Everyday Functioning in a Community-Based Volunteer Population: Differences Between Participant- and Study Partner-Report

Introduction: Impaired awareness in dementia caused by Alzheimer’s disease and related disorders made study partner-report the preferred method of measuring interference in “instrumental activities of daily living” (IADL). However, with a shifting focus toward earlier disease stages and prevention, the question arises whether self-report might be equally or even more appropriate. The aim of this study was to investigate how participant- and study partner-report IADL perform in a community-based volunteer population without dementia and which factors relate to differences between participant- and study partner-report.Methods: Participants (N = 3,288; 18–97 years, 70.4% females) and their study partners (N = 1,213; 18–88 years, 45.8% females) were recruited from the Dutch Brain Research Registry. IADL were measured using the Amsterdam IADL Questionnaire. The concordance between participant- and study partner-reported IADL difficulties was examined using intraclass correlation coefficient (ICC). Multinomial logistic regressions were used to investigate which demographic, cognitive, and psychosocial factors related to participant and study partner differences, by looking at the over- and underreport of IADL difficulties by the participant, relative to their study partner.Results: Most A-IADL-Q scores represented no difficulties for both participants (87.9%) and study partners (89.4%). The concordance between participants and study partners was moderate (ICC = 0.55, 95% confidence interval [CI] = [0.51, 0.59]); 24.5% (N = 297) of participants overreported their IADL difficulties compared with study partners, and 17.8% (N = 216) underreported difficulties. The presence of depressive symptoms (odds ratio [OR] = 1.31, 95% CI = [1.12, 1.54]), as well as memory complaints (OR = 2.45, 95% CI = [1.80, 3.34]), increased the odds of participants overreporting their IADL difficulties. Higher IADL ratings decreased the odds of participant underreport (OR = 0.71, 95% CI = [0.67, 0.74]).Conclusion: In this sample of community-based volunteers, most participants and study partners reported no major IADL difficulties. Differences between participant and study partner were, however, quite prevalent, with subjective factors indicative of increased report of IADL difficulties by the participant in particular. These findings suggest that self- and study partner-report measures may not be interchangeable, and that the level of awareness needs to be considered, even in cognitively healthy individuals.

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Everyday functioning in a community-based volunteer population: Differences between participant- and study partner-report

10.1101/2021.11.01.21265650 ◽

2021 ◽

Author(s):

Merike Verrijp ◽

Mark A Dubbelman ◽

Leonie N.C. Visser ◽

Roos J Jutten ◽

Elke W Nijhuis ◽

...

Keyword(s):

Daily Living ◽

Brain Research ◽

Intraclass Correlation ◽

Self Report ◽

Everyday Functioning ◽

Community Based ◽

Study Partner ◽

Impaired Awareness ◽

Logistic Regressions ◽

Disease Stages

INTRODUCTION: Impaired awareness in dementia due to Alzheimers disease and related disorders, made study partner-report the preferred method of measuring interference in instrumental activities of daily living (IADL). However, with a shifting focus towards earlier disease stages and prevention, the question arises whether self report might be equally or even more appropriate. This study aims to investigate how participant and study partner report IADL perform in a community based volunteer population without dementia, and which factors relate to differences between participant and study partner report. METHODS: Participants (N=3288; 18 to 97 years, 70.4% females) and their study partners (N=1213; 18 to 88 years, 45.8% females) were recruited from the Dutch brain research registry. IADL was measured using the Amsterdam IADL Questionnaire. Concordance between participant and study partner-reported IADL difficulties was examined using intraclass correlation coefficient (ICC). Multinomial logistic regressions were used to investigate which demographic, cognitive and psychosocial factors related to participant and study partner differences, by looking at the over and underreport of IADL difficulties by the participant, relative to their study partner. RESULTS: The vast majority of Amsterdam IADL scores represented no difficulties for both participants (87.9%) and study partners (89.4%). Concordance between participants and study partners was moderate (ICC=.55, 95%CI=[.51, .59]), 24.5% (N=297) of participants overreported their IADL difficulties compared to study partners, and 17.8% (N=216) underreported difficulties. The presence of depressive symptoms (odds ratio (OR)=1.31, 95%CI=[1.12, 1.54]), as well as memory complaints (OR=2.45, 95%CI=[1.80, 3.34]), increased the odds of participants overreporting their IADL difficulties. Higher IADL ratings decreased the odds of participant underreport (OR=0.71, 95%CI=[0.67, 0.74]). CONCLUSION: In this sample of community based volunteers, the majority of participants and study partners reported no major IADL difficulties. Differences between participant and study partner were, however, quite prevalent, with subjective factors indicative of increased report of IADL difficulties by the participant in particular. These findings suggest that self and study partner report measures may not be interchangeable, and that the level of awareness needs to be taken into account, even in cognitively healthy individuals.

