scholarly journals Two Sides of a Coin: Parental Disease-Specific Training as Seen by Health Care Practitioners and Parents in Pediatric Liver Transplantation

Children ◽  
2021 ◽  
Vol 8 (9) ◽  
pp. 827
Author(s):  
Johanna Ohlendorf ◽  
Luisa Stasch ◽  
Ulrich Baumann ◽  
Christiane Konietzny ◽  
Eva-Doreen Pfister ◽  
...  
Keyword(s):  
Job Satisfaction ◽  
Health Care ◽  
Liver Transplantation ◽  
Parental Knowledge ◽  
Educational Background ◽  
Parental Training ◽  
Health Care Practitioners ◽  
Specific Education ◽  
Disease Specific

In the absence of widely accepted education standards for parents of children after liver transplantation (LTx), the content and structure of parental training are influenced by health care practitioners’ (HCP) individual knowledge and assessment of the relevance of its contents. This study examines the hypothesis that expectations towards training differ between HCPs and parents, and that the quality of parental training affects the job-satisfaction of HCPs. Attitudes towards disease-specific education were assessed by tailor-made questionnaires in HCPs (n = 20) and parents of children with chronic liver disease or after LTx (n = 113). These were supplemented by focused interviews in n = 7 HCPs and n = 16 parents. Parents were more satisfied with current counseling than HCP. Language barriers and low parental educational background were perceived as obstacles by 43% of HCPs. The quality of parental knowledge was felt to have a strong influence on HCPs job satisfaction. The expectations towards the content of disease-specific education largely overlap but are not synonymous. HCP and parents agreed with regards to the importance of medication knowledge. Parents rated the importance about the meaning of laboratory values and diagnostic procedures significantly higher (3.50 vs. 2.85, p < 0.001 and 3.42 vs. 2.80, p < 0.001) than HCPs. Parents and HCPs would prefer a structured framework with sufficient staff resources for disease-specific counseling.

scholarly journals Patients’ Communication Preferences Around Cancer Symptom Reporting During Cancer Treatment: A Phenomenological Study

2021 ◽  
Vol 12 (4) ◽  
Author(s):  
Sharyn Carrasco, PhD, RN
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Cancer Treatment ◽  
Cancer Patients ◽  
Symptom Management ◽  
Phenomenological Study ◽  
Symptom Reporting ◽  
Communication Preferences ◽  
Health Care Practitioners

Background: The purpose of this descriptive phenomenological study was to gain an in-depth understanding of cancer patients’ experiences and perspectives on self-reporting their symptoms. Patients with cancer experience a wide variety of symptoms from both their disease and treatment, yet clinicians are often unaware of their patients’ symptoms due to poor reporting methods. Poorly documented symptoms are more likely to go untreated, causing increased symptom distress and decreased quality of life for patients. Effective, real-time communication between patients and health-care practitioners is key to symptom assessment and management. Moreover, it is important for patients’ communication preferences to be taken into account when developing symptom management plans. Methods: This qualitative study focused on the symptom reporting experiences of 13 adults in the United States with advanced or metastatic cancer who were undergoing systemic cancer treatment. Data were collected via interviews. Results: The findings revealed that a personalized symptom management plan, prompt reporting, and timely communication with health-care practitioners improved patients’ physical and emotional wellbeing. Conclusions: A better understanding of cancer patients’ experiences self-reporting their symptoms may lead to improved communication methods and more effective reporting systems, which ultimately reduce patient burden and enhance patients’ self-advocacy. Ensuring that patients’ preferences for reporting their symptoms are met may positively influence the likelihood and timeliness of symptom self-reporting. Developing new and improved ways for health-care teams to manage symptoms is vital to improving patients’ quality of life.

Inclusion Is Important . . . But How Do I Include? Examining the Effects of Leader Engagement on Inclusion, Innovation, Job Satisfaction, and Perceived Quality of Care in a Diverse Nonprofit Health Care Organization

2019 ◽  
Vol 48 (4) ◽  
pp. 716-737 ◽  
Author(s):  
Kim C. Brimhall
Keyword(s):  
Job Satisfaction ◽  
Health Care ◽  
Quality Of Care ◽  
Health Care Organization ◽  
Perceived Quality ◽  
Care Organization ◽  
Employee Job Satisfaction ◽  
Perceived Quality Of Care ◽  
Nonprofit Leaders

Nonprofit leaders and managers are recognizing the benefits of creating inclusive organizations in which everyone feels valued and appreciated, yet little is known about how leaders can foster workplace inclusion. This study examined the relationships among leader engagement, inclusion, innovation, job satisfaction, and perceived quality of care in a diverse nonprofit health care organization. Data were collected at three points in 6-month intervals from a U.S. nonprofit hospital. Multilevel path analysis indicated significant direct associations between leader engagement, inclusion, and innovation. Innovation was directly linked to improved job satisfaction and perceived quality of care. Significant indirect effects were found from leader engagement to increased job satisfaction and perceived quality of care through increased climates for inclusion and innovation. Findings suggest that nonprofit leaders who engage others in critical organizational processes can help foster an inclusive climate that leads to increased innovation, employee job satisfaction, and perceived quality of care.

