Health Surveillance along with Application of Age-based Scheduled Training Program for Down syndrome

2019 ◽  
Vol 1 (1) ◽  
pp. 1-7
Author(s):  
Soheir S. Abou El Ella ◽  
Wafaa Mostafa Abo El Fotoh ◽  
Sally Ali Ibrahim
Keyword(s):  
Training Program ◽  
Age Groups ◽  
Hip Dislocation ◽  
Deficiency Anemia ◽  
Feeding Problems ◽  
Training Plan ◽  
The Family ◽  
Overall Functioning ◽  
Urinary Control

Rehabilitation of the family of DS child to provide long-standing follow-up and support as well as the early detection of different health problems. A prospective observational study was accomplished on 65 children with DS selected randomly from the outpatient clinic of pediatric genetics. Application of Health Supervision Guidelines for Individuals with DS for specialized management and monitoring based on different of age groups. Also, the parents of DS children underwent scheduled training plan for solving their children difficulties as hypotonia and associated problem as feeding problem, cervical spine problem and hip dislocation by doing prefeeding exercises and some home physiotherapy in weekly visits. Then these children were evaluated at the end of every four months to assess outcome and retraining of the caregivers as needed. The prevalence of the most associated health problem with DS was the speech difficulty followed by iron deficiency anemia, medically treated ear problems , physical disability , urinary and bowel incontinence ,feeding problems, hypothyroidism and bilateral SNHL (72%, 64.6% , 35%, 33%, 29.2%, 24.6%, 16.9%, 10.7% respectively). After application of our scheduled training program, 84% of trained parents carried out prefeeding exercises, 86% of children showed adequate positioning during feeding as well as improved child cooperation during feeding. Furthermore, 84% got balanced nutritious diet. 68% of children developed urinary control by daytime whereas 60% developed urinary control by day and night. 81% showed improvement in bowel control by decreased frequency of encopresis. An effective early intervention, positive home environment and continuous supportive training of mothers of children with DS are helpful in improving the overall functioning and productivity of these children.

CORRESPONDENCE RE IRON FORTIFIED FORMULAS

PEDIATRICS ◽  
1971 ◽  
Vol 48 (1) ◽  
pp. 152-156
Keyword(s):  
Iron Deficiency ◽  
American Academy ◽  
Training Program ◽  
Deficiency Anemia ◽  
Feeding Problems ◽  
Older Children ◽  
Letters To The Editor ◽  
American Academy Of Pediatrics ◽  
Iron Deficient ◽  
Short Time

Beside two Letters to the Editor on this subject (p. 158) the Academy and its Committee on Nutrition have received others of which the following are representative. To avoid printing the Chairman's comments twice, Dr. Filer's response to all printed letters appears after those here presented. Committee on Nutrition American Academy of Pediatrics P.O. Box 1034 Evanston, Illinois 60204 Dear Sirs: I couldn't agree less with your statement on iron fortified formulas. Rarely do I see iron deficiency anemia in my practice. I put prematures on formula with iron; rarely others, and don't intend to. The older children with anemia due to iron deficiency already are usually feeding problems with the wrong diet, as I'm sure you will agree. They need their diet changed, not the misleading idea that continuing with milk containing small amounts of iron is needed. "The knowledge and means to prevent iron deficiency" have been with us for years. This new idea is not needed (except maybe in some poor clinics: even there proper diet is more needed). William B. Schafer, M.D. 4515 Castle Road La Can, California 91011 L. J. Filer, M.D., Chairman Committee on Nutrition American Academy of Pediatrics Dear Doctor Filer: A short time ago I received a Committee Statement regarding Iron-Fortified Formulas. The position taken by this Committee certainly is not clear to me as a practicing pediatrician. During our training program it was found that many of the children present on the newborn service were iron deficient. Certainly, the clientele in a general hospital is somewhat different from the clientele of a suburban practice.

scholarly journals Inside Tutor Capabilities Utilizing Media Training Learning Bridal