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Exploratory Review: Self-Report IADL Assessments in the age of Internet-Connected Assistive Devices

OTJR Occupation Participation and Health ◽

10.1177/1539449220940001 ◽

2020 ◽

pp. 153944922094000

Author(s):

Abbas H. Quamar ◽

Mark R. Schmeler ◽

Diane M. Collins ◽

Richard M. Schein

Keyword(s):

Activities Of Daily Living ◽

Daily Living ◽

People With Disabilities ◽

Assistive Devices ◽

Self Report ◽

Inclusion Criteria ◽

Everyday Functioning ◽

Clinical Applicability ◽

Instrumental Activities

Internet-Connected Assistive Devices (iCAD), like accessible smartphones, tablets, computers, and apps, have become an integral part of everyday functioning for people with disabilities (PWD). The objective of this article was to identify self-report assessments having the relevance and clinical applicability for assessing satisfaction with performing Instrumental Activities of Daily Living (IADL) for PWD using iCAD. An exploratory review was conducted to identify self-report assessments that were appropriate, practical, clinically fit, and psychometrically acceptable, for assessing satisfaction with performing IADLs for PWD using iCAD. Thirty-two IADL assessments were identified, of which six met inclusion criteria. Four of six assessments did not specifically address iCAD usage, while two assessments had limited relevance and clinical applicability, for assessing satisfaction with performing IADLs for PWD using iCAD. This review establishes the growing need for a self-report IADL assessment that has been specifically designed and validated for assessing satisfaction with performing IADLs for PWD using iCAD

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Everyday functioning in a community‐based volunteer population: Factors associated with concordance between participant and study partner—Report

Alzheimer s & Dementia ◽

10.1002/alz.055576 ◽

2021 ◽

Vol 17 (S6) ◽

Author(s):

Merike Verrijp ◽

Mark A. Dubbelman ◽

Leonie N.C. Visser ◽

Roos J. Jutten ◽

Elke W Nijhuis ◽

...

Keyword(s):

Everyday Functioning ◽

Community Based ◽

Factors Associated ◽

Study Partner

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A-61 Predictors of Subjective and Objective Everyday Functioning in Middle-Aged and Older Adults with HIV

Archives of Clinical Neuropsychology ◽

10.1093/arclin/acab062.79 ◽

2021 ◽

Vol 36 (6) ◽

pp. 1103-1103

Author(s):

Alexandra E Jacob ◽

Michael Crowe ◽

Pariya L Fazeli ◽

David E Vance

Keyword(s):

