scholarly journals Connecting home and hospital life : cultural influence in child life practice

2021 ◽  
Author(s):  
Jennifer E Butterly

The changing demographics of illness necessitate the provision of complex care practices designed to meet the individual needs of families from diverse backgrounds. Providing psychosocial care to paediatric patients, child life specialists integrate processes designed to better understand their patients, thus informing their plans of care. Through the use of Grounded Theory, this study involves 7 child life specialists from a large city in Ontario and explores the processes implemented by child life specialists in getting to know their patients and families. Data obtained from semi-structured interviews and a reflective journaling exercise was examined for evidence of cultural influence and a greater understanding of child life specialists' perceived comfort and ability was explored. The results of this study suggest child life specialists engage in culturally responsive practices, however several barriers and challenges exist. Resource needs are identified and implications for practice are examined.

2021 ◽  
Author(s):  
Jennifer E Butterly

The changing demographics of illness necessitate the provision of complex care practices designed to meet the individual needs of families from diverse backgrounds. Providing psychosocial care to paediatric patients, child life specialists integrate processes designed to better understand their patients, thus informing their plans of care. Through the use of Grounded Theory, this study involves 7 child life specialists from a large city in Ontario and explores the processes implemented by child life specialists in getting to know their patients and families. Data obtained from semi-structured interviews and a reflective journaling exercise was examined for evidence of cultural influence and a greater understanding of child life specialists' perceived comfort and ability was explored. The results of this study suggest child life specialists engage in culturally responsive practices, however several barriers and challenges exist. Resource needs are identified and implications for practice are examined.


2021 ◽  
Vol 12 ◽  
Author(s):  
Tanya N. Beran ◽  
Jacqueline Reynolds Pearson ◽  
Bonnie Lashewicz

IntroductionThis study reports the findings on how Child life specialists (CLSs) implemented an innovative approach to providing therapeutic support to pediatric patients.MethodsPart of a larger study that uncovered themes about CLSs’ experiences while working with MEDi®, this study reports the reflections that CLSs have about the process of implementation. Seven CLSs participated in semi-structured interviews. Content analysis was conducted on interview data and three themes were generated.ResultsThe first was in regards to the adoption process whereby CLS challenges, successes, and surprises were revealed. Second, CLSs explained how using MEDi® aligned with the roles and responsibilities of their profession. The third area of understanding was in CLS explanation of the friendly emotional impact MEDi® seems to have on the hospital environment.ConclusionChild life specialists are encouraged to use the MEDi® robot to support children at the bedside.


2021 ◽  
Author(s):  
Sarah Pershick

As paediatric patients transition from the hospital environment, there is a lack to programs and supports to assist in this transitional phase. The child life specialist plays a unique role within the interprofessional team of professionals in the hospital. They provide paediatric patients and their families with psychosocial services such as age and developmentally appropriate coping mechanisms. A mixed-method study was conducted through qualitative semi-structured interviews, and a survey to explore how child life managers and frontline child life specialists perceived their role expanding outside of the hospital. five themes emerged from questions asked in the interviews and surveys. These themes include: role perceptions, collaboration with health care professionals, collaboration with school professionals, challenges to collaboration and recommendations for the role expansion. From these five themes, thirteen sub-themes emerged spontaneously. The findings of this research study indicate that there is a consensus from both child life managers and specialists on the value of expanding their role beyond the hospital. although considered an essential service in some hospitals, further steps need to be taken to ensure child life specialists feel that their services are validated in the hospitals.


2021 ◽  
Author(s):  
Sarah Pershick

As paediatric patients transition from the hospital environment, there is a lack to programs and supports to assist in this transitional phase. The child life specialist plays a unique role within the interprofessional team of professionals in the hospital. They provide paediatric patients and their families with psychosocial services such as age and developmentally appropriate coping mechanisms. A mixed-method study was conducted through qualitative semi-structured interviews, and a survey to explore how child life managers and frontline child life specialists perceived their role expanding outside of the hospital. five themes emerged from questions asked in the interviews and surveys. These themes include: role perceptions, collaboration with health care professionals, collaboration with school professionals, challenges to collaboration and recommendations for the role expansion. From these five themes, thirteen sub-themes emerged spontaneously. The findings of this research study indicate that there is a consensus from both child life managers and specialists on the value of expanding their role beyond the hospital. although considered an essential service in some hospitals, further steps need to be taken to ensure child life specialists feel that their services are validated in the hospitals.