2021 ◽  
Vol 9 (1) ◽  
pp. 57-61
Author(s):  
Theresia Okta Veralita Purba
Keyword(s):  
Training Program ◽  
Internal Factors ◽  
Training Plan ◽  
Evaluation Phase ◽  
Overall Evaluation ◽  
The Media ◽  
Three Stages ◽  
Initial Preparation ◽  
Internal And External Factors

Tutor's Ability to Utilize Learning Media for Bridal Makeup Training Program at LKP Ulfah Karawang. The ability of tutors to use instructional media at the time of implementation is already in the skilled stage. In conducting the training there are three stages, namely planning, implementation and evaluation. The cosmetology training plan includes initial preparation with activities that include preparing modules as teaching material to be delivered by tutors, reviewing the material to be delivered and preparing examples of Sundanese-style bridal fashion and facial sketch media. In the implementation of tutors utilizing media that has been prepared beforehand, and in the delivery of material the tutor uses examples of Sundanesestyle bridal clothing and facial sketch media. The next stage is evaluation, the evaluation is centered on the tutor because only the tutor evaluates. Evaluation is carried out at each meeting to determine the ability of learning citizens. The overall evaluation was conducted at the last meeting, namely the makeup competency test. The overall evaluation phase tutors judge based on the results because if the results are appropriate then the makeup technique is correct and the media utilization is correct. The inhibiting factor in utilizing the learning media of LKP Ulfah's bridal make up training program comes from internal and external factors. Internal factors that arise obstacles are the nature of what it is in utilizing learning media, while the external factor is the limited space and the limited media used. In preparation, implementation and follow-up in utilizing tutor learning media is less than optimal.Keywords: the ability of tutors, learning media

Management of Haemophilia in Sweden

1976 ◽  
Vol 35 (03) ◽  
pp. 510-521 ◽  
Author(s):  
Inga Marie Nilsson
Keyword(s):  
Factor Viii ◽  
Total Population ◽  
Age Groups ◽  
Factor Ix ◽  
Haemophilia A ◽  
Severe Haemophilia ◽  
Haemophilia B ◽  
Human Fraction ◽  
Mild Haemophilia

SummaryThe incidence of living haemophiliacs in Sweden (total population 8.1 millions) is about 1:15,000 males and about 1:30,000 of the entire population. The number of haemophiliacs born in Sweden in 5-year periods between 1931-1975 (June) has remained almost unchanged. The total number of haemophilia families in Sweden is 284 (77% haemophilia A, 23% haemophilia B) with altogether 557 (436 with A and 121 with B) living haemophiliacs. Of the haemophilia A patients 40 % have severe, 18 % moderate, and 42 % mild, haemophilia. The distribution of the haemophilia B patients is about the same. Inhibitors have been demonstrated in 8% of the patients with severe haemophilia A and in 10% of those with severe haemophilia B.There are 2 main Haemophilia Centres (Stockholm, Malmo) to which haemophiliacs from the whole of Sweden are admitted for diagnosis, follow-up and treatment for severe bleedings, joint defects and surgery. Minor bleedings are treated at local hospitals in cooperation with the Haemophilia Centres. The concentrates available for treatment in haemophilia A are human fraction 1-0 (AHF-Kabi), cryoprecipitate, Antihaemophilic Factor (Hyland 4) and Kryobulin (Immuno, Wien). AHF-Kabi is the most commonly used preparation. The concentrates available for treatment in haemophilia B are Preconativ (Kabi) and Prothromplex (Immuno). Sufficient amounts of concentrates are available. In Sweden 3.2 million units of factor VIII and 1.0 million units of factor IX are given per year. Treatment is free of charge.Only 5 patients receive domiciliary treatment, but since 1958 we in Sweden have practised prophylactic treatment of boys (4–18 years old) with severe haemophilia A. At about 5-10 days interval they receive AHF in amounts sufficient to raise the AHF level to 40–50%. This regimen has reduced severe haemophilia to moderate. The joint score is identical with that found in moderate haemophilia in the same age groups. For treatment of patients with haemophilia A and haemophilia B complicated by inhibitors we have used a large dose of antigen (factor VIII or factor IX) combined with cyclophosphamide. In most cases this treatment produced satisfactory haemostasis for 5 to 30 days and prevented the secondary antibody rise.