Quality of Life: Erosions and Opportunities Under Managed Care

2000 ◽  
Vol 28 (2) ◽  
pp. 144-158 ◽  
Author(s):  
E. Haavi Morreim
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Managed Care ◽  
Functional Status ◽  
General Public ◽  
Access To Health Care ◽  
New Technologies ◽  
Access To Health ◽  
Disease Specific

In recent years a number of commentators have discussed the importance of measuring quality of life (QL) in health care. We want to know whether an intervention will help people to live better, not just longer, and whether some treatments cause more trouble than they are worth. New technologies promise wondrous benefits. But when millions of people have no insured access to health care, and when many others face increasingly stringent limits on care, technologies’ high costs require us to choose what we should do from the broader universe of what we can do.The challenges to measuring QL are formidable. Researchers debate whether to measure general QL or disease-specific QL; whether to focus on functional status such as the patient's ability to walk and dress himself, or on the value people ascribe to that functional status; whether to seek the values of the general public, or to concentrate on people actually affected by a given disease or disability.

Job satisfaction in Serbian health care workers who work with disabled patients

Open Medicine ◽  
2008 ◽  
Vol 3 (2) ◽  
pp. 221-224 ◽  
Author(s):  
Aleksandra Jovic-Vranes ◽  
Bjegovic Vesna ◽  
Vranes Boris ◽  
Milic Natasa
Keyword(s):  
Job Satisfaction ◽  
Health Care ◽  
Health Care Workers ◽  
Cross Sectional Study ◽  
Contributing Factors ◽  
Chi Square ◽  
Cross Sectional ◽  
Care Workers ◽  
Disabled Patients

AbstractThe study was undertaken to assess job satisfaction among health care workers (HCWs) who work with disabled patients and to identify the factors that contribute to their job satisfaction. This was a cross-sectional study conducted at nine rehabilitation centers in Serbia. The study sample consisted of doctors, nurses, physiotherapists, and other HCWs (social workers, work and speech therapists, and psychologists). A self-administrated questionnaire was distributed to 170 HCWs. Chi square testing and multivariate logistic regression analyses were applied. The response rate was 97.1% (165/170). Overall job satisfaction was reported by 22.4% of the respondents and was associated with hospital politics (odds ratio [OR], 4.16; 95% confidence interval [CI], 1.13–15.30], personal relationships (OR, 13.96; 95% CI, 4.07–47.92) and the feeling of being able to provide a good quality of care (OR, 5.24; 95% CI, 1.62–16.99). Profession, age, and gender did not affect job satisfaction. In conclusion, the results show very low job satisfaction among HCWs. Improving contributing factors may lead to higher job satisfaction and a better quality of health care.

scholarly journals Health care practitioners and dying patients

2020 ◽  
Vol 4 (1) ◽  
pp. 38-43
Author(s):  
Panagiotis Pentaris
Keyword(s):  
Health Care ◽  
Well Being ◽  
Modern World ◽  
Future Research ◽  
Care Practice ◽  
Professional Career ◽  
Health Care Practitioners ◽  
Dying Patients ◽  
City Of London

A full understanding of and a competent approach to dying patients may lead to a more qu-alitative service delivery, an enhanced quality of life paradigms, and the patients’ well-being, all of which remain the ultimate goal of health care practice. The modern world has developed in parallel with secularism and religious diversity. This paper aims to illustrate the secularization process in Britain (with indications of generalized meanings) and juxtaposes it with a descrip-tion of the needs of dying patients regarding the meanings of religion and non-religion. Altho-ugh this paper draws on and provides a review of selected theoretical literature, it also addres-ses a signifi cant challenge: the lack of scientifi c research on the subject. Hence, this paper aims to give an overview of the issues, but not synthesise them. The arguments that are elaborated in the paper are also supported by the author’s current research project in the city of London. The approach here is client oriented, and concerns social and health care. Practitioners ought to become competent, and maintain their competence throughout their professional career. Religious competence seems to have not been at the centre of discussions, regardless of the historical pathway that religious discourse has drawn since the beginnings of huma-nity. The paper concludes with certain suggestions for future research and inclusive appro-aches regarding religious matters.

