scholarly journals QOLP-27. NEURO-ONCOLOGICAL PATIENTS' AND CAREGIVERS' PSYCHOSOCIAL BURDEN DURING THE COVID-19 PANDEMIC – A PROSPECTIVE STUDY WITH QUALITATIVE CONTENT ANALYSIS

2021 ◽  
Vol 23 (Supplement_6) ◽  
pp. vi188-vi189
Author(s):  
Mirjam Renovanz ◽  
Julia Binswanger ◽  
Carolin Kohl ◽  
Felix Behling ◽  
Susan Noell ◽  
...  
Keyword(s):  
Content Analysis ◽  
Brain Tumor ◽  
Qualitative Content Analysis ◽  
Well Being ◽  
Psychosocial Assessment ◽  
Considerable Proportion ◽  
Psychosocial Burden ◽  
Public And Private ◽  
Oncological Patients ◽  
A Prospective Study

Abstract OBJECTIVE The COVID-19 pandemic may reinforce psychosocial distress of neuro-oncological patients. We aimed to 1) differentiate the burden caused by the pandemic vs. the tumor and 2) establish topics relevant for brain tumor patients (BTPs) and caregivers. METHODS Patients and caregivers were prospectively assessed from April 2020 – July 2020 by a 10-item comprising interview over the phone, including qualitative and quantitative questions. They were quantitatively evaluated i.a. by the Distress Thermometer (DT, score 1-10). The qualitative questions were analyzed using structured content analysis: The interview questions defined the main categories. Subcategories were derived by an inductive approach assessing the frequency of patients' and caregivers' answers. RESULTS A total of 69 patients and 20 caregivers were interviewed; n= 36 were female (49%), mean age was 53 years (range 32-81). Patients' disease-related DT scores were higher than the COVID-19-related DT scores: the median of the disease-related DT score was 7 (range 2-10) vs. median of COVID-19-related distress: 5.0 (range 2-7). Caregivers perceived a higher burden due to the disease (DT median disease: 8; range 2-10 vs. DT pandemic: 3, range 0-10). A total of 5 main and 21 subcategories were elaborated, most frequently mentioned were "restrictions in public and private affairs" (28%), "changes in the psychological well-being" (23%), "limited social interaction by contact restriction" (25%). Subcategories relevant for caregivers were similar to those of BTPs. CONCLUSION A considerable proportion of patients and caregivers still perceived the brain tumor disease as more burdensome than the pandemic. We established main and subcategories of interview items possibly of great relevance to patients during these difficult times, which could be implemented in the content-related adaption of the psychosocial assessment.

Reddit and Brain Cancer: A Content Analysis of Online Communication on the Brain Tumor Subreddit (Preprint)

2021 ◽  
Author(s):  
Sanidhya D. Tripathi ◽  
Pearman D. Parker ◽  
Arpan V. Prabhu ◽  
Kevin O. Thomas ◽  
Analiz Rodriguez
Keyword(s):  
Content Analysis ◽  
Brain Tumor ◽  
Brain Tumors ◽  
Emotional Processing ◽  
Qualitative Content Analysis ◽  
Online Communication ◽  
Virtual Community ◽  
Community Members ◽  
Qualitative Descriptive ◽  
Met Needs

BACKGROUND Many brain tumor patients commonly utilize online resources such as Reddit as avenues for self-management and support outside of the clinical setting. OBJECTIVE We aimed to examine trends from Reddit discussion treads on brain tumors to identify areas of need in patient care. METHODS We used a qualitative, descriptive design to understand patient and caregivers unmet and met needs. We analyzed the top 100 posts from the ‘braincancer’ subreddit to identify common themes. RESULTS The qualitative content analysis revealed three major topic areas: (1) harnessing hope; (2) moving through the grief process; and (3) expressing gratitude toward other Reddit users. Most of the authors of the posts were patients with brain tumors (n = 32; 36.4%) who used Reddit as a reflective journaling tool to process associated emotions of a challenging diagnosis. CONCLUSIONS This study shows the potential of Reddit to serve as unique group therapy platform for patients affected by brain tumors. Additionally, the results highlight the importance of recommending Reddit as a therapeutic virtual community. Our results highlight the support provided by the Reddit community members as a unique mechanism to assist cancer survivors and caregivers with the emotional processing of living with brain tumors.