Information Practices of Baby Boomers as Caregivers

2013 ◽  
Author(s):  
Khuan Seow ◽  
Nadia Caidi
Keyword(s):  
Social Policy ◽  
Baby Boomers ◽  
Information Needs ◽  
Family Members ◽  
Age Groups ◽  
Maladie D’Alzheimer ◽  
Policy Makers ◽  
Age Related ◽  
The Family ◽  
Growing Age

Canada has an aging population with the fastest growing age groups (80 and 45-64 years old) vulnerable to age-related diseases such as Alzheimer’s disease. Caregiving responsibilities often fall to the family members of the afflicted without much attention and consideration being placed on the information needs of these caregivers. We call for a better understanding of these caregivers' information needs and uses by social policy makers as well as information providers.La population du Canada a tendance à vieillir considérablement, avec la hausse la plus rapide dans les groupes d’âge (80 et 45 à 64 ans). Les personnes âges sont très vulnérables à toute sorte de maladies, telles que la maladie d’Alzheimer. La responsabilité revient souvent aux membres de la famille qui doivent prendre soin des personnes atteintes de cette maladie. Or, nous ne connaissons que peu de chose sur les besoins en information des personnes qui prennent soin de ces malades de l’Alzheimer : qui sont-ils ? Quelles sont leurs sources... 

scholarly journals The Family Psychoeducation Fidelity Scale: Psychometric Properties

2020 ◽  
Vol 47 (6) ◽  
pp. 894-900 ◽  
Author(s):  
I. Joa ◽  
J. O. Johannessen ◽  
K. S. Heiervang ◽  
A. A. Sviland ◽  
H. A. Nordin ◽  
...  
Keyword(s):  
Psychometric Properties ◽  
Internal Consistency ◽  
Interrater Reliability ◽  
Review Process ◽  
Trial Registration ◽  
Family Psychoeducation ◽  
Time Points ◽  
The Family ◽  
Fidelity Scale

Abstract This study examined psychometric properties and feasibility of the Family Psychoeducation (FPE) Fidelity Scale. Fidelity assessors conducted reviews using the FPE fidelity scale four times over 18 months at five sites in Norway. After completing fidelity reviews, assessors rated feasibility of the fidelity review process. The FPE fidelity scale showed excellent interrater reliability (.99), interrater item agreement (88%), and internal consistency (mean = .84 across four time points). By the 18-month follow-up, all five sites increased fidelity and three reached adequate fidelity. Fidelity assessors rated feasibility as excellent. The FPE fidelity scale has good psychometric properties and is feasible for evaluating the implementation of FPE programs. Trial registration ClinicalTrials.gov Identifier: NCT03271242.

A Family Training Program for Adventitiously Blinded and Low Vision Veterans

1984 ◽  
Vol 78 (10) ◽  
pp. 473-478 ◽  
Author(s):  
Arlene Dumas ◽  
Alan D. Sadowsky
Keyword(s):  
Training Program ◽  
Exploratory Study ◽  
Marked Reduction ◽  
Interpersonal Relations ◽  
Low Vision ◽  
Family Members ◽  
Rehabilitation Center ◽  
Rehabilitation Process ◽  
The Family ◽  
Sight Loss

The family training program at the Western Blind Rehabilitation Center is an integral part of the rehabilitation process for adventitiously blinded and low vision adults. An exploratory study was conducted to assess which aspects of the training were most outstanding and to inquire how the program affected interpersonal relations and attitudes towards sight loss. Results showed a marked reduction in stated problems immediately after the training and over a three-and-a-half-year period of time. The study demonstrates similar benefits for older family members, those receiving shortened programs, and those who have been living with sight loss for many years.

