scholarly journals The development and validation of the Brief Experience of Caregiving Inventory (BECI)

2018 ◽  
Author(s):  
Ciarán O'Driscoll ◽  
Simone Farrelly ◽  
Philip Burgess ◽  
George Szmukler ◽  
Madiha Shaikh

Objectives: The social network supporting an individual with psychosis may be adversely affected by the experience of caregiving. The Experience of Caregiving Inventory (ECI) is 66 item self-report measure of the impact of caregiving for carers of people diagnosed with psychotic disorders. This study aimed to create a brief version of the ECI, and evaluate its reliability and validity (n=626). Methods: The validation process was conducted through a multidimensional item response theory (MIRT) approach, using a graded response model and a complementary network approach. Results: This resulted in a 19 item, four factor inventory with a good model fit, displaying good reliability and validity. Conclusion: The BECI is a valid measure. The simplicity, ease of application and robust psychometric properties further enhances its acceptability and usefulness as a brief measure in clinical research and trials, as well as in routine practice providing reliable and valid data on experience of caregiving in families of an individual with psychosis.

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
R. Shah ◽  
F. M. Ali ◽  
A. Y. Finlay ◽  
M. S. Salek

Abstract Background A person’s chronic health condition or disability can have a huge impact on the quality of life (QoL) of the whole family, but this important impact is often ignored. This literature review aims to understand the impact of patients' disease on family members across all medical specialities, and appraise existing generic and disease-specific family quality of life (QoL) measures. Methods The databases Medline, EMBASE, CINHAL, ASSIA, PsycINFO and Scopus were searched for original articles in English measuring the impact of health conditions on patients' family members/partner using a valid instrument. Results Of 114 articles screened, 86 met the inclusion criteria. They explored the impact of a relative's disease on 14,661 family members, mostly 'parents' or 'mothers', using 50 different instruments across 18 specialities including neurology, oncology and dermatology, in 33 countries including the USA, China and Australia. These studies revealed a huge impact of patients' illness on family members. An appraisal of family QoL instruments identified 48 instruments, 42 disease/speciality specific and six generic measures. Five of the six generics are aimed at carers of children, people with disability or restricted to chronic disease. The only generic instrument that measures the impact of any condition on family members across all specialities is the Family Reported Outcome Measure (FROM-16). Although most instruments demonstrated good reliability and validity, only 11 reported responsiveness and only one reported the minimal clinically important difference. Conclusions Family members' QoL is greatly impacted by a relative's condition. To support family members, there is a need for a generic tool that offers flexibility and brevity for use in clinical settings across all areas of medicine. FROM-16 could be the tool of choice, provided its robustness is demonstrated with further validation of its psychometric properties.


2021 ◽  
Vol 4 (1) ◽  
pp. 116-123
Author(s):  
Mita Sri Handayani ◽  
Muhammad Nur Wangid ◽  
Andre Julius

The background of the current study is the urgency of possessing good social cognition to adapt to the social changes that are happening quickly. Weak social cognition makes individuals less in empathy, aggressive or unhappy in their daily life. The link between self-management and social cognition lies in cognitive adjustment. Hence, the authors think it is important to do research that focuses on the implementation of counseling with self-management techniques in developing social cognition. The authors aimed to investigate the effectiveness of self-management in improving social cognition. The present study used one group pretest-posttest quasi-experiment. We invited 10 students from Universitas Ma'soem, Indonesia to participate in the experiment. They were selected based on a low social cognition score after filling the self-report of nineteen items social cognition scale. The results showed counseling with self-management techniques effective in improving university students' social cognition. Besides, limitations and recommendations are discussed.


2018 ◽  
Author(s):  
Igor Menezes ◽  
Ana Cristina Menezes ◽  
Jersica Assis ◽  
Elton Moraes ◽  
Damar Sandbrand ◽  
...  

<div>The purpose of this study is to make available to researchers and practitioners a new instrument to measure turnover reasons based on a compensatory Multidimensional Item Response Theory (MIRT) model. Since extrinsic and intrinsic aspects are measured, item parameters and individual scores are provided for each dimension. An alternative procedure for standardization (WS scores) was introduced for the calculation of respondents’ scores. The Multidimensional Turnover Reasons Scale (MTRS) was administered to 615 workers. Multidimensional Graded Response Model was chosen for item calibration and EAP estimation technique was deployed for producing the individual’s factor scores. The two-dimensional structure was confirmed, with 28 out of 30 items properly measuring turnover reasons. Items more likely to predict turnover reasons and an interpretation about individual scoring under a MIRT approach are presented. Finally, when compared to estimated factor scores, WS scoring technique shows very attractive psychometric properties, which suggests it could be used in place of factor scores for the standardization of multidimensional models, under the scenario in consideration. The MTRS can help companies to work beyond their turnover rates, mainly on the analyses of their talented employees with stronger reasons to leave the organization, and then create new strategies aimed at worker retention.<br></div><div><br></div><div><br></div>


2018 ◽  
Author(s):  
Igor Menezes ◽  
Ana Cristina Menezes ◽  
Jersica Assis ◽  
Elton Moraes ◽  
Damar Sandbrand ◽  
...  

