scholarly journals transformational face of loss

2020 ◽  
Vol 1 ◽  
pp. 108-120
Author(s):  
Jean Farrell
Keyword(s):  
Lived Experience ◽  
Emotional Responses ◽  
Heuristic Approach ◽  
Data Driven ◽  
Structured Interviews ◽  
Mine Environment ◽  
Creative Individual

This study examines ways in which loss can lead to individual experiences of change: the transformational face of loss. It is specifically interested in how loss can be experienced, recalled, and integrated as part of the journey towards what Kübler-Ross (1973) calls “acceptance” or Kessler (2019) calls “meaning”. This paper draws on the recollections of five miners who lost both their job and community when the mine they worked in closed in 1996. The heuristic approach (Moustakas, 1990) adopted in this research helped the researcher and participants tap back into their lived experience of loss, enabling a new experiencing and documenting that was both data-driven and creative. Individual semi-structured interviews were conducted, recorded, and transcribed as an expression of their journey towards change. Participants were asked questions about their sensory and emotional responses to their jobs in the mine environment, how it felt to lose those jobs, both then and twenty years on from the pit closure. Themes emerged that were common to all participants. Those explored in this paper relate to camaraderie and environment. Differences were found in the time participants took to accept the loss and the ways in which they found new purpose.

scholarly journals User testing a patient information resource about potential complications of vaginally inserted synthetic mesh

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Nikolina Angelova ◽  
Louise Taylor ◽  
Lorna McKee ◽  
Naomi Fearns ◽  
Tracey Mitchell
Keyword(s):  
Lived Experience ◽  
Patient Information ◽  
Pelvic Organ ◽  
Synthetic Mesh ◽  
Information Resource ◽  
User Testing ◽  
Structured Interviews ◽  
Convenience Sample ◽  
Asking Questions ◽  
Direct Guidance

Abstract Background Vaginal mesh implants are medical devices used in a number of operations to treat stress urinary incontinence and pelvic organ prolapse. Although many of these operations have delivered good outcomes, some women have experienced serious complications that have profoundly affected their quality of life. To ensure that evolving patient information is up-to-date, accurate and appropriate, the Transvaginal Mesh Oversight Group ‘user-tested’ a newly developed Scottish patient resource, the first to focus exclusively on the issue of complications. The aim of this research was to gather feedback on usability, content, language and presentation to inform the development of the resource from a user perspective. Methods The experience of using the patient resource was captured through semi-structured interviews that followed a ‘think-aloud’ protocol. The interviewer observed each participant as they went through the resource, asking questions and making field notes. Participants’ comments were then categorised using a validated model of user experience and subsequently analysed thematically. Results Thirteen people participated in the user testing interviews, including women with lived experience of mesh implants (n = 7), a convenience sample of staff working for Healthcare Improvement Scotland (n = 5) and a patient’s carer (n = 1). The majority of participants considered the resource as clear and helpful. Respondents reported that some presentational aspects promoted usability and understandability, including the use of a font that is easy to read, bullet lists, coloured headings and simple language. Barriers included the reliance on some technical language and an explicit anatomical diagram. Participants endorsed the valuable role of health professionals as co-mediators of patient information. Conclusions The findings illustrate the value of undertaking in-depth user-testing for patient information resources before their dissemination. The study highlighted how the direct guidance or navigation of a patient information resource by a health professional could increase its salience and accuracy of interpretation by patients, their families and carers. These insights may also be useful to other developers in improving patient information.

Risk perception on the labour ward: A mixed methods study

2021 ◽  
Vol 26 (2) ◽  
pp. 56-63
Author(s):  
Claire McCarthy ◽  
Sarah Meaney ◽  
Marie Rochford ◽  
Keelin O’Donoghue
Keyword(s):  
Mixed Methods ◽  
Lived Experience ◽  
Healthcare Providers ◽  
Emergency Obstetric Care ◽  
Obstetric Care ◽  
Daily Basis ◽  
Mixed Methods Study ◽  
Structured Interviews ◽  
Staff Support ◽  
Staff Wellbeing

