scholarly journals CUIDADOS PALIATIVOS E O MODO DE CUIDAR: ATÉ ONDE VAI O ENVOLVIMENTO?

2009 ◽  
Vol 14 (2) ◽  
Author(s):  
Cristina Faresin ◽  
Marilene Rodrigues Portella
Keyword(s):  
Palliative Care ◽  
Structured Interviews ◽  
Family Behavior ◽  
The Social ◽  
Professional Caregiver ◽  
One Year ◽  
Key Words Palliative Care ◽  
Nursing Professionals ◽  
Elderly Caregivers

Resumo: Este estudo visou averiguar como está ocorrendo o envolvimento da equipe de enfermagem mediante a situação da pessoa que necessita de cuidados paliativos. Desenvolveu-se uma pesquisa qualitativa, com cinco profissionais de enfermagem, de ambos os sexos, maiores de 19 anos, que trabalham há no mínimo um ano em uma das três Instituições de Longa Permanência para Idosos de Passo Fundo/RS, e prestam cuidados paliativos. Os participantes responderam a entrevistas semi-estruturadas, cujo conteúdo foi analisado qualitativamente, desvelando-se as seguintes categorias: entendimento de cuidados paliativos, trabalhando com a morte, seguindo rotinas e observando o comportamento dos familiares. O cuidador profissional apresenta dificuldades em separar os papéis no contexto social e em saber trabalhar com a morte daqueles que estão sob seus cuidados. O suporte de apoio para os cuidadores profissionais e ocupacionais é raro, pois os mesmos vêm sofrendo um desgaste notável tanto nas intervenções junto aos residentes, quanto frente a determinadas circunstâncias que envolvem os familiares. A qualidade da assistência a esse grupo pode ser melhorada se for dada uma atenção diferenciada à questão dos cuidados paliativos, seja por meio de tecnologia de informação e formação, seja por iniciativas que contemplem programas de educação continuada dirigidos aos cuidadores de idosos. Palavras-chave: Cuidados Paliativos; Instituições de Longa Permanência para Idosos; Assistência terminal. Abstract: This study aimed to investigate how the involvement of the nursing team has been occuring against the situation of the person who needs palliative care. A qualitative research was developed with five nursing professionals, of both sexes, over 19 years old, that have been working at least for one year in one of the three longstay institutions for elderly people, in Passo Fundo, RS, and render palliative care. The participants answered to semi-structured interviews, whose content was qualitatively analyzed, being unveiled the following categories: palliative care understanding, working with the death, proceeding with routines and observating the family behavior. The professional caregiver presents difficulties in separating the roles in the social context and, in knowing how to work with the death of those who are under his care. The support for professional and occupational caregivers is rare once they are suffering a remarkable wear in interventions with residents as much as in certain circumstances involving the relatives. The quality of assistance to this group can be improved if special attention is given to palliative care, whether by means of information and training technologies or initiatives that provide continuing education programs directed to elderly caregivers. Key words: Palliative Care; Long-Stay Institutions for the Old-Aged; Terminal Care.

scholarly journals Dysthanasia: nursing professionals' perception

2009 ◽  
Vol 17 (4) ◽  
pp. 443-448 ◽  
Author(s):  
Milene Barcellos de Menezes ◽  
Lucilda Selli ◽  
Joseane de Souza Alves
Keyword(s):  
Quality Of Life ◽  
Content Analysis ◽  
Qualitative Study ◽  
Study Data ◽  
Structured Interviews ◽  
Pain And Suffering ◽  
One Year ◽  
Nursing Professionals

Dysthanasia means slow and painful death without quality of life. This study aimed to know whether nurses identify dysthanasia as part of the final process of the lives of terminal patients hospitalized at an adult ICU. This is an exploratory-qualitative study. Data were collected through semi-structured interviews with ten nurses with at least one year of experience in an ICU, and interpreted through content analysis. Results indicate that nurses understand and identify dysthanasia, do not agree with it and recognize elements of orthonasia as the adequate procedure for terminal patients. We conclude that nurses interpret dysthanasia as extending life with pain and suffering, while terminal patients are submitted to futile treatments that do not benefit them. They also identify dysthanasia using elements of orthonasia to explain it.

