State intervention in the lives of people with disabilities: the case for a disability-neutral framework

2017 ◽  
Vol 13 (1) ◽  
pp. 39-57 ◽  
Author(s):  
Eilionóir Flynn ◽  
Anna Arstein-Kerslake
Keyword(s):  
People With Disabilities ◽  
State Intervention ◽  
Legal Capacity ◽  
Persons With Disabilities ◽  
Private Lives ◽  
Legislative Framework ◽  
High Level

AbstractPeople with disabilities continue to experience a disproportionately high level of state intervention in their private lives. Many disabled people's organisations have long sought to challenge this discriminatory approach and, in recent times, have relied upon the provisions of the UN Convention on the Rights of Persons with Disabilities in support of their claims. In this paper, we argue for the abolition of disability-specific legal bases for state intervention in the private lives of adults. We also argue for the introduction of a narrower disability-neutral legislative framework for state intervention in the lives of all adults – based on risk of imminent and serious harm to the individual's life, health or safety, while providing greater respect for the person's legal capacity as expressed through her will and preferences.

Legislating personhood: realising the right to support in exercising legal capacity

2014 ◽  
Vol 10 (1) ◽  
pp. 81-104 ◽  
Author(s):  
Eilionoir Flynn ◽  
Anna Arstein-Kerslake
Keyword(s):  
Decision Making ◽  
Political Philosophy ◽  
United Nations ◽  
People With Disabilities ◽  
Decision Makers ◽  
Legal Capacity ◽  
Mental Disabilities ◽  
Persons With Disabilities ◽  
United Nations Convention ◽  
The Right

AbstractThis paper examines the regulation of ‘personhood’ through the granting or denying of legal capacity. It explores the development of the concept of personhood through the lens of moral and political philosophy. It highlights the problem of upholding cognition as a prerequisite for personhood or the granting of legal capacity because it results in the exclusion of people with cognitive disabilities (intellectual, psycho-social, mental disabilities, and others). The United Nations Convention on the Rights of Persons with Disabilities (CRPD) challenges this notion by guaranteeing respect for the right to legal capacity for people with disabilities on an equal basis with others and in all areas of life (Article 12). The paper uses the CRPD to argue for a conception of personhood that is divorced from cognition and a corresponding recognition of legal capacity as a universal attribute that all persons possess. Finally, a support model for the exercise of legal capacity is proposed as a possible alternative to the existing models of substituted decision-making that deny legal capacity and impose outside decision-makers.

scholarly journals IMPLEMENTASI AKSESIBILITAS FASILITAS PUBLIK BAGI PENYANDANG DISABILITAS

2021 ◽  
Vol 10 ◽  
Author(s):  
Jane Kartika Propiona
Keyword(s):  
Public Service ◽  
Research Method ◽  
People With Disabilities ◽  
Social Awareness ◽  
Persons With Disabilities ◽  
Public Facilities ◽  
Physical Infrastructure ◽  
High Level ◽  
Depth Interviews ◽  
Service Theory

