scholarly journals Post-Stroke Quality of Life Perceived by Patients and Caregivers

2021 ◽  
Vol 24 (3) ◽  
pp. 165-172
Author(s):  
Gitalia Putri Medea ◽  
Elly Nurachmah ◽  
Muhamad Adam

The quality of life (QOL) of post-stroke patients can be assessed from the reports of patients themselves obtained through a structured interview or a questionnaire. However, some individuals are unable to comprehensively describe their QOL because of language disorders, cognitive effects caused by stroke, or pre-existing conditions. This study aims to identify differences in post-stroke QOL perception between patients and caregivers. A cross-sectional design involving 115 stroke patients and 115 caregivers was adopted, and Mann–Whitney test was used for statistical analysis. Results showed no significant difference in QOL perception (p = 0.166; α < 0.05), particularly in the physical (p = 0.278; α < 0.05), psychological (p = 0.068; α < 0.05), social relationship (p = 0.976; α < 0.05), and environmental (p = 0.157; α < 0.05) domains between patients and caregivers. Therefore, information from caregivers can be used to assess QOL when patients are incapable of reporting their condition. AbstrakKualitas Hidup Pasca Stroke yang Dipersepsikan oleh Pasien dan Caregiver. Kualitas hidup pasien pasca stroke dapat diketahui berdasarkan laporan dari pasien stroke dengan wawancara terstruktur atau dengan pengisian kuesioner. Namun, beberapa dari pasien stroke tidak dapat menggambarkan kualitas hidup mereka karena adanya gangguan bahasa dan efek kognitif lainnya akibat stroke atau kondisi yang sudah ada sebelumnya. Penelitian ini bertujuan mengidentifikasi perbedaan persepsi kualitas hidup antara perspektif pasien pasca stroke dan  caregiver. Penelitian ini menggunakan desain cross sectional yang melibatkan 115 pasien dan 115 caregiver dengan menggunakan analisis statistik Mann Whitney. Hasil analisis menunjukkan tidak terdapat perbedaan secara signifikan antara persepsi kualitas hidup dari pasien dan caregiver (p = 0,166 ; α < 0,05), khususnya pada domain fisik (p = 0,278; α < 0,05), psikologis (p = 0,068; α < 0,05), hubungan sosial (p = 0,976; α < 0,05), dan lingkungan (p = 0.157; α < 0,05) dari kualitas hidup yang dipersepsikan oleh pasien dan yang dipersepsikan oleh caregiver. Informasi dari caregiver dapat digunakan saat pasien tidak dapat memberikan informasi terkait kualitas hidupnya.Kata Kunci: caregiver, kualitas hidup, persepsi, stroke

2019 ◽  
Vol 5 (1) ◽  
pp. 53
Author(s):  
Ilsa Hunaifi ◽  
Pujiarohman Pujiarohman

troke is a leading cause of mortality and morbidity in Indonesia.  Post stroke patients has a higher disability hence results in poor quality of life compared with normal population. In Indonesia, studies related to the quality of life of post-stroke patients are scarce, so studies are required to explore the quality of life of post-stroke patients, particularly in West Nusa Tenggara. Aim of this study is to determine the epidemiology of quality of life for post-stroke patients in West Nusa Tenggara. Methods of this study is An Observational with cross-sectional design was performed in population of post-stroke patients admitted to West Nusa Tenggara General Hospital. The quality of life of post stroke patient was evaluated with SSQOL (Stroke Specific Quality of Life) questionnaire. The collected data was analyzed by the appropriate test. Result of this study is the average age of subject is 60.33±10.68 years. Hypertension is a major risk factor of stroke. The average SSQOL score is 177.02±45.75. SSQOL assesses 4 dimension are physical, functional, psychological and social health. Based on the physical dimension, the average score is 17.00, the functional dimension, the average score is 14.91, the psychological dimension, the average score is 13.17 and the social health dimension  the average score is 13.44.  The quality of life for post-stroke patients in West Nusa Tenggara General Hospital is good.


2011 ◽  
Vol 26 (S2) ◽  
pp. 276-276
Author(s):  
H. Dessoki ◽  
T. Elhifnawy ◽  
O. Ezzat

Objectiveβ-thalassemia major and its complications carry a significant psychological impact, causing emotional burden, hopelessness, and difficulty with social integration.MethodCross-sectional study which includes thirty adolescents with diagnosis of thalassemia & another group of thirty adolescents from gastrointestinal outpatient clinic were selected. All participants were subjected to Semi structured interview, Patient Health Questionnaire, Hospital Anxiety Depression Scale, Middlesex Hospital Questionnaire, and McGill Quality of Life Questionnaire.ResultsThalassemic adolescents shows statistically significant higher depression (p < 0.001), and higher anxiety (p < 0.001) compared to adolescents from gastrointestinal outpatient clinic. There was highly statistical significant difference regarding Middlesex Hospital Questionnaire (p < 0.001), and McGill Quality of Life Questionnaire. (p < 0.001).ConclusionDepressive and anxiety disorders were more prevalent among adolescents with thalassemia. Also, among the same group there was higher degree of Free Floating Anxiety, Phobic Anxiety, Obsessive Symptoms, Somatic Symptoms, Depressive Symptoms, and hysteria. Quality of life was highly affected among adolescents with thalassemia.