The twelve-month outcome of patients with neurotic illness in general practice

1981 ◽  
Vol 11 (3) ◽  
pp. 535-550 ◽  
Author(s):  
A. H. Mann ◽  
R. Jenkins ◽  
E. Belsey
Keyword(s):  
Social Life ◽  
Function Analysis ◽  
Psychiatric Morbidity ◽  
The Social ◽  
Assessment Measures ◽  
Psychiatric State ◽  
One Year

SYNOPSISOne hundred patients, selected to be representative of those attending general practitioners with non-psychotic psychiatric disorders were followed up for one year. standard assessments of mental state, personality, social stresses and supports were carried out for each patient at the outset and after a year.The outcome for this cohort determined both by the level of psychiatric morbidity at interview after one year and by the pattern of the psychiatric morbidity during the year has been analysed with reference to the assessment measures. Discriminant function analysis indicates that the initial estimate of the severity of the psychiatric morbidity and a rating of the quality of the social life at the time of follow-up are the only factors that significantly predict the psychiatric state after one year. Social measures also predict a pattern of illness charactorized by a rapid recovery after the initial assessemtn. Patients who reported continuous psychiatric morbidity during the year were, older, physically ill and very likely to have recevied psychotropic drugs. Receipt of this medication during the year was associated with initial assessments of abnormality of personality, older age, and a diagnosis of depression.The findings of this study are seen to support a triaxial assessment and classification of non-psychotic psychiatirc disorders, with symptoms, personality and social state being rated independently.

SYMBOLIC STRUGGLE FOR POLICY IMPLEMENTATION OF «ACTIVE AGING» IN THE RUSSIAN SOCIAL AND LABOR SPHERE

2021 ◽  
pp. 1050-1059
Author(s):  
И. Л. Сизова ◽  
Н. С. Орлова
Keyword(s):  
The Elderly ◽  
Work Behavior ◽  
Special Importance ◽  
Active Aging ◽  
Social Mechanisms ◽  
Structured Interviews ◽  
Aging Policy ◽  
Assistance Programs ◽  
The Social

В статье рассматриваются социальные процессы, сопровождающие реализацию политики «активного долголетия» в российской социальнотрудовой сфере. В первом разделе статьи кратко представляются основы концепции «активного долголетия» и обсуждаются возможные социальные механизмы ее применения. Особое место здесь отводится анализу социальных прав, которые формируют основу для разных моделей развития общественного благосостояния и качества жизни населения. Во втором разделе на базе парадигмы конструктивизма в социальных науках и теории символической власти П. Бурдьё предлагается авторский вариант изучения структур восприятия и оценивания населением реализованных государственных реформ. В третьем разделе представлены результаты эмпирического анализа серии полуструктурированных интервью с основными субъектами социально-трудовой сферы и текстов обращений граждан в органы государственной власти. В заключение интерпретируется символическая борьба вокруг восприятия политики «активного долголетия» в России. Авторы приходят к выводу о том, что ожидается новый всплеск программ социальной помощи пожилым и рост пассивности в их трудовом поведении. The article examines the social processes accompanying implementation of the policy «active aging» in the Russian social and labor spheres. The basic concepts of «active aging» are briefl y introduced and possible social mechanisms of its application are discussed in the first section of the article. Special importance is given to the analysis of social rights which form the basis for different models of the development of public welfare and the population’s quality of life. In the second section, author’s version of studying the perception and assessment structures by the population of the implemented reforms of the State are proposed on the basis of the paradigm of constructivism in the social sciences and the theory of symbolic power by P. Bourdieu. In the third section the results of an empirical analysis of a set of semi-structured interviews with the main subjects of the social and labor spheres and the texts of citizens’ appeals to government bodies are presented. In conclusion, the symbolic struggle around the perception of the «active aging» policy in Russia is interpreted. The authors conclude that a new surge in social assistance programs for the elderly and an increase in passivity in their work behavior are expected.

scholarly journals Registros de enfermagem e suas implicações para a qualidade do cuidado

