scholarly journals Health sciences librarians’ engagement in open science: a scoping review

2021 ◽  
Vol 109 (4) ◽  
Author(s):  
Dean Giustini ◽  
Kevin B. Read ◽  
Ariel Deardorff ◽  
Lisa Federer ◽  
Melissa L. Rethlefsen

Objectives: To identify the engagement of health sciences librarians (HSLs) in open science (OS) through the delivery of library services, support, and programs for researchers.Methods: We performed a scoping review guided by Arksey and O’Malley’s framework and Joanna Briggs’ Manual for Scoping Reviews. Our search methods consisted of searching five bibliographic databases (MEDLINE, Embase, CINAHL, LISTA, and Web of Science Core Collection), reference harvesting, and targeted website and journal searching. To determine study eligibility, we applied predetermined inclusion and exclusion criteria and reached consensus when there was disagreement. We extracted data in duplicate and performed qualitative analysis to map key themes.Results: We included fifty-four studies. Research methods included descriptive or narrative approaches (76%); surveys, questionnaires, and interviews (15%); or mixed methods (9%). We labeled studies with one or more of FOSTER's six OS themes: open access (54%), open data (43%), open science (24%), open education (6%), open source (6%), and citizen science (6%). Key drivers in OS were scientific integrity and transparency, openness as a guiding principle in research, and funder mandates making research publicly accessible.Conclusions: HSLs play key roles in advancing OS worldwide. Formal studies are needed to assess the impact of HSLs’ engagement in OS. HSLs should promote adoption of OS within their research communities and develop strategic plans aligned with institutional partners. HSLs can promote OS by adopting more rigorous and transparent research practices of their own. Future research should examine HSLs’ engagement in OS through social justice and equity perspectives.

2020 ◽  
Vol 22 (1) ◽  
pp. 31-40 ◽  
Author(s):  
Adam H. Hansell ◽  
Peter R. Giacobbi ◽  
Dana K. Voelker

Africa has the highest rates of child mortality and diseases in the world. Research suggests that sport can be an effective way to enhance health knowledge and behaviors among at-risk youth in Africa. Scoping reviews explore both the breadth and depth of a research topic, which allows researchers to conduct a detailed analysis and synthesis of studies to understand how, why, and under what circumstances sport-based interventions are effective. The purpose of this scoping review was to specifically examine the study design, theoretical foundations, sample characteristics, measured and observed outcomes, intervention characteristics, and funding sources identified in previous studies that examined sport as a platform for health promotion with youth in Africa. A total of 916 articles were retrieved from 10 electronic bibliographic databases; 28 studies met the inclusion criteria. Of these, four were randomized controlled trials, while the remaining were open trials with pre-posttest assessments, both with comparison conditions and without. Only 10 studies included a theoretical framework to specifically inform the sport-based intervention implemented. Targeted health outcomes included knowledge and behaviors related to a myriad physical and mental health concerns, such as HIV, clean water use, vaccinations, physical activity, and fitness. Statistically significant improvements were observed in 82% of the studies examined. Our results suggest that sport-based interventions may be effective in improving health knowledge and behaviors among youth in Africa. Recommendations for future research, including methodology and the importance of global partnerships with nonprofit organizations, are discussed.


BMJ Open ◽  
2021 ◽  
Vol 11 (9) ◽  
pp. e047315
Author(s):  
Shiraz El Adam ◽  
Colene Bentley ◽  
Lisa McQuarrie ◽  
Paulos Teckle ◽  
Stuart Peacock

IntroductionWhile the socioeconomic impact of a cancer diagnosis on cancer survivors has gained some attention in the literature, to our knowledge, a review of the evidence on changes in income due to cancer has yet to be undertaken. In this paper, we describe a scoping review protocol to review the evidence on the effect of a cancer diagnosis on the income of individuals diagnosed with cancer during adulthood (≥18 years). The purpose is to summarise existing evidence, identify gaps in current research and highlight priority areas for future research.Methods and analysisThis study will follow the methodological framework for conducting scoping reviews by the Joanna Briggs Institute In collaboration with a health science librarian, we developed a search strategy to be performed in Ovid MEDLINE, PsycINFO, Cumulative Index to Nursing and Allied Health Literature, EMBASE, Econ-Literature and Evidence-Based Medicine Reviews. This scoping review will search the scientific literature published in English from 1 January 2000 to 31 December 2020. Studies that measured the impact of cancer on income of adults will be eligible for inclusion. Studies exclusively focused on employment outcomes (eg, return to work, unemployment, productivity loss), financial expenditures, childhood cancer survivors and/or the caregivers of cancer survivors will be excluded. Three independent reviewers will conduct screening and extract data. Descriptive information will be reported following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) extension for Scoping Reviews.Ethics and disseminationThis scoping review will analyse data from publicly available materials and thus does not require ethics approval. Results from this review will be disseminated through a peer-reviewed publication and/or conference presentation with the potential to identify gaps in the literature, suggest strategies for standardised terminology and provide directions for future research.