scholarly journals Reasons to stop drinking alcohol among patients with rheumatoid arthritis in Sweden: a mixed-methods study

BMJ Open ◽  
2018 ◽  
Vol 8 (12) ◽  
pp. e024367 ◽  
Author(s):  
Ingrid Larsson ◽  
Maria L E Andersson
Keyword(s):  
Rheumatoid Arthritis ◽  
Content Analysis ◽  
Mixed Methods ◽  
Qualitative Content Analysis ◽  
Well Being ◽  
Work And Family ◽  
Drinking Alcohol ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Open Question

ObjectivesThe aims were to identify patients with rheumatoid arthritis (RA) who had stopped drinking alcohol and compare them with patients drinking alcohol, and to explore reasons for stopping drinking alcohol.DesignA sequential explanatory mixed methods design was used.SettingSix rheumatology clinics in Southern Sweden Better Anti-Rheumatic FarmacOTherapy cohort.ParticipantsA total of 1509 patients completed the questions about alcohol and were included in the study. 86 of these had stopped drinking alcohol and 72 responded to the open question and their answers were analysed with qualitative content analysis.Outcome measuresThe quantitative data were from a cross-sectional survey assessing disease severity, physical function (Health Assessment Questionnaire, HAQ) and health-related quality of life (EuroQol five dimensions, EQ5D), pain, fatigue, patient global assessment (PatGA) and lifestyle factors, for example, alcohol. The questions assessing alcohol included an open question ‘Why have you stopped drinking alcohol?’ResultsThe patients who stopped drinking alcohol were older (median (min-max) 69 (36–90) vs 66 (23–95), p=0.011), had worse HAQ (1.00 (0–2.75) vs 0.50 (0–3.00), p<0.001), worse EQ5D (0.69 (−0.02–1.00) vs 0.76 (−0.58–1.00), p<0.001) worse PatGA (5 (0–10) vs 3 (0–10), p<0.001), more pain (5 (0–10) vs 3 (0–10), p<0.001) and more fatigue (6 (0–10) vs 4 (0–10), p<0.001 compared with patients drinking alcohol. The qualitative content analysis revealed five categories describing reasons for patients with RA to stop drinking alcohol: illness and treatment; health and well-being; work and family; faith and belief; and dependences and abuse.ConclusionsThe patients who had stopped drinking had worse physical functioning and higher levels in pain-related variables. Most stopped drinking due to their illness or a desire to improve health.

scholarly journals Hospital and nursing home patients’ experiences with delirium assessments: A qualitative content analysis

2019 ◽  
Vol 40 (1) ◽  
pp. 52-58
Author(s):  
Helle Svenningsen ◽  
Dorthe Sørensen
Keyword(s):  
Content Analysis ◽  
Nursing Home ◽  
Qualitative Method ◽  
Healthcare Professionals ◽  
Qualitative Content Analysis ◽  
Well Being ◽  
Relevant Information ◽  
Delirium Assessment ◽  
Face To Face ◽  
Nursing Home Patients

To explore hospital and nursing home patients’ experiences with delirium assessments and better understand their attitudes, we used a qualitative method to summarise, in everyday terms, specific events observed by researchers and experienced by patients. We performed participant observations of delirium assessments of eight patients and conducted individual semi-structured face-to-face interviews with seven other patients. We carried out content analysis using an inductive approach. Our findings indicate that patients approached delirium assessment with initial scepticism due to a lack of knowledge. Their scepticism changed to complete acceptance after the assessment’s purpose was explained. However, some patients gave up on the assessment due to cognitive challenges, lack of energy, fatigue, or language barriers. Patients appreciated that professionals were interested in their mental and physical well-being. Despite initial scepticism, the patients found the delirium assessment valuable when they better understood its purpose. Thus, healthcare professionals should provide patients with relevant information about delirium assessments.