2020 ◽  
Vol 3 (2) ◽  
pp. 29
Author(s):  
Rita Kirana ◽  
Tut Barkinah ◽  
Vonny Khresna Dewi

The diagnosis of cervical cancer has become a big burden for both patients and families. Most patients with advanced stage cancer have a low quality of life score which indicates they have a problem. while the family may not be ready to carry out its role in the quality of life of patients with cervical cancer. The objective of this research was to identify the correlation of nurse support in the form of palliative care on the quality of life of patients with cervical cancer. This research employed cross-sectional design. Population in this research was all patients with cervical cancer in gynecology ward in Banjarmasin. Participant for this research were patients with cervical cancer and nurses. Data were taken by structured interview and task question form. Linear regression analysis was applied with level of significance ≤0.05. The results shown that most nurses ha good level of their role in the form of palliative care while most patients also have moderate level of quality of life. Also there are significance correlations of nurse role in the form of palliative care on the quality of life of patients with cervical cancer. Keywords: cervical cancer; quality of life; palliative care; nurse; role


Author(s):  
Jeando Khan Daidano ◽  
Amir Shahzad ◽  
Awais Basheer Larik ◽  
Haresh Kumar ◽  
Safdar Ali Parvez Tunio ◽  
...  

Objective: In this study we will determine risk and frequency of the depression in stroke patients associated with quality of life. Methodology: Study duration was from January 2020 to December 2020. An observational Cross Sectional Study was conducted on 105 patients. Study conducted in Medical units PUMHS Hospital Nawabshah. After the consent of patient, Detailed history, complete CNS examination CT Scan Brain was done. Data were analyzed by using SPSS 15 version Depression was assessed by instrument beck depression inventory. Results: Age ranged from 48-68 years, 58 males, 48 females, Education of the patient 66 were uneducated, 17 primary pass and 22 middle pass. occupation of the patient 41 were unemployed, 40 were housewife and 24 were self employed. Depression level was 20 patients with borderline depression, 59 with moderate depression and 26 with severe depression. Conclusion: Post stroke depression is major problem after survival. Proper Treatment of stroke and depression can be prevented from complications and quality of life can be improved. Antidepressant drugs after acute stroke cognitive function can be improved with decreased mortality. 


2017 ◽  
Vol 7 (1) ◽  
pp. 16
Author(s):  
Mariana Jordino de Barros ◽  
Cristina Mendes Gigliotti Borsari ◽  
Antonio de Olival Fernandes ◽  
Alexandre Silva ◽  
Eduardo Filoni

<p>A vida universitária propicia ao indivíduo o encontro de um ambiente favorável para desenvolver e aprimorar valores relacionados à sua futura vida profissional e pessoal. Assim, por meio da busca do conhecimento científico, deve encontrar condições para potencializar o desenvolvimento de pensamento crítico e do seu papel enquanto cidadão, essenciais para a formação do profissional da área da saúde e de seu compromisso com a sociedade. Objetivou-se identificar as características inerentes à qualidade de vida em estudantes dos cursos de graduação em Biomedicina, Enfermagem, Farmácia e Fisioterapia. Trata-se de estudo transversal foi realizado, com 320 acadêmicos de enfermagem, farmácia, biomedicina e fisioterapia de uma Universidade particular do Estado de São Paulo. Foi utilizado uma entrevista estruturada com dados sociodemográficos e o questionário genérico sobre qualidade de vida da OMS, WHOQOL-BREF. Os resultados demonstraram diferença estatisticamente significativa na piora da qualidade de vida entre os ingressantes e concluintes dos cursos de graduação da área da saúde nos domínios psicológico, relações sociais e meio ambiente. Os estudantes do período noturno apresentaram prejuízo em sua Qualidade de Vida, devido à rotina de trabalho e estudo.</p><p align="center"><strong><em>Evaluation of quality of life in college students of the health area</em></strong></p><p><strong>Abstract: </strong>University life provides individuals with a favorable environment to develop and improve values related to their future professional and personal lives. Thus, through the search for scientific knowledge, it must find conditions to enhance the development of critical thinking and its role as a citizen, essential for the training of the health professional and his commitment to society. The objective of the research was to identify and analyze the inherent quality of life characteristics of undergraduate students in Biomedicine, Nursing, Pharmacy and Physiotherapy. This cross-sectional study was conducted with 320 nursing academics, pharmacy, biomedicine and physiotherapy from a private university in the State of São Paulo. We used a semi-structured interview with sociodemographic data and the WHOQOL-BREF generic questionnaire on quality of life. The results showed a statistically significant difference in the quality of life worsening among the students and graduates of the undergraduate courses of the health area in the psychological, social relations and environment domains. The students of the night period presented impairment in their Quality of Life, due to the routine of work and study.<strong></strong></p>