2020 ◽  
Vol 40 (3) ◽  
pp. 116-122
Author(s):  
Duygu Kes ◽  
Feray Gökdoğan

Adherence to drug treatment is a multidimensional concept. It is affected by many factors, such as physiological, psychological, family, environmental and social conditions. However, relatively little is known about the relationship between adherence to medication and psychosocial adjustment. The aim was to explore the relationship between adherence to antidiabetic drugs and the psychosocial adjustment of patients with type 2 diabetes mellitus. This cross-sectional descriptive correlational study was conducted between March and June 2018. A convenience sample of participants was recruited from seven internal disease outpatient clinics at a public tertiary hospital, located in a large city that serves as a gateway to nearby rural and urban areas in the north-west region of Turkey. Data were collected using the Adherence to Refills and Medications Scale (ARMS-7), and the Psychosocial Adjustment to Illness Scale–Self Report (PAIS–SR). This study is reported in accordance with STROBE. Pearson’s correlation analysis found a significant weak positive correlation between all domains of the PAIS–SR and the total scores on the ARMS‐7. The participants’ scores on medication refill were found to be significantly and positively correlated with all of the PAIS–SR domain scores except the sexual relationships domain. Psychosocial care could play a crucial role in improving drug regimen adherence among patients with diabetes. Therefore, nurses should integrate psychosocial care into daily practice.


2021 ◽  
Vol 74 (1) ◽  
Author(s):  
Alessia Diana ◽  
Sylvia Snijders ◽  
Alison Rieple ◽  
Laura Ann Boyle

Abstract Background In addressing the threat of antimicrobial resistance, it is critical to understand the barriers to the uptake of strategies for the reduction of antimicrobial use (AMU) in the pig industry. In several EU countries, factors such as education level, habits and social pressures are recognised as affecting farmers’ decision-making process in relation to AMU. However, there is a lack of information on the Irish scenario. The aim of this study was to investigate pig farmers’ perspectives and their behaviour towards AMU to identify potential barriers to effectively reduce AMU in Irish pig production. We conducted face-to-face semi-structured interviews with 30 pig farmers, 5 pig veterinarians and 4 focus groups of pig farm personnel. We employed qualitative analyses to explore the objective of the study. Results Qualitative analysis revealed six convergent themes as potential barriers: perceptions about the need for AMU on farm, concept of animal welfare and associated management practices, legislation, culture, economics and standards of communication/type of advice-network. Overall, pig farmers believed that there is poor communication between stakeholders (i.e. farmers, vets and advisors) and a lack of reliable people to approach for advice. They considered themselves as operating responsibly in terms of AMU compared to their national and international colleagues and expressed the importance of a so-called ‘Irish solution’ to the problem of AMU because it was associated with what ‘has always been done’ and was therefore considered reliable and safe. Conclusions Barriers and challenges were in line with those identified in other EU countries highlighting similarities in behavioural and attitudinal patterns among pig farmers. Overall, farmers appeared to be more likely to rely on previous experiences or to wait for an imposed change (e.g. legislation) instead of taking personal action. Thus, considerable behavioural and attitudinal changes are needed to adopt a more responsible AMU in Irish pig production and to develop effective intervention strategies.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 60-61
Author(s):  
Johan Suen