Grandparenting - A Matter of Love and Care: A Review of the Literature 1990-2000

2002 ◽  
Vol 6 (3) ◽  
pp. 55-62 ◽  
Author(s):  
Elisabeth O.C. Hall,
Keyword(s):  
Content Analysis ◽  
Literature Review ◽  
Qualitative Content Analysis ◽  
Well Being ◽  
Analysis Data ◽  
Health Problems ◽  
Future Research ◽  
Review Of The Literature ◽  
Human Caring ◽  
Health And Well Being

This article presents findings from a literature review concerning grandparenting in healthcare. Using qualitative content analysis, data were collected from CINAHL and organized in three categories: transition to grandparenthood; grandparental roles; and grandparental health and well-being due to transitions and roles. The review demonstrated a growing number of studies on grandparents rearing grandchildren and sparse studies on other issues. Grandparenting is discussed in a human caring paradigm as a phenomenon based on love and care, and as containing suffering that gives health problems. Directions for future research encompass how nurses include grandparents in the care of the sick grandchild.

The challenge of integrating justice and care in neonatal nursing

2011 ◽  
Vol 19 (1) ◽  
pp. 80-90 ◽  
Author(s):  
Elisabeth O C Hall ◽  
Berit S Brinchmann ◽  
Hanne Aagaard
Keyword(s):  
Content Analysis ◽  
Moral Distress ◽  
Qualitative Content Analysis ◽  
Ethics Of Care ◽  
Well Being ◽  
Neonatal Care ◽  
Neonatal Nursing ◽  
Small Things ◽  
Justice And Care ◽  
Health And Well Being

The aim of this study was to explore neonatal nurses’and mothers of preterm infants’experiences of daily challenges. Interviews took place asking for good, bad and challenging experiences. Data were analysed using qualitative content analysis and findings were clustered in two categories: good and challenging experiences, each containing three themes. The good experiences were: managing with success as a nurse, small things matter for mothers, and a good day anyhow for mothers and nurses. The challenging experiences were: mothering in public, being pulled between responsibilities, and adverse things stick under the nurses’skin. The study shows that small daily clinical matters become big issues and could lead to moral distress, and that nurses integrate ethics of justice and ethics of care while mothers are concerned about health and well-being of their specific infant only. The challenge for nursing to integrate fairness and sensitive care in family-oriented neonatal care is discussed.

scholarly journals Game Streamers’ Practices on Twitch and Management of Well-Being

2021 ◽  
Vol 4 (1) ◽  
Author(s):  
Valerie Yu ◽  
Katrina Alvarez ◽  
Vivian Chen
Keyword(s):  
Content Analysis ◽  
Coping Strategies ◽  
Qualitative Content Analysis ◽  
Academic Research ◽  
Well Being ◽  
Negative Effects ◽  
Psychological Well Being ◽  
Noticeable Increase

There has been a noticeable increase in coverage and academic research on the physical and psychological well-being of game streamers. Existing studies have identified challenges and possible negative effects to streamers’ well-being, and they have also explored how streamers utilize the technological features of streaming platforms in their streaming practices. However, scant research has investigated the links between the use of platform features and the management of well-being issues. This study examined how streamers use technological features, the negative well-being issues of streamers, and their coping strategies for these issues. Based on a qualitative content analysis of 23 hours of video interviews with 23 different game streamers discussing well-being issues related to streaming, findings indicate that challenges to well-being arise from prioritizing different outcomes in their streaming practices, and it is game streamers’ resilience and self-aware platform feature use that enables them to face these challenges.

scholarly journals Digitalisierte Bewegungsentwicklung geriatrischer Traumapatient*innen

2021 ◽  
pp. 285-292
Author(s):  
Laura Cerullo
Keyword(s):  
Content Analysis ◽  
Literature Review ◽  
Qualitative Content Analysis ◽  
Geriatric Trauma ◽  
Trauma Patients ◽  
Rehabilitation Process ◽  
Geriatric Traumatology ◽  
Movement Data ◽  
One Year ◽  
A Prospective Study

