scholarly journals Assessment of Quality of Life of People who Stutter: A Cross-sectional Study

2014 ◽  
Vol 3 ◽  
pp. RPO.S19058
Author(s):  
Gagan Bajaj ◽  
Aiswarya Liz Varghese ◽  
Jayashree S. Bhat ◽  
Joylin Deepthi
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Speech Therapy ◽  
Educational Status ◽  
Cross Sectional Study ◽  
Second Phase ◽  
Cross Sectional ◽  
Validated Questionnaire ◽  
Fear And Anxiety

Stuttering is a complex communication disorder that impedes the normal flow and pattern of speech, which is characterized by involuntary audible or inaudible pause, repetitions, prolongations, blocks, etc. Other than the core behaviors, people who stutter experience various other problems such as fear, anxiety, depression, shame, etc., which can in turn affect the quality of life (QOL). The purpose of this study is to develop a questionnaire in order to assess the QOL of people who stutter. A total of 30 participants aged between 18 and 30 years were enrolled for the study. Out of the stutterers included, 15 were employed and 15 were non-employed/students. The study was carried out in two phases. The first phase involved the development of a questionnaire based on literature search and available tests. The second phase involved administering the validated questionnaire on the participants. The questionnaire consisted of six domains targeting (1) speech-related fear and anxiety, (2) interpersonal and social relationships, (3) behavioral reaction to stuttering, (4) educational status, (5) employment and job opportunity, and (6) effect of speech therapy. For each item, response scales were organized (2—almost always, 1—sometime, 0—not at all). Developed questionnaire showed good content validity for all the domains and questions. The result of Cronbach's alpha for each domain indicates moderate internal consistency and excellent internal consistency for the overall questionnaire. Multiple domains were observed to be affected among adults who stutter, and the differences were not found to be significantly different as compared to the available QOL data from other cultural settings.

scholarly journals Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia

2019 ◽  
Vol 17 (1) ◽  
Author(s):  
Saad Khoshhal ◽  
Khaled Al-Harbi ◽  
Ibrahim Al-Mozainy ◽  
Saeed Al-Ghamdi ◽  
Adnan Aselan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Internal Consistency ◽  
Congenital Heart ◽  
Cross Sectional Study ◽  
World Health ◽  
Sectional Study ◽  
Cross Sectional

Abstract Background and aims Health-related quality of life (HRQOL) has garnered increasing interest especially for health care providers and researchers. The study aims to evaluate the HRQOL in parents of congenital heart disease (CHD) children, and to clarify the effect of the disease severity on the outcome of the HRQOL perception. Also, to analyze the internal consistency of the Arabic version of the World Health Organization (WHO) QOL-BREEF tool in order to determine whether the tool had good validity for the target population. Methods A cross-sectional study. The HRQOL perception was evaluated using WHOQOL-BREF questionnaire, and the internal consistency of the tool was tested using Cronbach’s alpha (α-C), Results The study sample consisted of 200 individuals, 120 parents of CHD children, compared to 80 parents of children with minor illnesses (mean age of participating parents = 35.1 ± 9.8 years). While evaluating the HRQOL, the group of parents of children with minor illnesses had higher scores than the total group of parents of CHD children in all domains, indicating a better HRQOL. Class-IV subgroup of parents of CHD children showed the most significant lower total score of domains between all classes (44.47 ± 12, p < 0.001). With respect to the internal consistency of the WHOQOL-BREF, estimation of α-C values were 0.84 points for the group of parents of CHD children, and 0.87 for the group of parents of children with minor illnesses. Conclusions This short-term study emphasized that, HRQOL scores among parents of CHD children are compromised, and the severity of their children illness significantly affect the total score of domains in their HRQOL perception. Furthermore, the tool showed to be practical and efficient to evaluate the QOL of parents of CHD children in our population in future researches.

scholarly journals Evaluation of Quality of Life of Adult Patients with Celiac Disease in Argentina: From Questionnaire Validation to Assessment

2020 ◽  
Vol 17 (19) ◽  
pp. 7051
Author(s):  
Nicole Selleski ◽  
Renata Puppin Zandonadi ◽  
Laura B. Milde ◽  
Lenora Gandolfi ◽  
Riccardo Pratesi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Celiac Disease ◽  
Representative Sample ◽  
Cross Sectional Study ◽  
Extensive Experience ◽  
Cross Sectional ◽  
Validated Questionnaire ◽  
Related Quality ◽  
Health Related

