scholarly journals Sibling Snapshots: Living with Youth who have Autism or Down syndrome

Author(s):  
Barbara Mandleco ◽  
Jessica Rosemann ◽  
Aimee Palicharla ◽  
Tammy Rampton ◽  
Tina Dyches ◽  
...  

This study used photography to capture important symbols in the lives of 14 siblings of 13 youth with autism (ASD) and 16 siblings of 15 youth with Down syndrome (DS) and then determine if there were differences in the photographs taken according to the type of developmental disability, age, and gender of the sibling. Analysis revealed two types of photographs: people, including family members and non-family, and non-people, including objects, animals, and buildings/scenery. Siblings of youth with DS took a higher percentage of photographs of people and a higher percentage of photographs of family members than siblings of youth with ASD.  There were also differences according to age and gender in the people/non people and within family photographs. The 7-9 year olds took a higher percentage of snapshots of typically developing siblings and him/herself whereas the 10- 12 year olds and the 13-16 year olds took a higher percentage of photographs of the youth with the disability than the younger age group. Sisters took a higher proportion of people photographs than brothers; whereas brothers took a higher proportion of family photographs than sisters. Indeed, results validate the importance of gathering data in an open-ended manner directly from young people, confirm the use of photography as a method of facilitating communication with young people about important symbols in their lives, and indicate there are differences in the percentage of photographs taken of people/non people and family/non family according to disability, age and gender of siblings.

Author(s):  
Anil Kumar Bhalla ◽  
Harvinder Kaur ◽  
Rupinder Kaur ◽  
Inusha Panigrahi ◽  
Brij Nandan Singh Walia

AbstractUse of inter-pupillary distance (IPD) for objective evaluation of ocular hypertelorism and hypotelorism is recommended to corroborate diagnosis of syndromic conditions. In view of complete absence of serial data on growth of IPD, this study aims to unfold auxological dynamics of IPD in Down syndrome (DS) children of Indian origin. Inner canthal distance (ICD) and outer canthal distance (OCD) were measured on a total of 1,125 (male: 752, female: 373) DS children, aged 0 to 3 months to 10 years at 6 monthly age intervals using a “Digimatic Sliding Caliper” in the Growth Laboratory/Growth Clinic of the Institute. Using Feingold and Bossert (1974) formula, IPD at each age was calculated from ICD and OCD measured among male and female DS children. IPD, like OCD and ICD increased un-interruptedly among DS children. IPD grew rapidly up to 5 years thereafter, its rapidity became slower. Boys in general, possessed larger IPD than girls, however, gender differences became statistically significant up to first 4 years of life. Our study children possessed significantly smaller IPD as compared with their normal Indian counterparts. None of our DS children depicted ocular hypertelorism while hypotelorism, was noticed amongst 4.9% male and 16.8% female DS patients. Comparison with normative IPD data failed to establish existence of ocular hypertelorism in DS children (<10 years) of north-western Indian origin. Use of age and gender-specific data presented for IPD of DS children may be made for comparative purpose to ascertain inter-population variability.


Psico-USF ◽  
2019 ◽  
Vol 24 (4) ◽  
pp. 633-644
Author(s):  
Cristyan Karla Nogueira Leal ◽  
Gabriel Gonzaga Barbosa de Faria ◽  
Mariane Lima DeSouza

Abstract Private self-consciousness is a relevant metacognitive capacity in the self-regulation process, with possible implications in alcohol consumption. This research verified the influence of self-reflection and insight, dimensions of private self-consciousness, on drinking behavior. A total of 523 Brazilians, aged from 20 to 39 years old, participated in a survey by answering the Self-Reflection and Insight Scale and the AUDIT test. The results showed that women have higher levels of self-reflection, whereas men have higher levels of insight. With regard to alcohol consumption, young people drink at higher risk levels than adults. Self-reflection and insight were negatively correlated with alcohol consumption. Age and gender differences in the intensity of the correlation between variables and the influence of environmental factors on the regulation of drinking behavior are discussed.


2021 ◽  
Author(s):  
Toshiko Tanaka ◽  
Tsuyoshi Nihonsugi ◽  
Fumio Ohtake ◽  
Masahiko Haruno

Abstract The most promising way to prevent the explosive spread of COVID-19 infection is to achieve herd immunity through vaccination. It is therefore important to motivate those who are less willing to be vaccinated. To address this issue, we conducted an online survey of 6232 Japanese people to investigate age- and gender- dependent differences in attitudes towards COVID-19 vaccination and the underlying psychological processes. We asked participants to read one of nine different messages about COVID-19 vaccination and rate their willingness to be vaccinated. We also collected their 17 social personality trait scores and demographic information. We found that males 10-20 years old showed the minimum willingness to be vaccinated. We also found that prosocial traits are the driving force for young people, but the motivation in older people also depends on risk aversion and self-interest. Furthermore, an analysis of 9 different messages demonstrated that for young people (particularly males), the message emphasizing the majority’s intention to vaccinate and scientific evidence for the safety of the vaccination had the strongest positive effect on the willingness to be vaccinated, suggesting that the herding effect arising from the “majority + scientific evidence” message nudges young people to show their prosocial nature in action.