2019 ◽  
Vol 9 (26) ◽  
pp. 3
Author(s):  
Beatriz Da Silva Sousa ◽  
Ana Clara Maciel Barroso
Keyword(s):  
Medical Records ◽  
Electronic Records ◽  
Structured Interviews ◽  
Health Records ◽  
Study Case ◽  
Artery Disease ◽  
Study Type ◽  
Nursing Professionals

Avaliar o registro dos enfermeiros nos prontuários do paciente eletrônico e convencional, com vista à melhoria da qualidade do cuidado. Estudo descritivo, tipo estudo de caso. Foram realizadas entrevistas semiestruturadas com 8 enfermeiros da enfermaria de coronariopatias e a análise dos registros nos dois tipos de prontuários do paciente. Nos 25 prontuários revistos, constatou-se o número de 51 registros, sendo 37 do prontuário eletrônico e 14 do prontuário convencional, média de 31 dias de internação. Atrelou-se a não realização ao número insuficiente de profissionais de enfermagem no setor em comparação à complexidade dos pacientes atendidos. Destaca-se como obstáculo o quantitativo de pessoal da equipe de enfermagem e sua carga de trabalho. Consequentemente, há necessidade de ajustes quantitativo e qualitativo no processo de trabalho relacionados a execução desta e das demais tarefas para que possam ser adequadamente conduzidas.Descritores: Cuidados de Enfermagem, Registros Eletrônicos de Saúde, Carga de trabalho. Nursing records and their implications for the quality of careAbstract: To evaluate nurses' records in the electronic and conventional patient charts, with a view to improving the quality of care. Descriptive study, case study type. Semi-structured interviews were carried out with 8 nurses from the coronary artery disease ward and the analysis of the records in the two types of patient records. In the 25 revised records, the number of 51 records was verified, being 37 of the electronic records and 14 of the conventional medical records, average of 31 days of hospitalization. There was a lack of achievement of the insufficient number of nursing professionals in the sector compared to the complexity of the patients attended. The number of nursing staff and their workload stands out as an obstacle. Consequently, there is a need for quantitative and qualitative adjustments in the work process related to the execution of this and other tasks so that they can be properly conducted.Descriptors: Nursing Care, Eletronic Health Records, Workload. Registros de enfermería y sus implicaciones para la calidad de la atenciónResumen: Evaluar el registro de los enfermeros en los prontuarios del paciente electrónico y convencional, con objetivo la mejora de la calidad del cuidado. Estudio descriptivo, tipo estudio de caso. Se realizaron entrevistas semiestructuradas con 8 enfermeros de la enfermería de coronariopatias y el análisis de los registros en los dos tipos de prontuarios del paciente. En los 25 prontuarios revisados, se constató el número de 51 registros, siendo 37 del prontuario electrónico y 14 del prontuario convencional, promedio de 31 días de internación. La no realización se debe al número insuficiente de profesionales de enfermería en el sector en comparación a la complejidad de los pacientes atendidos. Se destaca como obstáculo el cuantitativo de personal del equipo de enfermería y su carga de trabajo. En consecuencia, hay necesidad de ajustes cuantitativos y cualitativos en el proceso de trabajo relacionados con la ejecución de ésta y de las demás tareas para que puedan ser adecuadamente conducidas.Descriptores: Atención de Enfermería, Registros Electrónicos de Salud, Carga de Trabajo.

‘There is no sincerer love than the love of food’ (George Bernard Shaw, 1903): The meaning of food and its uses in prison subculture

2018 ◽  
Vol 16 (2) ◽  
pp. 127-146 ◽  
Author(s):  
Tomer Einat ◽  
Moran Davidian
Keyword(s):  
Small Sample Size ◽  
Food Products ◽  
Analysis Data ◽  
Small Sample ◽  
Structured Interviews ◽  
Maximum Security ◽  
Maximum Security Prison ◽  
The Social ◽  
Bernard Shaw