Older Adults ◽

Activities Of Daily Living ◽

Functional Capacity ◽

Processing Speed ◽

Daily Living ◽

Self Report ◽

Everyday Functioning ◽

Actual Performance ◽

Factors Associated ◽

Instrumental Activities

Abstract Objective Older adults with HIV are at increased risk for difficulties with instrumental activities of daily living (IADLs). Awareness of their functional capacity has emerged as an important area for research, but it is not well studied in PWH. The purpose of this study is: (1) to identify factors associated with subjective and objective IADL difficulty in PWH and (2) to identify factors associated with under- or over-reporting of IADL difficulties. Methods This cross-sectional study included 261 adults with HIV. Participants completed a neuropsychological battery, self-report and performance-based measures of IADLs. Self-report measures included the Patient’s Assessment of Own Functioning Inventory (PAOFI) and the Lawton and Brody IADL Questionnaire. The Timed Instrumental Activities of Daily Living (TIADL) task was used as an objective measure. Hierarchical multiple regressions were performed to identify factors associated with subjective and objective assessment of everyday functioning as well as factors associated with discrepancy between self-report and actual performance of IADLS. Results On the PAOFI, higher depression (p = 0.001), lower conscientiousness (p > 0.001), and better processing speed (p = 0.017) predicted worse functioning. On the Lawton and Brody, higher depression (p = 0.049) predicted of worse functioning. On the TIADL, older age (p = 0.1), lower WRAT-4 score (p > 0.001), worse processing speed (p > 0.001), and worse motor function (p = 0.1) were associated with worse performance. Processing speed predicted discrepancy between subjective and objective performance of IADLs (p = 0.1). Conclusions Several demographic, cognitive, and personality variables are associated with worse subjective and objective everyday functioning, as well as an individual’s ability to accurately self-appraise their functional capacity.

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Quantifying activities of daily living impairment in Parkinson’s disease using the Functional Activities Questionnaire

Neurological Sciences ◽

10.1007/s10072-021-05365-1 ◽

2021 ◽

Author(s):

Sara Becker ◽

Claire Pauly ◽

Michael Lawton ◽

Geraldine Hipp ◽

Francesca Bowring ◽

...

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease ◽

Cognitive Impairment ◽

Daily Living ◽

Self Report ◽

Group Differences ◽

Functional Activities ◽

Informant Ratings ◽

Self Reports ◽

Logistic Regressions

Abstract Objective Cognitive-driven activity of daily living (ADL) impairment in Parkinson’s disease (PD) is increasingly discussed as prodromal marker for dementia. Diagnostic properties of assessments for this specific ADL impairment are sparsely investigated in PD. The ability of the Functional Activities Questionnaire (FAQ) for differentiating between PD patients with normal cognition and with mild cognitive impairment (PD-MCI), according to informant and self-reports, was examined. Global cognitive function in groups with and without mild ADL impairment was compared according to different cut-offs. Methods Multicenter data of 589 patients of an international cohort (CENTRE-PD) were analyzed. Analyses were run separately for informant-rated and self-rated FAQ. Receiver operating characteristic (ROC) analysis was conducted to define the optimal FAQ cut-off for PD-MCI (≥ 1), and groups were additionally split according to reported FAQ cut-offs for PD-MCI in the literature (≥ 3, ≥ 5). Binary logistic regressions examined the effect of the Montreal Cognitive Assessment (MoCA) score in PD patients with and without mild ADL impairment. Results Two hundred and twenty-five (38.2%) patients were classified as PD-MCI. For all three cut-off values, sensitivity was moderate to low (< 0.55), but specificity was moderately high (> 0.54) with a tendency of higher values for self-reported deficits. For the self-report, the cut-off ≥ 3 showed a significant effect of the MoCA (B = − 0.31, p = 0.003), where FAQ ≥ 3 patients had worse cognition. No effect for group differences based on informant ratings was detected. Conclusion Our data argue that self-reported ADL impairments assessed by the FAQ show a relation to the severity of cognitive impairment in PD.