This cross-sectional study aimed to translate, culturally adapt, validate, and apply a Celiac Disease Quality of Life (CD-QoL) questionnaire to a representative sample of Argentina’s celiac population. A previously developed and validated questionnaire (Celiac Disease Questionnaire: CDQ) was chosen as a tool for assessing the health-related quality of Life (HRQoL) of adult celiac patients in Argentina. Therefore, the study was performed in four stages: (a) translation and re-translation of the CDQ to Argentinian-Spanish language; (b) cultural adaptation and semantic evaluation; based on the Delphi method (c) validation of the CDQ by applying it to a representative sample of Argentinian celiac patients; (d) statistical analysis of the data. The result of stages (a) and (b) was a translated and culturally adapted an Argentinian-Spanish version of the CDQ, which was generated after reaching consensus between the corresponding four (phase a) and 10 (phase b) professionals involved in the different phases of this process. Among them, we can cite bilingual healthcare professionals with extensive experience in research and celiac disease, celiac patients, gastroenterologists, general practitioners, dieticians, and psychologists. The resulting CDQ proved to be an appropriate measuring tool to assess the HRQoL of Argentinian celiac patients confirmed by a good fit in the confirmatory factor validity analysis (RMSEA < 0.001 and χ2 = 267.325, df = 313, p = 0.971) and high values of internal consistency (Cronbach’s alpha > 0.7). A total of 191 participants accessed the questionnaire, and 171 individuals from 20 out of 23 Argentinian states completed the questionnaire. There was no correlation between higher educational level nor marital status with QoL. Individuals on a strict gluten-free diet (GFD) and those who do not take antidepressants showed higher QoL. Male gender also presented better HRQoL. There was no correlation between differences in HRQoL and age of the respondent, age at diagnosis, symptoms at diagnosis, or having other chronic diseases. However, a significantly higher score of HRQoL was reported among those individuals who disclosed having knowledge of CD related national regulations and benefits. This study highlights the importance of maintaining current public health regulations that support chronic disease patients, such as celiac patients.

Self-reported burden in patients with localized prostate cancer treated with stereotactic body radiation therapy (SBRT).

2018 ◽  
Vol 36 (6_suppl) ◽  
pp. 51-51
Author(s):  
Abigail Pepin ◽  
Nima Aghdam ◽  
Colin Johnson ◽  
Malika Danner ◽  
Marilyn Ayoob ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Prostate Cancer ◽  
Cross Sectional Study ◽  
University Hospital ◽  
Localized Prostate Cancer ◽  
Cross Sectional ◽  
Validated Questionnaire ◽  
Number Of Patients ◽  
Over Time

51 Background: Retaining quality of life in patients treated with SBRT for prostate cancer remains paramount. As such, balancing the benefits of treatment against the effects of therapy on patients is essential. The quality of life is influenced by the disease and treatment related burden. The EORTC QLQ-ELD14 (ELD14) is a validated questionnaire that can assess burden. This study reports burden trends in patients with prostate cancer treated with SBRT. Methods: All patients with localized prostate cancer treated with SBRT at Georgetown University Hospital from 2007 to 2016 were eligible for inclusion in this cross-sectional cohort. The ELD14 questionnaire was used to assess self-reported patient quality of life at time points before and following treatment. Initially, 267 patients (Median age of 70) responded to the ELD14 questionnaire. Approximately 30% received ADT. The specific questions reviewed for this study were focused on burden of disease and treatment. The responses to these questions were grouped into three clinically relevant categories (not at all, a little and quite a bit to very much). Results: Number of patients reporting quite a bit or very much burden from prostate cancer declined over time from 13% prior to treatment to 8% at 36 months post-SBRT. This was highest at one month post-SBRT (15%) and resolved to baseline by 6 months. Treatment burden similarly decreased over time from 10% to 3%. Patients treated with androgen deprivation therapy (ADT) experienced greater burden than others. At initial consult, 19% of patients on ADT reported quite a bit or very much burden from their illness. At one month post-SBRT, this had increased to 27% and subsequently decreased to 16% at 36 months. Of those not receiving ADT, 12% reported having quite a bit or very much burden from illness initially, 9% at one month and 6% at 36 months. Conclusions: This cross-sectional study suggests that the burden of clinically localized prostate and its treatment with SBRT improves over time. Increased burden was noted in patients receiving ADT. These findings can inform decision making in improving quality of life for patients with prostate cancer treated with SBRT.

