scholarly journals A Scoping Review of Current Telehealth Interventions for Care Partners of Persons With Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 192-192
Author(s):  
Leslie Tran ◽  
Robin Tarter ◽  
Allison Lindauer

Abstract Many burdens come with caring for someone with dementia, but telehealth interventions can provide information and support and reduce barriers to access. In this review we describe current telehealth interventions for family care partners of people diagnosed with Alzheimer’s disease or related dementias (ADRDs). We conducted a systematic literature search using PubMed. Inclusion criteria were peer-reviewed, data-based research articles focusing on technological clinical interventions, published within the past two years, with participants providing unpaid care to persons with a diagnosis of ADRDs. We identified 53 relevant articles, of which 13 met our criteria. Included studies fell into three categories: peer support groups facilitated by gerontological social workers and psychologists, psychoeducation and behavior modification interventions delivered by nursing professionals, and symptom management advising overseen by physicians. Different technologies were used including computers, iPads, smartphones, and smartwatches. The duration of interventions also ranged from four weeks to three months, representing varying approached to participant engagement. The majority of caregivers were women, non-Hispanic white, spouses. Based on our findings of a lack of diversity in the samples of extant studies, and the need for interventions tailored to specific stages of ADRDs, future researchers can design studies to address these gaps. Overall, the interventions’ effectiveness and participant satisfaction were high, resulting in improvements in burden, competence, and coping skills. Although every approach has its own strengths and weaknesses, we believe that the continued expansion of telehealth interventions will not only offer many benefits, but also transform the delivery of health care.

2014 ◽  
Vol 19 (2) ◽  
pp. 50-56 ◽  
Author(s):  
Kerry Mills ◽  
Jennifer Brush

Speech-language pathologists can play a critical role in providing education and intervention to prevent social withdrawal, prevent premature disability, and maximize cognitive functioning in persons with MCI. The purpose of this article is to describe positive, solution-focused educational program that speech-language pathologists can implement with family care partners to improve relationships and provide quality care for someone living with MCI.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Kathryn Murray ◽  
Kelly Buttigieg ◽  
Michelle Todd ◽  
Vicky McKechnie

Abstract Background A subset of patients experience psychological distress following insertion of an implantable cardioverter-defibrillator (ICD) and ICD support groups are recommended, however access to these groups is limited. This study aimed: to gauge a better understanding of patients’ key ICD-related concerns; to determine patient interest in a support group and topics deemed helpful to address in a support group; and to examine factors which affect patient inclination to attend. Methods One hundred and thirty nine patients completed the ICD Patient Concerns Questionnaire – Brief (ICDC-B) and a semi-structured survey. Non-parametric tests were used to examine associations and differences in the quantitative data. Qualitative data were analysed using thematic analysis. Results 42% of respondents said they would attend a support group and inclination to attend was associated with higher ICD concerns and a shorter time since implant. Topics considered important to address in a group were information about heart conditions and devices, the impact of an ICD on daily life and coping with fear of shocks. Conclusion We concluded that there is interest in further support amongst many patients and that ICD support groups may be delivered efficiently by targeting patients who have higher levels of ICD concerns and within the first few years after implant.


Author(s):  
Katherine P. Supiano ◽  
Troy Andersen ◽  
Marilyn Luptak ◽  
Cynthia Beynon ◽  
Eli Iacob ◽  
...  

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 626-626
Author(s):  
Silvia Orsulic-Jeras ◽  
Carol Whitlatch

Abstract Advances in diagnostic procedures have helped to make diagnosing Alzheimer’s disease and other dementias more accurate and to occur earlier in the disease progression. For persons living with dementia and their family care partners, finding programs that meet their needs for support post diagnosis can be challenging. Likewise, for persons with chronic conditions, few programs exist which help care dyads to create a manageable plan of care that addresses each person’s concerns and fears. SHARE, (Support, Health, Activities, Resources, and Education), originally designed for dementia care partners, has shown positive outcomes for both members of the care partnership. This presentation describes the development of the six-session SHARE intervention, its implementation in community settings, and its current standing as an evidence-based program and product that has been commercialized. Discussion will also focus on adapting SHARE for use with chronic illness families, highlighting revisions to program procedures, materials, recruitment, and evaluation.


2016 ◽  
Vol 25 (4) ◽  
Author(s):  
Sandra de Souza Pereira ◽  
Carla Araujo Bastos Teixeira ◽  
Emilene Reisdorfer ◽  
Mariana Verderoce Vieira ◽  
Edilaine Cristina da Silva Gherardi-Donato ◽  
...  

