças de atitude e personalidades significantes na evolução de uma melhor convivência e forma de agir com seu parente com sofrimento psíquico, permitindo a identificação de características resilientes. Descritores: Família; Estresse Psicológico; Resiliência Psicológica; Saúde Mental; Cuidadores; Transtorno Mental.ABSTRACT Objective: to investigate the resilient characteristics of relatives who live with the reality of a relative in psychic suffering. Method: a qualitative, descriptive study in a Child and Adolescent Psychosocial Care Center with nine family caregivers. The semi-structured interview technique was used to produce empirical data and, for the analysis, the Content Analysis technique in the Thematic Analysis modality. Results: It was identified that the process of caring is transformed into a sometimes-difficult mission, however, over time, the interviewees presented an optimistic and hopeful position in overcoming adversities and trying to maintain a positive family bond based on love, respect, faith, solidarity and fellowship. Conclusion: the family members showed significant changes in attitude and personalities in the evolution of a better coexistence and way of acting with their relative with psychic suffering, allowing the identification of resilient characteristics. Descriptors: Family; Psychological Stress; Psychological Resilience; Mental Health; Caregivers; Mental Disorders.RESUMEN Objetivo: investigar la característica resiliente de familiares que conviven con la realidad de un pariente en sufrimiento psíquico. Método: se trata de un estudio cualitativo, descriptivo, en un Centro de Atención Psicosocial Infanto-juvenil, con nueve familiares cuidadores. Se utilizó la técnica de entrevista semiestructurada para la producción de datos empíricos, y para el análisis, la técnica de Análisis de Contenido en la modalidad Análisis Temático. Resultados: se identificó que el proceso de cuidar se transfigura una misión a veces difícil, sin embargo, con el paso del tiempo, los entrevistados presentaron una postura optimista y esperanzada en la superación de las adversidades y de intentar mantener un vínculo familiar positivo basado en el amor , respeto, fe, solidaridad y compañerismo. Conclusión: se reflejaron, por los familiares, cambios de actitud y personalidades significantes en la evolución de una mejor convivencia y forma de actuar con su pariente con sufrimiento psíquico, permitiendo la identificación de características resilientes. Descriptores: Familia; Estrés Psicológico; Resiliencia Psicológica; Salud Mental; Cuidadores; Trastorno Mental.


2018 ◽  
Vol 11 (6) ◽  
pp. 174
Author(s):  
Osman OZOKCU ◽  
Taskin YILDIRIM

This study aims to determine and identify the fears of students with special needs in inclusive classrooms. The study was conducted with a total of 69 students (32 female, 37 male) from 36 classrooms across 12 different schools (including six primary schools and six middle schools) in Malatya, Turkey. The data were collected using a semi-structured interview technique and analyzed through descriptive analysis technique. These results revealed that students feared animals, spiritual associations, being negatively evaluated by figures of authority and other students, harm and suffering, death and loss, being subject to violence, and natural events and phenomena.


2020 ◽  
Vol 1 (7) ◽  
pp. 152-158
Author(s):  
N. M. BURYKINA ◽  

This article discusses the role of the family in the social development of children with special needs in an inclusive educational environment, in connection with which the study addresses a new aspect of the interaction between the teacher and the child’s family, the interaction of the teacher (teacher) and parents of children with developmental disabilities is highlighted in a variety of areas, students in secondary schools or attending kindergartens. The purpose of the study is to assess the role of the family in the adaptation of children with developmental disabilities, studying in secondary schools or attending kindergartens. To achieve this goal, the author defines a range of research tasks: to study the historical and philosophical foundations of the role of the family in raising children with special needs; highlight the role of the family in implementing early intervention programs in secondary schools; substantiate the main stages that any school must go through, striving to create a more fruitful relationship between the school, family and community. The author stated the following results as a scientific novelty: general recommendations have been developed so that parents feel confident, competent and can work more productively together with teachers (educators) when children visit kindergarten groups (classes). As a result of the study, the author came to the conclusion that the process of teaching children with special needs in a comprehensive school is most effective in the interaction of the teacher and the family of the child.