Porous tantalum acetabular cups for reconstructions after peri-acetabular resections of primary bone tumours

2021 ◽  
pp. 112070002110015
Author(s):  
Riccardo Zucchini ◽  
Andrea Sambri ◽  
Claudio Giannini ◽  
Michele Fiore ◽  
Carlotta Calamelli ◽  
...  
Keyword(s):  
Bone Tumour ◽  
Hip Dislocation ◽  
Functional Results ◽  
Bone Tumours ◽  
Harris Hip Score ◽  
Porous Tantalum ◽  
Term Survival ◽  
Primary Bone ◽  
Primary Bone Tumours

Introduction: Periacetabular reconstruction after resection of primary bone tumour is a very demanding procedure. They are frequently associated with scarce functional results and a high rate of complications. We report a series of patients with periacetabular resections for primary bone tumours and reconstruction with a porous tantalum (PT) acetabular cup (AC). Materials and methods: 27 patients (median age 30 years) were included, being affected by primary bone tumours of the pelvis and treated with peri-acetabular resection and reconstruction with a PT AC. The diagnoses were 13 osteosarcomas, 7 chondrosarcomas and 7 Ewing sarcomas. Function was assessed with the Harris Hip Score and complications were classified according to Zeifang. Results: The median follow-up was 70 months. 1 patient required removal of the PT AC because of implant associated infection 55 months after surgery. There was 1 hip dislocation and no case of aseptic loosening. At final follow-up, the median HHS was 81 points (range 48–92). Conclusions: The used PT AC had good medium-term survival rates and good functional results. This technique is a viable reconstructive option after resections of periacetabular primary bone sarcomas.

scholarly journals Incidence of Plasmodium falciparum malaria infection in 6-month to 45-year-olds on selected areas of Bioko Island, Equatorial Guinea

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Vicente Urbano Nsue Ndong Nchama ◽  
Ali Hamad Said ◽  
Ali Mtoro ◽  
Gertrudis Owono Bidjimi ◽  
Marta Alene Owono ◽  
...  
Keyword(s):  
Plasmodium Falciparum ◽  
Malaria Control ◽  
Malaria Infection ◽  
Age Groups ◽  
Control Measures ◽  
Equatorial Guinea ◽  
Safety And Efficacy ◽  
Bioko Island ◽  
Malaria Vaccines

Abstract Background Extensive malaria control measures have been implemented on Bioko Island, Equatorial Guinea over the past 16 years, reducing parasite prevalence and malaria-related morbidity and mortality, but without achieving elimination. Malaria vaccines offer hope for reducing the burden to zero. Three phase 1/2 studies have been conducted successfully on Bioko Island to evaluate the safety and efficacy of whole Plasmodium falciparum (Pf) sporozoite (SPZ) malaria vaccines. A large, pivotal trial of the safety and efficacy of the radiation-attenuated Sanaria® PfSPZ Vaccine against P. falciparum is planned for 2022. This study assessed the incidence of malaria at the phase 3 study site and characterized the influence of socio-demographic factors on the burden of malaria to guide trial design. Methods A cohort of 240 randomly selected individuals aged 6 months to 45 years from selected areas of North Bioko Province, Bioko Island, was followed for 24 weeks after clearance of parasitaemia. Assessment of clinical presentation consistent with malaria and thick blood smears were performed every 2 weeks. Incidence of first and multiple malaria infections per person-time of follow-up was estimated, compared between age groups, and examined for associated socio-demographic risk factors. Results There were 58 malaria infection episodes observed during the follow up period, including 47 first and 11 repeat infections. The incidence of malaria was 0.25 [95% CI (0.19, 0.32)] and of first malaria was 0.23 [95% CI (0.17, 0.30)] per person per 24 weeks (0.22 in 6–59-month-olds, 0.26 in 5–17-year-olds, 0.20 in 18–45-year-olds). Incidence of first malaria with symptoms was 0.13 [95% CI (0.09, 0.19)] per person per 24 weeks (0.16 in 6–59-month-olds, 0.10 in 5–17-year-olds, 0.11 in 18–45-year-olds). Multivariate assessment showed that study area, gender, malaria positivity at screening, and household socioeconomic status independently predicted the observed incidence of malaria. Conclusion Despite intensive malaria control efforts on Bioko Island, local transmission remains and is spread evenly throughout age groups. These incidence rates indicate moderate malaria transmission which may be sufficient to support future larger trials of PfSPZ Vaccine. The long-term goal is to conduct mass vaccination programmes to halt transmission and eliminate P. falciparum malaria.

