scholarly journals Using ICF to Describe Problems With Functioning in Everyday Life for Children Who Completed Treatment for Brain Tumor: An Analysis Based on Professionals' Documentation

2021 ◽  
Vol 2 ◽  
Author(s):  
Ann-Christin Björklund ◽  
Mats Granlund ◽  
Sheila Judge Santacroce ◽  
Karin Enskär ◽  
Stefan Carlstein ◽  
...  

Background: Children treated for brain tumors often experience persistent problems affecting their activity performance and participation in everyday life, especially in school. Linking these problems to the International Classification of Functioning, Disability and Health (ICF) classification system can be described as affecting body function, activity performance, and/or participation. Services involved in the everyday life of the child have different focus and goals when meeting the child in context, which advantage the use of ICF to overcome this impediment to follow-up and provide comprehensive support for children who have completed treatment for a brain tumor.Aim: The aim of the study was to use the ICF classification system to describe how professionals in healthcare, habilitation, and school document problems with everyday life functioning at body, activity, and participation levels for children who completed treatment for a brain tumor.Materials and Methods: A retrospective review of records from healthcare, habilitation, and school concerning nine children completed treatment for brain tumor was implemented. Identified problems in everyday life were linked to ICF codes. Descriptive statistics of ICF-linked code frequency supplemented by network visualization diagrams viewing the co-occurrence between codes within the body, activity participation, and environmental components were performed.Results: Most documented problems were found in healthcare records, whereas the documentation in habilitation and school was sparse. The frequently occurring codes, independent of record source, were linked to the body function component, and ICF-linked problems in habilitation and school were salient in the activity and participation component. To gain a holistic picture of relations between ICF codes and problems, network visualization diagrams were used to illustrate clusters of problems.Conclusion: Code prevalence likely reflects where healthcare professionals and educators focus their attention when meeting the needs of children treated for a brain tumor in context. To maximize the comprehensive view of functioning and participation of children in everyday life, the full range of difficulties regarding body impairments, activity limitations, and participation restrictions must be identified and linked to each other in patterns of co-occurrence, which the ICF facilitate. However, ICF provides no guidance on how to identify networks of problems within the body, activity, and participation. Identifying such networks is important for building comprehensive interventions for children.

2015 ◽  
Vol 24 (2) ◽  
pp. 179-188 ◽  
Author(s):  
Enrique V. Smith-Forbes ◽  
Stephanie D. Moore-Reed ◽  
Philip M. Westgate ◽  
W. Ben Kibler ◽  
Tim L. Uhl

Context:Recent establishment of G-codes by the US government requires therapists to report function limitations at initial evaluation. Limited information exists specific to the most common limitations in patients with shoulder pain.Objective:To describe the most commonly expressed shoulder limitations with activities and their severity/level of impairment from a patient’s perspective on the initial evaluation.Design:Descriptive.Setting:Patients reporting pain with overhead activity and seeking medical attention from one orthopedic surgeon were recruited as part of a cohort study.Patients:176 with shoulder superior labral tear from anterior to posterior (SLAP), subacromial impingement, combined SLAP and rotator cuff, and nonspecific (female = 53, age = 41 ± 13 y; male = 123, age = 41 ± 12 y).Interventions:Data were obtained on the initial visit from the Patient-Specific Functional Scale (PSFS) questionnaire. Three researchers extracted meaningful concepts from the PSFS and linked them to the International Classification of Functioning (ICF) categories according to established ICF linking rules.Results:176 participants yielded 765 meaningful concepts that were linked to the ICF with a 66% agreement between researchers before consensus. There were no differences between diagnoses. Of all patients, 88% reported functional limitations coded into meaningful concepts as represented by 10 ICF codes; 634 (83%) meaningful concepts were linked to the activities and participation domain while 129 (17%) were linked to the body function domain. Only 2 reported functional limitations that were considered nondefinable (nd). The overall average initial impairment score on the PSFS = 4 ± 2.5 out of 10 points.Conclusion:Meaningful concepts from the activities and participation domain were most commonly identified as functional limitations and were more prevalent than limitations from the body function domain. This information helps identify some of the most common limitations in patients with shoulder pain that therapists can use to efficiently document patient functional impairment.


2017 ◽  
Vol 27 (4) ◽  
pp. 27221
Author(s):  
Sabrina Valar Feronatto ◽  
Sabrina Oro ◽  
Letícia Fassina ◽  
Cristian Roncada ◽  
Renata D`Agostini Nicolini-Panisson

***Functionality evaluation of subjects of the same family with Kennedy's Disease***AIMS: To assess the functionality of individuals of a same family who present Kennedy's disease, and to compare it with the results obtained after one year and a half to verify the evolution of the disease.METHODS: Case series, in which six individuals with Kennedy's disease were evaluated in two moments separated by one year and a half. The instrument used was the Core Set for International Classification of Functioning, Disability and Health for neuromuscular diseases. This structured questionnaire seeks information on health domains, functional situations and their restrictions. The data were analyzed in SPSS version 20.0, with descriptive analysis.RESULTS: After one year and a half the body function components worsened, with consequent decline in function, demonstrated in the activity and participation component. Only one domain of the body function component had improvement in the second evaluation. During the evaluation period, several facilitating environmental factors (bars or stair rails, internal bars in residences, ramps, health plan, gaiters, automobile, telephone and electronic gate) remained. However, the magnitude of the deficiency of some products and supporting technologies (stairs and bathroom without bars) increased, which may have impaired the functionality of these individuals.CONCLUSIONS: Functionality was altered in individuals with Kennedy's disease, and the disease progression has accentuated the deficiency in the components of the International Classification of Functionality after one year and a half. There was a lack of some supporting products and technologies to personal use in daily life.


