Some psycho-social consequences of multiple sclerosis: Problems of social interaction and group identity

1979 ◽  
Vol 52 (4) ◽  
pp. 321-331 ◽  
Author(s):  
Agnes Miles
Author(s):  
Abdolghani Abdollahi Mohammad ◽  
Mohammad Reza Firouzkouhi

Introduction: Quantitative research is not suitable for COVID pandemic research because it does not cover the social consequences of qualitative research. COVID 19 is a social event that is important because of the disruption of the natural order of society. To defeat the disease, social interaction is needed, so qualitative research is appropriate to find the challenges and experiences of society. Therefore, due to the inconsistency of people's health behaviors with epidemiological models, people's vulnerability in epidemics, unexpected consequences or surprising results, extracting participants' experiences from medical procedures and revealing flexibility in the face of social problems, the use of qualitative research in this pandemic that will be important.


2019 ◽  
Vol 27 (4) ◽  
pp. 277-282
Author(s):  
Roberto E Mercadillo ◽  
Ricardo Mosco-Aquino ◽  
Nayeli Páez-Martínez

Inhalant abuse is a global issue with major behavioral, cognitive, and social consequences. Some effects of this abuse are observed in memory deficits, but the organism–environment interactions are poorly understood. We propose that studying environmental enrichment (EE) in animal models allows the elucidation of adaptive behavior mechanisms to face harmful effects, as well as plausible translational interventions; however, the effects of the different elements that comprise the complexity of EE must be determined. In this work, we measured the effects of housing under five environments for 4 weeks on memory impairments induced by the repeated administration of toluene in mice (4000 ppm, 30 min/day for 4 weeks). Recognition memory was recovered after housing in a complete enriched environment involving voluntary exercise with running wheels, cognitive stimulation with objects to explore, and social interaction. However, enrichment with only voluntary exercise in social conditions produced a significant memory recovery. In addition, EE in isolation showed fewer beneficial effects, while cognitive stimulation, even under social conditions, did not reverse the memory impairment by itself. We argue that physical exercise and social interaction could derive in cognitive enhancement and be used to advise on psychosocial interventions.


2019 ◽  
Vol 13 (2) ◽  
pp. 11-17
Author(s):  
Katarzyna Wiktorzak ◽  
Sylwia Szafraniec-Byryło ◽  
Urszula Jaworska ◽  
Melania Brzozowska ◽  
Waldemar Wierzba ◽  
...  

Background: Multiple sclerosis is a chronic and highly debilitating disease with very high economic and social consequences. Designing changes to improve the functioning of the healthcare model primarily requires learning about the needs of beneficiaries. Aim of the study: The purpose of our study is the results’ description and summary of conclusions of the research conducted in the past years. These results are currently being used for the construction of a coordinated care model for MS patients. Material and methods: One questionnaire survey addressed to MS patients, carried out between 01.12.2013 and 01.02.2014 and the second one addressed to Polish and European medical professionals, carried out between 01.09.2016 and 04.10.2016 performed in 51 European centers and 2 branches of the Turkish Association of patients with MS. Results: In the first survey 84.4% patients declared that during the illness they received mental support mostly from their family: 48.5% received it from physicians; 42.1% from a nurse. 64.8% of the respondents declared that they received no support from social organizations and 77.6% received no support from religious organizations. According to the results of the survey for healthcare professionals in Poland and Europe, in 54.9% of the European institutions and in 22.4% of the Polish institutions, dedicated IT systems are used for processing MS patients’ data. Among institutions using IT, 52.9% of the European and 10.1% of the Polish ones keep the patient’s entire documentation, as well as a patient satisfaction survey, in an IT system. Conclusions: Based on our studies described above, the patients’ needs, resources and capabilities seem to indicate that the scale of system inefficiencies is such that remodeling care for this well-defined group of patients is justified and feasible.


2009 ◽  
Vol 4 (2) ◽  
pp. 58
Author(s):  
David Bates ◽  

Multiple sclerosis (MS) is a chronic, disabling condition with severe clinical and social consequences. Current first-line disease-modifying treatments have limited efficacy and do not halt long-term disease progression in the majority of patients. Natalizumab (Tysabri®) is the only monoclonal antibody licensed for use in relapsing–remitting MS (RRMS). It is regarded by many neurologists as the most effective MS drug on the market today, and has the potential to re-define successful MS therapy. Its efficacy has been demonstrated both in large-scale clinical trials and in post-marketing settings. Beneficial effects include reduction of relapse rates and disease progression and magnetic resonance imaging (MRI) measures of disease activity. Natalizumab treatment has a substantial impact on patient quality of life. Moreover, patients have shown significant improvement following natalizumab treatment, making continuing clinical remission a realistic goal in MS for the first time. However, the benefits of natalizumab must be balanced against risk. Progressive multifocal leukoencephalopathy (PML) is a rare event associated with natalizumab treatment that may be minimised with a risk management plan to educate physicians on patient selection and management.