BMJ Open ◽  
2021 ◽  
Vol 11 (11) ◽  
pp. e055488
Author(s):  
George N Okoli ◽  
Otto L T Lam ◽  
Viraj K Reddy ◽  
Leslie Copstein ◽  
Nicole Askin ◽  
...  

ObjectivesTo summarise the current evidence regarding interventions for accurate and timely cancer diagnosis among symptomatic individuals.DesignA scoping review following the Joanna Briggs Institute’s methodological framework for the conduct of scoping reviews and reported in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist.Data sourcesMEDLINE (Ovid), CINAHL (EBSCOhost) and PsycINFO (Ovid) bibliographic databases, and websites of relevant organisations. Published and unpublished literature (grey literature) of any study type in the English language were searched for from January 2017 to January 2021.Eligibility and criteriaStudy participants were individuals of any age presenting at clinics with symptoms indicative of cancer. Interventions included practice guidelines, care pathways or other initiatives focused on achieving predefined benchmarks or targets for wait times, streamlined or rapid cancer diagnostic services, multidisciplinary teams and patient navigation strategies. Outcomes included accuracy and timeliness of cancer diagnosis.Data extraction and synthesisWe summarised findings graphically and descriptively.ResultsFrom 21 298 retrieved citations, 88 unique published articles and 16 unique unpublished documents (on 18 study reports), met the eligibility for inclusion. About half of the published literature and 83% of the unpublished literature were from the UK. Most of the studies were on interventions in patients with lung cancer. Rapid referral pathways and technology for supporting and streamlining the cancer diagnosis process were the most studied interventions. Interventions were mostly complex and organisation-specific. Common themes among the studies that concluded intervention was effective were multidisciplinary collaboration and the use of a nurse navigator.ConclusionsMultidisciplinary cooperation and involvement of a nurse navigator may be unique features to consider when designing, delivering and evaluating interventions focused on improving accurate and timely cancer diagnosis among symptomatic individuals. Future research should examine the effectiveness of the interventions identified through this review.


2019 ◽  
Vol 2 (2) ◽  
pp. 87-88
Author(s):  
Ziad Zahoni ◽  
Bukola Salami ◽  
Micheal Kariwo ◽  
Higinio Fernandez-Sánchez

Despite the research on African-America parents, children and families who suffer from sickle cell disease (SCD), less is known about African immigrant children who migrated outside of Africa. Therefore, the purpose of this scoping review was to assess the extent, range, and nature of the existing index of research on African immigrant children with SCD living outside of Africa, to map out research activity and to identify gaps in the existing literature. This review followed the scoping review methodology of Arksey & O’Malley. A comprehensive search in ten electronic databases was conducted. The search strategy combined the keywords “sickle cell” and “African immigrant children”. Inclusion criteria focused on research published between 2000 and 2019, reporting on the health of African immigrant children aged 0 to 18 years. Systematic & literature review reviews, conferences, case studies, viewpoint articles, & epidemiology studies were excluded. Also, studies in which findings were based on mixed populations containing less than 80% African immigrant children, were excluded from the review. This review was guided by the five-step approach to scoping reviews of Arksey & O’Malley. Articles were included if they focused on African immigrant children living abroad. Two independent reviewers screened and selected articles. We analyzed and synthesized data using thematic analysis for qualitative data. The search yielded 6,602 records. After removing duplicates and titles, and abstracts were screened, 1,675 articles were included for full-text screening; 6 met inclusion criteria. Chain searching generated 10 articles, 1 met the inclusion criteria. Seven articles were included for analysis. The studies were all quantitative in design and none mentioned a theoretical framework. Even though all the studies were quantitative the usage of clinical assessment of the only means of attaining data, and the usage of insufficient sample size made the studies found, inconclusive in making generalizations. There are significant research gaps regarding African immigrant children with SCD living outside of Africa. A major limitation of the studies use is they were all conducted in Italy even though there are many other countries known to host immigrants from the African continent.  Furthermore, most of the studies only state the disadvantages this population faces and only two studies took the initiative in addressing these issues. Overall, this review underlines the need for future research on the impact of migration on the health outcomes of African immigrant children with SCD living outside of Africa.


2021 ◽  
Author(s):  
Navin Kumar ◽  
Sam Hampsher ◽  
Nathan Walter ◽  
Kate Nyhan ◽  
Qinglan Ding ◽  
...  