Understanding Dizzy Patients a Cross-Sectional Analysis of Attitudes toward Diagnosis, Providers, and Treatment

2021 ◽  
pp. 000348942110220
Author(s):  
Whitney Chiao ◽  
Roseanne Krauter ◽  
Laura Kirk ◽  
Kristen Steenerson ◽  
Lauren Pasquesi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Tertiary Care ◽  
Cross Sectional Study ◽  
Treatment Modalities ◽  
Cross Sectional ◽  
Validated Questionnaire ◽  
Sectional Analysis ◽  
Anxiety Depression ◽  
The Brain

Objective: To evaluate patients’ attitudes regarding their dizziness, provider capabilities, and receptiveness toward treatment. Study Design: Cross-sectional study. Setting: Tertiary care vestibular clinic. Patients: Ages 18 years or older, fluent in English, and who presented with a chief complaint of dizziness or vertigo. Intervention(s): N/A. Main Outcomes Measure(s): Non-validated questionnaire surveying patients’ beliefs regarding the cause of their dizziness, likelihood of successful treatment, and openness to various treatment modalities Results: Patients were asked to complete an online non-validated survey regarding their dizziness prior to being evaluated in neurotology clinic. About 67 surveys were completed between January 2017 and September 2018. A majority of patients attributed their dizziness to their ears (n = 47, 70%), followed by the brain (n = 29, 43%). Most subjects chose “neither agree nor disagree” about whether their provider could identify the cause of their dizziness (27%). Most subjects also chose “neither agree nor disagree” that their dizziness would resolve with treatment (31%). These attitudes were not influenced by demographics, dizziness severity, anxiety, depression, or quality of life on multivariate ordinal regression modeling. Conclusions: Patients who experience dizziness have neutral attitudes with regards to believing that their provider will be able to identify the cause of their dizziness and whether their dizziness will resolve with treatment. These neutral attitudes are experienced by a plurality of patients and do not differ by demographic information, dizziness handicap, quality of life, depression, or anxiety.

scholarly journals Oral Health-Related Quality of Life (OHRQoL) of Children with Down Syndrome and Their Families: A Cross-Sectional Study

Children ◽  
2021 ◽  
Vol 8 (11) ◽  
pp. 954
Author(s):  
AlBandary AlJameel ◽  
Huda AlKawari
Keyword(s):  
Quality Of Life ◽  
Down Syndrome ◽  
Oral Health ◽  
Cross Sectional Study ◽  
Oral Health Status ◽  
Cross Sectional ◽  
Children With Down Syndrome ◽  
Validated Questionnaire ◽  
Related Quality

As individuals with Down syndrome often suffer from oro-facial abnormalities which can affect their oral health as well as their and their family’s quality of life, this link was examined in the present study. Using a descriptive cross-sectional design, 63 parents of children with Down syndrome who attended two special daycare centres in Riyadh, Saudi Arabia, were surveyed using a self-administered validated questionnaire. The findings yielded by the Statistical Package for the Social Sciences (SPSS Inc., Chicago, IL, USA) version 17 revealed that in 34.9% children and 46% of their families, quality of life was affected by oral health. Moreover, 54% children experienced physical pain, which was severe in 22.2% of the cases. Further analyses revealed that families’ emotional lives were negatively affected by children’s oral health status. Therefore, as oral health in children with Down syndrome exerts significant adverse impacts on different aspects of their lives and those of their families, timely provision of required oral health care is warranted.

scholarly journals Cultural Adaptation and Psychometric Properties of the Diabetes Quality of Life Scale in Afaan Oromoo among People Living with Type 2 Diabetes in Ethiopia

2021 ◽  
Vol 18 (14) ◽  
pp. 7435
Author(s):  
Dereje Chala Diriba ◽  
Doris Y. P. Leung ◽  
Lorna K. P. Suen
Keyword(s):  
Quality Of Life ◽  
Psychometric Properties ◽  
Internal Consistency ◽  
Employment Status ◽  
Educational Status ◽  
Good Reliability ◽  
Cross Sectional ◽  
Quality Of Life Scale ◽  
The Impact

