scholarly journals Exploring Informal Caregivers’ Priorities of Nursing Home Dementia Care From Communities of Color

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 549-550
Author(s):  
Marybeth Moscirella ◽  
Alexandra Harper ◽  
Cara Lekovitch ◽  
Rose Turner ◽  
Catherine Piersol ◽  
...  

Abstract Informal caregivers are critical stakeholders in nursing home (NH) care for individuals with dementia. Given racial and ethnic disparities in United States NHs, there is a need to understand informal caregivers’ perspectives, particularly among those that identify as members of a community of color. We conducted a scoping review of informal caregiver priorities of nursing home dementia care. Included studies exclusively examined priorities of informal caregivers identifying as Black, Indigenous, or people of color. The final sample (n=12) included two United States studies representing African American and Korean informal caregivers. The remaining studies were conducted in other countries. Informal caregivers expressed a desire for professional support during the nursing home transition, increased staff knowledge of dementia, and improved resident engagement. These findings highlight the paucity of informal caregivers identifying as Black, Indigenous, or people of color represented in US nursing home dementia research. Future efforts must include communities of color.

2020 ◽  
pp. 073346482094665
Author(s):  
John R. Bowblis ◽  
Weiwen Ng ◽  
Odichinma Akosionu ◽  
Tetyana P. Shippee

This study examines the racial/ethnic disparity among nursing home (NH) residents using a self-reported, validated measure of quality of life (QoL) among long-stay residents in Minnesota. Blinder–Oaxaca decomposition techniques determine which resident and facility factors are the potential sources of the racial/ethnic disparities in QoL. Black, Indigenous, and other People of Color (BIPOC) report lower QoL than White residents. Facility structural characteristics and being a NH with a high proportion of residents who are BIPOC are the factors that have the largest explanatory share of the disparity. Modifiable characteristics like staffing levels explain a small share of the disparity. To improve the QoL of BIPOC NH residents, efforts need to focus on addressing systemic disparities for NHs with a high proportion of residents who are BIPOC.


2021 ◽  
pp. 10-34
Author(s):  
Jim Freeman

This chapter begins by recounting the experiences of Anna Jones, Carlil Pittman, and Mónica Acosta who endured a persistent emotional and psychological torture that comes from the knowledge that their lives, or the lives of their children, are not valued as much as others. It analyses how the systemic racial injustice affects communities of color across the United States, and persuades more people to listen to what people of color are saying about the challenges they face and how they should be addressed. The chapter also discusses that the residents of the communities of color share a set of common experiences, some of which are similar to the predominantly white communities, and some of which are remarkably different. The chapter then describes how, and why, ultra-wealthy leaders from Corporate America and Wall Street are the driving force behind many of the public policies that uphold systemic racism and cause severe harm to communities of color across the country. It unveils how the nation's mass criminalization and incarceration system can be traced back to the leaders of many of the largest and best-known corporations in the United States, Wall Street banks, private prison companies, and the Kochs' network of ultra-wealthy allies. Ultimately, the chapter explores how many of the same individuals and organizations have played a significant role in the creation of the extreme anti-immigrant policies that have plagued millions of migrants for decades.


2021 ◽  
Vol 3 ◽  
Author(s):  
Tony G. Reames

Over the last decade, the United States has experienced continued growth in residential rooftop solar photovoltaic (PV) adoption. However, solar adoption disparities have been shown across household income, homeownership status, and more recently racial and ethnic demographics. A key component to ensuring a just clean energy transition is understanding the existing landscape to establish realistic goals. Motivated by studies on solar adoption disparities, this descriptive study aims to evaluate the distribution of estimated single-family rooftop potential across racial and ethnic majority census tracts to discern whether rooftop potential disparities may justify solar adoption disparities. Across all census tracts, the median rooftop potential was 80%. Three-fourths of all census tracts had a rooftop potential >72%, regardless of racial/ethnic majority. Compared to majority-white census tracts, majority-Black, majority-Hispanic, and majority-Asian census tracts had slightly lower rooftop potential, 6, 7, and 9%, respectively, while majority-American Indian census tracts had an 11% higher rooftop potential. The slightly lower rooftop potential in communities of color compared to majority-white and non-racial/ethnic majority census tracts, alone, was not of the magnitude to justify documented racial/ethnic disparities in solar adoption. This study concludes, that while a majority of homes in communities of color are solar suitable, an equitable clean energy transition is only possible with policies, programs, and incentives that center on racial equity while recognizing the interplay between race, income, and homeownership status.


Sociology ◽  
2020 ◽  
Author(s):  
Arturo Aldama ◽  
Laura Malaver ◽  
Shawn O'Neal ◽  
Alejandra Benita Portillos

White-supremacist violence; theft of land and resources; the genocide of indigenous peoples and the horrors of violence of stolen and enslaved human beings to build wealth for their colonial overlords, countries, and empires in the United States, the Caribbean, and the Americas; and xenophobic and racialized exploitations of labor produced by people of color are core aspects of US history. The issues, spectacles, histories, and lived experiences of race, racism, and racial, gender, and sexual violence drive the structural oppression of nonwhite communities in the United States and have unique trajectories while also developing unevenly and relationally within shared histories of racial, gender, and sexual violence and economic exploitation. Violence toward people of color started with first contact between European colonizing forces and indigenous communities in the late 15th century. From the late 15th century to the 21st century, the spectacles of lynching; vigilantism; Jim Crow / Juan Crow segregation practices; the imposition of boarding schools and the documented physical, psychological, and sexual violence inflicted on indigenous children; and the extreme anti-Chinese violence of vigilante race riots and xenophobic immigration laws are all legacies continuing into the 2020s. In the 20th century, a range of organized systems and acts of violence continued and emerged, from white-supremacist and patriarchal authority on communities of color; race riots; lynching; massacres; and unlawful imprisonments to the 1943 zoot suit riots, deportation, other acts of state-driven violence, and the rise of mass incarceration. Acts of domestic terrorism by white-supremacist individuals who see Latinx, Muslims, Jews, and other non-Anglo-Saxon communities as threats and invaders to the US body politic are a central feature of the 21st century. Along with vigilante violence toward communities of color, police brutality and deadly force with impunity continue to traumatize communities of color and foments the racial biopower politics of the 21st century, not to mention the ongoing crisis of domestic and gender-driven violence. This article summarizes a range of sources that speak both to empire- and state-driven and vigilante violence in different time frames toward varying communities in the United States and beyond.


