Colonoscopy videos on YouTube: Are they a good source of patient education?

Abstract Background and study aims Colonoscopy is an effective tool to prevent colorectal cancer. Social media has emerged as a source of medical information for patients.YouTube (a video sharing website) is the most popular video informative source. Therefore, we aimed to assess the educational quality of colonoscopy videos available on YouTube. Methods We performed a YouTube search using the keyword “colonoscopy” yielded 429 videos, of which 255 met the inclusion criteria. Colonoscopy Data Quality Score (C-DQS) was created to rate the quality of the videos (–10 to +40 points) based on a colonoscopy education video available on the Ameican Society of Gastrointestinal Endoscopy (ASGE) website. Each video was scored by six blinded reviewers independently using C-DQS. The Global Quality Score (GQS) was used for score validation. The intraclass correlation coefficient (ICC) was used to assess the similarity of the scores among reviewers. Results Professional societies had the highest number of videos (44.3 %). Videos from professional societies (6.94) and media (6.87) had significantly higher mean C-DQS compared to those from alternative medicine providers (1.19), companies (1.16), and patients (2.60) (P < 0.05). Mean C-DQS score of videos from healthcare providers (4.40) was not statistically different than other sources. There was a high degree of agreement among reviewers for the videos from all sources (ICC = 0.934; P < 0.001). Discussion YouTube videos are a poor source of information on colonoscopy. Professional societies and media are better sources of quality information for patient education on colonoscopy. The medical community may need to engage actively in enriching the quality of educational material available on YouTube.

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Online Videos as a Source of Physiotherapy Exercise Tutorials for Patients with Lumbar Disc Herniation—A Quality Assessment

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18115815 ◽

2021 ◽

Vol 18 (11) ◽

pp. 5815

Author(s):

Stephan Heisinger ◽

Dominikus Huber ◽

Michael Paul Matzner ◽

Timothy Hasenoehrl ◽

Stefano Palma ◽

...

Keyword(s):

Lumbar Disc Herniation ◽

Disc Herniation ◽

Lumbar Disc ◽

Quality Score ◽

Global Quality ◽

Wide Range ◽

Youtube Videos ◽

Socioeconomic Burden ◽

Therapy Advice

Background: During the last few decades the prevalence of lumbar disc herniation has been increasing constantly, thereby imposing a significant socioeconomic burden. Physiotherapy plays a crucial role in both surgical and conservative treatment of lumbar disc herniation, consequently the current COVID-19 pandemic with concomitant lockdowns has led to a shortage of physiotherapeutical care. In the light of these recent events publicly available physiotherapy tutorials may be a useful tool to address this problem. Aim: The main aim of this study was to assess the quality of online physiotherapy exercise tutorials for lumbar disc herniation. Materials & Methods: With YouTube being a widely known and used platform we screened 240 of the most viewed videos. A total of 76 videos met the inclusion criteria and were statistically analyzed. The videos were assessed using Global Quality Score, DISCERN Score and JAMA benchmark criteria and in regard to their applicability. Results: They displayed a wide range of views (44,969 to 5,448,717), likes (66 to 155,079) and dislikes (6 to 2339). The videos were assessed using Global Quality Score, DISCERN Score and JAMA benchmark criteria and in regard to their applicability. Neither the number of “Views”, “Likes”, nor “Dislikes” was found to have a significant association with any of the quality measures used in this study. Conclusion: Overall quality grade was determined as “moderate”. Based on the data examined in this study, the use of YouTube videos as a source of therapy advice for lumbar spine disc herniation cannot be recommended universally.

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Radiotherapy or Surgery? Comparative, Qualitative Assessment of Online Patient Education Materials on Prostate Cancer

Current Oncology ◽

10.3390/curroncol28050296 ◽

2021 ◽

Vol 28 (5) ◽

pp. 3420-3429

Author(s):

Erwin Vu ◽

Manolis Pratsinis ◽

Ludwig Plasswilm ◽

Hans-Peter Schmid ◽

Cédric Panje ◽

...