Author(s):  
Raphael A. Cadenhead

Although the reception of the Eastern father Gregory of Nyssa has varied over the centuries, the past few decades have witnessed a profound awakening of interest in his thought, particularly in relation to the contentious issues of gender, sex, and sexuality. The Body and Desire sets out to retrieve the full range of Gregory’s thinking on the challenges of the ascetic life through a diachronic analysis of his oeuvre. Exploring his understanding of the importance of bodily and spiritual maturation in the practices of contemplation and virtue, Raphael Cadenhead recovers the vital relevance of this vision of transformation for contemporary ethical discourse.


Author(s):  
Lutfullah Sari ◽  
Abdusselim Adil Peker ◽  
Dilek Hacer Cesme ◽  
Alpay Alkan

Background: Neurosarcoidosis manifests symptomatically in 5% of patients with sarcoidosis and diagnosis can be challenging if not clinically suspected. Cerebral mass-like presentation of neurosarcoidosis rarely reported in the literature. We presented a woman with neurosarcoidosis who had a cerebral mass-like lesion which completely disappeared after medical treatment. Discussion: A 37-year-old woman with history of pulmonary sarcoidosis referred to the emergency service of our hospital with a one-month history of progressive dizziness, nausea and seeing flashing lights. At neurologic examination, numbness and weakness on the left side of the body, deviation of uvula toward the right side was seen. Cranial MRI demonstrated a 2.5x2 cm in size mass lesion which hypointense on T1 WI, heterogeneous hyperintense on T2 and FLAIR sequence with peripheral vasogenic edema and heterogeneous, irregular contrast enhancement simulating brain tumor. Also, leptomeningeal and nodular contrast enhancement was seen on brainstem, cerebellar vermis, perimesencephalic cistern and left frontal, bilateral parietooccipital sulcus. In laboratory tests; The level of serum angiotensin-converting enzyme (ACE) was 53 IU/mL (N:8-52 IU/mL) and cerebrospinal fluid (CSF) ACE was 23 IU/mL (N:0-2.6 IU/mL). CSF cytology analysis was normal. Pattern 2 oligoclonal bands were present. With these clinical, laboratory and radiological findings, cerebral involvement of sarcoidosis was suspected. Biopsy was not performed due to the high risk of morbidity caused by the deep location of the lesion.Patient was treated with methylprednisolone and Azathioprine for a month.On post-treatment control imaging; lesion disappeared completely without residual leptomeningeal and nodular contrast enhancement.Also, neurologic symptoms were decreased remarkably. Conclusion: Multi-system inflammatory disorders like sarcoidosis, can present with mass-like lesion in the brain parenchyma. While early diagnosis is important to prevent unnecessary interventions like biopsy and surgery, it is crucial to initiate the necessary treatment with the aim of recovery without sequelae. Radiological and clinical follow-up are fundamental in differential diagnosis.


Author(s):  
Sharma Shilpi ◽  
Sharma Rakesh ◽  
Bhima Devi ◽  
Asharafi Bakhtyar

A roly-poly child obviously attracts many attentions but if the trend remains unchanged it could be a reason of worry as this is the primitive sign of childhood obesity which is the leading problem in today’s era. With continuous change in life style and dietary habits, child has become the victim of many diseases and obesity (Sthaulya) is one of them. There are and were some human activists talking about reducing the weight of study bags; but none is thinking about the weight our babies are carrying. In present era both parents are working, to earn the luxuries and amusements, so the kids are left with the food packets at home with idiot boxes to see some “de-shaped” cartoons resulting in the reduction of healthy nutritious diet and also reducing their body activity. The body weight of our babies is putting pressure on their “cuteness”, their “happiness”, their “emotions” and on their “being”. In Ayurveda it needs step by step examination and treatment to break the ‘Dushtasamprapti Chakra’ of Sthaulya by both non pharmacological such as Yoga and pharmacological remedies such as Panchakarma therapy, Shamana therapy etc. to achieve the goal.


2021 ◽  
pp. 016344372110034
Author(s):  
Dang Nguyen

This article explores the temporality of liveness on Facebook Live through the analytical lens of downtime. Downtime is conceptualized here as multiscale: downtime exists in between the micro action and inaction of everyday life, but also in larger episodes of personal and health crises that reorient the body toward technologies for instantaneous replenishment of meaning and activity. Living through downtime with mobile technology enables the experience of oscillation between liveness as simultaneity and liveness as instantaneity. By juxtaposing time-as-algorithmic against time-as-lived through the livestreaming practices of diện chẩn, an emergent unregulated therapeutic method, I show how different enactments of liveness on Facebook Live recalibrate downtime so that the body can reconfigure its being-in-time. The temporal reverberation of downtime and liveness creates an alternative temporal space wherein social practices that are shunned by the temporal structures of institution and society can retune and continue to thrive at the margin of these structures and at the central of the everyday.