<div>The purpose of this study is to make available to researchers and practitioners a new instrument to measure turnover reasons based on a compensatory Multidimensional Item Response Theory (MIRT) model. Since extrinsic and intrinsic aspects are measured, item parameters and individual scores are provided for each dimension. An alternative procedure for standardization (WS scores) was introduced for the calculation of respondents’ scores. The Multidimensional Turnover Reasons Scale (MTRS) was administered to 615 workers. Multidimensional Graded Response Model was chosen for item calibration and EAP estimation technique was deployed for producing the individual’s factor scores. The two-dimensional structure was confirmed, with 28 out of 30 items properly measuring turnover reasons. Items more likely to predict turnover reasons and an interpretation about individual scoring under a MIRT approach are presented. Finally, when compared to estimated factor scores, WS scoring technique shows very attractive psychometric properties, which suggests it could be used in place of factor scores for the standardization of multidimensional models, under the scenario in consideration. The MTRS can help companies to work beyond their turnover rates, mainly on the analyses of their talented employees with stronger reasons to leave the organization, and then create new strategies aimed at worker retention.<br></div><div><br></div><div><br></div>


2018 ◽  
Vol 30 (8) ◽  
pp. 1109-1117 ◽  
Author(s):  
Jun Li ◽  
Matteo Cesari ◽  
Natalia Del Campo ◽  
Sandrine Andrieu ◽  
Birong Dong ◽  
...  

ABSTRACTBackground:To estimate the impact of comorbid diabetes on caregiver stress in Alzheimer's disease (AD) patients from the Impact of Cholinergic Treatment Use (ICTUS) study.Methods:Using the Data from the ICTUS study, diabetes mellitus (DM) was recorded at baseline and caregiver burden was assessed twice per year using the Zarit Burden Interview (ZBI) scale. The three-factorial model of ZBI (the effect on the social and personal life of caregivers, the psychological burden and the feelings of guilt) was adopted. Linear mixed models were used to examine the relation between DM and the scores of ZBI.Results:The present analyses were conducted on 1,264 AD subjects. A total of 156 patients (12.3%) had DM with taking antidiabetic medication and/or self-report of a history. At baseline, the caregivers of patients with or without DM had similar ZBI global scores and similar scores of three different factors of ZBI. Unadjusted and adjusted models both indicated that ZBI global score increased over a 24-month follow-up without significant effect of DM. Similarly, unadjusted model showed that DM was not determining any significant difference in the score of any factor. However, adjusted model indicated that in diabetic patients, the scores of the social and personal life of caregivers and the psychological burden increased more slowly than those in non-diabetic patients (p = 0.04 and 0.01, respectively).Conclusions:DM may affect the caregivers’ daily social and personal life and psychological burden in AD patients. It is necessary for further research.


Assessment ◽  
1996 ◽  
Vol 3 (1) ◽  
pp. 17-25 ◽  
Author(s):  
Dean Lauterbach ◽  
Scott Vrana

This paper describes three studies of the reliability and validity of a newly revised version of the Purdue Posttraumatic Stress Disorder scale (PPTSD-R). The PPTSD-R is a 17-item questionnaire that yields four scores: Reexperiencing, Avoidance, Arousal, and Total. It is highly internally consistent (α = .91), and the scores are relatively stable across time. The PPTSD-R is highly correlated with other measures of PTSD symptomatology and moderately correlated with measures of related psychopathology, providing preliminary support for the measure's convergent and discriminant validity. It reliably distinguishes between groups of people who were and were not traumatized, it is sensitive to the impact of different types of traumatic events, and (within a clinical sample) it discriminates between those who did and did not seek treatment for difficulty coping with the traumatic event being assessed. The PPTSD-R shows promise as a measure of PTSD symptoms in the college population.


Author(s):  
Kelli L Sullivan ◽  
Paulina A Kulesz ◽  
Steven Paul Woods

Abstract Objective Retrospective and prospective memory deficits are associated with lower quality of life (QoL); however, there are no validated measures that comprehensively and directly assess the impact of memory problems on QoL. The Survey of Memory-Related Quality of Life (SMRQoL) was developed as a 30-item questionnaire to measure memory-related QoL. Method Both HIV+ (n = 195) and HIV− (n = 146) participants completed the SMRQoL, a neurocognitive research battery, and validated self-report questionnaires of memory, QoL, and mood. Participants were recruited into younger (age ≤ 40 years) and older (age ≥ 50 years) groups per the parent study design. Results The SMRQoL had a unidimensional factor structure and demonstrated measurement invariance across the HIV+ and HIV− participants. Analyses of 111 clinically stable participants (e.g., persons with no incident or remitting central nervous system disorders) who returned for a 14-month follow-up visit indicated that the SMRQoL had adequate test–retest stability. There was a significant interaction of age and HIV status on the SMRQoL, such that older HIV+ participants reported the lowest memory-related QoL. SMRQoL scores were associated with validated measures of mental and physical QoL, self-reported memory and cognitive symptoms, and performance-based memory and executive functions. Conclusions The SMRQoL shows evidence of reliability and validity as a measure of memory-related QoL that can be used to assess the impact of memory problems on everyday life, but future work is needed to demonstrate the measure’s incremental value in the context of diagnosis and treatment.