Keyword(s):

Prostate Cancer ◽

Patient Education ◽

Surgical Therapy ◽

Conflict Of Interest ◽

Medical Information ◽

Treatment Options ◽

Comparative Assessment ◽

Qualitative Assessment ◽

Online Patient Education

As multiple different treatment options are available for prostate cancer (PCa) and YouTube is commonly used as a source for medical information, we performed a systematic and comparative assessment of available videos guiding patients on their choice for the optimal treatment. An independent search for surgical therapy or radiotherapy of PCa on YouTube was performed and the 40 most viewed videos of both groups were analyzed. The validated DISCERN questionnaire and PEMAT were utilized to evaluate their quality and misinformation. The median overall quality of the videos was found to be low for surgery videos, while radiotherapy videos results reached a moderate quality. The median PEMAT understandability score was 60% (range 0–100%) for radiotherapy and 75% (range 40–100) for surgery videos. The radiotherapy videos contained less misinformation and were judged to be of higher quality. Summarized, the majority of the provided videos offer insufficient quality of content and are potentially subject to commercial bias without reports on possible conflict of interest. Thus, most of available videos on YouTube informing PCa patients about possible treatment methods are not suited for a balanced patient education or as a basis for the patient’s decision.

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Transition from pandemic to infodemic: an analysis of Turkish-language COVID-19 YouTube videos

Eastern Mediterranean Health Journal ◽

10.26719/emhj.21.011 ◽

2021 ◽

Author(s):

Fatih Cakmak ◽

Seda Ozkan ◽

Afsin Ipekci ◽

Altug Kanbakan ◽

Turker Demirtakan ◽

...

Keyword(s):

Health Care ◽

Health Care Professionals ◽

Medical Information ◽

Video Content ◽

Global Quality ◽

Content Index ◽

Health Related ◽

Youtube Videos ◽

Turkish Language

Background: YouTube can be a powerful educational tool for the dissemination of health information. However, if uploaded health-related videos are inaccurate, it can mislead, create confusion and generate panic. Aims: This study aimed to determine the success of the most-watched Turkish-language COVID-19 YouTube videos regarding information and guidance on the disease for the public. The secondary aim of this study was to evaluate the accuracy and quality of such video content. Methods: The study was conducted during May 2020 and analysed 133 videos. The length of the videos, the number of likes and dislikes, comments and views, how long they have been on YouTube, Medical Information and Content Index (MICI) Score, mDISCERN scores, global quality scores, and the source and target audiences of the videos were all determined. Results: The average MICI Scores of videos was 2.48±3.74 and the global quality scores was 1.27±0.64. When MICI Scores were compared between video sources, the scores of academic hospitals and government videos were significantly higher. The global quality scores of videos from news agencies and independent users was significantly lower (P < 0.001). Among the targeted videos, only the global quality scores of the videos made for health-care workers were found to be significantly higher. Conclusion: Health-care professionals should upload more videos to improve the quality of health-related video content available on YouTube. Accompanied by evidence-based information, the issues of diagnosis, ways of transmission, prevention and treatment of diseases should be emphasized.

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Improving Gestational Diabetes Management through Patient Education

10.5772/intechopen.100562 ◽

2021 ◽

Author(s):

Radiana Staynova ◽

Vesselina Yanachkova

Keyword(s):

Patient Education ◽

Gestational Diabetes ◽

New Technologies ◽

Diabetes Management ◽

Birth Outcome ◽

Healthcare Providers ◽

Educational Process ◽

Web Based ◽

Healthy Pregnancy

The challenge of achieving a healthy pregnancy and a successful birth outcome in women with gestational diabetes mellitus (GDM) requires a multidisciplinary approach with close collaboration between healthcare providers. One of the key elements for the successful management of GDM is the education of pregnant women. Patient education has been shown to improve quality of life, contribute to better compliance, and reduce complications and healthcare costs. In this chapter, we will present and discuss the main barriers in the educational process of women with GDM and innovative approaches for improving diabetes self-management education during pregnancy. The focus will be on the different educational methods, such as printed leaflets and booklets, Web-based educational programs, and new technologies including telemedicine and smartphone applications.