This study examines the ways in which the prison service handles food and analyses the uses and meanings of food in prison subculture. Using semi-structured interviews and content analysis, data were collected and analysed from 20 ex-prisoners who were incarcerated in maximum-security prison facilities for a period of three years or more. Our main findings are that, according to the interviewees’ testimonies, (a) the Israel Prison Service (IPS) makes manipulative and abusive use of food in order to perpetuate its power; and (b) food serves as a means to determine the relationship between prisoners and staff, govern social status or rejection in the prison subculture, or pass the time. We have four main conclusions. First, the IPS nutrition policy differentiates and discriminates among prisoners and clearly violates the basic human rights of prisoners, thus suggesting an abuse of power. Second, the IPS’s use of food as a tool for punishing or rewarding introduces and perpetuates inequalities and encourages the illegal prison trade in food and food products. Third, cooking in prison, especially in light of its illegality, constitutes a symbolic expression of resistance to the institution and a meaningful way of coping with boredom. Lastly, food and its possession in prison serve as very powerful tools for constructing and perpetuating exploitation and unequal power relations among prisoners. Although the study suffers from two limitations – the validity of the adolescents’ responses and the small sample size – its findings lead us to propose that an improvement in the food products that are accessible to prisoners and permission to cook in their cells are inexpensive and legitimate means of bettering both the prisoners’ quality of life and the social atmosphere in prison.

Chemotherapy use at the end of life in Brazil.

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. e24003-e24003
Author(s):  
Munir Murad Junior ◽  
Thiago Henrique Mascarenhas Nébias ◽  
Marcos Antonio da Cunha Santos ◽  
Mariangela Cherchiglia
Keyword(s):  
Palliative Care ◽  
Cancer Treatment ◽  
End Of Life ◽  
Cancer Patients ◽  
Stage Iv ◽  
Breast Cancers ◽  
Early Palliative Care ◽  
Study Population ◽  
One Year

e24003 Background: Chemotherapy in the last days of life is not associated with a survival benefit, and recent data suggest it may cause harm by decreasing quality of life and increasing costs. Both ESMO and ASCO have published position statements encouraging discussions about the appropriate cessation of chemotherapy. End-of-life chemotherapy rates vary worldwide but in summary, up to a fifth of cancer patients are treated with chemotherapy in the last month of life with no clear benefits. The aim of this study is to describe the rate of chemotherapy use in the last month of life in patients who are candidates for palliative care in Brazil. Methods: It is a prospective non-concurrent cohort carried out from a database developed through probabilistic and deterministic linkage of data from information systems of the Brazilian Public Health System. The study population is composed of all patients who started cancer treatment between 2009 and 2014 and who was hospitalized at least 1 time after starting treatment. To address the indication for palliative care, patients whose death occurred within one year after the first hospitalization were selected. Results: A total of 299,202 patients started cancer treatment in that period and 62,249 died 1year after hospitalization. Among the deceased patients, the median age was 62 years, 50.9% of them were in stage IV and 34.1% in stage III and 46% lived in the southeastern region of the country. The most common cancers were lung (n = 17805; 28.6%) colorectal (n = 12273; 19.7%) and gastric (n = 10248; 16.5%). The average number of hospitalizations was 2.7 and 89% of these patients required emergency hospitalization. About half (45,4%; n=28,250) of the patients underwent chemotherapy at the last 30 days of life. The rates of use of chemotherapy in the last month was 44% for lung cancer, 74,4% for colon, 50.2% for gastric and 51.8% breast cancers. Conclusions: Despite international recommendations on the use of chemotherapy at the end of life, this seems to be a common practice unfortunately. Measures to implement early palliative care should be a priority for the care of cancer patients in Brazil.

scholarly journals Community Theater as social support for youth: agents in the promotion of health

2015 ◽  
Vol 20 (5) ◽  
pp. 1353-1362 ◽  
Author(s):  
Denise Diba ◽  
Ana Flavia d'Oliveira
Keyword(s):  
Young People ◽  
Ethnographic Study ◽  
Structured Interviews ◽  
Community Theater ◽  
Health Community ◽  
Liberation Pedagogy ◽  
Actual Operation ◽  
One Year ◽  
Relationship Of

