scholarly journals The Development of Ethnographic Drama to Support Healthcare Professionals

2018 ◽  
Vol 25 (1) ◽  
pp. 1-14 ◽  
Author(s):  
Lisen Dellenborg ◽  
Margret Lepp
Keyword(s):  
Healthcare Professionals ◽  
Well Being ◽  
Professional Relationships ◽  
Action Research Project ◽  
Swedish Medical ◽  
Professional Conflicts ◽  
The Impact ◽  
Working Situation ◽  
Organisational Cultures

AbstractThis article describes the development of ethnographic drama in an action research project involving healthcare professionals in a Swedish medical ward. Ethnographic drama is the result of collaboration between anthropology and drama. As a method, it is suited to illuminating, addressing and studying professional relationships and organisational cultures. It can help healthcare professionals cope with inter-professional conflicts, which have been shown to have serious implications for individual well-being, organisational culture, quality of care and patient safety. Ethnographic drama emerges out of participants’ own experiences and offers them a chance to learn about the unspoken and embodied aspects of their working situation. In the project, ethnographic drama gave participants insight into the impact that structures might have on their actions in everyday encounters on the ward.

scholarly journals Exploring Factors that Affect the Well-Being of Healthcare Workers

2017 ◽  
Vol 12 (6) ◽  
pp. 49 ◽  
Author(s):  
Andrea Tomo ◽  
Stefania De Simone
Keyword(s):  
Literature Review ◽  
Healthcare Workers ◽  
Healthcare Professionals ◽  
Well Being ◽  
Healthcare Sector ◽  
Professional Relationships ◽  
Factors Affecting ◽  
Analysis Of Results ◽  
The Individual

While the literature on well-being has largely explored workers in different industries, and much has been written about patient well-being and quality of life in recent years, little attention has focused on the well-being of healthcare professionals. This study aims to provide a relevant state-of-the-art on the healthcare sector within the context of well-being. The paper employs a systematic literature review, following the PRISMA guidelines, to find relevant studies; the analysis of results is then provided by using Herzberg’s two-factor theory to explore factors affecting the well-being of healthcare workers. The literature review revealed that few relevant studies were conducted before the year 2013; only a recent increased attention to this theme, with a particular focus on nurses, enabled this study to confirm several factors individuated in the general literature on well-being and to highlight some other factors specific to healthcare. This paper provides suggestions to build a better and healthier work environment, highlighting that managers need to focus their attention on creating conditions that facilitate intra- and inter- professional relationships, on providing healthcare workers with adequate solutions for their well-being, and on strengthening the individual employee’s identification with, and involvement in, the organization.

Quality of Life in Migraine Patients: A Qualitative Study

Cephalalgia ◽  
2003 ◽  
Vol 23 (9) ◽  
pp. 892-900 ◽  
Author(s):  
I Ruiz de Velasco ◽  
N González ◽  
Y Etxeberria ◽  
JC Garcia-Monco
Keyword(s):  
Quality Of Life ◽  
Focus Groups ◽  
Qualitative Methods ◽  
Family Environment ◽  
Healthcare Professionals ◽  
Well Being ◽  
Pharmacological Management ◽  
Family Work ◽  
The Impact

The impact of migraine on quality of life has been traditionally evaluated by quantitative analysis, but diverse aspects remain insufficiently assessed, so a complementary qualitative approach may have advantages. The aim of this study was to assess the impact of migraine on the quality of life of migraineurs through the perception of patients and their relatives, and healthcare professionals. Qualitative methods were used, including six focus groups and nine personal interviews with 33 migraine patients under physician-directed treatment, five self-medicated patients, five relatives of migraine patients and seven healthcare professionals. Migraine has a negative affect on the quality of life, including physical, emotional and social aspects of daily life such as family, work and social relationships. Family environment and psychological well-being of patients were the aspects most affected according to patients and relatives. Health professionals emphasized work impairment and focused on pharmacological management and on the need for adequate information about migraine for non-medicated patients and patients' relatives. Qualitative methods, such as focus groups and interviews, are a valuable resource for assessing quality of life and well-being of migraine patients. These techniques open up new areas for further research.

Myeloma Treatment Side Effects and Unmet Patient Needs 2009: Results of An International Comparative Survey Conducted by Myeloma Euronet (ME), the European Network of Myeloma Patient Groups.