2021 ◽  
Vol 11 (1) ◽  
Author(s):  
Toshiko Tanaka ◽  
Tsuyoshi Nihonsugi ◽  
Fumio Ohtake ◽  
Masahiko Haruno

AbstractThe most promising way to prevent the explosive spread of COVID-19 infection is to achieve herd immunity through vaccination. It is therefore important to motivate those who are less willing to be vaccinated. To address this issue, we conducted an online survey of 6232 Japanese people to investigate age- and gender-dependent differences in attitudes towards COVID-19 vaccination and the underlying psychological processes. We asked participants to read one of nine different messages about COVID-19 vaccination and rate their willingness to be vaccinated. We also collected their 17 social personality trait scores and demographic information. We found that males 10–20 years old were least willing to be vaccinated. We also found that prosocial traits are the driving force for young people, but the motivation in older people also depends on risk aversion and self-interest. Furthermore, an analysis of 9 different messages demonstrated that for young people (particularly males), the message emphasizing the majority’s intention to vaccinate and scientific evidence for the safety of the vaccination had the strongest positive effect on the willingness to be vaccinated, suggesting that the “majority + scientific evidence” message nudges young people to show their prosocial nature in action.


Author(s):  
Harvinder Kaur ◽  
Anil Kumar Bhalla ◽  
Inusha Panigrahi

AbstractGrowth charts are used to detect growth impairment, overweight, and obesity among Down syndrome (DS) children belonging to different population groups. Due to nonavailability of similar information, age, and gender specific body mass index (BMI) charts for DS children of Indian origin, based on serial data, have been developed. A total of 752 boys and 373 girls diagnosed as cases of DS at <1 month to 10 years of age enrolled from the “genetic clinic” were followed up in the “growth clinic/growth laboratory” of the institute, following a mixed-longitudinal growth research design. BMI was calculated from body weight and length/height measured at 6-month-age intervals by using standardized techniques and instruments. Age and sex-specific percentile growth charts for BMI were generated for age range <1 month to 10 years by using the LMS method. DS children remained wasted (BMI <3rd percentile) up to 6 months of age; thereafter, BMI increased to exhibit close similarity with their normal Multicentre Growth Reference Study (World Health Organization 2006) and Indian Academy of Pediatrics (2015) counterparts up to 5 to 10 years, respectively. The percentage of obese DS girls (8.76%) outnumbered boys with DS (4.1%). The use of age and gender specific BMI growth charts may be made for comparative purpose, to assess nutritional status of Indian children with DS, to initiate suitable need-based intervention to improve their overall health and for timely institution of target interventions to prevent growth faltering in this vulnerable population.


2018 ◽  
pp. 117-138
Author(s):  
Mary Robertson

Acknowledging that the youth of Spectrum tend to disclose their sexual and gender identities to parents at a relatively young age, this chapter explores the role of family in the formation of these youths’ sexualities and genders. It was often the case with Spectrum youth that, rather than rejection, they encountered loving support about their sexuality from their parents. The youth of Spectrum are of a generation of kids who are the first to grow up in a society in which same-sex couples and genderqueer parents rearing children have become significantly socially acceptable. The chapter argues that young people are sharing their queer sexual and gender identities with their parents at a younger age because of gender non-conformity that leads parents to make assumptions about their child’s sexuality because they are more frequently exposed to LGBTQ family members and loved ones and because these particular parents do not conform to the white, middle-class, heteropatriarchal regime of the Standard North American Family. Queer family formation has broad implications not just for same-sex couples but for the way U.S. society understands and recognizes family in general.


Blood ◽  
2009 ◽  
Vol 114 (22) ◽  
pp. 2977-2977
Author(s):  
Ulrike Nowak-Gottl ◽  
Monika Stoll ◽  
Rolf Mesters ◽  
Sabine Thedieck ◽  
Susan Halimeh ◽  
...  