There has been much discussion on promotion of the health of young people in vulnerable situations; but little work has been done analyzing its actual operation - and this is especially true in relation to programs and projects that are outside the health services. This article aims to analyze the relationship of an experience in Community Theater with the promotion of health. It is a qualitative, ethnographic study made at the Pombas Urbanas Institute, in the Cidade Tiradentes district of the municipality of São Paulo, and is coordinated by a theater group with a history that is relevant to the objective of the study. Participatory observation was carried out for one year, with semi-structured interviews with young people, and with actors of the Pombas Urbanas group, and analysis of documents. The theoretical framework that was used is made up of concepts from the fields of collective health, Community Theater, and liberation pedagogy. The results are presented in two interlinked sub-categories which have arisen from the empiric material and from the references adopted: (i) 'True friends', and (ii) 'Dialog'. The analysis clearly shows the importance of this type of theatrical joint experience for the promotion of health by transforming the quality of relationships between people. Concepts of health, culture and education were used in analysis of the results.

scholarly journals Representações sociais de travestis profissionais do sexo sobre qualidade de vida

2021 ◽  
Vol 20 (4) ◽  
pp. 131-169
Author(s):  
Ana Lilia Souza Barbosa Barbosa ◽  
Alef Diogo da Silva Santana ◽  
Ednaldo Cavalcante de Araújo ◽  
Paula Daniella de Abreu ◽  
Marcos Soares de Lima ◽  
...  
Keyword(s):  
Social Representations ◽  
Structured Interviews ◽  
Governmental Organizations ◽  
Calidad De Vida ◽  
Non Governmental Organizations ◽  
Access To Health ◽  
The Social ◽  
Qualitative Descriptive ◽  
Trabajadoras Sexuales

Objetivo: Identificar las representaciones sociales de las trabajadoras sexuales travestis sobre la calidad de vida. Material y Método: Estudio cualitativo, descriptivo, exploratorio, basado en la Teoría de las Representaciones Sociales, desarrollado con siete travestis trabajadoras sexuales. La producción de los datos se llevó a cabo con entrevistas semiestructuradas y posteriormente se transcribieron, validaron y analizaron a partir del Análisis de contenido temático.Resultados: Surgieron tres clases: 1) Acceso a la salud como principio de calidad de vida; 2) El apoyo de las organizaciones no gubernamentales en la visibilidad y respeto a las demandas de las personas trans y 3) Los vínculos sociales como herramienta útil en el sentido de la calidad de vida.Consideraciones finales: Las representaciones se ubican en la necesidad de acceso a servicios de salud libres de prejuicios; el apoyo de las organizaciones no gubernamentales en el reconocimiento de sus potencialidades y singularidades mediante el establecimiento de vínculos afectivos, solidarios, leales y de confianza, y en el establecimiento de lazos sociales producidos con vecinos y amigos para afrontar las dificultades vividas cotidianamente. Objective: To identify the social representations of transvestite sex professionals regarding quality of life.Material and Method: A qualitative, descriptive, exploratory study, anchored in the Theory of Social Representations, developed with seven professional transvestites of sex. The data production was carried out with semi-structured interviews and later transcribed, validated and analyzed from the Thematic Content Analysis.Results: Three categories emerged: 1) Access to health as a principle to quality of life; 2) Support of non-governmental organizations in the visibility and respect to the demands of the trans population and 3) Social ties as a propositional tool in the meaning of quality of life.Final considerations: The representations are located in the need to access health services free of prejudice; in the support of non-governmental organizations in the recognition of their potentialities and singularities, establishing affective bonds of support, loyalty and trust; and in the establishment of social bonds produced with neighbors and friends to face the difficulties experienced daily. Objetivo: identificar as representações sociais de travestis profissionais do sexo sobre qualidade de vida. Material e Método: Estudo qualitativo, descritivo, exploratório, ancorado na Teoria das Representações Sociais, desenvolvido com sete travestis profissionais do sexo. A produção dos dados foi realizada com entrevistas semiestruturadas e posteriormente transcritas, validadas e analisadas a partir da Análise de Conteúdo Temática. Resultados: Emergiram-se três categorias: 1) O acesso à saúde como princípio à qualidade de vida; 2) Apoio das organizações não governamentais na visibilidade e respeito às demandas das pessoas trans e 3) Os laços sociais como ferramenta propositiva no significado da qualidade de vida.Considerações finais: As representações estão situadas na necessidade de acesso aos serviços de saúde livre de preconceitos; no apoio das organizações não governamentais no reconhecimento de suas potencialidades e singularidades estabelecendo vínculos afetivos, de apoio, lealdade e confiança; e no estabelecimento dos laços sociais produzidos com vizinhos e amigos para o enfrentamento das dificuldades vivenciadas diariamente.