Healthcare providers commonly experience risky situations in the provision of maternity care, and there has been increased focus on the lived experience in recent years. We aimed to assess opinions on, understanding of and behaviours of risk on the LW by conducting a mixed methods study. Staff working in a LW setting completed a descriptive questionnaire-based study, followed by qualitative structured interviews. Statistical analysis was performed with SPSS on quantitative data and thematic analysis performed on qualitative data. Nearly two thirds of staff (64%; 73/114) completed the questionnaire, with 56.2% (n = 47) experiencing risk on a daily basis. Experiencing risk evoked feelings of apprehension (68.4%; n = 50) and worry (60.2%; n = 44) which was echoed in the qualitative work. Structured clinical assessment was utilised in risky situations, and staff described “ going on autopilot” to manage these situations. A large number of respondents reflected on their provision of care following an adverse event (87.7%; n = 64). Debriefing was mentioned as an important practice following such events by all respondents. This study describes the negative terminology prevailing in emergency obstetric care. These experiences can have a profound impact on staff. Risk reduction strategies and the provision of increased staff support and training are crucial to improve staff wellbeing in stressful scenarios.

scholarly journals Rural Aboriginal high school students' views of their future tertiary education

2020 ◽  
pp. 1-11
Author(s):  
Jessica Howard ◽  
Jacob Jeffery ◽  
Lucie Walters ◽  
Elsa Barton
Keyword(s):  
High School ◽  
High School Students ◽  
Lived Experience ◽  
Educational Outcomes ◽  
Educational Aspirations ◽  
Tertiary Education ◽  
Structured Interviews ◽  
School Students ◽  
Aboriginal Australians ◽  
Relationship Networks

Abstract In the context of a stark discrepancy in the educational outcomes of Aboriginal Australians compared to non-Aboriginal Australians, this article aims to contribute the voices of rural Aboriginal high school students to the discourse. This article utilises an appreciative enquiry approach to analyse the opinions and aspirations of 12 Aboriginal high school students in a South Australian regional centre. Drawing on student perspectives from semi-structured interviews, this article contributes to and contextualises the growing body of literature regarding educational aspirations. It demonstrates how rurality influences a complex system of intrinsic attributes, relationship networks and contextual factors. It offers an important counterpoint to discourses surrounding academic disadvantage and highlights the lived experience of rural Aboriginal Australians.

Living with Heart Failure during the COVID-19 Pandemic: An Interpretative Phenomenological Analysis

2021 ◽  
pp. 105477382110166
Author(s):  
Alessia Martina Trenta ◽  
Davide Ausili ◽  
Rosario Caruso ◽  
Cristina Arrigoni ◽  
Massimo Moro ◽  
...  
Keyword(s):  
Heart Failure ◽  
Coping Strategies ◽  
Lived Experience ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Hospital Organization ◽  
Challenging Situation ◽  
And Coping ◽  
Negative Feelings

This study aimed to explore lived experience of patients with heart failure (HF) during the COVID-19 pandemic. A qualitative study was conducted using an interpretative phenomenological analysis (IPA). Data collection performed in March-May 2020, using in-depth, semi-structured interviews on a purposive sample. Data were analyzed according to the IPA methodology, and triangulation, bracketing, journaling, and member checking were used to assure rigor. 14 patients with HF were enrolled, and three main themes described their lived experience during the COVID-19 pandemic: Vulnerability, Hanging in the balance, and Coping strategies. These people felt particularly vulnerable to the novel virus and experienced uncertainty due to hospital organization changes. Because of this, they felt like they were hanging in the balance, experiencing various negative feelings. Nevertheless, they managed to deal with this challenging situation by implementing some peculiar coping strategies. The COVID-19 represents a significant challenge for patients with HF, impacting significantly on their lives.

scholarly journals ‘Don’t Put the Cart before the Mule!’ Challenging Assumptions Regarding Health-Related Treatment Practices of Working Equid Owners in Northern India

Animals ◽  
2021 ◽  
Vol 11 (5) ◽  
pp. 1307
Author(s):  
Caroline Nye ◽  
Tamlin Watson ◽  
Laura M. Kubasiewicz ◽  
Zoe Raw ◽  
Faith Burden
Keyword(s):  
Decision Making ◽  
Lived Experience ◽  
Health Management ◽  
Animal Health ◽  
Structured Interviews ◽  
Treatment Practices ◽  
Northern India ◽  
Brick Kilns ◽  
Treatment Measures ◽  
Working Equids