2020 ◽  
pp. 144-184
Author(s):  
Matt Jackson-Mccabe

This concluding chapter demonstrates how one can get around the problems created by Jewish Christianity by approaching the question of the origins of Christianity and the Christianity–Judaism division as a study in the production and dissemination of ancient social taxonomies. The central question from this perspective is neither the similarities and differences in culture nor even the social interaction among ancient Christians and Jews, but how early Jesus groups imagined themselves and their characteristic cultures in relation to Judeans and theirs. At what point did some Jesus groups begin to assert that Judeans and their distinguishing culture were, per se, “other” and to reify that difference by postulating a distinction between Christianism and Judaism? Whatever its various social consequences, how widespread was this taxonomy before its imperial adoption in the centuries after Constantine? Through an examination of a few exemplary cases, a significant distinction can be observed well into late antiquity between Jesus groups who made sense of their social experience with reference to such a notion of Christianism and those who did not; between those who came to differentiate a new “us” from the Judeans and the Nations alike, and those for whom Judeans and the Nations remained the primary division.


2009 ◽  
Vol 16 (1) ◽  
pp. 121-126 ◽  
Author(s):  
Claudia Christina Hilt Pfleger ◽  
Esben Meulengracht Flachs ◽  
Nils Koch-Henriksen

Multiple sclerosis affects young and middle-aged people and often leads to physical and cognitive handicaps. There is a need for detailed knowledge of the social consequences of the disease. We aim here to describe the course of the working life and career of multiple sclerosis patients at the time of onset and thereafter, in terms of probability of early pension and income development. All 2538 patients with multiple sclerosis in Denmark with disease onset between 1980 and 1989, identified through the Danish MS-Registry, were included in this study. Twenty matched control persons per patient were randomly drawn from the civil registration system. Information on economic status was retrieved from Statistics Denmark. A survival analysis technique was used with onset as the starting point. We found that the probability of remaining without early pension was at 5 years 70% for patients and 97% for controls, and at 20 years 22% for patients and 86% for controls. Due to lower rates for early pension, gross income with time was lower in patients than controls. We conclude that multiple sclerosis seriously affects the economic life of multiple sclerosis patients, even within a few years of onset.


Author(s):  
Guido Giunti ◽  
Maëlick Claes ◽  
Enrique Dorronzoro Zubiete ◽  
Octavio Rivera-Romero ◽  
Elia Gabarron

Introduction: Multiple sclerosis (MS) is one of the world’s most common neurologic disorders. Social media have been proposed as a way to maintain and even increase social interaction for people with MS. The objective of this work is to identify and compare the topics on Twitter during the first wave of COVID-19 pandemic. Methods: Data was collected using the Twitter API between 9/2/2019 and 13/5/2020. SentiStrength was used to analyze data with the day that the pandemic was declared used as a turning point. Frequency-inverse document frequency (tf-idf) was used for each unigram and calculated the gains in tf-idf value. A comparative analysis of the relevance of words and categories among the datasets was performed. Results: The original dataset contained over 610k tweets, our final dataset had 147,963 tweets. After the 10th of march some categories gained relevance in positive tweets (“Healthcare professional”, “Chronic conditions”, “Condition burden”), while in negative tweets “Emotional aspects” became more relevant and “COVID-19” emerged as a new topic. Conclusions: Our work provides insight on how COVID-19 has changed the online discourse of people with MS.


2009 ◽  
Vol 364 (1528) ◽  
pp. 2381-2389 ◽  
Author(s):  
Rick van Baaren ◽  
Loes Janssen ◽  
Tanya L. Chartrand ◽  
Ap Dijksterhuis

One striking characteristic of human social interactions is unconscious mimicry; people have a tendency to take over each other's posture, mannerisms and behaviours without awareness. Our goal is to make the case that unconscious mimicry plays an important role in human social interaction and to show that mimicry is closely related to and moderated by our connectedness to others. First we will position human unconscious mimicry in relation to types of imitation used in cognitive psychology and cognitive neuroscience. Then we will provide support for social moderation of mimicry. Characteristics of both the mimicker and the mimickee influence the degree of mimicry in a social interaction. Next, we turn to the positive social consequences of this unconscious mimicry and we will present data showing how being imitated makes people more assimilative in general. In the final section, we discuss what these findings imply for theorizing on the mechanisms of imitation and point out several issues that need to be resolved before a start can be made to integrate this field in the broader context of research on imitation.


US Neurology ◽  
2010 ◽  
Vol 05 (02) ◽  
pp. 72
Author(s):  
David Bates ◽  

Multiple sclerosis (MS) is a chronic, disabling condition with severe clinical and social consequences. Current first-line disease-modifying treatments have limited efficacy and do not halt long-term disease progression in the majority of patients. Natalizumab (Tysabri®) is the only monoclonal antibody licensed for use in relapsing–remitting MS (RRMS). It is regarded by many neurologists as the most effective MS drug on the market today, and has the potential to re-define successful MS therapy. Its efficacy has been demonstrated both in large-scale clinical trials and in post-marketing settings. Beneficial effects include reduction of relapse rates and disease progression, as well as magnetic resonance imaging (MRI) measures of disease activity. Natalizumab treatment has a substantial impact on patient quality of life. Moreover, patients have shown significant improvement following natalizumab treatment, making continuing clinical remission a realistic goal in MS for the first time. However, the benefits of natalizumab must be balanced against risk. Progressive multifocal leukoencephalopathy (PML) is a rare event associated with natalizumab treatment that may be minimized with a risk management plan to educate physicians on patient selection and management.


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