scholarly journals Assisted Living Administrators' Views of Palliative Care

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 906-906
Author(s):  
Elise Abken ◽  
Molly Perkins ◽  
Alexis Bender
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Assisted Living ◽  
Spiritual Needs ◽  
Structured Interviews ◽  
Age In Place ◽  
Care Access ◽  
Access And Quality ◽  
Using Data

Abstract As many older adults with progressive chronic conditions choose to age-in-place in assisted living (AL) communities, external healthcare workers (e.g., those who provide palliative care) increasingly support AL staff in caring for residents with complex health needs. Palliative care is a branch of healthcare dedicated to preserving quality of life by attending to the physical, mental, and spiritual needs of individuals with chronic, life-threatening diseases and is well suited to manage AL residents’ progressive medical conditions. However, AL residents and their care partners often face barriers to accessing palliative care. Using data from a larger 5-year NIA-funded study, we examined AL administrator knowledge and use of palliative care in seven AL communities around the Atlanta metropolitan area that were racially, ethnically, and socioeconomically diverse. Findings from thematic analysis of semi-structured interviews with 16 administrators indicated that 15 of 16 administrators were familiar with palliative care. A minority of administrators clearly distinguished palliative care from hospice services and conceptualized it as a “bridge” to hospice services. Administrators emphasized how palliative care assists communities in caring for health concerns in-house rather than having to send residents to the hospital. Despite their positive view of palliative care, administrators described infrequent use of palliative services in their communities. Findings show that although none of the AL communities integrate palliative care with their service offerings, AL administrators see value in palliative care for their residents. We provide recommendations for improving palliative care access and quality of life for AL residents at end of life.

scholarly journals Dignity-conserving care for persons with palliative care needs — identifying outcomes studied in research: An integrative review

2020 ◽  
Vol 18 (6) ◽  
pp. 722-740 ◽  
Author(s):  
Annika Söderman ◽  
Ulrika Östlund ◽  
Carina Werkander Harstäde ◽  
Karin Blomberg
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Integrative Review ◽  
Future Research ◽  
Healthcare Organizations ◽  
Care Needs ◽  
Study Protocols ◽  
The Social ◽  
Palliative Care Needs

AbstractObjectivesWith people living longer, palliative care may be required for lengthier periods of time. This puts demands on healthcare organizations to provide optimal palliative care. Maintaining dignity is central for any person's health and quality of life, but especially for a person with palliative care needs. Dignity-conserving care needs to be evaluated to increase knowledge about outcomes and how to assess these. The purpose of this integrative review was to identify outcomes studied within dignity-conserving care and how these have been operationalized.MethodsAn integrative review was conducted in 26 quantitative or mixed-method studies and study protocols. Thematic synthesis with an abductive approach was used for analysis.ResultsSeven themes of studied outcomes were identified, as well as four cluster themes: themes related to Illness-Related Concerns, themes related to the Dignity-Conserving Repertoire, themes related to the Social Dignity Inventory, and themes regarding Overarching Dignity Issues. Most outcomes studied dealt with Illness-Related Concerns within the themes of “Performance, symptoms and emotional concerns” and “End-of-life and existential aspects”. Themes linked to the Social Dignity Inventory had the lowest number of outcomes studied. Outcomes regarding overarching dignity issues such as “Dignity-related distress” and “Quality of life” were common. However, the results lacked concrete communication outcomes.Significance of resultsThe results will underpin future research in which dignity-conserving care is implemented and evaluated, and contribute to the provision of evidence-based palliative care. A greater focus on outcomes within cluster themes related to the Dignity-Conserving Repertoire and the Social Dignity Inventory is needed, as is more focus on communication outcomes.

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