2018 ◽  
Vol 12 (3) ◽  
pp. 618
Author(s):  
Aldo Mattos ◽  
Marciana Fernandes Moll ◽  
Mariana Oliveira Souto ◽  
Moisés Augusto De Paiva Neves

RESUMOObjetivo: investigar as práticas assistenciais dos técnicos de Enfermagem às pessoas com transtornos mentais. Método: estudo qualitativo, descritivo, com produção de dados por meio da observação participante dos cuidados prestados por 12 técnicos de Enfermagem. As observações foram registradas em um diário de campo e submetidas à técnica de Análise de Conteúdo, na modalidade Análise Temática. Resultados: destacou-se a medicalização do cuidado e as intervenções não medicamentosas centraram-se na higienização, alimentação e sono. Nesse sentido, esses profissionais transferiram ao familiar/acompanhante parte de suas responsabilidades como a observação do paciente, a oferta das refeições, a condução para o banho, a organização do leito e o acompanhamento para a realização dos exames. A conduta mais empática ocorria na alta hospitalar quando se dialogava e organizava os pertences do paciente e do acompanhante para conduzi-los à portaria. Conclusão: o tema é relevante e os resultados sinalizam a importância da qualificação dos técnicos de Enfermagem para cuidarem de pessoas com transtornos mentais. Faz-se necessário que esses profissionais integrem habilidades relacionais às habilidades técnicas, o que corresponde à principal implicação prática dos resultados desta investigação. Descritores: Enfermagem; Psiquiatria; Hospitalização; Assistência; Hospitais gerais; Medicalização. ABSTRACTObjective: to investigate nursing care practices of people with mental disorders. Method: qualitative, descriptive study, with data production through participant observation of the care provided by 12 Nursing technicians. The observations were recorded in a field diary and submitted to the Content Analysis technique, in the Thematic Analysis modality. Results: the medicalization of care was emphasized and non-medication interventions focused on hygiene, feeding and sleep. In this sense, these professionals transferred to the family member / companion part of their responsibilities such as patient observation, meal offerings, bathing, bed organization and follow-up for the examinations. The most empathic behavior occurred at hospital discharge when the patient and the companion's belongings were discussed and organized to lead them to the door. Conclusion: the theme is relevant and the results indicate the importance of the qualification of Nursing technicians to care for people with mental disorders. It is necessary that these professionals integrate skills related to technical skills, which corresponds to the main practical implication of the results of this research. Descriptors: Nursing; Psychiatry; Hospitalization; Assistance; Hospitals, General; Medicalization.RESUMENObjetivo: investigar las prácticas asistenciales de los técnicos de Enfermería a las personas con trastornos mentales. Método: estudio cualitativo, descriptivo, con producción de datos por medio de la observación participante de los cuidados prestados por 12 técnicos de Enfermería. Las observaciones fueron registradas en un diario de campo y sometidas a la técnica de Análisis de Contenido, en la modalidad Análisis Temático. Resultados: se destacó la medicalización del cuidado y las intervenciones no medicamentosas se centraron en la higienización, alimentación y sueño. En este sentido, estos profesionales transfirieron al familiar / acompañante parte de sus responsabilidades, como la observación del paciente, la oferta de las comidas, la conducción para el baño, la organización del lecho y el acompañamiento para la realización de los exámenes. La conducta más empática ocurría en el alta hospitalaria, cuando se dialogaba y organizaban las pertenencias del paciente y del acompañante para conducirlos a la portería. Conclusión: el tema es relevante y los resultados señalan la importancia de la calificación de los técnicos de Enfermería para cuidar de personas con trastornos mentales. Se hace necesario que estos profesionales integren habilidades relacionales a las habilidades técnicas, lo que corresponde a la principal implicación práctica de los resultados de esa investigación. Descriptores: Enfermería; Psiquiatría; Hospitalización; Asistencia; Hospitales Generales; Medicalización.


2018 ◽  
Vol 12 (11) ◽  
pp. 2933
Author(s):  
Karen Luisa Chaves Souza ◽  
Alana Libania De Souza Santos ◽  
Elionara Teixeira Boa Sorte ◽  
Luma Costa Pereira Peixoto ◽  
Bárbara Teixeira Carvalho

