Using Participatory Methods to Assess PrEP Interest and Uptake Among Young People Living in the Southeastern US: A Mixed Methods Assessment

2021 ◽  
Author(s):  
Marie C. D. Stoner ◽  
Nivedita L. Bhushan ◽  
Allysha C. Maragh-Bass ◽  
John T. Mitchell ◽  
Linda Riggins ◽  
...  
BMJ Open ◽  
2020 ◽  
Vol 10 (11) ◽  
pp. e039920
Author(s):  
Ailbhe Spillane ◽  
Sarahjane Belton ◽  
Clare McDermott ◽  
Johann Issartel ◽  
Richard H Osborne ◽  
...  

IntroductionHealth literacy research has focused predominantly on the adult population, and much less is understood about this concept from an adolescent perspective. The tools currently available to measure adolescent health literacy have been adapted from adult versions. This limits their applicability to young people because of the developmental characteristics that impact on adolescents’ behaviour, including impulse control and judgement skills. This protocol describes the intended development and validity testing of a questionnaire to measure health literacy in adolescents.Methods and analysisThis protocol describes this mixed methods study that has three phases: the first phase will involve grounded research with adolescents using qualitative group interviews, co-design and concept mapping workshops to understand what health and healthy behaviours mean to adolescents and to explore their health literacy needs and the potential domains for the questionnaire. The draft health literacy domains identified will be presented to the youth advisory panel, and the questionnaire will be altered based on their feedback. Cognitive pretesting of the questionnaire items will also be conducted. Phase 2 will involve piloting the questionnaire to a two-stage random sample of young people in five urban and rural schools in Ireland. Test–retest reliability will be conducted using Pearson correlation coefficient. Confirmatory factor analysis will also be conducted to analyse the psychometric properties of the questionnaire. Phase 3 will involve the questionnaire being rolled out to a nationally representative sample of adolescents (n=6052) in Ireland to assess their levels of health literacy.Ethics and disseminationEthical approval to conduct this study has been granted from the University College Dublin Human Research Ethics Committee – Sciences (LS-20–08). Informed assent from adolescents and informed consent from parents/guardians will be sought. The findings of this research will be disseminated at national and international conferences, as well as through publication in peer-reviewed journals.


Author(s):  
Venetia Clarke ◽  
Andrea Goddard ◽  
Kaye Wellings ◽  
Raeena Hirve ◽  
Marta Casanovas ◽  
...  

Abstract Purpose To describe medium-term physical and mental health and social outcomes following adolescent sexual assault, and examine users’ perceived needs and experiences. Method Longitudinal, mixed methods cohort study of adolescents aged 13–17 years recruited within 6 weeks of sexual assault (study entry) and followed to study end, 13–15 months post-assault. Results 75/141 participants were followed to study end (53% retention; 71 females) and 19 completed an in-depth qualitative interview. Despite many participants accessing support services, 54%, 59% and 72% remained at risk for depressive, anxiety and post-traumatic stress disorders 13–15 months post-assault. Physical symptoms were reported more frequently. Persistent (> 30 days) absence from school doubled between study entry and end, from 22 to 47%. Enduring mental ill-health and disengagement from education/employment were associated with psychosocial risk factors rather than assault characteristics. Qualitative data suggested inter-relationships between mental ill-health, physical health problems and disengagement from school, and poor understanding from schools regarding how to support young people post-assault. Baseline levels of smoking, alcohol and ever drug use were high and increased during the study period (only significantly for alcohol use). Conclusion Adolescents presenting after sexual assault have high levels of vulnerability over a year post-assault. Many remain at risk for mental health disorders, highlighting the need for specialist intervention and ongoing support. A key concern for young people is disruption to their education. Multi-faceted support is needed to prevent social exclusion and further widening of health inequalities in this population, and to support young people in their immediate and long-term recovery.