Abstract For holistic interventions and research on dementia, it is fundamental to understand care experiences from the perspectives of carers, care recipients, and care professionals. While research on care dyads and triads have highlighted the effects of communication and interactional aspects on care relationships, there is a lack of knowledge on how individual-contextual and relational factors shape the provision and receipt of care in terms of decision-making processes, resource allocation, and expectations of care outcomes. Thus, this paper sheds light on (i) how carers negotiate care provision with other important life domains such as employment, household/family roles and conflicts, as well as their own health problems, life goals, values, and aspirations for ageing; (ii) how older adults with dementia perceive support and those who provide it; (iii) the structural constraints faced by care professionals in delivering a team-based mode of dementia care; and, taken together, (iv) how community-based dementia care is impeded by barriers at the individual, relational, and institutional levels. Findings were derived from semi-structured interviews and observational data from fieldwork conducted with 20 persons with dementia (median age = 82), 20 of their carers (median age = 60), and 4 professional care providers. All respondents were clients and staff of a multidisciplinary and community-based dementia care system in Singapore. Our analysis indicates the impact of dementia care is strongly mediated by the interplay between institutional/familial contexts of care provision and the various ‘orientations’ to cognitive impairment and seeking support, which we characterised as ‘denial/acceptance’, ‘obligated’, ‘overprotective’, and ‘precariously vulnerable’.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Heleen Vermandere ◽  
Santiago Aguilera-Mijares ◽  
Liliane Martínez-Vargas ◽  
M. Arantxa Colchero ◽  
Sergio Bautista-Arredondo

Abstract Background Assisted partner notification services (APNS) may increase HIV testing, early diagnosis, and treatment, but they are not formally implemented in Mexico, where the HIV epidemic is concentrated in men who have sex with men (MSM) and transwomen (TW). This study aimed to explore the awareness of and need for HIV partner notification, as well as to outline potential strategies for APNS based on identified barriers and facilitators. Methods We conducted semi-structured interviews to explore partner notification with MSM, TW, and counselors. Afterwards, brainstorm sessions were carried out to produce strategies for implementing APNS. Results Most participants reported experiences with informal partner notification and serostatus disclosure, but not with APNS. Only one counselor indicated assisting notification systematically. The main barriers for notifying or disclosing mentioned by both MSM and TW included fear of (violent) reactions, discrimination and lacking contact information of casual partners. Participants thought it was easier to inform a formal partner, conditional of being well informed about HIV. Given current stigma and lack of awareness, it was suggested that APNS should be preceded by HIV awareness efforts, and be provided by counselors or peers to mitigate potential rejection or violent reactions. Conclusions While APNS are not formally implemented in Mexico, all participants supported the service, indicating that APNS could potentially enhance early HIV diagnosis in Mexico. Strategies to implement such services need to be flexible addressing the individual needs of participants, guaranteeing the safety of more vulnerable participants.


2021 ◽  
pp. 000348942199691
Author(s):  
Gabriela DeVries ◽  
Megan Rudolph ◽  
Howard David Reines ◽  
Philip E. Zapanta

Objectives: The Accreditation Council for Graduate Medical Education has guidelines on assessing surgical qualifications based on experience. Attending surgeons have various assumptions on how their trainees learn and acquire surgical skills. This study primarily investigates the resident’s perspective on gaining experience and achieving competency in thyroid surgical procedures. Methods: A qualitative study using semi-structured interviews was designed to derive themes that discuss the acquisition of competency in thyroid surgery. After IRB approval, data was collected from 2012 to 2014 at 4 academic centers in the Washington, DC area. Fourteen chief residents specializing in either general surgery or otolaryngology were interviewed until saturation was achieved. These semi-structured interviews were transcribed and broken up into codes utilizing Moustakas’ analysis. A comprehensive list of master themes in regards to achieving competency in thyroid surgery was developed. A follow up survey of the surgeons was undertaken at 5 years to determine if the perceptions during residency persisted in practice. Results: Surgical specialty residents experience and learn thyroid surgery in 5 learning themes: 1. Self—directed learning is significant during residency. 2. Repetition with graduated autonomy is key. 3. Effective mentors are competent surgeons who challenge residents and use positive teaching techniques. 4. Residents employ active learning through the “see one, do one, teach one” philosophy. 5. Learning from complexity is of importance to residency training. After several years in practice, the most important theme in learning after residency was repetition of cases. Conclusions: This study demonstrates how residents progress in approaching competency in thyroid surgery. Adult learning strategies are preferred, and programs should incorporate tailored techniques to meet the individual needs of the residents. Perceptions of what is most important shifted in long-term follow up. Further study is needed to assure competency in residency and in practice.


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