scholarly journals An Investigation into the Impact of COVID-19 on the Relationships Between Parents of Children Diagnosed with Cystic Fibrosis and the Cystic Fibrosis Multi-Disciplinary Team

2021 ◽  
pp. 1-7
Author(s):  
Steve Jones ◽  
Leanne Smith ◽  
Katie Ainsworth

Background: The COVID-19 pandemic has seen working practice in Cystic Fibrosis (CF) move to more remote clinical models. This study assesses the impact of shifting working models on the relationships between families of young people with CF and CF Multi-disciplinary Teams (MDT) as well as parents perceptions of working remotely. Methods: Six semi-structured interviews with parents of young people under the care of a regional UK CF specialist centre were analysed using Inductive content analysis. Results: Three domains emerged: Interpersonal Relationships, Remote Clinics and CF in the Context of COVID-19. The enduring and close relationships between the MDT and families were discussed as well as the acceptability of remote clinics moving forwards. Conclusions: The importance of the quality in the relationship between families and CF MDTs is vital to enhance ongoing care. Remote working was acceptable in the context of COVID-19 and with some considerations could be useful moving forwards.

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Emily Anne Tarrant ◽  
Alison Torn

Purpose This study aims to explore the ways in which young people and prison staff (Prison Officers) within a youth custodial establishment experience empathy. Previous research tends to view empathy as a stable trait and one which people can develop through individual-centred therapy. There has been little consideration of the impact of relationship factors and context in relation to empathy experience and expression. The current study aims to address this by exploring the role of the custodial context in shaping empathy, including the potential impact of relationships, environmental factors and culture. Design/methodology/approach A qualitative approach was used to enable breadth and depth in the exploration of this area. Individual, semi-structured interviews were carried out with a purposive sample of three young people and three Prison Officers. Data was analysed using inductive thematic analysis informed by the guidelines of Braun and Clarke (2006) and King and Horrocks (2010). Findings Constructed themes included “constructions of empathy”, “recipe for empathy”, “institutional investment”, “the value of empathy” and “doing empathy”. Together, they provide detailed insight into the interplay of personal and wider contextual factors influencing the experience of empathy in a custodial setting. The findings suggest that the way in which young people and staff experience empathy in the custodial environment is unique. The findings suggest that empathy takes place within the context of relationships and is influenced by the nature of those relationships, along with the wider social context within which it occurs. Practical implications The findings of the current study support a move away from understanding empathy as an individual personality trait and instead viewing it as a dynamic experience that is changeable based upon the relationship and the context within which it occurs. The findings suggest that interventions aiming to develop empathy should look beyond the level of the individual and the relationship and focus upon developing environments that are supportive of empathy. Originality/value This study provides unique insights into the subjective experience of empathy in a custodial setting, presenting as one of the first to take a more holistic approach to understand this phenomenon.


2018 ◽  
Vol 42 (2) ◽  
pp. 135-150 ◽  
Author(s):  
Emma Adams ◽  
Alexander R Hassett ◽  
Virginia Lumsden

Research has highlighted the potential tensions and risk of disruption to care placements when foster carers have birth children living at home. Given the limited research attention given to these young people and the importance of retaining carers, it seems important for policy and practice to investigate the parent–child relationship in this context. Therefore, this study seeks to explore how the birth children of foster carers experience their relationship with their parents. Interpretative phenomenological analysis was used to analyse semi-structured interviews with eight such young people (aged 14–16 years). Three superordinate themes emerged: (1) relational processes that give value to my role in the family; (2) threats to our relationship; and (3) making sense as a way of managing the threats. Each of these contained several subthemes. While there were consistent patterns of experience, there was also individual variation. The findings suggest that the processes of ‘making sense’ and ‘feeling valued’ serve to buffer the impact of potential threats to the parent–child relationship. Theoretical implications include the application of a model that elucidates the relationship between the themes. This has clinical implications for understanding and informing the way services support both foster carers and their children.