2020 ◽  
Vol 0 (0) ◽  
pp. 0-0
Author(s):  
P. Han ◽  
T. Su ◽  
M. Qin ◽  
H. Chen ◽  
T. Hummel

PURPOSE: Although neglected by science for a long time, the sense of olfaction has received increasing attention from research areas including psychology, neuroscience, clinical medicine and nutrition. With the rise of psychophysical and neuroimaging re- search into olfaction, psychometric tools (e.g. questionnaires and scales) are the basis for the quantitative exploration of inter-in- dividual variability regarding olfactory related responses. The current systematic review is to summarize existing olfaction related questionnaires and/or scales. METHODS: Peer-reviewed literature on scales and questionnaires related to perception of odors were searched from online databa- ses (PubMed, Web of Science and PsycINFO). Twenty-one articles that meet the following criteria were included in the review: “hu- man species”, “no physical odor stimuli” and “describing the original development of the tool”, and “with specific focus on olfaction or odor related responses or behaviors”. The psychometric properties, advantages and possible disadvantages were discussed. RESULTS: Existing psychometric measures focus on various aspects of olfactory related responses and behaviors, including af- fective experiences of odor perception, awareness and attitude towards olfaction, olfactory function and the quality of life change due to olfactory dysfunction, and the ability to create vivid mental odor images. While most of them have been tested to have good reliability and validity, some were relatively time-consuming due to the number of questionnaire items. Besides, although many measures have been used in clinical populations, few have provided information on the predictive validity regarding effecti- veness of clinical intervention on changes of certain responses or behaviors. SUMMARY: The current review provides an overview of olfactory related questionnaires and scales, highlighting the emotional and affective impact of olfaction and the impact on quality of life due to olfactory dysfunction. With growing interest in olfaction as an important sense, the development and use of psychometrically sound measurements in conjunction with objective assess- ments will advance our understanding of human olfaction and olfactory dysfunction. The review provides a guide for researchers and clinicians alike to select olfactory scales suitable for olfactory research with different experimental purposes and specific samples.


Author(s):  
Marta Tremolada ◽  
Lucio Silingardi ◽  
Livia Taverna

The evolution of digital media in adolescents has changed the patterns and motives of use and the impact on their communication choices in their social and family networks. The objectives of this study are to understand how peers communicate adopting a social network (SN) or by voice and their social desirability. After the informant consent signature, the adolescents completed a series of self-report questionnaires on the use of SN, on communication preferences, and on social desirability through online. Most of the adolescents belonged to the 17-19 age group (83.6%) and were female (68.9%). Adolescents spent more than 3 hours/day on Whatsapp and more than 2 hours/day on Instagram, while the use of Facebook was on average only 35 minutes/day. Females used digital media for longer than males. Adolescents aged 17-19 years choose more Facebook and voice modes compared to adolescents aged 14 and 16 years. The alternative modes of Whatsapp and voice were chosen more than the social networks in their communication strategies, especially for negative topics. Motives for use were, in addition to boredom, related to maintaining one's social sphere with peers. Some educative considerations were made based on these results.


2021 ◽  
Vol 6 ◽  
Author(s):  
Lukas Herrmann ◽  
Birgitte Lund Nielsen ◽  
Corina Aguilar-Raab

Social-emotional education and the relational competence of school staff and leaders are emphasized in research since they strongly impact childrens’ social, emotional, and cognitive development. In a longitudinal project—Empathie macht Schule (EmS)—we aim at evaluating the outcome and process of an empathy training for the whole school staff, including leaders. We compare three treatments to three control elementary schools via a mixed-methods approach employing qualitative and quantitative research methods targeting both, the school staff and the schoolchildren. Since the start of the project in 2019, the COVID-19 pandemic has disrupted the global education process, that is, the range of training activities for school staff in an unprecedented manner. First the lockdown and then the hygienic measures impact the habits and certainties in schools on multiple levels, including artifacts (e.g., physical distancing measures and virtual platforms), processes (e.g., virtual learning and home-schooling), social structures (e.g., separation of a high-risk group), and values (e.g., difficulties in building relations and showing empathy due to physical distance). Leaders and staff are facing an uncertain situation, while their actions and decisions may—also unintentionally—shape the social reality that will be inhabited to a significant extent. In this context, a number of questions become salient. How does the disruption of the pandemic affect interpersonal relationships, interactions, and the social field—the sum of relationships within the system of a school—as a whole? And specifically, how do the actors reflect on changes in the social field, their relationships, and the schools’ and classrooms’ overall relationship quality due to the crisis? The assessment combines qualitative interviews with leaders and teachers (N = 10) along with a self-report survey (N = 80) addressing the effects of the pandemic on interpersonal aspects in schools. Surprisingly, a number of positive effects were mentioned regarding the learning environment in the smaller-sized classes, which were caused by hygienic measures, as well as increased cohesion among faculty. The potential influence of these effects by consciously shaping relationships and cultivating empathy is discussed in the article.


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