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Comparing Performance Across In-person and Videoconference-Based Administrations of Common Neuropsychological Measures in Community-Based Survivors of Stroke

Journal of the International Neuropsychological Society ◽

10.1017/s1355617720001174 ◽

2020 ◽

pp. 1-14

Author(s):

Jodie E. Chapman ◽

Betina Gardner ◽

Jennie Ponsford ◽

Dominique A. Cadilhac ◽

Renerus J. Stolwyk

Keyword(s):

Neuropsychological Assessment ◽

Language Impairment ◽

Repeated Measures ◽

Verbal Learning ◽

Intraclass Correlation ◽

Correlation Coefficients ◽

Preliminary Evidence ◽

Service Access ◽

Community Based ◽

Neuropsychological Measures

Abstract Objective: Neuropsychological assessment via videoconference could assist in bridging service access gaps due to geographical, mobility, or infection control barriers. We aimed to compare performances on neuropsychological measures across in-person and videoconference-based administrations in community-based survivors of stroke. Method: Participants were recruited through a stroke-specific database and community advertising. Stroke survivors were eligible if they had no upcoming neuropsychological assessment, concurrent neurological and/or major psychiatric diagnoses, and/or sensory, motor, or language impairment that would preclude standardised assessment. Thirteen neuropsychological measures were administered in-person and via videoconference in a randomised crossover design (2-week interval). Videoconference calls were established between two laptop computers, facilitated by Zoom. Repeated-measures t tests, intraclass correlation coefficients (ICCs), and Bland–Altman plots were used to compare performance across conditions. Results: Forty-eight participants (26 men; M age = 64.6, SD = 10.1; M time since stroke = 5.2 years, SD = 4.0) completed both sessions on average 15.8 (SD = 9.7) days apart. For most measures, the participants did not perform systematically better in a particular condition, indicating agreement between administration methods. However, on the Hopkins Verbal Learning Test – Revised, participants performed poorer in the videoconference condition (Total Recall Mdifference = −2.11). ICC estimates ranged from .40 to .96 across measures. Conclusions: This study provides preliminary evidence that in-person and videoconference assessment result in comparable scores for most neuropsychological tests evaluated in mildly impaired community-based survivors of stroke. This preliminary evidence supports teleneuropsychological assessment to address service gaps in stroke rehabilitation; however, further research is needed in more diverse stroke samples.

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Clinical Profiles and Socio-Demographic Characteristics of Adults with Specific Learning Disorder in Northern Greece

Brain Sciences ◽

10.3390/brainsci11050602 ◽

2021 ◽

Vol 11 (5) ◽

pp. 602

Author(s):

Eleni Bonti ◽

Sofia Giannoglou ◽

Marianthi Georgitsi ◽

Maria Sofologi ◽

Georgia-Nektaria Porfyri ◽

...

Keyword(s):

Adult Population ◽

Relevant Literature ◽

Well Being ◽

Demographic Characteristics ◽

Self Report ◽

Learning Disorder ◽

Northern Greece ◽

Everyday Functioning ◽

Specific Learning Disorder ◽

Specific Learning

The manifestation of Specific Learning Disorder (SLD) during adulthood is one of the least examined research areas among the relevant literature. Therefore, the adult population with SLD is considered a “rare” and “unique” population of major scientific interest. The aim of the current study was to investigate, describe, and analyze the clinical, academic, and socio-demographic characteristics, and other everyday functioning life-skills of adults with SLD, in an attempt to shed more light on this limited field of research. The overall sample consisted of 318 adults, who were assessed for possible SLD. The diagnostic procedure included self-report records (clinical interview), psychometric/cognitive, and learning assessments. The main finding of the study was that SLD, even during adulthood, continues to affect the individuals’ well-being and functionality in all of their life domains. There is an ongoing struggle of this population to obtain academic qualifications in order to gain vocational rehabilitation, as well as a difficulty to create a family, possibly resulting from their unstable occupational status, their financial insecurity, and the emotional/self-esteem issues they usually encounter, due to their ongoing learning problems. Moreover, the various interpersonal characteristics, the comorbidity issues, and the different developmental backgrounds observed in the clinical, academic, personal, social, and occupational profiles of the participants, highlight the enormous heterogeneity and the continuum that characterizes SLD during adulthood. We conclude that there is an imperative need for further research and the construction of more sufficient tools for the assessment and diagnosis of SLD during adulthood, which will take into account the developmental challenges and milestones in a series of domains, in order to assist this “vulnerable” population with their life struggles.