ABSTRACT This is a quantitative, descriptive and exploratory research, with cross-sectional design that investigated the stressors experienced by nursing technicians working in general hospital and identified the coping strategies most used by them. The sample contained 310 participants. A sociodemographic questionnaire and the Ways of Coping Scale were used. For the analysis we used descriptive statistics and calculated the Cronbach's alpha. 60% of professionals used the strategies focused on the problem; 57.4% attributed their stress to working conditions, 26.8% to relationships in the workplace, 5.5% to the lack of reward at work and only 0.6% to problems personal. We conclude that strategies focused on the problems were the most used, indicating an approximation of the stressor in order to fix it. The identified stressors indicate the need for planning, stimulating and recognizing nursing professionals.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 625-626
Author(s):  
Carol Whitlatch ◽  
Steven Zarit ◽  
Steven Zarit

Abstract Persons living with a recent diagnosis of dementia experience great uncertainty and stress as they and their families try to adjust to the new reality of their lives and futures. One fruitful strategy for intervening with these families is to include both the person living with dementia and their family care partner in the program. Although dyadic approaches are rare among early-stage programs, promising examples exist. The SHARE Program (Support, Health, Activities, Resources, and Education) is one exception where dyadic materials address: 1) current and long- term needs of care partners, and 2) how the family can develop a realistic plan of care based on their care values and preferences. This symposium describes the development and positive outcomes of the original SHARE intervention and the promising adaptations that expand how and to whom the intervention is delivered. Presentations explore: 1) the original SHARE for Dementia program and strategies for expanding its reach into chronic conditions populations (Orsulic-Jeras & Whitlatch), 2) a group version translated into Spanish (“EPIC: Early-stage Partners in Care,” Dr. Coon), and 3) the development of a remote needs assessment and unobtrusive in-home monitoring technology platform that guides care planning and helps to maintain independence (“SHARE-sense,” Dr. Miller). Discussion will focus on the challenges, unique solutions, and positive outcomes when adapting SHARE to different settings and populations (Dr. Zarit).


2020 ◽  
Vol 7 (2) ◽  
pp. 202-219
Author(s):  
Safaa Abu El-Soud ◽  
Wafaa Ouda ◽  
Somaya Abou Abdou ◽  
Manal Mohamed

2019 ◽  
Vol 26 (1) ◽  
pp. 15-25 ◽  
Author(s):  
Karen S. Lyons ◽  
Christopher S. Lee

The study examined the association between changes in dyadic symptom appraisal with changes in physical and mental health of 109 family care dyads living with lung cancer over 12 months. Multilevel modeling was used to analyze both aggregate and time-varying associations of dyadic symptom appraisal with dyadic health. Patients had significantly worse physical health compared with their care partner; care partners had significantly worse mental health compared with patients. In general, greater incongruent symptom appraisals were significantly associated with worse physical health for both patients and care partners. Importantly, increases in magnitude of incongruence regarding the patient’s pain interference were significantly associated with declines in patient physical health over time. Direction of the incongruence was associated with mental health. Findings highlight the need for both a longitudinal and dyadic perspective of symptom appraisal to move toward theoretically driven interventions that will optimize the health of both patients and their care partners.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S135-S135
Author(s):  
Stipica Mudrazija

Abstract Older Americans living in the community who need help with basic activities of daily living overwhelmingly rely on unpaid care provided most commonly by working-age family members. Because unpaid family care limits the demand for nursing facilities and reduces expenses paid by Medicaid and other government programs, previous estimates of its economic value have mostly focused on estimating the benefits of unpaid family care. However, to assess accurately the overall economic value of unpaid family care and define better the scope for policy intervention, it is also important to account for the costs of such care, yet our knowledge of their magnitude remains limited. This study assesses the impact of unpaid family caregiving on the likelihood of working and hours worked for caregivers, and calculates the related cost of forgone earnings today and in 2050. To do so, it matches family caregivers from the National Study of Caregiving with non-caregivers from the Panel Study of Income Dynamics, and uses projections from the Urban Institute’s DYNASIM microsimulation model to inform calculations of future costs of foregone earnings. Results suggest that the cost of foregone earnings attributable to caregiving is currently about $67 billion. By mid-century, it will likely more than double, outpacing the growth of disabled older population as the share of better-educated caregivers with higher earning capacity increases. Policymakers can use these results to inform their current and future policy efforts aimed at assisting family caregivers who are facing the challenge of balancing work and caregiving responsibilities.


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