Background: The original 46-item diabetes quality of life (DQOL) scale has been translated into different languages, and the translated DQOL has shown good reliability and validity after deleting some items. The aim of this study was to translate the diabetes quality of life (DQOL) scale into Afaan Oromoo and to culturally adapt and evaluate the psychometric properties of the DQOL-Afaan Oromoo (DQOL-AO) among people living with T2D in Ethiopia. Methods: A cross-sectional study with a convenience sampling technique was conducted in 2020. The DQOL was translated and adapted to Afaan Oromoo. Item–total correlations and exploratory factor analysis (EFA) assessed factor structure; the Cronbach’s alpha assessed internal consistency and relationships with gender, educational status, marital status, age, and employment status; and status of diabetes-related disease assessed the construct validity of the DQOL-AO. Results: 417 participants responded to all items of the DQOL. Item–total correlation analysis and EFA produced a 34-item DQOL-AO with four subscales, which demonstrated that the internal consistency of the overall DQOL-AO was 0.867, and scores were 0.827, 0.846, 0.654, and 0.727 for the impact, satisfaction, social/vocational worry, and diabetes-related worry subscales, respectively. Statistically significant differences between QOL were obtained in educational status (F = 7.164, p < 0.001) and employment status (F = 4.21, p = 0.002). Individuals who attended college and above and government employees had better QOL. Conclusion: The 34-item DQOL-AO provided preliminary evidence as a reliable and valid tool to measure diabetic-related QOL before it can be widely used among adults living with T2D who speak Afaan Oromoo.

scholarly journals SPEECH THERAPY INTERVENTION IN MORBIDLY OBESE UNDERGOING FOBI-CAPELL GASTROPLASTY METHOD

2016 ◽  
Vol 29 (1) ◽  
pp. 43-47 ◽  
Author(s):  
Rosa de Fátima Marques GONÇALVES ◽  
Ethel ZIMBERG
Keyword(s):  
Quality Of Life ◽  
Postoperative Period ◽  
Speech Therapy ◽  
Cross Sectional Study ◽  
Oral Feeding ◽  
Solid Food ◽  
Morbidly Obese ◽  
Cross Sectional ◽  
Bolus Size

Background: The rehabilitation of complications related to oral feeding, resulting from gastroplasty is the competence of the speech therapist, to intervene in mastication and swallowing functions, aiming at quality of life. Aim: Check in the postoperative period the efficiency of stimulation, independent judges in readiness for re-introduction of solid food in morbidly obese undergoing gastroplasty. Method: Cross-sectional study of descriptive and quantitative evaluated mastication and quality of life of 70 morbidly obese patients undergoing gastroplasty, and a group of 35 obese suffered speech therapy. Results: In the evaluation of mastication for group 1 (pre and post speech therapy), the results show that, except for the lack of chewing, the other variables, such as food court, type of mastication, mastication rhythm, jaw movements, bolus size, excessive mastication and fluid intake, demonstrate statistical insignificance. In evaluating the quality of life when compared groups 1 and 2, the results from the questionnaire on quality of life in dysphagia (SWAL-QoL - Quality of Life in Swallowing) total and 11 domains assessed in the questionnaire, were statistically significant. With these results, the group 2 presented unfavorable conditions for quality of life. Conclusion: The stimulation protocol, independent judges in readiness for re-introduction of solid food of these patients in the postoperative period, applied in these conditions of the study, was not the distinguishing factor of the rehabilitation process for the observed period.

Quality of life evaluation in patients with mucopolysaccharidosis using PedsQL

2018 ◽  
Vol 23 (2) ◽  
pp. 278-285 ◽  
Author(s):  
Marcos Almeida Matos ◽  
Fábio Ferri-de-Barros ◽  
Roberto Guarniero
Keyword(s):  
Quality Of Life ◽  
Physical Health ◽  
Internal Consistency ◽  
Psychosocial Health ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Health Domain ◽  
Pedsql 4.0 ◽  
Physical Health Domain

Mucopolysaccharidosis (MPS) is a rare and neglected disorder. Only a few studies to date have focused on humanistic impacts of the disease, particularly health-related quality of life (HRQOL). The objective of our research is to (1) evaluate HRQOL in Brazilian patients with MPS and (2) assess the validity of the PedsQL 4.0 Generic Core Scales (PedsQL) in this specific disease. We performed an analytical cross-sectional study using the Brazilian Portuguese version of the PedsQL in 22 patients with MPS between the ages of 8 and 21. With regard to assessing the validity of the PedsQL for MPS, we evaluated internal consistency using Cronbach’s α coefficient and reliability using the Spearman–Brown estimate of agreement. The mean HRQOL score in our sample was 63.6 points. The worst score was obtained in the Psychosocial domain (61.9) on account of interference with school (56.1), while the Physical Health domain had the highest score (67.6). The total PedsQL internal consistency was .764 points. The Physical Health domain obtained the highest internal consistency (.914), whereas the Psychosocial Health domain obtained the lowest one (.754). MPS was demonstrated to decrease HRQOL, and PedsQL seems to be a valid instrument to perform this kind of analysis.

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