Abstract Background: The impact of misinformation about vapes’ relative harms compared with smoking may lead to increased tobacco-related burden of disease. To date, no systematic efforts have been made to chart interventions that mitigate vaping-related misinformation. We plan to conduct a scoping review that seeks to fill gaps in the current knowledge of interventions that mitigate vaping-related misinformation.Methods: A scoping review focusing on interventions that mitigate vaping-related misinformation will be conducted. We will search (no date restrictions) MEDLINE, Scopus, EMBASE, CINAHL, PsycINFO, Web of Science Core Collection, Global Health, ERIC and Sociological Abstracts. Grey literature will be identified using Disaster Lit, Google Scholar, Open Science Framework, governmental websites and preprint servers (e.g. EuropePMC, PsyArXiv, MedRxiv, JMIR Preprints). Study selection will conform to Joanna Briggs Institute Reviewers’ Manual 2020 Methodology for JBI Scoping Reviews. Only English language, original studies will be considered for inclusion. Two reviewers will independently screen all citations, full-text articles, and abstract data. A narrative summary of findings will be conducted. Data analysis will involve quantitative (e.g. frequencies) and qualitative (e.g. content and thematic analysis) methods.Discussion: Original research is urgently needed to design interventions to mitigate vaping-related misinformation. The planned scoping review will help to address this gap.Systematic Review registrations: Systematic Review Registration: Open Science Framework (osf/io/hy3tk).


2020 ◽  
Vol 34 (8) ◽  
pp. 976-988
Author(s):  
Anne Fee ◽  
Deborah Muldrew ◽  
Paul Slater ◽  
Sheila Payne ◽  
Sonja McIlfatrick ◽  
...  

Background: Access to community palliative care ‘out-of-hours’ – defined as care provided after the normal hours of work – is advocated globally. Healthcare assistants, who provide care under the direction of a qualified professional, are increasingly employed to help deliver such care, yet there is a little understanding regarding their role, responsibilities or contribution. Aim: The aim of this study was to identify the roles, responsibilities and contributions of healthcare assistants in out-of-hours community palliative care. Design: Scoping review Data sources: Five bibliographic databases (CINAHL, MEDLINE, EMBASE, PsycINFO and Scopus) and grey literature were searched using a predefined search strategy. The review was conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews statement. Results: The search yielded six papers using quantitative, qualitative and mixed methods. Results highlighted a lack of recognition of the role and contribution of healthcare assistants. A concurrent theme was that healthcare assistants continually monitored and responded to patient’s and family’s physical and emotional needs; there was also self-reported evidence indicating patient and family benefit, such as maintaining a sense of normality and support to remain at home. Discussion: This review highlighted a dearth of evidence relating to the healthcare assistant role in out-of-hours palliative care. Limited evidence suggests they play a role, but that it is hidden and undervalued. Such invisibility will have a significant impact on the planning and delivery of out-of-hours palliative care. Future research is needed on role development for the benefit of patients and caregivers.


2021 ◽  
Author(s):  
Emma Kirwan ◽  
Páraic S Ó’Súilleabháin ◽  
Annette Burns ◽  
Jennifer McMahon ◽  
Sarah Summerville ◽  
...  

Abstract BackgroundLoneliness refers to the distressing feeling that accompanies the experience of perceiving the quantity or quality of one’s social relationships as inadequate (1). There is increasing recognition of the prevalence of loneliness in young adults. Despite this, there is no existing scoping review on loneliness in young adulthood. Young adults (18-25 years) are in a critical life stage involving diverse social, demographic, biological and cognitive transitions which may affect the development of loneliness. Evidence that loneliness is a risk factor for poorer mental and physical health further emphasises the need to understand the experience in this age group. Therefore, the aim of our scoping review is to provide a summary of the quantitative and qualitative literature on loneliness in young adulthood. MethodsThe proposed scoping review will follow the Joanna Briggs Institute methodology and Arksey and O’Malley’s (2005) framework for scoping reviews. Peer-reviewed journal articles and grey literature in the form of reports or difficult-to-locate studies will be identified by: (a) electronic database searching, (b) contacting national and international researchers in the field, and (c) by posting general requests for relevant information on Twitter. We will include all study designs published in English from 2000 to 2021 where loneliness (defined as subjective) is a key focus of the work and the mean age of participants is ≥ 18 and ≤ 25 years. Editorials, commentaries, opinion pieces, dissertations, and book chapters will be excluded. Articles will be selected for inclusion following screening of titles/abstracts succeeded by full-text screening. Results will be presented in a narrative form to provide a descriptive summary of the literature on loneliness in young adults.DiscussionThe results of this scoping review will provide an up-to-date overview of available research related to loneliness in young adults and will inform our future research in the area. Results will be shared through a peer-reviewed journal publication and conference presentations. RegistrationThis protocol is registered with the Open Science Framework (OSF) available at: https://osf.io/jfcmp.


Author(s):  
Karen Alexander ◽  
Monika Pogorzelska-Maziarz ◽  
Angela Gerolamo ◽  
Nadia Hassen ◽  
Erin L. Kelly ◽  
...  