RESUMOObjetivo: analisar o conhecimento dos enfermeiros das unidades de saúde da família sobre a depressão puerperal. Método: estudo qualitativo, descritivo, com 11 enfermeiros. A coleta das informações ocorreu por meio de entrevista semiestruturada, norteada por um roteiro, e a análise pela técnica de análise de conteúdo temática. Resultados: a partir das análises das entrevistas emergiram três categorias: rotinas de cuidado da enfermeira ao binômio mãe-filho no período puerperal; visão das enfermeiras sobre a depressão puerperal; os impasses na prevenção da depressão puerperal. Conclusão: fica evidente a necessidade de investimentos em educação permanente e continuada para os profissionais das estratégias de saúde da família (ESF), no intuito de compreender a importância dos cuidados em saúde mental no puerpério, bem como a efetivação do apoio matricial em saúde mental no contexto da estratégia de Saúde da Família. Descritores: Depressão pós-parto; Saúde da Mulher; Enfermagem; Saúde da Família; Profissionais de Enfermagem; Enfermagem Obstétrica.ABSTRACT Objective: to analyze the knowledge of the nurses of the family health units about the puerperal depression. Method: this is a qualitative, descriptive study with 11 nurses. The information was collected through a semi-structured interview, guided by a script, and the analysis was based on the thematic content analysis technique. Results: from the analysis of the interviews, three categories emerged: nursing care routines to the mother-child binomial in the puerperal period; nurses´ view on puerperal depression; the impasses in the prevention of puerperal depression. Conclusion: the need for investments in permanent and continuing education for family health strategies (ESF) professionals is evident to understand the importance of mental health care in the puerperium, as well as the effectiveness of matrix support in mental health in the context of the Family Health Strategy. Descriptors: Postpartum depression; Women's health; Nursing; Family Health; Nurse Practitioners; Obstetric Nursing.RESUMEN Objetivo: analizar el conocimiento de los enfermeros de las unidades de salud de la familia sobre la depresión puerperal. Método: estudio cualitativo, descriptivo, con 11 enfermeros. La recolección de las informaciones fue por medio de entrevista semi- estructurada, con una guía y el análisis por la técnica de análisis de contenido temático. Resultados: a partir de los análisis de las entrevistas surgieron tres categorías: rutinas de cuidado de la enfermera al binomio madre-hijo en el período puerperal; visión de las enfermeras sobre la depresión puerperal; los impases en la prevención de la depresión puerperal. Conclusión: es evidente la necesidad de inversiones en educación permanente y continua para los profesionales de las estrategias de salud de la familia (ESF), con el intuito de comprender la importancia de los cuidados en salud mental en el puerperio, así como la efectividad del apoyo matricial en salud mental en el contexto de la estrategia de Salud de la Familia. Descriptores: Depresión postparto; Salud de la mujer; Enfermería; Salud de la família; Enfermeras Practicantes; Enfermería Obstétrica.


2021 ◽  
Vol 16 (5) ◽  
pp. 2781-2797
Author(s):  
Sener Gulkaya ◽  
Yasemin Sorakın

The COVID-19 pandemic process has been significant in all areas of our country, just like other countries of world. The changes in lifestyle that occurred with the pandemic process affected both children with special needs and their families. The aim of this research is to examine the effects of the pandemic on children with special needs and their families. The phenomenology model, one of the qualitative methods, was used as the research method in the study. The data obtained through the semi-structured interview form consisting of five questions developed by the researcher was analysed. The participants of the study comprised 29 parents, and data were obtained through telephone and online interview with 21 women and 8 men. As a result of the data, five main themes and related sub-themes were formed. Within the scope of the findings obtained in this study, the parents who constitute the participants of the study have observed an increase in the anxiety levels and aggressive behaviours of their children with special needs during the pandemic process, coupled with other findings as well. Keywords: COVID-19, pandemic process, children with special needs, families


2021 ◽  
Vol 13 (2) ◽  
pp. 1218-1228
Author(s):  
Khamim Zarkasih Putro ◽  
Muhammad Shaleh Assingkily ◽  
Angga Febiyanto ◽  
Zaini Dahlan

This paper aims to analyze education guarantees for children with special needs (ABK) in the Covid-19 era. The focus of the study is the phenomenon of crew members clowning on the streets of Medan City. The theory used in analyzing the data is the theory of implementation of Merilee S. Grindle's policies. This research uses a qualitative approach with a case study method. Data was collected using an open interview technique, participant observation, and documentation study. Furthermore, the data were analyzed through data reduction techniques, data display, and concluding. This study indicates that the North Sumatra government has been very responsive to inclusive education for children with special needs in the region.This is indicated by two things, namely (1) the declaration of North Sumatra as the Province of Inclusive Education since 2015 and (2) the issuance of the Governor of North Sumatra No. 29 of 2016 concerning the Implementation of Inclusive Education as a follow-up to Permendiknas Number 70 of 2009.


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