This paper challenges assumptions that the health management of working equids among some of India’s poorest communities is mainly dependent upon income, economic influence, or access to veterinary services. Using a mixed-methods approach, hierarchies of treatment practices are revealed through an examination of the ‘lived experience’ of equid owners in brick kilns and construction sites in northern India. Semi-structured interviews with 37 equid owners and corresponding livelihood surveys, combined with data from two focus groups with professional animal health practitioners and the welfare data of 63 working equids collected using the Equid Assessment, Research, and Scoping (EARS) tool, contributed to the findings of the study. Four principal influencing factors were found to affect the decision-making practices of equid owners. Infrastructural factors, community characteristics and experience, owners’ characteristics and experience, and economic factors all impact the belief structures of equid owners. However, without verifying the validity of the treatment measures being employed, some animals are at risk from hazardous treatment behaviours. By understanding decision-making using the theory of planned behaviour, the findings of this study can provide a crucial contribution to informing future interventions involved in the health management and welfare of working equids.

Recovery colleges: long-term impact and mechanisms of change

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Holly Thompson ◽  
Laura Simonds ◽  
Sylvie Barr ◽  
Sara Meddings
Keyword(s):  
Mental Health ◽  
Lived Experience ◽  
Positive Impact ◽  
Evidence Base ◽  
College Attendance ◽  
Personal Recovery ◽  
Structured Interviews ◽  
Content Type ◽  
Educational Paradigm ◽  
Long Term Impact

Purpose Recovery Colleges are an innovative approach which adopt an educational paradigm and use clinician and lived experience to support students with their personal recovery. They demonstrate recovery-orientated practice and their transformative role has been evidenced within mental health services. The purpose of this study is to explore how past students understand the influence of the Recovery College on their on-going recovery journey. Design/methodology/approach An exploratory, qualitative design was used and semi-structured interviews took place with 15 participants. Data was analysed using the “framework method” and inductive processes. Findings All participants discussed gains made following Recovery College attendance that were sustained at one year follow-up. Three themes emerged from the data: Ethos of recovery and equality; Springboard to opportunities; and Intrapersonal changes. Originality/value This research explores students’ experiences a year after attendance. This contrasts to most research which is completed immediately post course. This study contributes to the emergent evidence base highlighting the longitudinal positive impact of Recovery Colleges. This study is of value to those interested in recovery-oriented models within mental health. Recovery Colleges are gaining traction nationally and internationally and this research highlights processes underlying this intervention which is of importance to those developing new Recovery Colleges.

The role of family adaptation in the transition to adulthood for youth with medical complexity: a qualitative case study protocol

2021 ◽  
Vol 0 (0) ◽  
Author(s):  
Lin Li ◽  
Nancy Carter ◽  
Jenny Ploeg ◽  
Jan Willem Gorter ◽  
Patricia H. Strachan
Keyword(s):  
Lived Experience ◽  
Transition To Adulthood ◽  
Evidence Base ◽  
Adult Health ◽  
Structured Interviews ◽  
Adult Services ◽  
Development Framework ◽  
Medical Complexity ◽  
Life Course Health

Abstract Background For youth with medical complexity and their families, the transition to adulthood is a stressful and disruptive period that is further complicated by the transfer from relatively integrated and familiar pediatric services to more fragmented and unfamiliar adult services. Previous studies report that families feel abandoned, overwhelmed, and unsupported during transition. In order to provide better support to families, we need to understand how families currently manage transition, what supports they need most, and how key factors influence their experiences. The aim of this study is to understand how families of youth with medical complexity adapt to the youth’s transition to adulthood and transfer to adult health care, social, and education services, and to explain how contextual factors interact to influence this process. Methods Informed by the Life Course Health Development framework, this study will use a qualitative explanatory case study design. The sample will include 10–15 families (1–3 participants per family) of youth with medical complexity (aged 16–30 years) who have lived experience with the youth’s transition to adulthood and transfer to adult services. Data sources will include semi-structured interviews and resources participants identified as supporting the youth’s transition. Reflexive thematic analysis will be used to analyze interview data; directed content analysis will be used for documentary evidence. Discussion While previous studies report that families experience significant challenges and emotional toll during transition, it is not known how they adapt to these challenges. Through this study, we will identify what is currently working for families, what they continue to struggle with, and what their most urgent needs are in relation to transition. The anticipated findings will inform both practice solutions and policy changes to address the needs of these families during transition. This study will contribute to the evidence base needed to develop novel solutions and advance policies that will meaningfully support successful transitions for families of youth with medical complexity.

