scholarly journals Nationwide Awareness Campaign and Call for Dental Screening for HHT in Germany

2021 ◽  
Author(s):  
Urban W. Geisthoff ◽  
Frank Hölzle ◽  
Boris A. Stuck ◽  
Jochen Jackowski ◽  
Catherine Hand Goetz ◽  
...  
Keyword(s):  
Vascular Malformations ◽  
Relative Increase ◽  
Facial Skin ◽  
Awareness Campaign ◽  
Self Help ◽  
Dental Screening ◽  
First Time ◽  
E Mail ◽  
Self Help Group

Abstract Background: HHT is a rare, systemic, inherited disorder in which patients suffer from telangiectasias, especially of the facial skin, lips and oral mucosa, as well as visceral vascular malformations (VM). The diagnosis of HHT is often delayed for decades. However, early detection of VMs can reduce morbidity and mortality. Methods: In 2018 a nationwide awareness campaign addressing all dentists in Germany consisted of one published article and two reminders about HHT. As a proxy for the effectiveness of the campaign, researchers measured the number of first-time inquiries from patients and physicians about HHT documented by the German HHT self-help group from September 2016 until September 2019.Results: A total of 411 first contacts with the German self-help group were documented, mainly via internet platforms (internet forum (n = 130) and Facebook® (n = 189)). For 9% of those patients (n = 36/411) the physician or dentist (physician: (n = 31/36, 86%; dentist: n = 5/36, 14%) informed patients about the disease HHT and the self-help group. Before publishing the first article about HHT no dentist referred patients to the German self-help group; afterwards, 5 patients received information about HHT from their dentist and contacted the patient organization for the first time. After each publication in June, September and December 2018 the number of new contacts increased. Contacts via phone and e-mail had the highest relative increase. Conclusions: The repeated call for dental screening for HHT in Germany lead to increased awareness of this rare disease; more patients with possible HHT received information about the condition. The authors conclude that targeted campaigns may contribute to a shorter diagnostic latency resulting in increased quality of life and life expectancy in HHT. Clinical Trials.gov ID: CT03549949

Complementary therapy use amongst oncology patients: what are the messages for Cancer Centre Services? Part 1

2000 ◽  
Vol 2 (1) ◽  
pp. 45-51
Author(s):  
S. G. Killigrew
Keyword(s):  
Qualitative Data ◽  
Malignant Disease ◽  
Complementary Therapy ◽  
Patient Centred Care ◽  
Analysis And Evaluation ◽  
Cancer Centre ◽  
Self Help ◽  
Educational Implications ◽  
Self Help Group

This study aims to examine two related contemporary issues in cancer care; why people with cancer use complementary therapies [CM] and what lessons there may be in this for Cancer Centre Services. The report will be presented in two parts. Part 1 is in the current issue and Part 2 will follow in the next. In Part 1 the main questions are identified and contextualised with the current literature on complementary therapy use. In Part 2 the method, results and analysis the survey and interviews will be explored. 148 patients attending the Leicestershire Cancer Centre returned questionnaires of whom 14 were interviewed in three separate focus groups. Patients from a cancer patient self help group were also interviewed as a fourth focus group. The qualitative data enabled a deeper analysis and evaluation of the quantitative data to be made. The discussion of the data places the main questions asked by the study into a wider context, including the Calman Hine Report and patient-centred care. The conclusions are that although a significant minority of patients [13%] were using CM at the time of the survey a significant majority of respondents [73%] identified a role for CM alongside conventional cancer treatment and 78% responded that staff at the Cancer Centre should be trained to advise them on the use of CM. The respondents acknowledged the resource and educational implications for Cancer Centres but stated that equal status should be given to care and cure in managing malignant disease. This in line with the Calman–Hine Report. Far greater numbers of patients may use CM if appropriate levels of resources and information were available. The findings indicate that integration of CM could assist in promoting future improvements in quality of survival and patient-centred care as identified by Calman–Hine and other recent health policy initiatives.

scholarly journals Self Help Group: A Strategy to Rural Development of Puri District in Odisha, India

2017 ◽  
Vol 4 (01) ◽  
Author(s):  
Kailash Chandra Mishra
Keyword(s):  
Rural Development ◽  
Food Processing ◽  
Economic Activities ◽  
Commercial Farming ◽  
Self Help ◽  
Group A ◽  
Micro Level ◽  
Self Help Groups ◽  
Self Help Group

On the basis of a micro level study for Puri district in Odisha, this paper finds that the Self Help Groups (SHGs) have played a positive and significant role in generation of employment and income of its members engaged in different economic activities such as commercial farming, pisciculture, food processing, trade and commerce, household industry and agriculture. The members are found to have a change in the quality of their lives. Promotion of SHGs therefore, not only helps foster rural development but also go a long way in attaining inclusive growth in India.