Blood ◽  
2009 ◽  
Vol 114 (22) ◽  
pp. 4900-4900
Author(s):  
Anita Waldmann ◽  
Begoña Barragán ◽  
Viorica Cursaru ◽  
Candy Heberlein ◽  
Miroslav Hrianka ◽  
...  
Keyword(s):  
Side Effects ◽  
Healthcare Professionals ◽  
Conflicts Of Interest ◽  
Treatment Plan ◽  
Well Being ◽  
Treatment Side Effects ◽  
Comparative Survey ◽  
International Comparative ◽  
The Impact

Abstract Abstract 4900 Recent advances in the treatment of multiple myeloma have increased response rates and treatment outcomes and raised hopes that myeloma may soon be turned into a chronic disease. However, myeloma treatment is often associated with various side effects that can sometimes have a significant impact on the quality of life of myeloma patients and also affect the overall treatment plan. An international comparative survey of myeloma patients and patient relatives and healthcare professionals is conducted to assess perceptions of how myeloma patients are informed about potential side effects of myeloma treatment options, the impact of treatment side effects on a myeloma patient's overall well-being and on the course of myeloma treatment, the satisfaction concerning the management of treatment side effects, potential side effects that myeloma patients don't feel comfortable reporting to their doctor as well as potential reasons for not reporting them, and the satisfaction concerning access to information and support, access to novel treatments, coverage of treatment costs, overall quality of treatment and care, and psycho-social and emotional support. The comparative survey is conducted based on 2 comparable two-page questionnaires, 1 for healthcare professionals and 1 for myeloma patients and patient relatives. The survey consists of 9 multiple-choice and ranking format questions. The questionnaires were developed by ME. They were pre-tested with both professional and patient communities and are available in 6 languages: DE, EN, ES, FR, IT, PL. The survey is distributed by mail or e-mail, it can be taken online via accessing the organisation's web site, and it is conducted on paper at haematological and oncological congresses and patient information days. To date, a total of 272 healthcare professionals from 44 countries and 257 myeloma patients and patient relatives from 21 countries have responded to the survey. Data gathering will continue until mid OCT 2009 and final survey results will be presented at ASH 2009. The survey was made possible through an unrestricted grant from Ortho Biotech, Biopharmaceutical Division of Janssen-Cilag. Disclosures No relevant conflicts of interest to declare.

scholarly journals Impact of a Yogic Breathing Technique on the Well-Being of Healthcare Professionals During the COVID-19 Pandemic

2021 ◽  
Vol 10 ◽  
pp. 216495612098295
Author(s):  
Kanchibhotla Divya ◽  
Saisudha Bharathi ◽  
Ramrakhyani Somya ◽  
Mehta H Darshan
Keyword(s):  
Life Satisfaction ◽  
Health Care Providers ◽  
Healthcare Professionals ◽  
Positive Impact ◽  
Healthcare Providers ◽  
Well Being ◽  
Care Providers ◽  
Quality Of Sleep ◽  
The Impact

Background The COVID-19 pandemic has created unprecedented challenges for healthcare globally, the brunt of which has been borne by the health care providers (HCPs). These challenges are felt more keenly in India, as they stretch an insufficiently resourced healthcare system. The long hours, cross over of responsibilities, lack of resources to adequately care for patients, and concerns around safety of self and loves ones, have led to a spike in anxiety, depression, insomnia and other stress – related disorders in healthcare providers. Sudarshan Kriya Yoga (SKY) is a mind-body intervention that has been studied in multiple clinical populations. Prior to this study, there has been no exploration of the impact of SKY on healthcare providers, specifically the impact of a mind-body intervention like SKY on HCPs during a pandemic. Objective This study aims to investigate the impact of SKY on the well-being of HCPs during the COVID-19 pandemic. Methods We conducted a pilot feasibility study with a single arm pre-post design. SKY was taught to participants in a 4-day online breath and meditation workshop. We measured outcomes related to depression, anxiety, resilience, life satisfaction, and quality of sleep. Results Ninety-two subjects completed the study survey before and after the intervention. A significant reduction was observed in the levels of stress, anxiety and depression immediately after the program. In addition, the participants reported sig1nificant improvement in life satisfaction, resilience, and the quality of their sleep. Conclusion The results indicate that SKY breathing technique had a positive impact on the well-being of healthcare professionals during the pandemic. Participants experienced improved quality of sleep, enhanced satisfaction with life, and increased resilience after SKY. This pilot study provides important data for future multi-site randomized controlled trials to study the impact of yogic techniques on well-being of the HCPs.

scholarly journals Quality of Life Assessment in Healthcare Professionals with Occupational Diseases

2020 ◽  
pp. 60-64
Author(s):  
NN Petrukhin ◽  
IV Boiko ◽  
SV Grebenkov
Keyword(s):  
Quality Of Life ◽  
Occupational Diseases ◽  
Healthcare Professionals ◽  
Human Life ◽  
Well Being ◽  
Life Assessment ◽  
Occupational Infection ◽  
Rehabilitation Measures ◽  
The Impact