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Videos, Views, and Vaccines: Evaluating the Quality of COVID-19 Communications on YouTube

Disaster Medicine and Public Health Preparedness ◽

10.1017/dmp.2021.284 ◽

2021 ◽

pp. 1-24

Author(s):

H.K. Marwah ◽

K. Carlson ◽

N.A. Rosseau ◽

K.C. Chretien ◽

T. Kind ◽

...

Keyword(s):

Healthcare Providers ◽

Health Communications ◽

The Public ◽

Closed Captioning ◽

News Sources ◽

Global Quality ◽

Quality Scale ◽

Youtube Videos ◽

Modern Landscape

Abstract Objective: As the COVID-19 vaccine is introduced, it is critical to recognize that public opinion on vaccines is largely influenced by health communications, with YouTube being a major source of information and misinformation. This analysis graded the accuracy, quality, and reliability of the most viewed YouTube videos depicting COVID-19 and vaccinations over a six-month period. Methods: We collected hyperlinks for the 150 most viewed YouTube videos discussing COVID-19 from January through June 2020. Closed captioning data was searched for the term “vaccine,” yielding 32 videos. This sample was evaluated for quality, accuracy, and reliability using a rubric that incorporated existing instruments: Global Quality Scale (GQS), JAMA Benchmark Criteria, and DISCERN. Results: These 32 videos had 139,764,188 views at the time of data collection. The majority of videos received low scores, with network news sources receiving the lowest scores overall. Conclusions: The overall quality of COVID-19 YouTube videos related to vaccines may be low and raises a precautionary alert for the public consuming these videos and for healthcare providers working to provide the best information to their patients. Existing scoring tools may not capture the complexities of social media. New tools could allow for a better understanding of the modern landscape of health communications.

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Evaluating The Quality, Utility And Reliability of Information In Uveitis Videos Shared On YouTube

10.21203/rs.3.rs-1139915/v1 ◽

2021 ◽

Author(s):

Burak Tanyıldız ◽

Murat Oklar

Keyword(s):

Medical Information ◽

Poor Quality ◽

Educational Quality ◽

Video Content ◽

Global Quality ◽

Total View ◽

The Mean ◽

Quality And Reliability ◽

Positive Correlations

Abstract Background: The aim of this study was to analyze the quality of videos on YouTube as educational resources about uveitis.Methods: An online YouTube search was performed using the keyword ‘‘uveitis’’. Total view counts, duration of videos, publishing dates, likes and dislikes, numbers of comments, and source of videos were recorded. Educational quality and accuracy of the video content were evaluated using the DISCERN score, Global Quality Score (GQS), Journal of the American Medical Association (JAMA) score. Video popularity was also evaluated using the video power index (VPI) score. All videos were classified according to publishers and types of categories.Results: From among the 200 videos analyzed, 94 were included. The mean DISCERN score was 38.5 ± 13.2 (poor), the mean JAMA score was 1.8 ± 0.6 (fair), and the GQS was 2.5 ± 0.9 (fair). There were positive correlations between the three checklist (p < .001). VPI was not correlated with each score (p >.05). The most common upload sources were ophthalmologist (24.4%) and YouTube channel (20.2%). Regarding content, 47 videos (50%) medical education, 26 videos (27.6%) patient education, 16 videos (17%) patient experience, 5 videos (5.3%) surgical procedures in patient with uveitis. While the most popular videos were uploaded by doctors other than ophthalmologists, the videos uploaded by academic institutions and associations were found to be higher educational quality and reliability scores. Conclusions: Uveitis videos on YouTube are poor quality and reliability and are not adequately educational for patients. Therefore, the physicians must be aware of the limitations of YouTube and ensure the flow of correct medical information to patients.

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The Absence of Evidence is Evidence of Non-Sense: Cross-Sectional Study on the Quality of Psoriasis-Related Videos on YouTube and Their Reception by Health Seekers (Preprint)

10.2196/preprints.11935 ◽

2018 ◽

Author(s):

Simon M Mueller ◽

Pierre Jungo ◽

Lucian Cajacob ◽

Simon Schwegler ◽

Peter Itin ◽

...