2016 ◽  
Vol 22 (2) ◽  
pp. 326-340 ◽  
Author(s):  
Anna K Taylor ◽  
Maria Loades ◽  
Amberly LC Brigden ◽  
Simon M Collin ◽  
Esther Crawley

Background: Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) has a prevalence of 0.4–2.4% and is defined as ‘generalised disabling fatigue persisting after routine tests and investigations have failed to identify an obvious underlying cause’. One-third of young people with CFS/ME have probable depression. Little is known about why depression develops, the relationship between depression and CFS/ME, or what treatment might be helpful. Methods: We conducted nine semi-structured interviews with young people with CFS/ME (aged 13–17 years, 8/9 female) and probable depression, covering perceived causes of depression, the relationship between CFS/ME and depression, and treatment strategies. Results: Most thought CFS/ME caused depression. Many discussed a cyclical relationship: low mood made CFS/ME worse. A sense of loss was common. CFS/ME restricted activities participants valued and changed systemic structures, causing depression. There was no single helpful treatment approach. Individualised approaches using combinations of cognitive behavioural therapy (CBT), medication, activity management and other strategies were described. Conclusion: This study suggests that depression may be secondary to CFS/ME in young people because of the impact of CFS/ME on quality of life. Clinicians treating young people with CFS/ME need to consider strategies to prevent development of depression, and research is needed into approaches that are effective in treating CFS/ME with co-morbid depression.


2021 ◽  
Vol 8 ◽  
pp. 233339362110281
Author(s):  
Renee Fiolet ◽  
Cynthia Brown ◽  
Molly Wellington ◽  
Karen Bentley ◽  
Kelsey Hegarty

Technology-facilitated abuse can be a serious form of domestic violence. Little is known about the relationship between technology-facilitated abuse and other types of domestic violence, or the impact technology-facilitated abuse has on survivors. The aim of this interpretative descriptive study is to understand domestic violence specialist service providers’ perspectives on the impact of technology-facilitated abuse, and the link between technology-facilitated abuse and other forms of domestic violence. A qualitative approach using 15 semi-structured interviews were undertaken with Australian domestic violence specialist practitioners, and three themes were identified through data coding using inductive thematic analysis. Another form of control describes technology-facilitated abuse behaviors as enacting controlling behaviors using new mediums. Amplifies level of fear characterizes the impact of technology-facilitated abuse. A powerful tool to engage others describes opportunities technology offers perpetrators to abuse through engaging others. Findings highlight technology-facilitated abuse’s complexity and integral role in domestic violence and can assist clinicians to understand the impact and harm that can result from technology-facilitated abuse.


Author(s):  
Albert Farre ◽  
Sara Ryan ◽  
Abigail McNiven ◽  
Janet E. McDonagh

Abstract Introduction Young people’s transition into adulthood is intertwined with the worlds of education and work. Poor health in adolescence has been associated with poorer education and employment outcomes in adulthood. This paper explores the impact of arthritis on the educational and early work experiences of young people with arthritis. Methods We undertook a supplementary secondary analysis of a qualitative dataset comprising narrative and semi-structured interviews of 39 young people who had been diagnosed with arthritis in childhood, adolescence or young adulthood. Results Our findings illustrate how young people living with arthritis are faced with a range of added disruptions and challenges in their educational/vocational lives. There is an important element of resilience associated with the process of making a career choice and acting upon personal aspirations. Appropriate support and flexibility in the workplace/educational setting can enable successful outcomes, but disclosure is not a straightforward process for young people living with arthritis. Conclusions It is paramount that health providers consistently and effectively address self-advocacy skills with the young person, particularly during educational and vocational transitions. Alongside this, there is the need to further strengthen the health-school/work interface to ensure that young people living with chronic illness can meet their full potential in adulthood.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Jessie Nixon

Purpose This paper aims to demonstrate how teaching the discourse of critique, an integral part of the video production process, can be used to eliminate barriers for young people in gaining new media literacy skills helping more young people become producers rather than consumers of digital media. Design/methodology/approach This paper describes an instrumental qualitative case study (Stake, 2000) in two elective high school video production classrooms in the Midwestern region of the USA. The author conducted observations, video and audio recorded critique sessions, conducted semi-structured interviews and collected artifacts throughout production including storyboards, brainstorms and rough and final cuts of videos. Findings Throughout critique, young video producers used argumentation strategies to cocreate meaning, multiple methods of inquiry and questioning, critically evaluated feedback and synthesized their ideas and those of their peers to achieve their intended artistic vision. Young video producers used feedback in the following ways: incorporated feedback directly into their work, rejected and ignored feedback, or incorporated some element of the feedback in a way not originally intended. Originality/value This paper demonstrates how teaching the discourse of critique can be used to eliminate barriers for young people in gaining new media literacy skills. Educators can teach argumentation and inquiry strategies through using thinking guides that encourage active processing and through engaging near peer mentors. Classroom educators can integrate the arts-based practice of the pitch critique session to maximize the impact of peer-to-peer learning.