scholarly journals Peningkatan Kualitas Hidup Penderita Kusta Dengan Menggunakan Metode Self Help Group (SHG)

2017 ◽  
Vol 6 (1) ◽  
pp. 82
Author(s):  
Ifa Roifah
Keyword(s):  
Quality Of Life ◽  
Complex Problem ◽  
Poor Quality ◽  
Point Of View ◽  
Rank Test ◽  
P Value ◽  
Self Help ◽  
Signed Rank Test ◽  
Self Help Group

Leprosy is one of the infectious diseases that cause a very complex problem, not only from a medical point of view. In addition there is a negative stigma from the community tends to cause the quality of life of people with leprosy decline. Quality of life is the concept of individual ability analysis to get a normal life associated with individual perceptions of goals and expectations, one of the measures to improve the quality of life of leprosy is by doing Self Help Group (SHG) therapy. This study aims to determine the quality of life in people with leprosy. The design of this research using pra experiment with pretest-posttest design approach. The samples were taken with the techniques of cluster random sampling as much as 15 respondents. Tool used WHOQOL-BREF questionnaire containing 26 questions. Patients with leprosy prior to being given Self Help Group (SHG) from 15 respondents mostly experience poor quality of life 7 people (46,7%), leprosy patient after given Self Help Group (SHG) that from 15 respondents mostly experience quality of life is 5 people (33.3%). The test used is using Wilcoxon Signed Rank Test. p value = 0,007 and α = 0,05 so Ha is accepted, it  means there is influence Self Help Group therapy (SHG) to quality of life in leprosy patients in tanjungkenongo village sumberglagah kec. Pacet kab. Mojokerto. Self Help Group (SHG) is a group or peer where each member share the same physical or emotional issues or specific issues where they work together to share problems and choose what will be the focus of solving group members, helping each other in motivating to create a sense of prosperity.

scholarly journals A Study on Women Empowerment of Self Help Groups in Thoothukudi District

2021 ◽  
pp. 108-114
Author(s):  
Dr. V. Sangeetha
Keyword(s):  
Rural Areas ◽  
Women Empowerment ◽  
Economic Activities ◽  
Self Help ◽  
Group Members ◽  
Four Blocks ◽  
Self Help Groups ◽  
The Impact ◽  
Self Help Group

This study examines the women empowerment of self help groups in Thoothukudi district. It aims to analyze the demographic profile of the respondents and characteristics of the Self Help Group members and to evaluate the impact of service quality of SHGs. The data collected from 125 respondents selected using random sampling method covering the villages of Ottapidaram, Pudur, Vilathikulam and Kayathar. It concluded that the economic activities of SHGs are quite successful. In this way, SHGs in four blocks from Thoothukudi District were very successful in women empowerment in rural areas and poverty alleviation.

Complementary therapy use amongst oncology patients: what are the messages for Cancer Centre Services? Part 2

2000 ◽  
Vol 2 (2) ◽  
pp. 101-109
Author(s):  
S. G. Killigrew
Keyword(s):  
Qualitative Data ◽  
Malignant Disease ◽  
Complementary Therapy ◽  
Patient Centred Care ◽  
Analysis And Evaluation ◽  
Cancer Centre ◽  
Self Help ◽  
Educational Implications ◽  
Self Help Group

This study aims to examine two related contemporary issues in cancer care; why people with cancer use complementary therapies (CM) and what lessons there may be in this for Cancer Centre Services. The report is presented in two parts. Part 2 is in the current issue and Part 1 was published in the previous issue (Journal of Radiotherapy in Practice 2000; 2(1): 45–51). In Part 1, the main questions for the study were identified and contextualised within the current literature on complementary therapy use. In Part 2 the method, results and analysis the survey and interviews are explored. Of the patients attending the Leicestershire Cancer Centre, 148 returned questionnaires of whom 14 were interviewed in three separate focus groups. Patients from a cancer patient self help group were also interviewed as a fourth focus group. The qualitative data enabled a deeper analysis and evaluation of the quantitative data to be made. The discussion of the data places the main questions asked by the study into a wider context, including the Calman-Hine Report and patient-centred care. The conclusions are that although a significant minority of patients (13%) were using CM at the time of the survey a significant majority of respondents (73%) identified a role for CM alongside conventional cancer treatment and 78% responded that staff at the Cancer Centre should be trained to advise them on the use of CM. The respondents acknowledged the resource and educational implications for Cancer Centres but stated that equal status should be given to care and cure in managing malignant disease. This in line with the Calman-Hine Report. Far greater numbers of patients may use CM if appropriate levels of resources and information were available. The findings indicate that integration of CM could assist in promoting future improvements in quality of survival and patient-centred care as identified by Caiman-Hine and other recent health policy initiatives.