Keyword(s):

Health Information ◽

Medical Information ◽

Total Duration ◽

Cross Sectional Study ◽

Poor Quality ◽

Cross Sectional ◽

Global Quality ◽

Quality Video ◽

Depth Study

BACKGROUND Approximately 80% of internet users access health information online and patients with chronic illnesses especially rely on internet-based resources. YouTube ranks second among the most accessed websites worldwide and hosts an increasing number of videos with medical information. However, their quality is sometimes unscientific, misleading, or even harmful. OBJECTIVE As little is known about YouTube as a source of information on psoriasis, we aimed to investigate the quality of psoriasis-related videos and, if necessary, point out strategies for their improvement. METHODS The quality of the 100 most viewed psoriasis-related videos was assessed using the DISCERN instrument and the Global Quality Scale (GQS) by categorizing the videos into useful, misleading, and dangerous and by evaluating the reception of the videos by users. RESULTS Evaluation of the videos exhibited a total of 117,221,391 views and a total duration of 10:28 hour. The majority of clips contained anecdotal personal experiences with complementary and alternative psoriasis treatments, topical treatments, and nutrition and diets being the most frequently addressed topics. While advertisements accounted for 26.0% (26/100) of the videos, evidence-based health information amounted to only 20.0% (20/100); 32.0% (32/100) of the videos were classified as useful, 52.0% (52/100) as misleading, and 11.0% (11/100) as even dangerous. The quality of the videos evaluated by DISCERN and GQS was generally low (1.87 and 1.95, respectively, on a 1 to 5 scale with 5 being the maximum). Moreover, we found that viewers rated poor-quality videos better than higher quality videos. CONCLUSIONS Our in-depth study demonstrates that nearly two-thirds of the psoriasis-related videos we analyzed disseminate misleading or even dangerous content. Subjective anecdotal and unscientific content is disproportionately overrepresented and poor-quality videos are predominantly rated positively by users, while higher quality video clips receive less positive ratings. Strategies by professional dermatological organizations are urgently needed to improve the quality of information on psoriasis on YouTube and other social media.

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P488 How reliable is the online medical information on paediatric inflammatory bowel diseases?

Journal of Crohn s and Colitis ◽

10.1093/ecco-jcc/jjz203.617 ◽

2020 ◽

Vol 14 (Supplement_1) ◽

pp. S428-S429

Author(s):

M Velasco Rodríguez-Belvís ◽

L M Palomino Pérez ◽

C Sánchez Fernández-Bravo ◽

A Sanchiz Perea ◽

L F Jose Luis ◽

...

Keyword(s):

Inflammatory Bowel Diseases ◽

Medical Information ◽

Government Agencies ◽

Online Information ◽

Professional Societies ◽

Patient Organisations ◽

Bowel Diseases ◽

Inflammatory Bowel ◽

Google Search

Abstract Background Patients with paediatric Inflammatory Bowel Diseases (p-IBD) and their families widely use the Internet as a resource and tend to read the first page of 10 results. However, online content may be of questionable quality, and valuable information may be hard to find. This study aimed to (i) determine the average quality of online information on p-IBD and (ii) analyze whether it depends on the source of information. Methods A google search was performed on the 28 October 2019 using the keywords: ‘Crohn’s disease’, ‘ulcerative colitis’, ‘Inflammatory Bowel Disease’, ‘colonoscopy’, ‘endoscopy’, all of them combined with the terms ‘paediatric’ and ‘children’. We recorded the first 10 results for each search and excluded scientific papers, advertisements, videos and sites requiring subscription. Websites were classified according to their origin as hospital, professional society, government agency, health press or patient organisations. The quality of the information was assessed with the DISCERN instrument, a validated 16-point questionnaire (total score 16–80) to evaluate the quality of written information. DISCERN scores were graded as excellent (68–80), good (55–67), fair (42–54), poor (29–41) or very poor (16–28). In order to minimise subjectivity, four evaluators assessed the quality, and the mean total score was calculated for every selected website. The proportion of websites with excellent or good grading in each category was compared using the Fisher test. Results We identified 100 websites and 65 met the inclusion criteria. The type of authorship and DISCERN scores are shown in Table 1. The overall median DISCERN score was 40.8 [interquartile range, IQR 10.5]. Only 5 websites had an excellent or good score. The proportion of websites with excellent or good grading was significantly higher in those from government agencies and professional societies (33.3% and 30% vs. 2% and 0%, p < 0.05). None of the health press websites showed excellent or good grading. Surprisingly, no websites from patient organisations were identified. Conclusion The quality of online information on p-IBD is highly variable. Most of the easily found websites are from hospitals, but professional societies and government agencies provide a higher quality of information. Improvement of online information on p-IBD is still needed.