Diabetes ◽  
2020 ◽  
Vol 69 (Supplement 1) ◽  
pp. 1489-P
Author(s):  
SHARON SHAYDAH ◽  
GIUSEPPINA IMPERATORE ◽  
CARLA MERCADO ◽  
KAI M. BULLARD ◽  
STEPHEN R. BENOIT

Long-term care for older adults is highly affect by the COVID-19 outbreak. The objective of this rapid review is to understand what we can learn from previous crises or disasters worldwide to optimize the care for older adults in long term care facilities during the outbreak of COVID-19. We searched five electronic databases to identify potentially relevant articles. In total, 23 articles were included in this study. Based on the articles, it appeared that nursing homes benefit from preparing for the situation as best as they can. For instance, by having proper protocols and clear division of tasks and collaboration within the organization. In addition, it is helpful for nursing homes to collaborate closely with other healthcare organizations, general practitioners, informal caregivers and local authorities. It is recommended that nursing homes pay attention to capacity and employability of staff and that they support or relieve staff where possible. With regard to care for the older adults, it is important that staff tries to find a new daily routine in the care for residents as soon as possible. Some practical tips were found on how to communicate with people who have dementia. Furthermore, behavior of people with dementia may change during a crisis. We found tips for staff how to respond and act upon behavior change. After the COVID-19 outbreak, aftercare for staff, residents, and informal caregivers is essential to timely detect psychosocial problems. The consideration between, on the one hand, acute safety and risk reduction (e.g. by closing residential care facilities and isolating residents), and on the other hand, the psychosocial consequences for residents and staff, were discussed in case of other disasters. Furthermore, the search of how to provide good (palliative) care and to maintain quality of life for older adults who suffer from COVID-19 is also of concern to nursing home organizations. In the included articles, the perspective of older adults, informal caregivers and staff is often lacking. Especially the experiences of older adults, informal caregivers, and nursing home staff with the care for older adults in the current situation, are important in formulating lessons about how to act before, during and after the coronacrisis. This may further enhance person-centered care, even in times of crisis. Therefore, we recommend to study these experiences in future research.


Genealogy ◽  
2021 ◽  
Vol 5 (2) ◽  
pp. 32
Author(s):  
Araceli Orozco-Figueroa

Recently, Black, Indigenous, and other People of Color (BIPOC) have encountered an escalation in adverse social conditions and trauma events in the United States. For individuals of Mexican ancestry in the United States (IMA-US), these recent events represent the latest chapter in their history of adversity: a history that can help us understand their social and health disparities. This paper utilized a scoping review to provide a historical and interdisciplinary perspective on discussions of mental health and substance use disorders relevant to IMA-US. The scoping review process yielded 16 peer reviewed sources from various disciplines, published from 1998 through 2018. Major themes included historically traumatic events, inter-generational responses to historical trauma, and vehicles of transmission of trauma narratives. Recommendations for healing from historical and contemporary oppression are discussed. This review expands the clinical baseline knowledge relevant to the diagnosis, treatment, and prevention of contemporary traumatic exposures for IMA-US.


2021 ◽  
Vol 7 (18) ◽  
pp. eabf4491
Author(s):  
Christopher W. Tessum ◽  
David A. Paolella ◽  
Sarah E. Chambliss ◽  
Joshua S. Apte ◽  
Jason D. Hill ◽  
...  

Racial-ethnic minorities in the United States are exposed to disproportionately high levels of ambient fine particulate air pollution (PM2.5), the largest environmental cause of human mortality. However, it is unknown which emission sources drive this disparity and whether differences exist by emission sector, geography, or demographics. Quantifying the PM2.5 exposure caused by each emitter type, we show that nearly all major emission categories—consistently across states, urban and rural areas, income levels, and exposure levels—contribute to the systemic PM2.5 exposure disparity experienced by people of color. We identify the most inequitable emission source types by state and city, thereby highlighting potential opportunities for addressing this persistent environmental inequity.


2021 ◽  
Vol 8 (1) ◽  
pp. 205510292110009
Author(s):  
Bente Nordtug ◽  
Wenche K Malmedal ◽  
Rigmor Einang Alnes ◽  
Kari Blindheim ◽  
Gunn Steinsheim ◽  
...  

This qualitative study explores informal caregivers’ experiences of supporting persons with dementia’s everyday life coping. In the future, there will be fewer health personnel, increased dementia prevalence and limited nursing home availability. Accordingly, close relatives may be compelled to assume greater care responsibilities. Knowledge concerning persons with dementia’s everyday coping from the perspective of informal caregivers remains insufficient, despite these people’s importance for those with dementia. This investigation analyses informal caregivers’ perceived challenges and pleasures in providing care, how home health care affects everyday life coping and the factors that are most important to informal caregivers in supporting care receivers.


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