As part of a prospective study on the usability of activity trackers in geriatric traumatology, Laura Cerullo is investigating the extent to which digital motion feedback can be used for the population of geriatric trauma patients. Based on a literature review, she designed a feedback on movement data using a tablet PC. The feedback took place in a rhythm of four weeks over a period of up to one year. The evaluation of the feedback is carried out by a qualitative content analysis of observation protocols as well as guideline-based interviews. The author concludes that the motion feedback could be used as a motivating element in the rehabilitation process.

scholarly journals A Study of Nurses’ Stress Management in Facing and Caring for COVID-19 Patients: A Qualitative Content Analysis

2021 ◽  
Author(s):  
Mahboobeh Hosseini Moghaddam ◽  
Zinat Mohebbi ◽  
Banafsheh Tehranineshat
Keyword(s):  
Content Analysis ◽  
Stress Management ◽  
Personal Growth ◽  
Professional Growth ◽  
Qualitative Content Analysis ◽  
Well Being ◽  
Teaching Hospitals ◽  
Individual Interviews ◽  
The Face ◽  
Qualitative Descriptive

Abstract Background Being in the frontline of the battle against COVID-19, nurses need to be capable of stress management to maintain their physical and psychological well-being in the face of a variety of stressors. The present study aims to explore the challenges, strategies, and outcomes of stress management in nurses who face and provide care to COVID-19 patients. Methods The present study is a qualitative descriptive work that was conducted in teaching hospitals affiliated with Shiraz University of Medical Sciences, Iran, from June 2020 to March 2021. Fourteen nurses who were in practice in units assigned to COVID-19 patients were selected via purposeful sampling. Data were collected through semi-structured, individual interviews conducted online. The collected data were analyzed using MAXQDA 10 according to the conventional content analysis method suggested by Graneheim and Lundman. Results The data collected in the interviews resulted in 14 subcategories under 4 main categories: providing care with uncertainty and anxiety, facing psychological and mental tension, creating a context for support, and experiencing personal-professional growth. Conclusions Despite their concern over contracting the infection and transmitting it to their families, nurses feel compelled to provide professional care to patients under all circumstances. Work overload and working in exhausting conditions lead to nurses’ physical and psychological burnout, thus their need for the support of authorities and their families. Based on the nurses’ experiences, the primary outcomes of caring for COVID-19 patients are personal growth and professional empowerment.

scholarly journals Nursing Student's Experiences of Meditation on Twin Hearts During Eight Weeks Practice: A Qualitative Content Analysis

2021 ◽  
Vol 7 ◽  
pp. 237796082110521
Author(s):  
B.M. Meena ◽  
B. Manasa ◽  
Vinu Vijayakumar ◽  
Kiran Kumar K. Salagame ◽  
Srikanth N. Jois
Keyword(s):  
Content Analysis ◽  
Nursing Students ◽  
Qualitative Content Analysis ◽  
Well Being ◽  
Self Healing ◽  
Study Program ◽  
Loving Kindness ◽  
Entire Society ◽  
Problem Awareness ◽  
Physiological Reactions

Background Meditation on Twin Hearts (MTH) involves blessing the earth to alleviate the sufferings, and praying for the well-being of the entire society using heart and crown chakra. This meditation is characterized by mechanisms of loving-kindness, self-healing imagery, and open awareness. Purpose This study aims to identify the experiences and perceived benefits associated with practicing MTH by nursing students. Method Qualitative method using content analysis was used to study meditation experiences. After obtaining the informed consent, 22 nursing students were introduced to MTH. Experiences and feedback from meditation sessions were reported each day during their 8 week practice. Nursing students also answered seven open-ended questions on the last day of the meditation session. Findings The verbatim descriptions of experiences reported by nursing students were abstracted to elements (17), properties (6), and categories (2). Identified properties are positive experiences, experiences of awareness, energy experiences, tangible outcomes, physiological reactions, and feedback on the study program. Conclusion The experiences narrated by nursing students include positive affective experiences, health benefits, resolution of problem, awareness and energy experiences, and prosocial tendencies. These findings indicate that MTH would enhance the well-being of the nursing students and could be used as a self-care measure.

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