2020 ◽  
Vol 2 (Supplement_3) ◽  
pp. ii19-ii19
Author(s):  
Masataka Mikai ◽  
Mitsuyoshi Abe ◽  
Yo watanabe ◽  
Chie Nakada ◽  
Yutaka Huchinoue ◽  
...  

Abstract Brain metastases from esophageal cancer is rare and the incidence has been reported at approximately 5%. We report a case of brain metastases with repeated bleeding from Esophageal carcinoma. The case is a 76-year-old man. Three years ago he was diagnosed with small cell carcinoma of the esophagus by endoscopic biopsy. Metastasis was found only in the cervical lymph node, but the condition was stable by chemoradiotherapy and no metastases were found throughout the body before 1 month. He was admitted to the hospital because of a sudden convulsion, and CT scan revealed cerebral hemorrhage in the right frontal lobe. We performed conservative treatment, but rebleeding was observed from the same site repeatedly after 1 month and 2 months. Due to the influence of bleeding, it was difficult to distinguish cerebral hemorrhage from brain tumor by contrast MRI. After surgery, the cause of bleeding was diagnosed as metastatic brain tumor of esophageal small cell carcinoma. Postoperative radiation therapy was performed in another hospital, but rebleeding was observed 3 months after the operation. A reoperation was performed at another hospital, and a recurrence of metastatic brain tumor was diagnosed. In the case of highly malignant metastatic brain tumors, it was considered necessary to frequently follow the images.


2020 ◽  
Vol 22 (Supplement_3) ◽  
pp. iii461-iii461
Author(s):  
Shigeru Yamaguchi ◽  
Hiroaki Motegi ◽  
Yukitomo Ishi ◽  
Michinari Okamoto ◽  
Akihiro Iguchi ◽  
...  

Abstract BACKGROUND Pediatric and Young-Adult (AYA) brain tumors often present with hydrocephalus. As temporary cerebrospinal fluid (CSF) diversion procedure, we perform long-term indwelling external ventricular drainage (EVD) in the case of the management of CSF diversion more than two weeks presumably. The aim of this study is to investigate the initial management for hydrocephalus in pediatric /AYA patients with brain tumor, especially about long-term EVD. MATERIALS AND METHODS The patients less than 30 years of age diagnosed with brain tumor between 2005 and 2019 were retrospectively analyzed. Procedures of long-term EVD were similar to that of ventriculoperitoneal shunt (VPS) operation. Using flow-control VPS system, peritoneal catheter passed out of the body at the anterior chest, and distal end of the catheter was connected to standard EVD system. RESULTS In total of 345 patients with brain tumor, 109 had hydrocephalus at presentation. Among them, 25 patients (23%) underwent long-term EVD. The main reasons for selecting long-term EVD were to avoid intraperitoneal dissemination (n=13), and to maintain longer period of CSF diversion for the treatment of tumor (n=12). The median of long-term EVD was 38 days (range: 12 – 222 days). Although one case suffered from drainage tube occlusion at 59 days, there were no other complications such as infection or accidental evulsion. Eventually, 3 cases required permanent VPS for persistent hydrocephalus. CONCLUSION Long-term EVD is safe and effective option for CSF diversion. This procedure should be taken into consideration if patients have a risk of dissemination and may elude permanent VPS.


Author(s):  
S N Puzin ◽  
A V Grechko ◽  
I V Pryanikov ◽  
M A Shurgaya ◽  
G E Pogosyan

Modern approaches to protecting public health in the world are increasingly guided by the concept of preventable loss of health, which provides for the concentration of health efforts on the prevention of morbidity and disability. The nosological spectrum of causes of disability includes a large list of diseases, among which the leading ones are chronic non-communicable diseases, which are characterized by an epidemic type of spread. The highest level of disability is observed in connection with diseases of the circulatory system, malignant neoplasms, diseases of the musculoskeletal system and connective tissue. Of the total number of citizens recognized as disabled, a significant number are disabled people of the first and second groups. The significance of the disability problem is aggravated by the special demographic situation of the "aging" of the population, which is associated with the accumulation of pathology of various major body systems. Persistent dysfunctions of the body due to diseases, consequences of injuries and defects can lead to disabilities. The development of the UN international legal framework (UN Convention on the Rights of Persons with Disabilities, "International Classification of Functioning, Disability and Health") contributed to the formation of social policy in Russia aimed at protecting the rights of persons with disabilities. Medical and social rehabilitation and habilitation of persons with disabilities is the basis of social protection of citizens with health problems. The implementation of the main directions of medical and social rehabilitation and habilitation of persons with disabilities (medical, professional social) involves the use by persons with disabilities of technical means of rehabilitation that can compensate for impaired or lost functions of the body, which helps to overcome the limitations of life and socialization of citizens with persistent health problems.


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