scholarly journals Social Support Network for the Family of Cerebral Palsy Bearing Children / Rede De Apoio Social À Família Da Criança Com Paralisia Cerebral

Author(s):  
Bruna Alves dos Santos ◽  
Viviane Marten Milbrath ◽  
Vera Lúcia Freitag ◽  
Ruth Irmgard Bärtschi Gabatz ◽  
Jéssica Cardoso Vaz

Objetivo: Conhecer as redes de apoio social das famílias de crianças com paralisia cerebral. Métodos: Estudo qualitativo, exploratório e descritivo, realizado na Associação de Pais e Amigos dos Excepcionais, de um município situado no sul do Brasil, com mães e pais de crianças com paralisia cerebral. A coleta das informações ocorreu entre abril e maio/2017, por meio de entrevistas. Foram respeitados todos os preceitos éticos estabelecidos pela resolução nº. 466/12. Resultados: Constatou-se que a rede social é composta pela família e, principalmente, pelos profissionais de saúde e de assistência social em instituições de referência como a Associação de Pais e Amigos dos Excepcionais. Conclusão: As redes de apoio são imprescindíveis para que as famílias de crianças com paralisia cerebral possam cuidar adequadamente de seus filhos. Os profissionais de saúde podem prestar orientações sobre as necessidades da criança e suporte para o cuidado familiar.

Curationis ◽  
1994 ◽  
Vol 17 (2) ◽  
Author(s):  
G. Ngubane ◽  
L. R. Uys

A survey was carried out of almost 50% of Black inpatients in a state psychiatric hospital to evaluate the level of accessibility of the family network of the patients. Staff were interviewed on the problems they have with contacting families. The survey shows the extent of inadequate access and identifies reasons for the problem.


2014 ◽  
Vol 23 (2) ◽  
pp. 460-468 ◽  
Author(s):  
Bruna Caroline Rodrigues ◽  
Verônica de Azevedo Mazza ◽  
Ieda Harumi Higarashi

This exploratory descriptive study, using a qualitative approach, aimed to characterize the social support of nurses in the care of their own children. The participants were ten nurses who were mothers, selected through a snowball method. Data collection occurred from November 2011 to January 2012 through semi-structured interviews and construction of families' genograms and ecomaps. Data were analyzed through Bardin content analysis, leading to the establishment of two categories: (1) Returning to work: the importance of family support and (2) The family and their interactive contexts: types of bonds. The social support network of the family is essential to the lives of these women, who need support, assistance and guidance in directing their activities in everyday overload.


2003 ◽  
Vol 29 (1) ◽  
pp. 17-37 ◽  
Author(s):  
Michael Robbins ◽  
José Szapocznik ◽  
Manuel Tejeda ◽  
Deanne Samuels ◽  
Gail Ironson ◽  
...  

2016 ◽  
Vol 32 (12) ◽  
Author(s):  
Flávia Batista Portugal ◽  
Mônica Rodrigues Campos ◽  
Celina Ragoni Correia ◽  
Daniel Almeida Gonçalves ◽  
Dinarte Ballester ◽  
...  

The objective of this study was to identify the association between emotional distress and social support networks with quality of life in primary care patients. This was a cross-sectional study involving 1,466 patients in the cities of São Paulo and Rio de Janeiro, Brazil, in 2009/2010. The General Health Questionnaire, the Hospital Anxiety and Depression Scale and the brief version of the World Health Organization Quality of Life Instrument were used. The Social Support Network Index classified patients with the highest and lowest index as socially integrated or isolated. A bivariate analysis and four multiple linear regressions were conducted for each quality of life outcome. The means scores for the physical, psychological, social relations, and environment domains were, respectively, 64.7; 64.2; 68.5 and 49.1. In the multivariate analysis, the psychological domain was negatively associated with isolation, whereas the social relations and environment domains were positively associated with integration. Integration and isolation proved to be important factors for those in emotional distress as they minimize or maximize negative effects on quality of life.


2014 ◽  
Vol 40 (2) ◽  
Author(s):  
Masefako A. Gumani

Orientation: The extensive role that social support plays in the lives of South African Police Service (SAPS) members outside of the expected work networks of professionals and colleagues should be further studied to reflect on the benefits received when handling the stressful and traumatic effects of operational work.Research purpose: The objective of this study was to describe the concepts of multifaceted social support network systems as perceived by SAPS members in the context of the Vhembe District (South Africa) in assisting them to deal with the effects of their operational work.Motivation for the study: There is still a call in social research to focus on the influence of different functions and sources of social support.Research design, approach and method: A descriptive phenomenological research design was used, and 20 SAPS participants were selected through purposive sampling. Unstructured,face-to-face interviews, field notes, telephone follow-ups and diaries were used to collect data which was subsequently analysed through phenomenological explication.Main findings: The results show that social support is not a linear process but is multifaceted,depending on specific operational settings. Furthermore, the social support network system identified is informed by the values of communal living in the Vhembe District as well as in the operational context in which the SAPS members work.Practical/managerial implications: The SAPS should help initiate and involve, during the debriefing of operational members, types and functions of social support that are dependent on organisational and community contexts.Contribution/value-add: This study makes a meaningful contribution to understanding that social support in the SAPS operational context is different from other contexts.


2020 ◽  
Author(s):  
◽  
Benjamin L. Coe

Hypertension (HTN) is a major risk factor for the development of heart disease, which is the number one cause of death in the United States (U.S.). The Affordable Care Act of 2010 (ACA) led to a significant increase in emergency department (ED) visits: up to 20 [percent] of visits are considered as avoidable. Many patients present to EDs with uncontrolled chronic health conditions, such as HTN, which can be successfully managed in the outpatient setting. Factors contributing to the large volume of patients that present to the ED with uncontrolled HTN has been understudied. This cross-sectional study examined relationships between selected demographic and health variables, medication adherence, health literacy and social support network among adults (n=50) with HTN that presented to the ED. Participants were predominantly male (56 [percent]), 41-60 years old (46 [percent]), and Caucasian (60 [percent]). Only 36 [percent] of participants were adherent to their HTN medications, 42 [percent] had adequate health literacy, and 38 [percent] perceived high levels of social support. The variable with the strongest correlation to medication adherence was last primary care provider (PCP) visit (-0.473, p [less than] 0.001). However only 54 [percent] of participants had seen a PCP over the last 6 months. Increasing PCP visits and reducing avoidable ED visits has the potential to improve chronic disease health outcomes and reduce health care costs. This study has provided evidence that it is both acceptable and feasible to perform research in the ED setting that addresses chronic health conditions, such as HTN. Findings from this study may be used to inform novel ED interventions that can help adults to better manage their chronic health conditions, such as HTN, outside of the acute care setting.


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