<p class="AbstractText"><em>People with disabilities</em><em> </em><em>in their lives still experience various</em><em> </em><em>obstacles that come from their environment. The lack of opportunities given to them leads to</em><em> </em><em>limited access in meeting their needs,both as individuals and as part of citizens. As a result, the participation of people with disabilities in the community becomes low so</em><em> </em><em>that it is only considered as a burden and as an object of compensation (charity) so that in the end the creation of social   exclusion in society. Since the state ratified the Convention on The Rights of Person with Disabilities and contained it into Law No. 19 of</em><em> </em><em>2011</em><em> </em><em>it is expected that social awareness about people with disabilities begins to   grow. One of the areas that</em><em> </em><em>also adopted is Jakarta Province through Regulation No. 10 of 2011 on The Protection of Persons with Disabilities.     The number of people with disabilities in Jakarta in 2019 as many as 14,459 people. The high level of mobilization in Jakarta should also be balanced with the fulfillment of accessibility of public facilities for</em><em> </em><em>all its citizens without exception.</em><em> </em><em>The availability of physical infrastructure that is friendly for people with disabilities can improve their capabilities.</em><em> This research aims to see how to fulfill the accessibility of public facilities for people with    disabilities in Jakarta through Regulation No.</em><em> </em><em>10 </em><em>of 2011. The research method used is descriptive qualitative</em><em> </em><em>by using inclusive public service theory, and accessibility theory.</em><em> </em><em>While</em><em> collecting the data through observations, in depth interviews and literature studies. </em></p><p> </p><p><strong><em>Keywords</em></strong><strong><em>: </em></strong><strong><em>Accessibility, Public Facilities, Implementation, Persons With Disabilities.</em></strong><strong><em></em></strong></p><p><strong><em> </em></strong></p><h2>Abstrak</h2><p class="AbstractText">Penyandang disabilitas dalam kehidupannya masih mengalami berbagai hambatan yang berasal dari lingkungannya. Minimnya kesempatan yang diberikan kepada mereka menyebabkan mengalami keterbatasan akses dalam pemenuhan kebutuhannya, baik yang menyangkut sebagai individu maupun sebagai bagian dari warga negara. Akibatnya, partisipasi penyandang disabilitas di tengah masyarakat menjadi rendah sehingga hanya dianggap sebagai beban dan sebagai obyek santunan (<em>charity</em>) sehingga pada akhirnya terciptanya eksklusi sosial dimasyarakat. Sejak negara turut meratifikasi CRPD (<em>Convention on The Rights of Person with Disabilities</em>) dan memuatnya ke dalam Undang-Undang Nomor 19 Tahun 2011 diharapkan <em>social awareness </em>tentang penyandang disabilitas mulai tumbuh. Salah satu daerah yang turut mengadopsi adalah Provinsi DKI Jakarta melalui Perda Nomor 10 Tahun 2011 tentang Perlindungan Penyandang Disabilitas.  Jumlah penyandang disabilitas di DKI Jakarta tahun 2019 sebanyak 14.459 jiwa. Tingginya tingkat mobilisasi di DKI Jakarta sepatutnya turut diimbangi dengan pemenuhan aksesibilitas fasilitas publik bagi semua warganya tanpa terkecuali.  Ketersediaan infrastruktur fisik yang ramah bagi penyandang disabilitas dapat meningkatkan kapabilitasnya. Penelitian ini mempunyai tujuan untuk melihat bagaimana pemenuhan aksesibilitas fasilitas publik bagi penyandang disabilitas di DKI Jakarta melalui Perda Nomor 10 Tahun 2011. Metode penelitian yang dipergunakan adalah deskriptif kualitatif dengan menggunakan teori pelayanan publik inklusif, dan teori aksesibilitas.  Sedangkan pengumpulan datanya melalui observasi, wawancara <em>indepth</em> dan studi kepustakaan. Penelitian menunjukkan bahwa implementasi perda terkait fasilitas publik bagi penyandang disabilitas masih belum optimal. Masih ditemukannya fasilitas publik yang belum ramah dan tidak dapat diakses oleh penyandang disabilitas.</p><p> </p><p><strong>Kata </strong><strong>K</strong><strong>unci: </strong><strong>Aksesibilitas</strong><strong>, </strong><strong>Fasilitas Publik</strong><strong>,</strong><strong> Implementasi</strong><strong>,</strong><strong> Penyandang Disabilitas</strong><strong>.</strong><strong><em></em></strong></p>

Inklusion und Exklusion von Menschen mit Behinderung. Anwendungsoptionen der Theorie sozialer Schließung

2019 ◽  
Vol 68 (12) ◽  
pp. 927-945
Author(s):  
Stefan Zapfel ◽  
Bartholomäus Zielinski
Keyword(s):  
United Nations ◽  
Social Life ◽  
People With Disabilities ◽  
State Intervention ◽  
Disabled Persons ◽  
Anglo Saxon ◽  
Persons With Disabilities ◽  
Social Closure ◽  
People With Disability ◽  
Menschen Mit Behinderung