Summary. Introduction: Quality of life (QOL) is an integral concept characterizing the level of comfort of the social and natural environment for human life and work, the level of well-being and social, spiritual and physical health. Currently, the number of scientific disciplines that include this concept as an object of study is expanding. Our objective was to study the impact of the system of rehabilitation measures provided for by the current federal legislation in relation to this category of patients on the quality of life of healthcare professionals with occupational diseases. Materials and methods: We assessed QOL changes related to rehabilitation in 124 healthcare professionals of the North-West Federal District who received full or partial rehabilitation for occupational diseases in 2000–2017. Results: We analyzed the dynamics of QOL indicators and assessed physical condition and the ability to perform certain functions in our subjects. The most significant changes were established for such indicators as concentration of attention (by 0.2 on average; p = 0.0393) and quality of life (by 0.2 on average; p = 0.0256). We found an improved QOL in almost 40 % of healthcare professionals with occupational diseases related to physical workloads compared with the groups of occupational infection and allergy cases. Moreover, the increment was quite small (0.2 in terms of the difference in average values, with the expected growth of at least 1–2 points). Conclusions: Incomplete and inconsistent implementation of rehabilitation measures in healthcare professionals suffering from occupational diseases leads to an insufficiently effective increase in their quality of life. A better QOL improvement in these patients requires appropriate correction of drawbacks in carrying out rehabilitation measures.

The Collegiate Irish Dancer’s Experience of Injury: A Qualitative Study

2020 ◽  
Vol 35 (1) ◽  
pp. 1-9
Author(s):  
Owen Higginbotham ◽  
Roisin Cahalan
Keyword(s):  
Injury Risk ◽  
Healthcare Professionals ◽  
Management Strategies ◽  
Social Supports ◽  
Professional Relationships ◽  
Successful Management ◽  
High Incidence ◽  
Psychosocial Challenges ◽  
The Impact

OBJECTIVES: A high incidence of injury is reported amongst student and professional dancers, impacting negatively upon the quality of life and biopsychological health of dancers. Research examining the impact of injury on Irish dancing (ID) students is lacking. There is a need to understand dancer’s emotional and cognitive reaction to injury, to inform management strategies for same. METHODS: Fifteen fulltime university students of ID participated in two semi-structured focus groups interviews. Transcribed interviews were analysed using a bottom-up inductive approach. RESULTS: Thematic analysis of the data collected produced three themes and a number of associated subthemes: Theme 1: cognitive, emotional and behavioural responses, with three subthemes (questioning, feelings and emotions, dancer identity and subculture of risk); Theme 2: management strategies, with two subthemes (resilience, evaluating injury risk); and Theme 3: social supports, with two subthemes (personal relationships, professional relationships). CONCLUSIONS: Students of ID experience significant psychosocial challenges when they are injured, many of which are negative. The importance of dancer identity combined with a subculture of injury concealment and perseverance may compromise the optimal management of dancer injury. Social supports are critical in facilitating successful management of injury. A disconnect exists between dancers and healthcare professionals when seeking medical treatment.

scholarly journals Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol

BMC Neurology ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Catherine Arnaud ◽  
Carine Duffaut ◽  
Jérôme Fauconnier ◽  
Silke Schmidt ◽  
Kate Himmelmann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Cerebral Palsy ◽  
Young People ◽  
General Population ◽  
Transition Period ◽  
Well Being ◽  
Personal Factors ◽  
The Impact

Abstract Background Effective inclusion in society for young people with disabilities is increasingly seen as generating opportunities for self-development, and improving well-being. However, significant barriers remain in the vast majority of activities meaningful for young adults. Research argues that various personal (disabilities, health) and environmental (access to the resources needed, accessible environment, discrimination, lack of personal economic independence) factors contribute to limited participation. However, previous studies conducted in young people with cerebral palsy (CP) mainly investigated the transition period to adulthood, and did not fully consider the whole range of impairment severity profiles or environmental barriers. In this study, we will use the follow-up of the SPARCLE cohort and a comparison group from the general population (1) to investigate the impact of the environment on participation and quality of life of young adults with CP, (2) to determine predictors of a successful young adulthood in educational, professional, health and social fields, (3) to compare quality of life and frequency of participation in social, work and recreational activities with the general population, (4) to document on participation and quality of life in those with severe disabilities. Methods The SPARCLE3 study has a combined longitudinal and cross-sectional design. Young adults with CP aged 22 to 27 years in 6 European regions previously enrolled in the SPARCLE cohort or newly recruited will be invited to self-complete a comprehensive set of questionnaires exploring participation (daily life and discretionary activities), health-related quality of life, body function, personal factors (health, personal resources), and contextual factors (availability of needed environmental items, family environment, services provision) during home visits supervised by trained researchers. Proxy-reports or adapted questionnaires will be used for those with the most severe impairments. The recruitment of a large group from the general population (online survey) will enable to identify life areas where the discrepancies between young people with CP and their able-bodied peers are the most significant. Discussion This study will help identify to what extent disabilities and barriers in environment negatively affect participation and quality of life, and how previous valued experiences during childhood or adolescence might modulate these effects.