Abstract Research objective The COVID-19 pandemic disrupted healthcare delivery worldwide with likely negative effects on people who use opioids (PWUO). This scoping review of the original research literature describes the impact of the COVID-19 pandemic on healthcare delivery for PWUO and identifies gaps in the literature. Methods This scoping review of the original research literature maps the available knowledge regarding the impact of the COVID-19 pandemic on healthcare delivery for PWUO. We utilized the methodology developed by the Joanna Briggs Institute for scoping reviews, and content analyses methodology to characterize the current state of the literature. Results Of the 14 included studies, administrative database (n = 11), cross-sectional (n = 1) or qualitative (n = 2) studies demonstrated service gaps (n = 7), patient/provider experiences (n = 3), and patient outcomes for PWUO (n = 4). In March 2020, healthcare utilization dropped quickly, sharply increasing only for reasons of opioid overdose by May 2020. Service gaps existed in accessing treatment for new patients during the pandemic due to capacity and infrastructure limits. Physicians reported difficulty referring patients to begin an outpatient opioid treatment program due to increased restrictions in capacity and infrastructure. Patients also reported uncertainty about accessing outpatient treatment, but that telehealth initiation of buprenorphine increased access to treatment from home. Disproportionate increases in overdose rates among African Americans were reported in two studies, with differences by race and gender not examined in most studies. Fatal overdoses increased 60% in African Americans during the pandemic, while fatal overdoses in Non-Hispanic White individuals decreased. Conclusions In summary, this beginning evidence demonstrates that despite early reluctance to use the healthcare system, opioid overdose-related use of healthcare increased throughout the pandemic. Service delivery for medications to treat OUD remained at or above pre-pandemic levels, indicating the ability of telehealth to meet demand. Yet, racial disparities that existed pre-pandemic for PWUO are intensifying, and targeted intervention for high-risk groups is warranted to prevent further mortality. As the pandemic progresses, future research must focus on identifying and supporting subgroups of PWUO who are at heightened risk for experiencing negative outcomes and lack of access to care.


2021 ◽  
Vol 7 (3) ◽  
pp. e001108
Author(s):  
Omar Heyward ◽  
Stacey Emmonds ◽  
Gregory Roe ◽  
Sean Scantlebury ◽  
Keith Stokes ◽  
...  

Women’s rugby (rugby league, rugby union and rugby sevens) has recently grown in participation and professionalisation. There is under-representation of women-only cohorts within applied sport science and medicine research and within the women’s rugby evidence base. The aims of this article are: Part 1: to undertake a systematic-scoping review of the applied sport science and medicine of women’s rugby, and Part 2: to develop a consensus statement on future research priorities. This article will be designed in two parts: Part 1: a systematic-scoping review, and Part 2: a three-round Delphi consensus method. For Part 1, systematic searches of three electronic databases (PubMed (MEDLINE), Scopus, SPORTDiscus (EBSCOhost)) will be performed from the earliest record. These databases will be searched to identify any sport science and medicine themed studies within women’s rugby. The Preferred Reporting Items for Systematic Reviews and Meta-analyses extension for Scoping Reviews will be adhered to. Part 2 involves a three-round Delphi consensus method to identify future research priorities. Identified experts in women’s rugby will be provided with overall findings from Part 1 to inform decision-making. Participants will then be asked to provide a list of research priority areas. Over the three rounds, priority areas achieving consensus (≥70% agreement) will be identified. This study has received institutional ethical approval. When complete, the manuscript will be submitted for publication in a peer-reviewed journal. The findings of this article will have relevance for a wide range of stakeholders in women’s rugby, including policymakers and governing bodies.


Author(s):  
Han Shi Jocelyn Chew ◽  
Violeta Lopez

Objective: To provide an overview of what is known about the impact of COVID-19 on weight and weight-related behaviors. Methods: Systematic scoping review using the Arksey and O’Malley methodology. Results: A total of 19 out of 396 articles were included. All studies were conducted using online self-report surveys. The average age of respondents ranged from 19 to 47 years old, comprised of more females. Almost one-half and one-fifth of the respondents gained and lost weight during the COVID-19 pandemic, respectively. Among articles that examined weight, diet and physical activity changes concurrently, weight gain was reported alongside a 36.3% to 59.6% increase in total food consumption and a 67.4% to 61.4% decrease in physical activities. Weight gain predictors included female sex, middle-age, increased appetite, snacking after dinner, less physical exercise, sedentary behaviors of ≥6 h/day, low water consumption and less sleep at night. Included articles did not illustrate significant associations between alcohol consumption, screen time, education, place of living and employment status, although sedentary behaviors, including screen time, did increase significantly. Conclusions: Examining behavioral differences alone is insufficient in predicting weight status. Future research could examine differences in personality and coping mechanisms to design more personalized and effective weight management interventions.


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