Abstract Abstract 2977 Poster Board II-957 Background: Venous thrombosis is a multifactorial disease and inherited genetic traits (IT) constitute a major risk factor. The aim of the present prospective cohort study was to determine i) the relative and absolute risks of first symptomatic thromboembolism [TE] in previously healthy family members of children with venous thromboembolism, and ii) whether to screen family members in a high risk population. Methods: In 205 patients (neonate to 18 years) and 526 FM followed over a total person-time of 14157 years /1000 units [person-time] a comprehensive IT screening was performed along with recording of family histories of preexisting cardiovascular diseases. FM were followed until July 2009: study endpoint was cumulative time to first TE within FM. Survival analysis (Cox regression: hazard ratio (HR/95% Confidence intervals (CIs)] adjusted for age and gender and number of new cases divided by the total population at risk (incidence rate) were calculated (events (%) per 1000 person-years [CIs]). Results: The final study population included 526 FM with 462 subjects > 14 years. The cumulative TE –free survival in FM with IT was significantly lower compared to those without: HR/CI: 6.6/ 3.3-13.5. The overall rate of symptomatic TEs was 2.9%[2.07-3.9]. The hazard adjusted for age and gender in the group of antithrombin(AT)-/protein C[PC)-/protein S(PS)-deficient FM was 29.4%[13.3-62.5], and for carriers of factor (F) V G1691A, F II G202010A mutations or elevated lipoprotein (a) it was found to be 3.3%[1.3-8.3], 1.96% [0.4- 9.0] and 2.1%[1.04-3.8]. Corresponding annual incidence rates in FM > 14 years were 4.8% for AT-/PC- or PS-deficiency states, 0.72% in subjects carrying the FV mutation, 0.36 % in FII carriers, and 0.20% for subjects with elevated lipoprotein (a) compared with 0.19% in FM with no IT. Thus, compared to adult data from the view of adult index cases [Lijfering W et al. Blood 2009] i) the risk of TE in family members of pediatric index cases with TE depends on IT, ii) the age at TE in the index patient as well as in the family members has a strong effect on TE incidence, and iii) the first symptomatic TE in primary healthy family members > 14 years of age with respect to the IT investigated is comparable to or exceeds adult data. Conclusions: i) Adult family members of pediatric index patients with an early onset of symptomatic thrombosis should be considered for IT testing, ii) primary thromboprophylaxis in family members derived from pediatric index patients should be considered in risk situations in adult carriers of AT/PC/PS-deficiencies & FV mutation. In addition, iii) larger prospective studies are needed to investigate the effects of multiple ITs and its interactions to take into account whether events are provoked or not to investigate the effect of screening. Disclosures: Off Label Use: Enoxaparin (LMWH) is used off-label in children to prevent symptomatic thromboembolism.


Author(s):  
Juliana Osmani ◽  
◽  

Increasingly, organizations are oriented towards groups to make decisions. This is because some contextual factors have undergone significant changes. Companies are operating in a competitive, dynamic and complex environment, having to face with unstructured and non-programmed decisions. Organizations are also oriented towards participatory processes in order to benefit from the important advantages that these processes offer. The main goal of the current research is to understand if there is a correlation between group decision-making propensity, age and gender. The motivation for the current research starts from the consideration that the degree of preference for group decision-making processes determines the contribution and commitment of the members, with important consequences on the decisions’ effectiveness. The processing and analysis of the collected data indicate that adults prefer group decision-making processes more than young people and women prefer group decision-making processes less than men.


2022 ◽  
Vol 131 ◽  
pp. 02004
Author(s):  
Sergey Nikulshin ◽  
Jana Osite ◽  
Stella Lapina ◽  
Anda Krisane ◽  
Iveta Dzivite-Krisane ◽  
...  

Seasonality of 25(OH)D deficiency rate is a factor of major clinical and social impact and should be considered when planning for appropriate testing and tailored correction. We present retrospective cross-sectional analysis of over a million 25(OH)D tests performed in two leading Latvian laboratories – Central Laboratory and E.Gulbja Laboratory. Both series of tests demonstrated prominent seasonal variability of 25(OH)D deficiency rate (<20 ng/ml) and critical deficiency rate (<12 ng/ml): the lowest percentage of deficient tests was in August, while a significant peak was found in March-April. This trend was present at all ages and in both genders, variations were pronounced even for a high-latitude country and more prominent for critical deficiency, in younger age groups and in males. Analysis of testing regimens of both laboratories revealed that schedule was not optimal, period of higher testing intensity being far removed from the 25(OH)D deficiency peak.


Author(s):  
Madiyar Utebayev

The article analyzes the traditional etiquette of Karakalpaks. Special attention is paid to the customs of greeting on meeting and when performing some ceremonial activities. In both cases, the Karakalpak etiquette is based on the moral attitudes and habits of a traditional society. As with other peoples of Central Asia, the principles of age and gender differentiation and reverence for elders come to the fore. Greeting rituals are addressed to the elders and those who have higher social status, taking place within the framework of the institution of hospitality, as a principle of tolerance and benevolence characteristic of the daily and ceremonial life of the people.


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