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Practical Advice Regarding the Reliability of the Patient Educational Materials Assessment Tool for Health Educators

Health Promotion Practice ◽

10.1177/1524839920984790 ◽

2021 ◽

pp. 152483992098479

Author(s):

Joseph G. L. Lee ◽

Mahdi Sesay ◽

Paula A. Acevedo ◽

Zachary A. Chichester ◽

Beth H. Chaney

Keyword(s):

Patient Education ◽

Interrater Reliability ◽

Assessment Tool ◽

Health Workers ◽

Intraclass Correlation ◽

Health Educators ◽

Educational Materials ◽

Practical Advice ◽

Highly Sensitive

The quality of patient education materials is an important issue for health educators, clinicians, and community health workers. We describe a challenge achieving reliable scores between coders when using the Patient Educational Materials Assessment Tool (PEMAT) to evaluate farmworker health materials in spring 2020. Four coders were unable to achieve reliability after three attempts at coding calibration. Further investigation identified improvements to the PEMAT codebook and evidence of the difficulty of achieving traditional interrater reliability in the form of Krippendorff’s alpha. Our solution was to use multiple raters and average ratings to achieve an acceptable score with an intraclass correlation coefficient. Practitioners using the PEMAT to evaluate materials should consider averaging the scores of multiple raters as PEMAT results otherwise may be highly sensitive to who is doing the rating. Not doing so may inadvertently result in the use of suboptimal patient education materials.

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Effect of patient education on quality-of-life, pain and fatigue in breast cancer survivors: A systematic review and meta-analysis

Clinical Rehabilitation ◽

10.1177/02692155211031081 ◽

2021 ◽

pp. 026921552110310

Author(s):

Patricia Martínez-Miranda ◽

Maria Jesús Casuso-Holgado ◽

José Jesús Jiménez-Rejano

Keyword(s):

Breast Cancer ◽

Quality Of Life ◽

Patient Education ◽

Cancer Survivors ◽

Breast Cancer Survivors ◽

Short Term ◽

Emotional Quality ◽

Global Quality ◽

Global Quality Of Life

Objective: To synthesise the existing evidence about the effect of patient education, either used alone or as adjunctive therapy, on the improvement of quality of life, pain and fatigue in adult breast cancer survivors. Data sources: We searched PubMed, Web of Science, CINAHL, SCOPUS, Cochrane Plus, PEDro, Dialnet and Clinicaltrials.gov databases. Methods: We conducted this systematic review in accordance with the PRISMA statement. Only randomised controlled trials with adult breast cancer survivors were included. We assessed the methodological quality of the studies using the PEDro scale and the Cochrane risk-of-bias tool. We synthesised evidence using the GRADE tool. Results: We included 14 studies (PEDro 4–8 points) comprising 1749 adult women who survived breast cancer, of which we included 12 in the quantitative analysis. There were statistically significant short-term benefits for improved global quality-of-life (standardised mean difference [SMD] = 0.43, P = 0.05, 95% CI [0.00, 0.85]; GRADE: low certainty; not important), emotional quality-of-life (SMD = 0.32, P = 0.04, 95% CI [0.02, 0.62]) and fatigue (SMD = 0.24, P = 0.0004, 95% CI [0.11, 0.37]; GRADE: low certainty; not important). However, there were not statistically significant for pain severity (SMD = −0.05, P = 0.67, 95% CI [−0.26, 0.17]; GRADE: low certainty; not important) and fear to recurrence (SMD = −0.05, P = 0.68, 95% CI [−0.31, 0.20]; GRADE: moderate certainty; not important). Conclusion: Patient education have a significative effect in short-term global quality-of-life, emotional quality-of-life and fatigue, though all the results were classified as ‘not important’.

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