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Promoting Stair Climbing as an Exercise Routine among Healthy Older Adults Attending a Community-Based Physical Activity Program

Sports ◽

10.3390/sports7010023 ◽

2019 ◽

Vol 7 (1) ◽

pp. 23 ◽

Cited By ~ 3

Author(s):

Nobuko Hongu ◽

Mieko Shimada ◽

Rieko Miyake ◽

Yusuke Nakajima ◽

Ichirou Nakajima ◽

...

Keyword(s):

Physical Activity ◽

Older Adults ◽

Muscle Strength ◽

Daily Living ◽

Stair Climbing ◽

Community Based ◽

Healthy Older Adults ◽

Exercise Routine ◽

Before And After ◽

Leg Muscle

Stair climbing provides a feasible opportunity for increasing physical activity (PA) in daily living. The purpose of this study was to examine the daily walking and stair-climbing steps among healthy older adults (age: 74.0 ± 4.9 years; Body Mass Index (BMI): 22.3 ± 2.5 kg/m2). Participants (34 females and 15 males) attended a weekly 6-month community-based PA program. During the entire program period, daily walking and stair-climbing steps were recorded using a pedometer (Omron, HJA-403C, Kyoto, Japan). Before and after the 6-month program, height, body weight and leg muscle strength were assessed. After the 6-month program, the mean walking and stair-climbing steps in both women and men increased significantly (p ≤ 0.01). Daily stair-climbing steps increased about 36 steps in women and 47 steps in men. At the end of 6 months, only male participants had significant correlation between the number of stair steps and leg muscle strength (r = 0.428, p = 0.037). This study reported that healthy older adults attending the community-based PA program had regular stair-climbing steps during daily living. Promoting stair climbing as an exercise routine was feasible to increase their walking and stair-climbing steps.

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Psychometric properties of a self-report version of the Sexual Interest and Desire Inventory for Women (SIDI-F-SR)

10.31219/osf.io/8ghda ◽

2020 ◽

Cited By ~ 1

Author(s):

Julia Velten ◽

Gerrit Hirschfeld ◽

Milena Meyers ◽

Jürgen Margraf

Keyword(s):

Psychometric Properties ◽

Internal Consistency ◽

Sexual Interest ◽

Intraclass Correlation ◽

Self Report ◽

Clinical Psychologist ◽

Retest Reliability ◽

Absolute Agreement ◽

Test Retest Reliability ◽

Restriction Of Range

Background: The Sexual Interest and Desire Inventory Female (SIDI-F) is a clinician-administered scale that allows for a comprehensive assessment of symptoms related to Hypoactive Sexual Desire Dysfunction (HSDD). As self-report questionnaires may facilitate less socially desirable responding and as time and resources are scarce in many clinical and research settings, a self-report version was developed (SIDI-F-SR). Aim: To investigate the agreement between the SIDI-F and a self-report version (SIDI-F-SR) and assess psychometric properties of the SIDI-F-SR. Methods: A total of 170 women (Mage=36.61, SD=10.61, range=20-69) with HSDD provided data on the SIDI-F, administered by a clinical psychologist via telephone, and the SIDI-F-SR, delivered as an Internet-based questionnaire. A subset of 19 women answered the SIDI-F-SR twice over a period of 14 weeks. Outcomes: Intraclass correlation as well as predictors of absolute agreement between SIDI-F and SIDI-F-SR, as well as internal consistency, test-retest reliability, and criterion-related validity of the SIDI-F-SR were examined. Results: There was high agreement between SIDI-F and SIDI-F-SR (ICC=.86). On average, women scored about one point higher in the self-report vs. the clinician-administered scale. Agreement was higher in young women and those with severe symptoms. Internal consistency of the SIDI-F-SR was acceptable (α=.76) and comparable to the SIDI-F (α=.74). When corrections for the restriction of range were applied, internal consistency of the SIDI-F-SR increased to .91. Test-retest-reliability was good (r=.74). Criterion-related validity was low but comparable between SIDI-F and SIDI-F-SR.

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