Author(s):  
Yuke Damayanti ◽  
Panji Fortuna Hadisoemarto ◽  
Irma Ruslina Defi

Background <br />Flatfoot is a musculoskeletal abnormality commonly found in children that could result in a reduction of quality of life because of its related symptoms and functional abnormalities. This study aimed to determine the association between flatfoot and the quality of life among children 5-18 years of age. <br /><br />Methods <br />A cross sectional design was used in this study of children aged 5-18 years. The diagnosis of flatfoot was made in accordance with the Chippaux-Smirak Index classification, whereas general and domain-specific quality of life were measured using the Indonesian version of PedsQL™ that has been previously validated. Mann Whitney test was used to compare quality of life between children with flatfoot and normal feet, along with other variables that potentially may influence a child’s quality of life. <br /><br />Results <br />A total of 79 out of 120 subjects was used to analyze the data. There was a statistically significant difference in the quality of life score in the school functioning domain between children with flatfoot (64.46 ±18.22) and those with normal feet (75.90 ±17.29) in children &lt;11 years of age (p=0.029). Apart from this, the study did not find any statistically significant differences in the total quality of life score or in other quality of life domains between the two groups. <br /><br />Conclusions <br />Flatfoot significantly decreases children’s quality of life in the school functioning domain. Early detection and correction of flatfoot may be necessary to improve the educational attainment of children suffering from this condition.


2019 ◽  
Vol 8 (2) ◽  
pp. 172-176
Author(s):  
Heri Saputro ◽  
Mariana Ina Camo ◽  
Budi Suraksono

The study design was cross-sectional descriptive correlative approach. Data collection tool is a questionnaire guide. Sample of 35 respondents using accidental sampling technique. The independent variable in this study is the family support and the dependent variable quality of life of patients with post-stroke. The results showed 16 respondents, or 45.8% of respondents received sufficient family support. Respondents who have a sufficient quality of life amounted to 15 respondents or 42.7%. By Spearman Rho obtained significance value (p value = 0.00) <(α = 0.05), which proved to be no family support relationships with the quality of life of the elderly after a stroke. Post-stroke patients have problems of physical health, psychological, level of dependence, social relationships, environment and personal beliefs. Therefore, they need emotional support, awards, instrumental and information, especially of the family as the people closest to them thus improving patient quality of life after stroke


Jurnal NERS ◽  
2016 ◽  
Vol 11 (1) ◽  
pp. 112
Author(s):  
Tiyas Kusumaningrum ◽  
Retnayu Pradanie ◽  
Esti Yunitasari ◽  
Sih Kinanti

Introduction. Cervical cancer diagnosis has been a major burden both for patients and their family. For patients, cervical cancer obliterated some of their role as a wife and a mother. Most patients with advance cancer have low score of quality of life indicating they have problems. Family must take care of their beloved ones dealing with the diagnosis, treatment, and side effects of cervical cancer. Family as a caregiver might be ill prepared to undertake that role. The objective of this research was to identify the correlation of family health task on quality of life in patients with cervical cancer. Methods. This research employed cross-sectional design. Population in this research was all patients with cervical cancer in gynecology ward Dr Soetomo Hospital in Surabaya. Participant for this research were patients with cervical cancer and their family. Data were taken by structured interview using Fact Cx for Quality of life and family health task question form. Linear regression analysis was applied with level of significance ≤0.05. Results. Most family had moderate level of family health task while most patients also have moderate level of quality of life. Unfortunately there are no significance correlations of family health task on quality of life in patients with cervical cancer. Discussion. Quality of life in patient with cervical cancer was not affected directly by their family health task. Nonetheless patient gratefully thanks family for their support during their cancer treatments.  Keywords: family health task, fact cx, family support, quality of life, cervical cancer


Author(s):  
Faizah Betty Rahayuningsih ◽  
Endang Zulaicha S

Introduction: Postpartum period is often considered as temporary or unimportant thing. Thus, the postpartum treatment becomes the ignored aspect from the women's health. The social support is important for mother's and child's prosperity. This research is aimed to examine the difference and the influence of social support score and the quality of life postpartum mothers by home visit 1, 2, and 3. Method: This research employs cross sectional design with longitudinal repeated measure design. The sample of this research was postpartum mothers that give birth in the village of Sukodono subdistrict area from 3 to 40 days. The sample is selected by purposive sampling. Results: There is no significant difference of mean between husband's, parents', parents-in-law's, and relative's support (p > 0.05). There is no significant difference between the quality of life postpartum mother (p > 0.05). The regression equality of social support to quality of life pospartum mother in K1, K2, and K3 were 0,157 + 0.702*husband's support, 0.099 + 0.370*husband's support – 0.674*relative's support, and 0,123+0,0674*husband's support-0,633*relative's support, respectively. Discussion. Husband's support increase quality of life pospartum mother. This is suggested to plan education in-service about the important of social support after giving birth for midwife or nurse that has role to service the mothers. Giving the education of postpartum preparation is not only for the mothers, but also for their husband. Keywords: relative's support, quality of life, postpartum


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