Author(s):  
Maite Soto-Sanfiel

Despite claims that “cinema is dead” or that it only interests nostalgic old-timers, statistics indicate a global increase in theater attendance. Not only is moviegoing still one of the favorite forms of entertainment, but it especially appeals to young people. Moreover, communication research seems to have neglected cinema, but the relationship between modern-day teenagers and the silver screen needs to be observed. This chapter reports the results of a cross-cultural study based on the uses and gratifications paradigm with youngsters from eight European countries. It presents their cinematographic uses and consumption, their motivations for going to the movies, and their preferences and conceptions regarding different movie traditions. The study also performs cross-cultural contrasts to reveal more about the impact of regional, national, and global forces on the psychological relationship between today’s teenagers and cinema.


2021 ◽  
Vol 12 (1) ◽  
pp. 143-161
Author(s):  
G.S. Kozhukhar

Objective. Analysis of the relationship between the assessment of interpersonal relations and satisfaction with marriage among young spouses in an official and civil marriage. Background. Against the background of the growing number of divorces, the need to analyze and understand the factors associated with marriage satisfaction among nowday’s youth is increasing in order to develop programs for overcoming difficulties in communication and maintaining relationships. Study design. The work examined the relationship between interpersonal relationships and marital satisfaction. The presence and nature of the relationship was checked through correlation, regression, factor analysis and automatic modeling (SPSS). The survey was conducted individually or in a group before the start of the pandemic. Participants. 108 young spouses, of which 30 couples, 48 respondents took part without their partners (44.44% of boys, 55.56% of girls) from 20 to 35 years old (M=28.6; SD=2.83). Measurements. Marriage Satisfaction Test Questionnaire (MAR); test questionnaire “Analysis of family anxiety” (ACT); Russian-language versions of the questionnaire “Scale of love and sympathy” and methods of researching partnerships Partnership Questionnaire (PFB); PEA questionnaire to identify the level of understanding, emotional attractiveness and authority (respect) of partners in marriage. Results. A complex system of relationships was revealed between the types of relationships between partners, indicators of family anxiety and satisfaction with marriage. Satisfaction with marriage increases in case of manifestation of love and sympathy in interpersonal relationships, experiences of emotional attraction between partners, respect and rare use of conflict behavior. Predictors of marital satisfaction have been identified, and a standard model of interpersonal relationships has been described, which allows predicting marital satisfaction at a young age. Main conclusion. There is a complex systemic relationship between the assessment of the quality of interpersonal relationships and the perception of satisfaction with marriage in young spouses and partners in a civil marriage, the knowledge of which allows you to create a model of the relationship system in order to predict the satisfaction with marriage of young people and prevent conflicts in relationships leading to their destruction.


2020 ◽  
Vol 16 (1) ◽  
pp. 1
Author(s):  
Corina Joseph ◽  
Heidi Christy Mingi Michael

<p>The objective of this paper is to examine the relationship between jurisdiction and the extent of sustainability information disclosure on Malaysian local authority websites. The extent of online sustainability disclosure is examined utilizing the coercive isomorphism tenet in both quantitative and qualitative phases.  In the quantitative stage, the analysis of 139 websites was conducted. The General Linear Model is utilized to determine the relationship between jurisdiction (measured by different states) and the extent of online sustainability information disclosure. In the qualitative phase, the semi-structured interviews were carried out to answer the underlying possible reasons derived from the quantitative phase. The quantitative phase provided evidence that various states have applied distinctive degree of coercive pressures on the extent of sustainability information disclosure on Malaysian local authority websites.  The interview findings revealed additional factors that are relating to the jurisdiction: political, state leadership, and bureaucratic procedure implemented by different states. The paper has recognized the impact of coercive isomorphism for the jurisdiction utilizing both quantitative and qualitative phases.</p>


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