Perception of the lived experience of women with dyspareunia and vaginismus: qualitative study

2021 ◽  
Author(s):  
Maryam Heydarian ◽  
Maryam Gholamzadehjefreh ◽  
Shahbazi Masoud
Keyword(s):  
Lived Experience ◽  
Physical Symptoms ◽  
Research Literature ◽  
Sexual Intimacy ◽  
Structured Interviews ◽  
Purposeful Sampling ◽  
The Family ◽  
Data Saturation ◽  
The Individual ◽  
Inferiority Feeling

Aim: Dyspareunia and vaginismus are important issues in the lives of women with these disorders and have adverse, damaging consequences for the individual, the family, and the couple's intimacy. Therefore, the purpose of the present study was to investigate the lived experience of women with dyspareunia and vaginismus. Methods: The method of this study was descriptive-phenomenological psychological in which nine female participants suffering from dyspareunia and vaginismus were selected through purposeful sampling and data collection was continued through semi-structured interviews until data saturation was reached. After collecting the data and transcribing them, the researcher used Giorgi’s five-step phenomenological data analysis method. Results: Analyzing data led to 12 contributing components of the lived experience of women with dyspareunia and vaginismus which included: lack of awareness, experiencing the physical symptoms of anxiety, fear, predicting pain, feeling of inadequacy and inferiority, feeling of shame, hatred of sex and of spouse, a feeling of suffering, feeling of anger, feeling of guilt, decreased emotional and sexual intimacy, and regret about marriage. Conclusion: The results of this study also enrich the previous research literature on the lived experience of dyspareunia and vaginismus. Also, the structure of the lived experience of dyspareunia and vaginismus derived from this study is widely used to develop and apply preventive and therapeutic programs for this condition and its consequences.

Educator Knowledge and Implementation of Assistive Technology to Support Challenging Behaviors: An Exploratory Inquiry

2021 ◽  
Vol 36 (3) ◽  
pp. 162-174
Author(s):  
Christopher R. Emerling ◽  
Sarah Wilkinson ◽  
Daniel M. Maggin
Keyword(s):  
Assistive Technology ◽  
Lived Experience ◽  
Students With Disabilities ◽  
Challenging Behaviors ◽  
Future Research ◽  
Structured Interviews ◽  
Dynamic Learning ◽  
Behavioral Challenges ◽  
Emerging Trends ◽  
K 12

Emerging trends and advancements in technology allow educators to develop dynamic learning environments to support their students’ academic and behavioral needs. The study documented the lived experience of special educators using assistive technology (AT) to support behavioral challenges in students with disabilities and the environmental factors that support educator’s use of AT. Fifteen educators who worked in K–12 schools participated in semi-structured interviews and completed a researcher-developed Assistive Technology Treatment Integrity Checklist (ATTIC). This exploratory study indicated that participants had limited experiences using AT to target challenging behaviors. However, participants used technology to support evidence-based interventions or customized instructional technologies to manage students’ needs. Our findings also indicated that school structures impacted AT-related attitudes and eventual use. The findings from this study add to the literature on technology supports for students with challenging behaviors. Implications for practice and future research are also discussed.

scholarly journals FAMILY DEMENTIA CAREGIVERS’ EPIPHANIES AND CHANGES IN THEIR APPROACH TO CARING FOLLOWING THE VIRTUAL DEMENTIA TOUR

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S554-S554
Author(s):  
Candace C Harrington ◽  
Candace C Harrington
Keyword(s):  
Lived Experience ◽  
Family Caregiving ◽  
Phenomenological Study ◽  
Structured Interviews ◽  
Dementia Caregivers ◽  
Term Care ◽  
Health Indices ◽  
Person Perspective ◽  
Eye Opening

Abstract Previous interventional studies have failed to show long-term improvements in caregiver stress, health indices, burden, or delay in long-term care placement. The Virtual Dementia Tour® (VDT) provides a vicarious first-person perspective of symptoms related to dementia. This interpretative phenomenological study revealed family dementia caregivers’ perceptions of the VDT® and its impact on their perception of a person living with dementia. In-depth open semi-structured interviews were conducted with ten VDT® participants following a community event. Participants’ statements described a life-changing process with eye-opening epiphanies about the lived experience of dementia and served as a “call to action” to change their approach to caring. Innovative advances in family caregiving research are critical to support this valuable geriatric workforce. This original study provided new knowledge about the value of the VDT® to inform interventions that harness the unrecognized power of vicarious experiences like the VDT® for family dementia caregivers to improve long-term outcomes.

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