Zusammenfassung Zentrales Ziel der von der Bundesrepublik ratifizierten UN-Behindertenrechtskonvention ist die Herstellung und Gewährleistung von Inklusion und Teilhabe behinderter Menschen. Dennoch lassen sich nach wie vor vielfältige Exklusionen beobachten, die behinderten Menschen die gesellschaftliche Teilhabe erschweren. Dieser Artikel zieht die Theorie sozialer Schließung heran, um der Untersuchung der Inklusionschancen behinderter Menschen ein weiteres Element hinzuzufügen. Dabei wird zunächst die Webersche Ursprungskonzeption dargestellt, danach werden Theorieerweiterungen aus dem angelsächsischen Raum ergänzt, bevor wir auf Genese und Variabilität von Exklusionen eingehen. Behandelt werden daraufhin staatliche Interventions- und Stabilisierungsmöglichkeiten sozialer Ausschlüsse sowie Anwendungsoptionen und -grenzen der Theorie für die Teilhabe behinderter Menschen. Abstract: Inclusion and Exclusion of People with Disability. Application Options in Terms of the Theory of Social Closure One aim of the Convention of the United Nations on the Rights of Persons with Disabilities is guaranteeing inclusion of people with disabilities. Nevertheless exclusion still impedes participation of persons with disabilities in social life. This article deals with the theory of social closure to enrich research of inclusion of disabled persons. Therefore, we discuss the Weberian conception and Anglo-Saxon amplifications of the theory. After that, we focus on the emergence and variability of exclusion, options of state intervention, and application options and limits of the theory concerning inclusion of persons with disabilities.

The right to legal agency: domination, disability and the protections of Article 12 of the Convention on the Rights of Persons with Disabilities

2017 ◽  
Vol 13 (1) ◽  
pp. 22-38 ◽  
Author(s):  
Anna Arstein-Kerslake ◽  
Eilionóir Flynn
Keyword(s):  
Decision Making ◽  
Lived Experience ◽  
Law Reform ◽  
Cognitive Disability ◽  
Legal Capacity ◽  
Persons With Disabilities ◽  
Definition Of ◽  
The Right ◽  
High Level ◽  
Republican Theory

AbstractArticle 12 of the Convention on the Rights of Persons with Disabilities has created a revolution in legal-capacity law reform. It protects the right to exercise legal agency for people with disabilities with more clarity than any prior human rights instrument. This paper explores what constitutes an exercise of legal agency and what exactly Article 12 protects. It proposes a definition of legal agency and applies it to the lived experience of cognitive disability. It also uses a republican theory of domination to argue that people with cognitive disabilities who are experiencing domination are forced to assert legal agency in even daily decision-making because of the high level of external regulation of their lives and the ever-present threat of others substituting their decision-making. It identifies Article 12 as a tool for protecting such exertions of legal agency and curtailing relationships of domination.

scholarly journals Collaboration in the Marriage Relationship among Persons with Disabilities

2008 ◽  
Vol 28 (1) ◽  
Author(s):  
Celia H. Schulz
Keyword(s):  
Qualitative Study ◽  
Participant Observation ◽  
People With Disabilities ◽  
Mutual Respect ◽  
Persons With Disabilities ◽  
Open Coding ◽  
High Level ◽  
Study Participants ◽  
Over Time

This study reports on a subset of data obtained from a larger study. A qualitative study of persons with disabilities was conducted to examine the phenomenon of collaboration with others in their lives. Participants were administered two semi-structured in-person interviews about their experiences with collaboration. Each of the participants were then observed as they collaborated with others in their lives in two participant observation sessions. Since not all participants were married, selected data relevant to the marriage collaboration from interviews and participant observation sessions of a subgroup of four married study participants were then isolated and coded using open coding analysis. Accuracy of data was insured through the use of triangulation via multiple coders and member checking. The analyzed data fell into five large categories: 1) Practical Considerations; 2) Collaboration on Occupation; 3) Structures and Patterns of Collaboration; 4) Social Considerations; and 5) The Qualities that Make the Marriage Collaboration Exceptional. Data indicated that study participants collaborated with their spouses in a variety of ways over time and that there were qualities in their collaborations with their spouses which indicated a high level of mutual respect and love. Some unique issues in the marriage collaboration for people with disabilities also emerged, such as feelings of imbalance in the contributions to the marriage regarding physical tasks, a need for alone time or -conversely- a fear of being alone.

scholarly journals Inclusive Planning: African Policy Inventory and South African Mobility Case Study on the Exclusion of Persons with Disabilities and Other Vulnerable Groups

2020 ◽  
Author(s):  
Marianne J.W.A. Vanderschuren ◽  
Obiora Nnene
Keyword(s):  
South Africa ◽  
People With Disabilities ◽  
Secondary Data ◽  
The Elderly ◽  
Vulnerable Groups ◽  
African Countries ◽  
Persons With Disabilities ◽  
Legislative Framework ◽  
Inclusive Policy