scholarly journals A case report of femoral head fracture with osteochondral lesion treated by osteosynthesis and biomimetic scaffold: 2-year clinical and radiological follow-up

2021 ◽  
Vol 8 (1) ◽  
Author(s):  
Alessandro Casiraghi ◽  
Claudio Galante ◽  
Marco Domenicucci ◽  
Stefano Cattaneo ◽  
Andrea Achille Spreafico ◽  
...  
Keyword(s):  
Case Report ◽  
Femoral Head ◽  
Articular Surface ◽  
Osteochondral Lesion ◽  
Hip Dislocation ◽  
Fracture Dislocation ◽  
Osteochondral Lesions ◽  
Femoral Head Fracture ◽  
Osteochondral Scaffold

AbstractThe aim of the present study was to present clinical and radiological outcome of a hip fracture-dislocation of the femoral head treated with biomimetic osteochondral scaffold.An 18-year-old male was admitted to the hospital after a motorcycle-accident. He presented with an obturator hip dislocation with a type IVA femoral head fracture according to Brumback classification system. The patient underwent surgery 5 days after accident. The largest osteochondral fragment was reduced and stabilized with 2 screws, and the small fragments were removed. The residual osteochondral area was replaced by a biomimetic nanostructured osteochondral scaffold. At 1-year follow-up the patient did not complain of hip pain and could walk without limp. At 2-year follow-up he was able to run with no pain and he returned to practice sports. Repeated radiographs and magnetic resonance imaging studies of the hip showed no signs of osteoarthritis or evidence of avascular necrosis. A hyaline-like signal on the surface of the scaffold was observed with restoration of the articular surface and progressive decrease of the subchondral edema.The results of the present study showed that the biomimetic nanostructured osteochondral scaffold could be a promising and safe option for the treatment of traumatic osteochondral lesions of the femoral head.Study Design: Case report.

scholarly journals Effects of multi-domain cognitive training on working memory retrieval in older adults: behavioral and ERP evidence from a Chinese community study

2021 ◽  
Vol 11 (1) ◽  
Author(s):  
Xiangfei Hong ◽  
You Chen ◽  
Jijun Wang ◽  
Yuan Shen ◽  
Qingwei Li ◽  
...  
Keyword(s):  
Older Adults ◽  
Working Memory ◽  
Training Program ◽  
Cognitive Training ◽  
Local Community ◽  
Training Group ◽  
Event Related Potential ◽  
Control Group ◽  
Baseline Session

AbstractWorking memory (WM) is a fundamental cognitive function that typically declines with age. Previous studies have shown that targeted WM training has the potential to improve WM performance in older adults. In the present study, we investigated whether a multi-domain cognitive training program that was not designed to specifically target WM could improve the behavioral performance and affect the neural activity during WM retrieval in healthy older adults. We assigned healthy older participants (70–78 years old) from a local community into a training group who completed a 3-month multi-domain cognitive training and a control group who only attended health education lectures during the same period. Behavioral and electroencephalography (EEG) data were recorded from participants while performing an untrained delayed match or non-match to category task and a control task at a pre-training baseline session and a post-training follow-up session. Behaviorally, we found that participants in the training group showed a trend toward greater WM performance gains than participants in the control group. Event-related potential (ERP) results suggest that the task-related modulation of P3 during WM retrieval was significantly enhanced at the follow-up session compared with the baseline session, and importantly, this enhancement of P3 modulation was only significant in the training group. Furthermore, no training-related effects were observed for the P2 or N2 component during WM retrieval. These results suggest that the multi-domain cognitive training program that was not designed to specifically target WM is a promising approach to improve WM performance in older adults, and that training-related gains in performance are likely mediated by an enhanced modulation of P3 which might reflect the process of WM updating.

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