scholarly journals Vision-related quality of life in adults with severe peripheral vision loss: a qualitative interview study

2021 ◽  
Vol 5 (1) ◽  
Author(s):  
Ryan Lange ◽  
Abigail Kumagai ◽  
Sara Weiss ◽  
Katherine B. Zaffke ◽  
Sherry Day ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Contrast Sensitivity ◽  
Qualitative Interviews ◽  
Well Being ◽  
Vision Impairment ◽  
Qualitative Interview Study ◽  
Patient Reported ◽  
Related Quality ◽  
The Impact

Abstract Background Existing patient-reported outcome (PRO) measures may not be relevant to the full range of functional and vision-related quality of life (VR-QOL) concerns of individuals with vision impairment due to severe peripheral field loss (PFL). Measurement of VR-QOL in severe PFL is important in order to determine the effectiveness of vision rehabilitation interventions for this population. The purpose of this study was to characterize the impact of severe PFL due to retinitis pigmentosa (RP) and glaucoma on VR-QOL as the initial phase in the development of a novel PRO measure. Methods Individuals with severe PFL due to RP or glaucoma were recruited from the Kellogg Eye Center and the Association for the Blind and Visually Impaired. Participants completed semi-structured qualitative interviews, the Impact of Vision Impairment (IVI) questionnaire and the RAND 36-Item Health Survey. Interviews were analyzed by two coders using thematic analysis. A matrix analysis was conducted to compare VR-QOL by cause of severe PFL. Sample size was determined by thematic saturation. Results The study included 37 participants (19 RP, 18 glaucoma). Median best-corrected visual acuity for those with RP and glaucoma was 20/40 and 20/27.5, while Pelli-Robson contrast sensitivity was 1.2 log contrast sensitivity (logCS) and 1.1 logCS, respectively. Median domain scores on the IVI (reading, mobility, well-being) ranged from a low of − 0.2 to a high of 0.7 logits in those with RP and from 0.5 to 1.2 logits in those with glaucoma. Qualitative interviews identified six VR-QOL themes relevant across participants with both RP and glaucoma, including activity limitations, driving, emotional well-being, reading, mobility, and social function. VR-QOL concerns were largely consistent among those with severe PFL due to RP and glaucoma. These overarching themes contained content relevant to specific challenges related to severe PFL. Conclusions There are commonly occurring VR-QOL concerns among individuals with severe PFL due to RP and glaucoma. The outlined themes will serve as the basis for development of the Low Vision Severely Constricted Peripheral Eyesight (LV-SCOPE) Questionnaire.

scholarly journals COVID-19 Pandemic and Quality of Life among Romanian Athletes

2021 ◽  
Vol 18 (8) ◽  
pp. 4065
Author(s):  
Germina-Alina Cosma ◽  
Alina Chiracu ◽  
Amalia Raluca Stepan ◽  
Marian Alexandru Cosma ◽  
Marian Costin Nanu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Trait Anxiety ◽  
Negative Impact ◽  
Well Being ◽  
Quality Of Life Scale ◽  
Life Scale ◽  
Personality Item ◽  
The Impact ◽  
The Relationship

The aim of this study was to analyze athletes’ quality of life during the COVID-19 pandemic. The study involved 249 athletes between 15 and 35 of age, M = 21.22, SD = 5.12. The sample was composed of eight Olympic Games medalists, three European medalists, 67 international medalists, and 63 national medalists. The instruments used were: (1) COVID-19 Anxiety Scale, (2) Athlete Quality of Life Scale, (3) Impact of Pandemic on Athletes Questionnaire, and (4) International Personality Item Pool (IPIP Anxiety, Depression, and Vulnerability Scales). The results indicate significant differences in COVID-19 anxiety depending on the sport practiced, F (9239) = 3.81, p < 0.01, showing that there were significant differences between sports. The negative impact of the COVID-19 pandemic mediates the relationship between trait anxiety and the athletes’ quality of life. The percentage of mediation was 33.9%, and the indirect effect was −0.11, CI 95% (−0.18, −0.03), Z = −2.82, p < 0.01. Trait anxiety has an increasing effect on the intensity of the negative impact of the COVID-19 pandemic, 0.23, CI 95% (.10, 0.35), Z = 3.56, p < 0.01, and the negative impact of the COVID-19 pandemic has a decreasing effect on quality of life, −0.47, CI 95% (−0.67, −0.27), Z = −4.62, p < 0.01. Gender and age did not moderate the relationship between the negative impact of COVID-19 and athletes’ quality of life. The results of the study highlighted the impact that social isolation and quarantine have on athletes’ affective well-being.

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