scholarly journals Parent’s Needs During Their Child Hospitalization

2015 ◽  
Vol 3 ◽  
pp. 464
Author(s):  
Madara Miķelsone ◽  
Jānis Sīpols
Keyword(s):  
Health Care ◽  
Parental Satisfaction ◽  
Important Indicator ◽  
Research Results ◽  
Health Care Practitioners ◽  
Health Care Institutions ◽  
Level Of Satisfaction

The child's hospitalization is always associated with distress to child and his parents, because of unfamiliar environment. Although the child is in the center of the care, parents are encouraged to stay with their child at hospital. To achieve successful co-operation between parents and health care practitioners it is necessary to identify child`s and also their parent`s needs. Parental satisfaction with provided care depends on the quality of cooperation, which is an important indicator of the quality of the care. Aim of the study was to determine parental needs and level of their satisfaction during child hospitalization in one of the inpatient health care institutions in Latvia. Research results showed most important and less important parental needs and their level of satisfaction as well as implications were developed for further research

scholarly journals Cisplatin-Associated Ototoxicity: A Review for the Health Professional

2016 ◽  
Vol 2016 ◽  
pp. 1-13 ◽  
Author(s):  
Jessica Paken ◽  
Cyril D. Govender ◽  
Mershen Pillay ◽  
Vikash Sewram
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
At Risk ◽  
Hearing Loss ◽  
Clinical Signs ◽  
Policy Formulation ◽  
Incidence Rates ◽  
Health Care Practitioners ◽  
Mesh Terms

Cisplatin is an effective drug used in the treatment of many cancers, yet its ototoxic potential places cancer patients, exposed to this drug, at risk of hearing loss, thus negatively impacting further on a patient’s quality of life. It is paramount for health care practitioners managing such patients to be aware of cisplatin’s ototoxic properties and the clinical signs to identify patients at risk of developing hearing loss. English peer-reviewed articles from January 1975 to July 2015 were assessed from PubMed, Science Direct, and Ebscohost. Seventy-nine articles and two books were identified for this review, using MeSH terms and keywords such as “ototoxicity”, “cisplatin”, “hearing loss”, and “ototoxicity monitoring”. This review provides an up-to-date overview of cisplatin-associated ototoxicity, namely, its clinical features, incidence rates, and molecular and cellular mechanisms and risk factors, to health care practitioners managing the patient with cancer, and highlights the need for a team-based approach to complement an audiological monitoring programme to mitigate any further loss in the quality of life of affected patients, as there is currently no otoprotective agent recommended routinely for the prevention of cisplatin-associated ototoxicity. It also sets the platform for effective dialogue towards policy formulation and strengthening of health systems in developing countries.

scholarly journals Patient and Partner Perspectives on Health-Related Quality of Life in Adrenocortical Carcinoma

2020 ◽  
Vol 4 (5) ◽  
Author(s):  
Rebecca V Steenaard ◽  
Marjolein N T Kremers ◽  
Laura A Michon ◽  
Myrte Zijlstra ◽  
Harm R Haak
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Adrenocortical Carcinoma ◽  
Functional Limitations ◽  
Health Related Quality ◽  
Physical Complaints ◽  
Related Quality ◽  
Health Related ◽  
Disease Specific

Abstract Little is known about the impact of adrenocortical carcinoma (ACC) on health-related quality of life (HRQoL), and no disease-specific questionnaire exists. This qualitative study aimed to identify relevant domains of HRQoL for patients with ACC. In 2 focus group interviews, we discussed concerns regarding living with ACC and its treatments. The first group consisted of 6 patients on mitotane therapy and their partners or relatives, the second group of 4 patients after surgery alone and their partners. Inductive qualitative content analysis was used to analyze the interviews. We identified 4 domains related to HRQoL in patients with ACC, namely physical complaints, mental consequences, social consequences, and functional limitations. For example, physical complaints included symptoms of the disease and side effects of mitotane therapy; mental consequences included feeling insecure and living from scan to scan; and functional limitations included daily activities and mobility. We further found that patients’ experiences with the health care system and health care professionals and partner perspectives influence HRQoL. In conclusion, ACC has a large impact on HRQoL in 4 domains. These results can be used to improve communication about HRQoL issues. We will use our findings to generate a disease-specific questionnaire to measure HRQoL in patients with ACC.

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