Abstract BackgroundAlmost half of the African population is under the age of 18 years, while females make up just over half of the overall population. Estimates of the number of persons living with disabilities, on the African continent, range between 60-300 million individuals. Children, the elderly, females and people with disabilities all require amendments to traditional transport planning.MethodThis paper investigates the availability of transport policies and guidelines in 29 different African countries, focussing on the inclusion of persons with disabilities, women and children. A desktop study was conducted, followed by the analysis of secondary data in the case study area, South Africa, demonstrating that the lack of adequate policies, guidelines and appropriate implementation leads to a lack of accessibility, opportunities and social isolation. ResultsThe data analysed revealed that Ghana and Kenya, have the most inclusive policy and legislative framework, while Tanzania has the most inclusive transport related framework. The private sector, NGOs, and NPOs are most active in the inclusion of people living with disabilities in Ghana, Ethiopia, Uganda, Tanzania and South Africa.In South Africa (STATSSA, 2013), over 2.2 million people (4.5% of the population) did not travel at all in the seven days before the interview, as their disability or age prohibits them to do so, or due to a lack of appropriate services. When comparing the trip rates per week, people with disabilities travel significantly less than their abled counterparts, between 65.8% and 27.2% less.ConclusionsThe study concludes that people with disability live less integrated, more isolated lives, due to the lack of accommodating infrastructure and services, in addition to the lack of binding policies, legislation, standards and guidelines. The results underpin the need for Disability Inclusive Planning in the African context and provides recommendations that mitigate the isolation challenges faced by people with disabilities.

scholarly journals THE BARRIERS TO SOCIAL INCLUSION OF PEOPLE WITH DISABILITIES IN THE REPUBLIC OF MOLDOVA

2019 ◽  
pp. 113-122
Keyword(s):  
Social Services ◽  
Social Inclusion ◽  
Service Providers ◽  
People With Disabilities ◽  
Sociological Research ◽  
The European Union ◽  
Persons With Disabilities ◽  
Republic Of Moldova ◽  
The Republic ◽  
High Level

The social inclusion of people with disabilities is a current area of research. This group of people continues to be marginalized and excluded from the society’s life. This situation is determined by the high level of discrimination and stigmatization, unequal opportunities, physical and attitudinal barriers that predominate in society. More than one billion people with disabilities worldwide, accounting 15% of the world's population, face social inequality and the authorities' limited capacities to respond to the needs of the persons with disabilities. In the European Union, about 80 million people live with disabilities and in the Republic of Moldova about 182.0 thousand people, which represent about 5% of the country's population. This study aims to analyse barriers to social inclusion of people with disabilities from the Republic of Moldova from the perspective of social roles valorisation. The sociological research methods used in this study are statistical data analysis, documentary analysis; sociological survey based on the questionnaire; the focus group; in-depth interview and sociological observation. The main barriers to social inclusion faced by people with disabilities in the Republic of Moldova are: low living standards compared to the general population, non-observance of the general accessibility principle, limited access to social services, education, health and very low participation of people with disabilities on the labour market. Analysis of social inclusion issues identified through research on the views of people with disabilities, service providers and experts will help strengthen the mechanisms for evaluating, monitoring and improving social inclusion policies.

Italy

2018 ◽  
Author(s):  
Delia Ferri
Keyword(s):  
Significant Influence ◽  
Case Law ◽  
Reasonable Accommodation ◽  
Constitutional Court ◽  
Judicial Activism ◽  
Legal Capacity ◽  
Persons With Disabilities ◽  
Indirect Discrimination ◽  
Legal Concepts ◽  
Domestic Law

Italy was among the first countries to sign the UN Convention on the Rights of Persons with Disabilities (CRPD) in 2007, and ratified it in 2009 by Law 18/2009. Since then, the Convention has displayed significant influence on case law, and provoked a degree of judicial activism. This chapter provides an overview of how Italian courts have used and interpreted the CRPD. It highlights how Italian lower and higher courts, including the Constitutional Court and the Court of Cassation, have attempted to overcome the gap between domestic law and the CRPD, by ‘rethinking’ legal concepts in light of the Convention. This is evident with regards to the field of legal capacity and the domestic provisions of the civil code on the ‘administration of support’, but also to non-discrimination legislation, the scope of which has been evidently enlarged to encompass the failure to provide reasonable accommodation as a form of indirect discrimination.

Sign in / Sign up

Export Citation Format

Share Document