2018 ◽  
Vol 17 (1) ◽  
pp. 160940691879843 ◽  
Author(s):  
Liesel Ebersöhn ◽  
Marlize Malan-Van Rooyen

Research aimed at generating evidence to address elicitation challenges that arise because of extreme inequality and marginalized perspectives requires deliberation on relevant methodologies that can elicit insights by both revering marginalized sociocultural strengths and being sensitive to power imbalances. In this article, we provide examples of participatory methods that make the most of often silenced non-Western sociocultural strengths and create opportunities for participation despite barriers due to inequality. The examples emerged from multiple researcher journals and visual data from a study that documented indigenous psychology on resilience with elders ( n = 24; male = 10, female = 14) and young people ( n = 48; male = 21, female = 27) in two remote Southern African border communities. We describe the examples of elicitation methods to make the most of culture using (i) symbols that reflect nonmainstream sociocultural perspectives, (ii) familiar multiliteracies, (iii) a variety of spoken languages, and (iv) familiar collectivist modes, as well as contextual characteristics to (i) equalize opportunity given structural disparity, (ii) equalize power, and (iii) honor gender and age hierarchies. We conclude that methods for indigenous research can honor and leverage marginalized cultures and contexts to extend beyond sympathy for an oppressed worldview or a context of deprivation.


2017 ◽  
Vol 48 (2) ◽  
pp. 369-399
Author(s):  
Leeanne O’Hara ◽  
Kathryn Higgins

Participatory methods for engaging children and young people in research are becoming more popular and innovative in social research. One example of this is the inclusion of participant photography. Drawing on an ethnographic study conducted in Northern Ireland, this article explores the application of participant photography to research drug use and antisocial behavior among youth. Findings highlight issues surrounding implementation when in the field, building on the existing knowledge base and focusing on recruitment, continuous engagement, image presentation, and analysis. This is followed by an overview of ethical considerations including specific issues relating to researcher and participant safety.


2019 ◽  
Vol 22 (11) ◽  
pp. 1989-1996 ◽  
Author(s):  
Paulien A W Nuyts ◽  
Rebecca M F Hewer ◽  
Mirte A G Kuipers ◽  
Vincent Lorant ◽  
Adeline Grard ◽  
...  

Abstract Background Despite widespread age-of-sale restrictions on tobacco, adolescents continue to obtain cigarettes and experiment with smoking. This mixed-methods study aimed to understand how European adolescents access cigarettes and how the policy context may influence this process, using a realist evaluation approach. This is the first study to assess access to cigarettes across various European contexts. Methods A survey of 4104 students was combined with qualitative data from focus groups among 319 adolescents aged 14–19 across seven European countries. Data were synthesized to explore mechanisms via which young people obtain cigarettes despite age-of-sale restrictions. Results While purchasing cigarettes from supermarkets was widely regarded as difficult, many participants purchased cigarettes from noncompliant retailers (often in smaller shops or cafes). Other contra-mechanisms included circumventing age checks, proxy purchases, and/or social sources. Dominant forms of access differed across the seven contexts, with direct purchases more common where perceived enforcement was low (eg, Belgium) and proxy purchases more important where perceived enforcement of age-of-sale laws was high (eg, Finland). The effectiveness of age-of-sale restrictions in reducing youth access appears to be influenced by a range of contextual factors including retailer compliance, the availability of vending machines, and the specific minimum age-of-sale. Conclusions Our findings illustrate the relevance of programme theory in understanding the contra-mechanisms that undermine the effectiveness of age-of-sale laws in discouraging youth smoking. Young people’s access to cigarettes could be further limited by addressing these contra-mechanisms, including an increase in the legal sales age (particularly in Belgium), banning vending machines, and strengthening enforcement. Implications Despite widespread implementation of age-of-sale laws, a substantial proportion of minors continue to access cigarettes. Young people use a number of contra-mechanisms to circumvent age-of-sale restrictions. These include accessing cigarettes via social sources, proxy sales or by circumventing age checks. Our findings show that in contexts where perceived enforcement of age-of-sale restrictions is high, young people are more reliant on irregular forms of access such as proxy sales. Young people’s access to cigarettes may be further reduced by policy interventions that address these contra-mechanisms—for example, banning vending machines, strengthening enforcement of age-of-sale laws, and increasing the minimum age-of-sale.


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