scholarly journals Pengaruh Penerapan Kombinasi Self Help Group dan Penggunaan Mobile Messaging Apps terhadap Kualitas Hidup Klien Gagal Ginjal Kronik di Ruang Hemodialisa RST dr. Reksodiwiryo Padang

2020 ◽  
Vol 11 ◽  
pp. 63
Author(s):  
Yanti Nopita ◽  
Susmiati Susmiati ◽  
Emil Huraini
Keyword(s):  
Quality Of Life ◽  
Random Sampling ◽  
Intervention Group ◽  
Simple Random Sampling ◽  
Control Group ◽  
P Value ◽  
Self Help ◽  
Post Test ◽  
Self Help Group

Hemodialysis is a kidney replacement therapy for clients with chronic renal failure. Hemodialysis therapy helps the client's survival, but on the other hand the client will experience various problems including psychosocial problems, which ultimately affect the client's quality of life. Self Help Group is a social support therapy and the Mobile Messaging Apps (WhatsApp) application can be used in Self Help Group. The purpose of this study was to determine the effect of implementing a combination of Self Help Group and the use of Mobile Messaging Apps on the quality of life of clients with chronic kidney failure. The research design was quasy experiment with pre and post test design with control group, the sampling technique was simple random sampling. The research sample consisted of 42 people, consisting of 21 respondents in the control group and 21 in the intervention group. The test results showed the effect of implementing a combination of Self Help Group and the use of Mobile Messaging Apps on the quality of life of clients with p value < 0.05. It is recommended that Self Help Group and the use of WhatsApp be implemented as part of nursing interventions in nursing care. Keywords: mobile messaging apps; quality of life; self help group ABSTRAK Hemodialisa merupakan salah satu terapi pengganti ginjal bagi klien gagal ginjal kronik. Terapi hemodialisa membantu kelangsungan hidup klien, namun di sisi lain klien akan mengalami berbagai masalah termasuk masalah psikososial, yang pada akhirnya mempengaruhi kualitas hidup klien. Self Help Group adalah salah satu terapi dukungan sosial dan aplikasi Mobile Messaging Apps (WhatsApp) aplikasi yang dapat digunakan dalam Self Help Group. Tujuan dari penelitian ini adalah untuk mengetahui pengaruh penerapan kombinasi Self Help Group dan penggunaan Mobile Messaging Apps terhadap kualitas hidup klien gagal ginjal kronik. Desain penelitian yang digunakan yaitu quasy experiment dengan rancangan pre and post test with control group, teknik pengambilan sampel yaitu simple random sampling. Sampel penelitian berjumlah 42 orang terdiri dari 21 responden kelompok kontrol dan 21 kelompok intervensi. Hasil uji menunjukkan adanya pengaruh penerapan kombinasi Self Help Group dan penggunaan Mobile Messaging Apps terhadap kualitas hidup klien dengan p value < 0,05. Direkomendasikan Self Help Group dan penggunaan WhatsApp diterapkan sebagai bagian intervensi keperawatan dalam asuhan keperawatan. Kata kunci: mobile messaging apps; kualitas hidup; self help group

scholarly journals The influence of self-help group therapy towards quality of life of cancer patients in palliative care

2019 ◽  
Vol 6 (10) ◽  
pp. 4193
Author(s):  
Ni K. Kardiyudiani ◽  
Apri N. Wulandari ◽  
Brigitta A. D. Susanti
Keyword(s):  
Quality Of Life ◽  
Group Therapy ◽  
Cancer Patients ◽  
Intervention Group ◽  
Control Group ◽  
Self Help ◽  
Significant Difference ◽  
Post Test ◽  
Self Help Group

Background: The therapy of cancer treatment for patient affects the significant of physic, psychology, and information and social, so that it needs to support the adequate care. The supporting for adequate care is the way to improve the quality life of patients. One of the cares that given is self-help group therapy (SHG), it is a group treatment to share about the experiences of each other for cancer patient. This research is conducted to know the influences of self-help group therapy towards the quality of life of cancer patients that have a palliative care.Methods: The research uses a quantitative approach with quasi-experimental method with pre-test and post-test with control group design. The sample of this research is 14 respondents in control group and 14 respondents in intervention group.Results: There was significant difference value of quality of life pre-test rather than post-test in the intervention group, p=0.033, and there was no significant difference in the control group before and after intervention, p=0.190. The comparison between post-test intervention and post-test control group showed that there was significant difference of quality of life value. P value in intervention group was 0.002, while p value for the control group was 0.221.Conclusions: There was influence by giving self-help group (SHG) therapy towards the quality of life of cancer patients that have palliative treatment. The patient can expand the social networking, to accept the information, get the emotional supporting from their own group.

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